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Update on my diagnosis.
Hi all, I’ve been very grateful for your support since June. I thought I’d give an update on my condition. After many scans and tests, my new rheumatologist thinks that I have PMR after all. I’m glad we ruled everything else out - including cancer and vasculitis - as I can crack on and deal with getting
Hi all, I’ve been very grateful for your support since June. I thought I’d give an update on my condition. After many scans and tests, my new rheumatologist thinks that I have PMR after all. I’m glad we ruled everything else out - including cancer and vasculitis - as I can crack on and deal with getting
Smallstepsforward
in
PMRGCAuk
2 years ago
Anyone have Zometa infusions
My oncologist has suggested I have
Zometa
infusions every 6 months. I understand there are downsides to consider, including jaw problems. I welcome all insight Thank you in advance!
My oncologist has suggested I have
Zometa
infusions every 6 months. I understand there are downsides to consider, including jaw problems. I welcome all insight Thank you in advance!
Ladydee123
in
SHARE Breast Cancer Support
3 years ago
Results - advice please
Hi everyone, I posted on here a couple of months back saying that I've been having a rough time with severe fatigue, brain fog, joint pain in my legs, sensitivity to cold and dry skin and have been back and forth for blood tests over the last six months, which included an initial diagnosis of underactive
Hi everyone, I posted on here a couple of months back saying that I've been having a rough time with severe fatigue, brain fog, joint pain in my legs, sensitivity to cold and dry skin and have been back and forth for blood tests over the last six months, which included an initial diagnosis of underactive
rustymoon88
in
Thyroid UK
3 years ago
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Osteonecrosis of the Jaw [ONJ]
This 5-year study reports the risk of developing osteonecrosis of the jaw [ONJ] [2] while using Denosumab [Xgeva], Zoledronic acid [
Zometa
] or both for bone mets. The study was not restricted to PCa.
This 5-year study reports the risk of developing osteonecrosis of the jaw [ONJ] [2] while using Denosumab [Xgeva], Zoledronic acid [
Zometa
] or both for bone mets. The study was not restricted to PCa.
pjoshea13
in
Advanced Prostate Cancer
3 years ago
After embryo transfer vitamins omega 3 fish oil- cod liver tablets safe? Please advise?
Omega 3 fish oil - cod liver oil safe after embryo transfer please advise iv been taking it for months this is my last FET try i dont want anything to mess up please help xx
Omega 3 fish oil - cod liver oil safe after embryo transfer please advise iv been taking it for months this is my last FET try i dont want anything to mess up please help xx
Rosie90
in
Fertility Network UK
3 years ago
Xgeva to Zometa
Out of the blue they switched him from Xgeva to
Zometa
due to.... they don't carry Xgeva any longer because it cost too much. By nighttime his bones hurt so bad that he couldn't even walk. Today he is still hurts but is taking extra pain meds.
Out of the blue they switched him from Xgeva to
Zometa
due to.... they don't carry Xgeva any longer because it cost too much. By nighttime his bones hurt so bad that he couldn't even walk. Today he is still hurts but is taking extra pain meds.
erjlg3
in
Advanced Prostate Cancer
3 years ago
Help - Supplement advice
Hi lovely people - wanted to check my current list of supplements with you to see if I'm missing any major ones, before I go into my 2nd ivf cycle. I don't want to overload on a million pills, just wanting a good broad supplement supply. Also could some PM me what coq10/ubiquinol they would recommend
Hi lovely people - wanted to check my current list of supplements with you to see if I'm missing any major ones, before I go into my 2nd ivf cycle. I don't want to overload on a million pills, just wanting a good broad supplement supply. Also could some PM me what coq10/ubiquinol they would recommend
Joeysjourney
in
Fertility Network UK
3 years ago
Low lying placenta and circumvallate placenta!
Hi everyone, I just joined this group. I was member of the fertility group for nearly 2 years. A quick background: Endometriosis and adenomyosis. One laparotomy and one laparoscopy. Removed the tubes. 1st round IVF: MMC at 9 weeks due to SCH 2ed round: no response 3ed round: one egg, one embryo, day
Hi everyone, I just joined this group. I was member of the fertility group for nearly 2 years. A quick background: Endometriosis and adenomyosis. One laparotomy and one laparoscopy. Removed the tubes. 1st round IVF: MMC at 9 weeks due to SCH 2ed round: no response 3ed round: one egg, one embryo, day
Mta209
in
Baby and Us
3 years ago
low lying and circumvallate placenta!
Hi Worries, I have been away for a few months to be able to control and manage my stress and anxiety during this time. A quick update: 1st round IVF: MMC at 9 weeks 2ed round: no response 3ed round: one egg, one embryo, day 2 transfer and positive pregnancy I had my 19 weeks scan on Friday. The baby
Hi Worries, I have been away for a few months to be able to control and manage my stress and anxiety during this time. A quick update: 1st round IVF: MMC at 9 weeks 2ed round: no response 3ed round: one egg, one embryo, day 2 transfer and positive pregnancy I had my 19 weeks scan on Friday. The baby
Mta209
in
Fertility Network UK
3 years ago
Fun weekend.
(does anyone else get achey and sore feet-I'm on Ibrance, Anastrozole and monthly
zometa
and Goserline) Anyway this is me and my eldest yesterday!
(does anyone else get achey and sore feet-I'm on Ibrance, Anastrozole and monthly
zometa
and Goserline) Anyway this is me and my eldest yesterday!
TLLS
in
SHARE Metastatic Breast Cancer
3 years ago
Which pregnancy supplements?
