Why? I'm assuming the tsh is putting them off but your t4 is middling at best. And why suggest that it be reduced from 100/125 to 75??? It is only a tiny bit under the range - if anything I'd expect them to say maybe take your 125 every three days (100 the rest of the time) and retest in six weeks.
What are your pulse, temp and (sorry) bowels like?
Beware of adjusting medication due only to the TSH result. Your Vitamin B12 is on the low side. We should aim to be towards the upper level. You may have to supplement. Low Vit B12 can cause the tingling, pricking.
There is no scientific reason for adjusting your medication. Even Dr Toft says in his article in Pulse Online, that we may need a very low or even suppressed TSH or the addition of some T3 (you could ask Endo to add some T3).
This is from Dr Lowe and cursor to the date January 2, 2002 to read the whole question/answer. 3 Extracts:-
1.What’s most important to realize is this: The variation in how different patients respond to the same TSH or T3 level makes the reference ranges (formerly called the "ranges of normal") for the T3, TSH, or any other hormone totally without value in finding the dose of thyroid hormone that’s safe and effective for individual patients.[1,p.1217].
2. that researchers have scientifically established the safe and effective dose of thyroid hormone for all human beings. That dose, they presume, is one that keeps the TSH and thyroid hormone levels within their reference ranges. This, however, is a false and scientifically unjustified presumption.
3.Many patients know the presumption is false; they know it’s false because they, like you, become and remain ill when their doctors adjust their thyroid hormone dose according to the TSH level. I know the presumption is false for three reasons: (1) I've studied the research literature which shows that the presumption hasn't been established. (2) I've objectively assessed the tissue metabolic status of patients whose thyroid hormone doses were regulated by TSH levels and found the tissues understimulated. And (3), I've seen hundreds of such patients—formerly kept ill by TSH-adjusted thyroid hormone doses—fully recover their health when my cotreating doctors and I treated them in violation of the guidelines of the conventional endocrinology specialty.
Many thanks for your reply, as I have just replied to punturedbicycle I should get my T3 result next month at endo appt. but in Dec. last year it was 4.4 range 3.8 - 6.0 and I was on a higher dose of levo.
pulse varies, anything from 68 to 85 when resting,
bowels on the constipated side but very occasionally the other way (This is about twice a month)
Hoping to get T3 level next month at endo appt. but 3rd Dec. 2013 it was 4.4 range 3.8 - 6.0
and I was taking 125mcg daily then but the month previous I was taking 150mcg but had to reduce to the 125mcg because of severe palpitations and internal shaking.
Yes I did feel better on 125mcg. the niggling anxiety improved but at the endo appt. I saw the edo's registra and because my THS then was 0.05 she said to reduce to 100mcg. I said I felt better on 125mcg. that's when she said I should take alternative 100/125
Yes, I get terrible anxiety even when I reduce my t4, even if I add in extra t3. (I still haven't figured that out.)
If 125 is working for you and your tsh is suppressed but your t3 is in range I can't see the problem. Maybe request the actual consultant next time? (Not that that is any guarantee, but s/he might be a bit more savvy about the tsh if they are good. I saw a useless registrar and requested the consultant and had a better experience next time.)
Thankyou, yes I will ask to see the consultant next, in fact I may ring the clinic the week before to ask if he will be available to see as I don't want to be fobbed off when I go to the appt.
The anxiety is awful isn't it, I feel this is the worse of the symptoms.
Tell your GP the endo will do his nut if your dose is interfered with. GP will either back off or contact the endo and you can coast on for another few weeks.
I'd be inclined to increase meds to 125mcg every day to see if symptoms improved.
The day the tsh is finally seen for what it is will be the day thyroid patients actually get better care,, your actual thyroid levels are as stated in above comments,, plus a further reduction would only surely lower them further,,
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