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A victory with my NHS GP! 🥳
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
ClaireWF1346
in
Pernicious Anaemia Society
5 months ago
Yet another mess...
I am coming to the end of my B12 pills and being on the lower pension and every penny counts, wondered if I needed to reorder. So I phoned the surgery to request a blood test, and was told the GP would phone me back. So far, so good. A GP phoned, introduced herself as the new GP at the surgery. I
I am coming to the end of my B12 pills and being on the lower pension and every penny counts, wondered if I needed to reorder. So I phoned the surgery to request a blood test, and was told the GP would phone me back. So far, so good. A GP phoned, introduced herself as the new GP at the surgery. I
serenfach
in
Thyroid UK
5 months ago
blood test
Hi everyone, just wondered how long you avoid supplements (D, ferratin, folate etc) pre blood test? Thanks
Hi everyone, just wondered how long you avoid supplements (D, ferratin, folate etc) pre blood test? Thanks
Pooh10
in
Thyroid UK
5 months ago
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B12 recommendations please
My Mum's meds were recently reviewed I requested from her gp , a b12 supplement, a very moderate amount of cyanocobalamin 50 mcg daily was supplied , not fond of hearing it has a cyanide content, for the small mcg content any way, should I avoid giving it to Ma in her daily pill box? Can i purchase
My Mum's meds were recently reviewed I requested from her gp , a b12 supplement, a very moderate amount of cyanocobalamin 50 mcg daily was supplied , not fond of hearing it has a cyanide content, for the small mcg content any way, should I avoid giving it to Ma in her daily pill box? Can i purchase
Gazdad
in
Thyroid UK
5 months ago
Exercise crashes
Hi all, curious if anyone has experienced a worsening of symptoms following strenuous cardio exercise? This is typically viewed as PEM (post-extertional malaise) in the ME/CFS community. In the last couple months I've had two specific times when I had a big increase in fatigue and general feelings of
Hi all, curious if anyone has experienced a worsening of symptoms following strenuous cardio exercise? This is typically viewed as PEM (post-extertional malaise) in the ME/CFS community. In the last couple months I've had two specific times when I had a big increase in fatigue and general feelings of
chonkytonk
in
Pernicious Anaemia Society
5 months ago
Low vitamin d high serum ferritin
Hello My husband has been on watch and wait for 12 years. Due to a constant chronic cough he recently had a blood test which showed low vitamin D levels of 45 and high serum ferritin levels of 936. He has been referred back to haematology but in the meantime just wondering if anyone can tell me if there
Hello My husband has been on watch and wait for 12 years. Due to a constant chronic cough he recently had a blood test which showed low vitamin D levels of 45 and high serum ferritin levels of 936. He has been referred back to haematology but in the meantime just wondering if anyone can tell me if there
Debs4
in
CLL Support
5 months ago
helvella - Thyroid Blog
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Self Injecting Query
I posted earlier about my health problems over the past two years. I saw an old post that said if you have Neuro symptoms then you should get loading doses then a jab every 2 months. This is my NHS regime currently. I've had jabs for about 10 years, was on 3 monthly and was changed to two monthly. "
I posted earlier about my health problems over the past two years. I saw an old post that said if you have Neuro symptoms then you should get loading doses then a jab every 2 months. This is my NHS regime currently. I've had jabs for about 10 years, was on 3 monthly and was changed to two monthly. "
Sparklingsunshine
in
Pernicious Anaemia Society
5 months ago
Pain Spreading/Getting Worse
Hello All, I made a post a week or so ago about my pelvic pain. My symptoms started in December 2023. It started with UTI symptoms and persistant arousal. By January I was getting burning pain in my clitoris, urethra, and vagina, and some stabbing sensations, as well as feeling like there was something
Hello All, I made a post a week or so ago about my pelvic pain. My symptoms started in December 2023. It started with UTI symptoms and persistant arousal. By January I was getting burning pain in my clitoris, urethra, and vagina, and some stabbing sensations, as well as feeling like there was something
Kat791
in
Pelvic Pain Support Network
5 months ago
Reversing Out
Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My symptoms have gotten worse, first it was muscle twitches that have now gotten better But stomach issues are worse, I am starting to have what
Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My symptoms have gotten worse, first it was muscle twitches that have now gotten better But stomach issues are worse, I am starting to have what
Canadian77
in
Pernicious Anaemia Society
5 months ago
How Do you Know When You're On Enough B12?