Hi, Does any of you ladies know which pregnancy supplements are best to take after BFP? (IVF)Some contain DHA and Omega 3 and some don’t? Some sites say to take omega 3 from 12 weeks? Is it safe to take at 4 weeks? Any help and advice appreciated. Thank you
Hi, Does any of you ladies know which pregnancy supplements are best to take after BFP? (IVF)Some contain DHA and Omega 3 and some don’t? Some sites say to take omega 3 from 12 weeks? Is it safe to take at 4 weeks? Any help and advice appreciated. Thank you
Baba20
in
Fertility Network UK
3 years ago
For all of you taking Zometa, Prolia, Xgeva
If you are about to have a dental procedure (Teeth extraction, root canal) make sure you tell your dentist you are taking those drugs as they may cause osteonecrosis of the jaw as a result of such procedure, a nasty thing.... I had to go thru such procedure and my dentist wont let it go until I told
If you are about to have a dental procedure (Teeth extraction, root canal) make sure you tell your dentist you are taking those drugs as they may cause osteonecrosis of the jaw as a result of such procedure, a nasty thing.... I had to go thru such procedure and my dentist wont let it go until I told
dorke
in
Advanced Prostate Cancer
3 years ago
Celebrex (celecoxib)and Zometa (zoledronic-acid) . extend life in metasticized PCa. Out of Stampede Trial
https://www.cancernetwork.com/view/zoledronic-acid-celecoxib-may-help-certain-prostate-cancer-patients
https://www.cancernetwork.com/view/zoledronic-acid-celecoxib-may-help-certain-prostate-cancer-patients
Spyder54
in
Advanced Prostate Cancer
3 years ago
Help for a friend with corticobasal degeneration.
Dear forum friends: I have a friend who has been diagnosed with corticobasal degeneration. I can't find much specific information about this atypical parkinsonism. Except for Dr. Costantini's reference in the famous interview (number 30) or the comments on medical cannabis oil, I can't find any information
Dear forum friends: I have a friend who has been diagnosed with corticobasal degeneration. I can't find much specific information about this atypical parkinsonism. Except for Dr. Costantini's reference in the famous interview (number 30) or the comments on medical cannabis oil, I can't find any information
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Good results from Omega 3 and 6
Small (n=40) randomized, double-blind, placebo-controlled study of Neuroaspis PLP10™ (nutritional formula of antioxidant vitamins, omega-3 & omega-6 fatty acids) in early #Parkinsons reports significant improvement in ON state UPDRS (18-30 months) https://www.sciencedirect.com/science/article/abs/pii
Small (n=40) randomized, double-blind, placebo-controlled study of Neuroaspis PLP10™ (nutritional formula of antioxidant vitamins, omega-3 & omega-6 fatty acids) in early #Parkinsons reports significant improvement in ON state UPDRS (18-30 months) https://www.sciencedirect.com/science/article/abs/pii
Buckholt
in
Cure Parkinson's
3 years ago
Advice please
Hi there, I'm new to this forum and would really appreciate some advice. I'm 33, female, average size and for a while have suffered with bouts of very painful hips and knees, crippling fatigue, heavy painful periods, hypersensitivity to cold, including numbness/cramps in my feet, and occasional low blood
Hi there, I'm new to this forum and would really appreciate some advice. I'm 33, female, average size and for a while have suffered with bouts of very painful hips and knees, crippling fatigue, heavy painful periods, hypersensitivity to cold, including numbness/cramps in my feet, and occasional low blood
rustymoon88
in
Thyroid UK
3 years ago
Mediterranean Diet Nutrients
New Italian paper below. [1] Mark Moyad has been saying for many years that "Heart-healthy is prostate-healthy." It is known that men with PCa have a higher risk for cardiovascular-related mortality - even if not on ADT - and that men with PCa often exhibit symptoms of the metabolic syndrome [MetS],
New Italian paper below. [1] Mark Moyad has been saying for many years that "Heart-healthy is prostate-healthy." It is known that men with PCa have a higher risk for cardiovascular-related mortality - even if not on ADT - and that men with PCa often exhibit symptoms of the metabolic syndrome [MetS],
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Supplements -so much information
Hi all I know that we need to take vitamin D as those of us who are light sensitive and stay out of the sun need this, however there is also lots of other suggestions on the internet. I do have inflammatory arthritus and many sites suggest turmeric, other sites suggest fish oil and omega 3. So, for
Hi all I know that we need to take vitamin D as those of us who are light sensitive and stay out of the sun need this, however there is also lots of other suggestions on the internet. I do have inflammatory arthritus and many sites suggest turmeric, other sites suggest fish oil and omega 3. So, for
Cowsaresweet
in
LUPUS UK
3 years ago
Two Questions
Our daughter has Stage 1 breast cancer and must have
Zometa
, but none of the drs know about reducing the individual doses.
Our daughter has Stage 1 breast cancer and must have
Zometa
, but none of the drs know about reducing the individual doses.
Sassy45
in
Advanced Prostate Cancer
3 years ago
Dry ears, eyes etc and Buckthorn Oil Capsules
I came across an article recently for dry eyes, ears etc. Has anyone taken Buckthorn Oil capsules for this? I have just purchased Omega7 which contains [i]Omega 3, 6, 7, 9 and Vit A (beta carotene) which maintains normal structure and function of the skin and mucous membranes, such as the eyes,
I came across an article recently for dry eyes, ears etc. Has anyone taken Buckthorn Oil capsules for this? I have just purchased Omega7 which contains [i]Omega 3, 6, 7, 9 and Vit A (beta carotene) which maintains normal structure and function of the skin and mucous membranes, such as the eyes,
Moggy1234
in
Pernicious Anaemia Society
3 years ago
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