what is central thyroidism?

[KimberinUS]

Hi there,

This is my first thyroid post. I DO NOT TAKE ANY THYROID MEDS. i have been stalking this page for a year. lol these are my test results

oct 2014 12:15 pm non fasting

b12 169, range 200-1100 pg/ml,

vitamin D 20, range 30-100 ng/ml

tsh was .8 range 0.4 -4.50

tt4. 7.1 range 4.5-12.0. 34.6% of range

ft3. 3.0 range 2.3-4.2. 36.8% of range

wbc count 9.5 range 3.8-10.8

rbc 4.42. range 3.8- 5.10

hemoglobin 13.8. range 11.7- 15.5

mcv. 94.4. range 80-100

began taking 220mg b12 combined through a multivitamin and b100 and 5000iu vit D plus A and K daily (as directed by doctor) for 16 months. i could no longer function well enough to work by Oct 2015. i quit working and began forcing myself to exercise 3-4X weekly, starting at 15 mins and working up to 1 hour. i felt worse. every joint hurt including elbows. why would my elbows hurt? i was only walking. i went back to doctor.

Feb 2016 10am non fasting

b12. 246 range 200-1100 pg/ml

D 39. range 30-100 ng/ml

tsh .53 range 0.4-4.50

tt4 6.7 range 4.5-12. 29.3% of range

ft3 2.8 range 2.3-4.2. 26.3% of range

wbc 7.7 range 3.8-10.8

rbc 4.57. range 3.7-5.10

hemoglobin 14.2. range. 11.7-15.5

mcv 95.1. range 80-100

she was unsympathetic. i was told to continue b12 and D tables, so of course i did. i stopped working out, i hurt!! i began taking a serious amount of ibuprofen. 3-4 200 mg pills 3 to 4X daily. Appox 6 months later i began to think i had dementia or Alzheimer's and that in my 40s i was looking at dying in the next couple of years and half way felt that would be a relief.

In May 2017 (15 months later) in desperation i began b12 injections. I could breath better, halfway think again and had some hope i could get well. i did not fully improve with weekly injections so in June 2017 i had a full iron panel.

tibc 319. range 250-450

uibc 251 range 131-425

iron, serum 69 range 27-159

iron saturation percentage 21 range 15-55

ferritin 98 range 15-150

i was told it was fine. it was not! h pylori test not considered yet.

July 2017 9:11am fasting

b12. 814. range 211-946 pg/ml (having injections)

d 70.9. range 30-100 ng/ml. had begun magnesium in May

tsh .724. range 0.45-4.5

no t4 or t3. (idiots! i had requested)

wbc 9.2

rbc 4.67

hemoglobin 14.8

mcv 95

August 2017 i demanded testing for h pylori and was positive. took treatment. felt no better. retested November 2017. still positive. 2nd round of treatment ensued

nov 2017 tests 8:51am fasting

b12 677 range 200-1100 pg/ml (injections)

folate >24 range >5.4 ng/ml normal

tsh .96

ft4 1.4 range 0.8-1.8 ng/dl. 60% of range

ft3 3.2 range 2.3-4.2 pg/ml 47% of range

thyroglobulin anti <1 range < 2

thyroid peroxidase 2 range >9

reverse t3 15. range 8-25 ng/dl

tibc 290. range 250- 450ug/dl

uibc 221 range 125-400 ug/dl

iron, serum 69. range 40-190

iron sat % 24. range 11-50%

ferritin 83. range 10-232 ng/ml

2 days after i finished 2nd h pylori treatment i could smell for first time in at least 4 years. 10 days after treatment i felt great, fantastic! whole new woman, began walking and did so for 8 days until i crashed on day 9. crushing blow physically and emotionally. i want to be well. smell gone, fatigue, brain fog, memory and concentration issues all return.

retested for h pylori feb 2018. negative.

