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Help with Co factors
Hi So after at least two long years of trying to get a diagnosis through the GP I have had to resort to SI EOD which my hubby has taken to like a duck to water 😊 However I still don’t really understand which Co factors I should be taking Can anyone recommend a good brand and dosage of folic acid
Hi So after at least two long years of trying to get a diagnosis through the GP I have had to resort to SI EOD which my hubby has taken to like a duck to water 😊 However I still don’t really understand which Co factors I should be taking Can anyone recommend a good brand and dosage of folic acid
Doeyditdot
in
Pernicious Anaemia Society
3 months ago
b12 injections and side effects
hello, I’m new here. I have 6 loading shots of b12 after having a myriad of symptoms (dizziness, shortness of breath, weakness and numbness down one side, headaches, gastro issues, struggling to walk and talk). They are making me feel stronger but I have had some symptoms seem worse on some days (often
hello, I’m new here. I have 6 loading shots of b12 after having a myriad of symptoms (dizziness, shortness of breath, weakness and numbness down one side, headaches, gastro issues, struggling to walk and talk). They are making me feel stronger but I have had some symptoms seem worse on some days (often
polcol
in
Pernicious Anaemia Society
3 months ago
vitamin B1 therapy
Hello Everyone I just want to share with all of us my Facebook’s group 👇 Thiamine & Parkinson https://m.facebook.com/groups/2583265931834415/?ref=share The B1 therapy changed my life, hope it will change your too, so join us 😉 Regards Lorenzo
Hello Everyone I just want to share with all of us my Facebook’s group 👇 Thiamine & Parkinson https://m.facebook.com/groups/2583265931834415/?ref=share The B1 therapy changed my life, hope it will change your too, so join us 😉 Regards Lorenzo
Lolo2022
in
Cure Parkinson's
3 months ago
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so. Is Undifferentiated Connective Tissue Disease latent lupus or lupus?
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
Bigdave79
in
LUPUS UK
3 months ago
Immunologist tomorrow! What to ask?
Hi all, My daughter, who has had Hashimoto's since she was 7, has been very unwell the last school year with constant throat infections, one that tested as strep, but the rest just general unwellness, fatigue, and also stomach problems, of feeling like nothing agrees with her/indigestion. Her primary
Hi all, My daughter, who has had Hashimoto's since she was 7, has been very unwell the last school year with constant throat infections, one that tested as strep, but the rest just general unwellness, fatigue, and also stomach problems, of feeling like nothing agrees with her/indigestion. Her primary
LostinHeadSpace
in
Thyroid UK
3 months ago
Recent blood test results advice please
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
yorkshiregirl4
in
Thyroid UK
3 months ago
Folate/Folic acid supplement
I have been using Folic Acid 5mg oral supplement EOD since starting b12 injections just over three weeks ago. I was getting some loose bowel, so was advised to try Methylfolate every day instead. However I am wondering if I should be using injectable Folic 5mg instead. My problem is malabsorption due
I have been using Folic Acid 5mg oral supplement EOD since starting b12 injections just over three weeks ago. I was getting some loose bowel, so was advised to try Methylfolate every day instead. However I am wondering if I should be using injectable Folic 5mg instead. My problem is malabsorption due
Chickens44
in
Pernicious Anaemia Society
3 months ago
Only mouse study, but interesting research on microbiome using astragaloside and scorpion venom
Astragaloside IV-PESV inhibits prostate cancer tumor growth by restoring gut microbiota and microbial metabolic homeostasis via the AGE-RAGE pathwayXujun You, Junfeng Qiu, Qixin Li, Qing Zhang, Wen Sheng, Yiguo Cao, Wei Fu BMC cancer 24 (1), 472, 2024 Background Prostate cancer (PCa) is becoming the
Astragaloside IV-PESV inhibits prostate cancer tumor growth by restoring gut microbiota and microbial metabolic homeostasis via the AGE-RAGE pathwayXujun You, Junfeng Qiu, Qixin Li, Qing Zhang, Wen Sheng, Yiguo Cao, Wei Fu BMC cancer 24 (1), 472, 2024 Background Prostate cancer (PCa) is becoming the
Graham49
in
Advanced Prostate Cancer
3 months ago
Strange definition of pernicious anemia
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
palmier
in
Pernicious Anaemia Society
3 months ago
Serum parathyroid hormone
Finally, after a year of the labs refusing to test Vit D, I finally had it tested, and as suspected, it was below the bottom of the scale - 23. So back on tablets and spray, and hopefully my leg muscles will start working again... The lab refusing to test has made me ill...grumble, grumble. Anyway
Finally, after a year of the labs refusing to test Vit D, I finally had it tested, and as suspected, it was below the bottom of the scale - 23. So back on tablets and spray, and hopefully my leg muscles will start working again... The lab refusing to test has made me ill...grumble, grumble. Anyway
serenfach
in
Thyroid UK
3 months ago
Clotting
Since taking over my PA treatment with frequent injections, my symptoms have greatly ameliorated. However, there's one thing I hadn't anticipated. Recently I've had to have a couple of teeth extracted. Each time I've ended up in casualty because the bleeding wouldn't stop, and wondered about B12.