I'm normally on the thyroid forum but have posted on here a few times and I would value your expertise. Sorry for the magnum opus post 😁 I've been on B12 injections for a number of years, used to be every 13 weeks but as I have other conditions, Fibro, Ehlers Danlos and hypothyroid and I've had persistent
I'm normally on the thyroid forum but have posted on here a few times and I would value your expertise. Sorry for the magnum opus post 😁 I've been on B12 injections for a number of years, used to be every 13 weeks but as I have other conditions, Fibro, Ehlers Danlos and hypothyroid and I've had persistent
Sparklingsunshine
in
Pernicious Anaemia Society
5 months ago
Latest results
TSH 1.12 (0.27-4.2)FT4 17 (12-22) FT3 4.2 (3.1-6.8) VIT D 86 nmol/L B12 117 pmol/L FOLATE 6.3 ug/L FERRATINE 86 ug/L TSAT
TSH 1.12 (0.27-4.2)FT4 17 (12-22) FT3 4.2 (3.1-6.8) VIT D 86 nmol/L B12 117 pmol/L FOLATE 6.3 ug/L FERRATINE 86 ug/L TSAT
Dawney63
in
Thyroid UK
5 months ago
Endometriosis changed my understanding
I was diagnosed with bowel endometriosis and two months I couldn't stand up and walk from pain. I had two surgeries for endometriosis and cysts removal in the past.I changed all my diet.I eat only turkey chicken and fresh fish and i mix fresh parsley basil and dill and I pure 1/4 of lactose free cream
I was diagnosed with bowel endometriosis and two months I couldn't stand up and walk from pain. I had two surgeries for endometriosis and cysts removal in the past.I changed all my diet.I eat only turkey chicken and fresh fish and i mix fresh parsley basil and dill and I pure 1/4 of lactose free cream
Alteja2009
in
Endometriosis UK
5 months ago
Blood work and scans
Hi everyone, I recently had my blood work carried out and the following were highlighted for being higher than they should. Could anyone kindly give me their opinion on them? AST - 42 ALT - 53 MCV - 99.3 Red cell folate - 255 Gamma GT - 100 Phosphate - 0.75 Ferritin - 643 25 OH Vitamin - 17
Hi everyone, I recently had my blood work carried out and the following were highlighted for being higher than they should. Could anyone kindly give me their opinion on them? AST - 42 ALT - 53 MCV - 99.3 Red cell folate - 255 Gamma GT - 100 Phosphate - 0.75 Ferritin - 643 25 OH Vitamin - 17
DJK78
in
British Liver Trust
5 months ago
Omeprazole and Vit B12
Just found out that is you are on Omeprazole you should also be considering taking a Vit B12 supplement. Article reads: all people taking omeprazole need to either supplement with vitamin B12 or have their vitamin B12 status checked on a yearly basis. Even relatively small amounts of vitamin B12
Just found out that is you are on Omeprazole you should also be considering taking a Vit B12 supplement. Article reads: all people taking omeprazole need to either supplement with vitamin B12 or have their vitamin B12 status checked on a yearly basis. Even relatively small amounts of vitamin B12
Curryandchips
in
British Heart Foundation
5 months ago
Vit D, pearls or capsules ?
Just wanted to pick brains,,, daughter still not well managed to get last B12 jab little earlier now they have agreed to 8 weekly. She was also vit D def, px 400x2 daily for 4 months and folic acid 5mg daily also 4 months. recently had bloods but as yet not been able to get printout, they are being
Just wanted to pick brains,,, daughter still not well managed to get last B12 jab little earlier now they have agreed to 8 weekly. She was also vit D def, px 400x2 daily for 4 months and folic acid 5mg daily also 4 months. recently had bloods but as yet not been able to get printout, they are being
Polo22
in
Pernicious Anaemia Society
5 months ago
Is it Supplementation or just life?
This dilemma was better expressed by someone else on this forum. As often happens something resonates and I mull it over and can not give credit where credit is due. When under supplementing by injecting 1.5 mg Hydroxocobalamin once a day and taking 6 mg sublingual adenosylcobalamin I could only tell
This dilemma was better expressed by someone else on this forum. As often happens something resonates and I mull it over and can not give credit where credit is due. When under supplementing by injecting 1.5 mg Hydroxocobalamin once a day and taking 6 mg sublingual adenosylcobalamin I could only tell
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
B12 Def + Porphyria possible connection!
Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the
Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the
GracePV
in
Pernicious Anaemia Society
5 months ago
medicheck results, what to do next?
I have posted my results before from Medichecks and I persuaded my youngest daughter to take the thyroid and vitamin test recently due to her symptoms of lethargy and the fact that not only I have hypothyroidism but also her Dad and older sister. Her iron plus Vit D were all low so she is now taking
I have posted my results before from Medichecks and I persuaded my youngest daughter to take the thyroid and vitamin test recently due to her symptoms of lethargy and the fact that not only I have hypothyroidism but also her Dad and older sister. Her iron plus Vit D were all low so she is now taking
BrocksfieldJo
in
Thyroid UK
5 months ago
Infusions
Can anyone tell me if you can have B12 infusions, similar to iron infusions I suppose .Thank you.
Can anyone tell me if you can have B12 infusions, similar to iron infusions I suppose .Thank you.
36Hele
in
Pernicious Anaemia Society
5 months ago
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