morning all, thank you for your help.
So have just got latest bloods in.
this is the picture so far...
begining of june started as week knees going up stairs, then more Hyper symptoms- Hot flushing, sweating, weeing alot, skin burning at night, loss of weight, right eye red and puffy. tremors bad night and day, couldn't put shoes on and even in voice. Elevated resting heart with tachy- although previously observed resting heart of 57- but was on thinners after blood clot. so much so at worse burnt 700 calories and hit 3 mins of cardio before lunch and i have a desk job that at the most requires a short walk to canteen. lost 1 stone 3 pounds in 6 weeks and i wasn't massive to begin with just gaining each winter.
14 june 24
T4 25. ( 7.9-14.4) couldn't do TSH not enough blood- they did try 3 seperate times and it was like treacle.
T3 11.4 (3.8-6.0)
Full bloods all normal in range- snipped above
started on 120mg of prop pd- took edge off tremors
28 june 24
TSH <0.02 (0.38-5.33)
TSH receptor abs 8.5 pos >3.3
t4 37.6 ( 8- 18.0 )
T3 10,8 (3.8-6.0 )
Started on 20mg carb- also stripped diet rightly or wrongly, thoughts were low iodine, no gluten, no milk. Found on this forum- suggestions on selenium , iron mag- so added in brasil nut per day, pine nuts, sesame seeds, changed to porridge ( i know- not ness gluten free ) added blueberries, honey rasps and blackberries, cut out refined sugar- added red bush tea. ate alot of lean steak and mushrooms. felt great within 3 weeks. slept great, but then resting heart started dropping- low as 48, in sleep 38. doc dropped prop to 30mg pd.
bloods done 29 july
tried to add gluten back in but tremors seemed to come back along with skin burning
t3 5,2 (3.8-6.0 )
T4 13.8 (8.0-18.0)
TSH <0.02 ( 0.38-5.33)
full bloods o.k. again- will post if needed- not had vit D done
docs dropped carb to 10mg by leaving voicemail. and wrote on notes to endo- sorry bloods done at 4 weeks!!!
starting last week after feeling like social nuciance added some gluten back in, started to get night sweats and trem along with resting heart rising. o.k. in day. then started to get very down, sugar levels seem to rise and struggle to eat and then starving half hour after. started to feel cold in day but when wake in night need cold flanel and fan on.
Got so bad wed didn't go to work and cried so much at husband that he went to docs, - very lovely emergency doc brought bloods forward- had been told last week by shitty man doc over phone that bloods have to be only done 6-8 weeks- so would do them next week at 6 weeks and then ring for a chat a week later when he's back from his 5th hol abroad.
I missed out on my hard saved once every 10 years foreign holiday as i had just been diagnosed with hyper, so my hubby and kids went alone.
Anyway I digress, another doc rang yesterday to say bloods suggest dropping to 5mg carb, but no explanation. I looked at his notes and saw TSH rising so was confused as to why my symptons were tremors, night sweats, massive insomnia- to the point I actually don't think i slept- song playing on loop if i try not to have any thoughts- shittest songs aswell.
finally saw my results this morning and.....
TSH 9.05 ( 0.38-5.3)
T3 4.3 (3.8 -6.0)
t4 8.1 (8.0-18 )
am so hungry- feeling the cold and achy in arms. but still seem to tremor!
What the hell has happened?
Also for those of you that believe, have seen homeopath -i had to turn to one when my daughter was born and had severe reflux, specialist just said suck it up and chucked diff meds at her.
Followed advise- suspected candida overgrowth- alll issues resolved- mostly healthy child.
she was lovely and made me feel more listened to and i trusted her instantly, funny though told me probs with beef, mushrooms (i was getting constipated) tomatoes ect, but also said she was better equiped for hypo issues but would help get core back to strength and to have follow up after bloods.
This is such a roller coaster.
Have no idea of where I'm at but think you guys are right about Hashi- if you'd asked me a year ago which camp i fell into- by symptoms alone- lathargic, dry hair, weight gain, always cold- loved the heat- puffy face, heavy periods after years of no periods- progesterone low- not ovulating. then took off combined pill as had unexplained clot.
Lost friend at work week before blood clot.
lost hubbys mum beginning of last year and then dear nan at 101 at christmas- peacefully at home.
Always anxious as a child, sucked it all up when became big grown up girl- held a lot in. was previously very sweaty and skinny as teen.
Gutted that at 47 just as things were looking up have this thing rapidly taking chunks of me.
Sorry so long have to get this off my chest. Don't want to dis docs too much as they have saved life twice, pre- eclampsia with first at 27 weeks, blood clot, pneumonia and pluerisy for unknown reason but was fist misdiagnosed as pulled muscle. That pain was off the chart.
Had some really good ones and some really bad.
They seem really good at saving lifes, but not very good at follow up, after care investigation.
Have just booked private endo for end oct ( earliest slot)- receptionist was so nice i started blubbing at her.
ordered some blood tests of medichecks- added estrogen ect as well as at 47 think perimenopause is also messing with me.- can't stop crying- am due on in 5 days