Since taking over my PA treatment with frequent injections, my symptoms have greatly ameliorated. However, there's one thing I hadn't anticipated. Recently I've had to have a couple of teeth extracted. Each time I've ended up in casualty because the bleeding wouldn't stop, and wondered about B12.
tomdickharry
in
Pernicious Anaemia Society
3 months ago
Confusing biopsy results
I was diagnosed with PA early 2023 after years of feeling hopeless and helpless, ( raised MCV , low 'normal' serum B12, positive Parietal Cell antibodies, no intrinsic factor antibodies) and I am SI B12 regularly, to which I am responding well, and finally starting to feel like I am coming out the
I was diagnosed with PA early 2023 after years of feeling hopeless and helpless, ( raised MCV , low 'normal' serum B12, positive Parietal Cell antibodies, no intrinsic factor antibodies) and I am SI B12 regularly, to which I am responding well, and finally starting to feel like I am coming out the
DiSews
in
Pernicious Anaemia Society
3 months ago
Cramp plus update
Hi everyone- just thought I would do an update on where I am at the moment. For the first time ever I am on my way down from 3mg to 2 and three quarter mg , never made it this far before without a flare. Very happy about that. I have also gradually stopped using Lansoprazole after 6.5 years. I went
Hi everyone- just thought I would do an update on where I am at the moment. For the first time ever I am on my way down from 3mg to 2 and three quarter mg , never made it this far before without a flare. Very happy about that. I have also gradually stopped using Lansoprazole after 6.5 years. I went
Purplegloss
in
PMRGCAuk
3 months ago
Started Interferon
About two weeks ago I put a post on here about my anxiety around changing my treatment plan from Hydroxy to Peg Interferon. I had been sent the vaccine but not given any specific instruction about how to self inject. I appreciated the advice I was given from others who had trodden this path before
About two weeks ago I put a post on here about my anxiety around changing my treatment plan from Hydroxy to Peg Interferon. I had been sent the vaccine but not given any specific instruction about how to self inject. I appreciated the advice I was given from others who had trodden this path before
Reggieroo
in
MPN Voice
3 months ago
Just unbelievable
Helen's Hashi's Journey continues: History: has a HO hashimotos, and long HO feeling TATT, Sleep is poor, as soon as she lies down get fullness in head and ears this causes poor sleep, No snoring, but wakes with dry mouth and has nasal congestion. Examination: throat NAD- no uvula, chest clar, 95
Helen's Hashi's Journey continues: History: has a HO hashimotos, and long HO feeling TATT, Sleep is poor, as soon as she lies down get fullness in head and ears this causes poor sleep, No snoring, but wakes with dry mouth and has nasal congestion. Examination: throat NAD- no uvula, chest clar, 95
helenshubby
in
Thyroid UK
3 months ago
Peptic Liquid/ Gaviscon & B12 Injections
Hello! I was diagnosed with low B12 at the end of last year and on 3 monthly injections at my GP surgery… following a visit to my ENT consultant for ongoing ear issues and horrendous hay fever, he diagnosed me with silent reflux and suggested Gaviscon.. my question is, when I have my B12 injection would
Hello! I was diagnosed with low B12 at the end of last year and on 3 monthly injections at my GP surgery… following a visit to my ENT consultant for ongoing ear issues and horrendous hay fever, he diagnosed me with silent reflux and suggested Gaviscon.. my question is, when I have my B12 injection would
Hidden
in
Pernicious Anaemia Society
3 months ago
More on D3 supplementation (only if you're really into it)
This may be a bit boring, as well as off-topic; but I was curious; so I looked up a bit more on how much to supplement vitamin D, so as to get the benefits and still be on the safe side.
What's recommended?
In the U.S., the NIH (National Institutes of Health) advises "consumers" to aim for
This may be a bit boring, as well as off-topic; but I was curious; so I looked up a bit more on how much to supplement vitamin D, so as to get the benefits and still be on the safe side.
What's recommended?
In the U.S., the NIH (National Institutes of Health) advises "consumers" to aim for
UsableThought
in
Restless Legs Syndrome
3 months ago
latest bloods ahead of neurology appt tomoz advice needed
hi all Just got my latest bloods is ahead of my neurology appt tomoz and am looking for advice Serum ferritin - 37 down from 54 Serum folate >20 Serum magnesium 0.91 Platelets 120 mine are usually low Serum iron level 16 Transferrin 2.3 I’ve also got low calcium at 2.09 And High anticardiolipin
hi all Just got my latest bloods is ahead of my neurology appt tomoz and am looking for advice Serum ferritin - 37 down from 54 Serum folate >20 Serum magnesium 0.91 Platelets 120 mine are usually low Serum iron level 16 Transferrin 2.3 I’ve also got low calcium at 2.09 And High anticardiolipin
Zenawarrior73
in
Restless Legs Syndrome
3 months ago
How soon can I re-test folate levels?
After getting a low folate blood test, I have changed my diet to greatly increase folate intake (can't tolerate any folate supplement). How soon can I take another blood test to see if my levels have come up? It has been 3 weeks since I changed my diet.
After getting a low folate blood test, I have changed my diet to greatly increase folate intake (can't tolerate any folate supplement). How soon can I take another blood test to see if my levels have come up? It has been 3 weeks since I changed my diet.
Carrie234
in
Thyroid UK
3 months ago
Vitamin B6 in B Complexes
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
Seeking advice on Vitamin B6 in B Complexes. Background: Diagnosed hypothyroid since the late 1990's; switched to T3 liothyronine only since about 2014 because levothyroxine didn't help me . Diagnosed with Parkinson's (finally!) in early 2023. Currently under the care of a movement disorders specialist
chrysalis56
in
Thyroid UK
4 months ago
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