June 2018 8:30 am fasting

b12. 1072. one week after injection

folate 18. range <5.4

iron, serum 109 range 40-190 (just look at that serum iron increase after i finally got rid of h pylori)

iron sat % 35 range 11-50 (significant increase after h pylori treatment)

ferritin 68. range 10-232

tsh 1.3 range .4-4.5

ft4 1.5. range 0.8-1.8

ft3. 3.3 range 2.3-4.2

thyroglobulin anti <1 range < or = 1

thyroid peroxidase 2 range >9

wbc 9.2. range 3.8 to 10.8

hs crp 0.7 range <1 low risk

homocysteine 5.2. range < 10.4

A1C. 5.1 range < 5.7. (you can tell im desperate for a diagnosis when im not over weight, hardly eat sugar and demanding testing for diabetes)

so, except for a constant high in range wbc count, and mid range t4 and t3, my labs look perfect!!!

why am I fatigued, brain fog, concentration issues, vision issues, ect. AND not to make myself sound anymore like a hypochondriac but these symptoms change in intensity from not only day to day but from morning to afternoon to evening. with no consistent pattern.

i only (haha, but really not funny) nap 3-4X weekly now and for 1 to 3 hours, instead of daily for 3 to 4 hours, like i was prior to b12 injections. but that's not ok. I'm too unreliable to work. I'm too unreliable to know with any certainty if i will make it to any function i want to go to, like even fun things with friends!!!

if my doctor fobs this off on depression I'm considering saying....

"really? why is my wbc count so high? will antidepressants kill that low grade chronic infection?" how would you like it if you were physically ill and your doctor suggested you just take an antidepressant?"

i am so frustrated.

please help me. i don't understand central thyroidism.

i will appreciate all options with links please as im brain fogged.

also... what are optimal t4 and t3 numbers if not on any thyroid medication?

this has taken me 4 hours to write.

[loueldhen]

Leaky gut? Causes so many problems of infinite variety.

[KimberinUS in reply to loueldhen]

i dont have any stomach issues such as bloating, gas, or stomach pain. when i had h pylori, my weight had increased to 152 pounds from 137, even though i was eating only once a day and exercising for those 4 months. only issues i had was lack of appetite, nausea in mornings and bowel movements were a large yellow blob for 4 years. 2-3 months after h pylori treated, (stomach healed) bowel movements are now much smaller amount and formed brown tubes. i believe this means my nutrition is actually being absorbed now.

[greygoose]

Central hypo is when you have a problem with the pituitary (Secondary hypo) or the hypothalamus (Tertiary hypo) rather than the thyroid itself (Primary hypo). There is not enough TSH to stimulate the thyroid to make more hormones. So, the TSH but also the FT4 and the FT3.

endocrinologyadvisor.com/en...

[KimberinUS in reply to greygoose]

since my tsh has gone from .96 in Nov 2017 to 1.30 in June 2018 does that rule out central thyroidism?

[greygoose in reply to KimberinUS]

No, that's still very low. But, it depends what your Frees were. You cannot diagnose any form of hypo on the TSH alone.

[Cooper27]

Have you been tested for anything else? I think there are a lot of symptoms in common between Hashimotos and celiac disease for example - do you know if they've checked for any other conditions like that?

If you can afford to, it could be worth seeing a functional practitioner or nutritionist, as they may have some other ideas and will be more sympathetic than your Dr.

[KimberinUS in reply to Cooper27]

i dont have hashimoto or graves per my antibodies tests. i have never been checked for celiac disease. I may have to consider testing. but i barley eat bread, maybe once a week due to just eat healthy, better than ever in fact. I cut out processed foods, drink 8 glasses of water daily- maybe 1 soda every week or 2). i eat like my life depends on it! lol. i never feel better or worse after eating breads. but i have read it can take couple of months after removal before you feel better.

[Cooper27 in reply to KimberinUS]

Sorry, I was just meaning celiac as an example of a condition that can have similar symptoms. There are a few out there! As I say, you might benefit from seeing a functional practitioner to help guide you on tests etc.

[Crzygirl]

I just found another GP, she is surprised I don’t have celiac, pernicious anemia or hashimotos.....I feel the same way, she said she sees many people she’s convinced have some autoimmune problem but our blood tests never show anything! I did start a low dose antidepressant 3 months ago, my depression is somewhat better but unfortunately now the meds make me tired. Cannot win!

