Update by Allie323: Hello, its been 27 days since my other post I'm Hashimotos with 1/2 working thyroid who first tried thyroid meds (Armour 15mg. for 2 weeks 11/19 then stopped ) and ironically just stopped being able to fall asleep a year ago Jan2020. ( felt breathing was shallow, weak like air hunger)
I started trying thyroid meds recently(Nov Dec ) and wrote here if U check my old post. I was told to keep trying meds.. Now I'm not good, out of hope which, is impossible for me. I stayed on (self)medication but stopped Jan 6. I did 7-8 weeks. Prior, 14 mo ago, I tried a little Armour, 15mg. I think it made me feel ok, not great, some jitters but only did 2 weeks. 2 months later I couldn't fall asleep. Here now I tried a compounded sustained release T3 4mcg with t4 20mcg capsule I requested. I'm still sensitive to it and thyroid meds. I tried a 5mcg t3 S slow realease capsule (only) for several days too. I went back to t3t4. Felt jittery after few hours or anxious at midday (hyper?) but also felt good at times. T3 release doing this? I had chills, jitter inside, on it, then. later started getting dry sore eyes, throat felt sore, but I kept going. Tried doubling with 40mcgt4 8mcg t3. Felt something good but was concerned with side effects . The last 8 days I switched to 37.5 Synthroid t4 to eliminate the t3, to see if I only needed t4. I thought it was going good but felt bad. Did 25mcg. Added 5mcg t3 SR.better but mouth started burning not good. - I am sensitive to all medications- never took any my adult life nor aspirin. This year I had to do sleep medication and Gabapentin, starting last May. I got all the side effects and have to take low doses now. I also can't use the CPAP very well, can't fall asleep, it's for breathing not falling asleep. Maybe my tongue falls back and wakes me, its enlarged, a hypo symptom too. Also got pins and needles 1 1/2 years ago suddenly, in my toes- now in calves. I believe because I was untreated with my thyroid, this came on.
Off thyroid meds now, 18 days since 1/6. Jan 12 dragged my body in to a new GP my friend said helped her with thyroid when no one could. But he thought I was describing hyper symptoms trying t3t4 or all the thyroid meds I tried. Before he saw my blood work he thought its not my thyroid, maybe another immune disease? Gave me an ANA test and I was negative. So no Sjogrines? maybe burning mouth syndrome from too much thyroid hormone?...sigh. Blood was taken Jan 13. I'm now miserable, stayed in bed last 9 days, went to grocery shop. Dizzy all the time, light headed, burning in mouth, throat lips. Thyrotoxicosis now? Or under medicated, not enough medication, that's my question. Yet something felt good, I was standing stronger when trying thyroid medication. But I got scared about my dry eyes and mouth burn.
My body isn't like others who can try a little dose and just stop and be ok? Stopping Self dosing for 7-8 weeks, I'm still cold, fatigue, loosing my hair very much very sad, can't stand, so dizzy, these are hypo symptoms. and newly aching ALL over and in shoulders, I am now weaker. Got desperate to try all these medications-then didn't know if it could cause TED disease, eyes bulging from being hyper(?) or burning dry mouth-that scared me too, if I don't need meds. Yet I have half a thyroid and 20 years of hypo symptoms, hair loss, skin dry, not sleeping, tingling nerves, constipation, sinus inflamed, fatigue, anxiety bloating, weight loss not gain, etc. Right now I feel some chest pain and tightness with or without meds? Or- it's nerves. Don't even care about eating but trying to.
1/13 blood:Tsh 2.80iU/ml T3free still 2.40pg/ml( 2.2-4.4)no change t4 1.29 up from 1.26ng/dl (.90-1.70) but D 32 (30-100ng/ml) yes always low. B12 up 1,103 (232-1245, was 633, because had 3 b12 shots this winter) Iron 92ug/dls foliate 14.7 tpo antibody 202 tg antibody 349 Cortisol 12.9ug/dl a.m. (6-18.4)
I've changed. I was ok but the last 2 years I became this ill person since I bought/sold this old house that brought on neuropathy, stressed on my feet 2019, then a year later I couldn't fall asleep in Jan 2020. A year later now I still can't fall asleep? I fractured a hip last March from sleep meds, I fell on some stairs. All ok now, but that accident made my neuropathy, not sleeping, hashimotos worse. Had to take Gabapentin for nerve tingling. And this doctor is saying all my blood tests including CBC comprehensive and my thyroid even with antibodies is fine -Jan 13. I was just on thyroid medication does he realize? He suggested CPAP or a Mirtazapine increase 30mg to help me get to sleep. I take 1/4 15mg instead and I slept some more but these 12 months if I sleep any at all I always wake at 2-3am - this drug for sleep its an antidepressant so its not good to get hooked on. I could guess my adrenal glands are messed up even without saliva test, but cortisol tests am or pm are still always in range. I've done several disciplined diets for years, and exercised to help my Hashi symptoms and no thyroid drugs. A private doctor had me do bio estrogen patch and progesterone to help me sleep get balanced, but I stopped that after 3 weeks to do the thyroid hormone. This month I got desperate to survive by myself during Covid, being weak, not sleeping is bad, and not eating a lot, being I'm sad. Not sure thyroid hormone is the answer but what's left? My gut and everything else did not seem to be the problem. I was low energy and hair loss, fatigue and anxiety and dry skin, constipation sinus. clenching teeth, 20 years ago too-and had antibodies tested in 2012. Finally. Enodocrinologist said I had only 1/2 a thyroid- and hashimotos. The surgeon took more than a small piece he told me, at age 15, to remove my little benign nodule.
If anyone can even estimate what is going on with my body at this moment., I was under medicated and jittery or over medicated and jittery. I'm not writing to this GP yet, while lying here, I'm here instead. Wishing I could see inside me if I need the meds or need to clear them out and then do -what? I am now Clueless...it was my last hope, medication. Diet did not fix me these years before. (No one knows so I have to tell them something. ) I can go back to the private functional doctors I pay who prescribed the T3 or T4T3 or Synthroid but don't want to because they didn't have a real plan for me. I'm sensing I'm too hard to diagnose now. Regular doctors don't know how to help me. I'm in St Louis -I should drag myself somewhere if I knew someone. Mayo clinics? How to get in fast...ha. After 12 months of not sleeping and no little improving- I am overwhelmed.