[adrienne1972]

It doesn’t look from your results (to me) that you have central hypothyroidism. I would consult a functional dr for a diagnosis !!

[KimberinUS in reply to adrienne1972]

thank you. im certainly not wanting to discuss a possibility with the doctor that makes them think im a hypochondriac.

[Foxtrot89]

I’m so sorry to hear you’ve been struggling for so long and not being listened to properly by your doctor. I have been fobbed off with the antidepressants line before too. Never taken them, and now discovered I have thyroid antibodies so that makes much more sense to me.

Your latest Vitamin D reading is 70.5 in July? Are you still supplementing? I think you could afford to be a bit higher.

I’m no expert on thyroid or Vitamin D but in looking into it for myself I believe you should aim to be above 85, some say even 100. My blood test results says the safe range is below 200. As long as you regularly test you can monitor this.

Also do you still take magnesium? I was getting a lot of aches and pains a couple of weeks ago and upped my magnesium and vitamin D (you definitely need to take Vitamin K as the MK7 form with Vitamin D too). Has really helped!

I can totally relate with the feeling of being too unreliable to work or commit to stuff. Some hours of the day I’m fine then I could just suddenly feel really bad later that day :/

I hope you find some answers.

[KimberinUS in reply to Foxtrot89]

that 70.9 was over a year ago in july 2017. and i live by the ocean now, so i get sun regularly now. i also considered i needed more magnesium when i started getting sun this spring/summer so was taking 450mg daily. i dont think magnesium is my current issue, as when i originally read about magnesium i started taking deep sea salt baths along with suppliments and they had a definite effect on my fatigue and sleep quality but no longer do. i assume this is because im replete from taking it for over a year now.

[Foxtrot89 in reply to KimberinUS]

Ah my mistake! I hadn’t seen it was last year. I hope you can find some answers.

[Hidden]

Hi Kimberly us,

I am a US in UK :). I agree with @cooper27. It may be something else as my symptoms, especially elbows, led to Fibromyalgia diagnosis. Lots of research into links with low VitD, which I have to keep on top of as yourself. It also accounts for severe brain fog. It might not be, but worth looking into?

[McPammy]

Hi. I’m sorry to hear you are having so many issues. Have you had your cortisol checked. I have Hashimoto Disease and my cortisol is constantly too low causing all sorts of issues that still need resolving. Have you had your antibodies checked ?? Try and get cortisol and antibodies done too.

[KimberinUS]

i will discuss cortisol with my dr at my next appointment which is in appox 10 days

[Ginny_Ickle]

This is a bit of a longshot, but are your difficulties worse on long standing, as in a queue? In hot weather? After big meals?

Sometimes the body's autopilot develops a glitch, and stops handling heart rate and blood pressure well, which can have a lot of odd effects.

I have POTS, one of several kinds of partial autonomic dysfunction. Not very common, but not nearly as rare as diagnosis. Intro here:

DynaInc.org/dysautonomia

[KimberinUS in reply to Ginny_Ickle]

im ok with longshot. yes, i have issues just standing in a line. i have to shift around or else i get really tired. and after a largish meal i get very sleepy. i dont know about the hot weather thing. i live in Savannah GA so it is above 80 degrees f here from March thru Nov. Many days there is a "feels like" temp above 100 and i dont sweat due to heat. i have not had many issues with being cold, since h pylori treatment was successful. prior to that my feet, hands and nose were cold at 75 degrees and i would wear sweatshirts and such and run hands under warm water. my ex boyfriend would say my shower and bathwater temperatures were scalding to him. thank goodness that is over.

thank you. i will read up on the link.

[Ginny_Ickle in reply to KimberinUS]

I have hypohydrosis (inadequate sweating), too! It makes heat really hard to survive, doesn't it?

Good luck.

If when you read up, it still sounds familiar, the Dysautonomia International website has information about doctors and clinics familiar with these issues.