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15 public communities
Hepatitis C Trust
746 members
The Hepatitis C Trust is the UK charity for hepatitis C. We support and advocate for people who have hepatitis C and who have had it in the past. Most of our staff and volunteers have lived experience of hepatitis C. We use this experience to improve care, and in our services; we provide hepatitis C education, testing and support all over the UK in partnership with the NHS. Our helpline and information service has been running since 2004 and we have a wealth of understanding of hepatitis C itself and of the many ways it affects people's lives. We welcome you to this community where we can all discuss and share our experiences, support and knowledge with each other.
Hepatitis C Support
680 members
We are a friendly support community for people living with hepatitis C. Join to connect with others who understand! Why not share your story today: https://healthunlocked.com/hep-c-support/write/
HepCBC Hepatitis C Education & Prevention Society
210 members
Welcome to the online support forum of HepCBC Hepatitis C Education and Prevention Society! We are based in British Columbia, Canada, but our outreach efforts are open to anyone in the world struggling with this disease. We've been incorporated since 1996 and a registered Canadian charity since 2001. Our MISSION: HepCBC is a non-profit organization run by and for people infected and affected by hepatitis C. Our mission is to provide education, prevention and support to those living with HCV. Our POSITIVE PHILOSOPHY is: Although we are constantly dealing with the challenge of a relentless disease, and people who are hurting, HepCBC always tries to improve people’s lives, and have a positive attitude: All services are provided for free. Preserving client confidentiality is a key goal. We understand HCV stigma and we respect that your HCV status, health, and contact information must only be disclosed by you, when you want to do it, to whom you want to disclose only, and with no outside pressure. We strive to be respectful and non-judgemental while exploring differences in experiences and insights. Our concern is helping as many HCV+ people as possible, not dwelling on how they contracted the disease. We provide the most current research results about testing and treatment options. We want you to be able to make informed decisions according to your own unique circumstances. HepCBC will strive to appoint volunteers with excellent knowledge and experience to manage this online forum. For more information, please visit our website!
Blue Faery Liver Cancer
647 members
Blue Faery’s mission is to prevent, treat and cure primary liver cancer, specifically Hepatocellular Carcinoma (HCC), through research, education and advocacy. Our Liver Cancer Community is our online, private forum for HCC patients and caregivers. Blue Faery is a 501(c)(3) national nonprofit organization with offices in Burbank, California and Birmingham, Alabama.
Thyroid UK
140,294 members
The Thyroid UK community is for anyone with diagnosed or undiagnosed underactive or overactive thyroid disease. Thyroid UK is a charity that supports people with thyroid disease and related disorders. We support people by informing them of various aspects of thyroid health and testing as well as other conditions such as adrenal deficiency, vitamin and mineral deficiencies and genetics that affect thyroid function. Your health journey is unique. HealthUnlocked can help you identify your unmet thyroid health needs allowing you to ask for the most appropriate support so that you can improve your health outcome in a way that is personalised to you by taking the Needs Assessment survey. Simply click on your profile picture and select "Your needs". The survey will take no longer than 3 minutes to complete and you can retake the assessment multiple times (up to once a month) giving you a tangible way to measure improvements in your health.
Non Hodgkin's Lymphoma Friends
1,795 members
Patient Empowerment Network (PEN) is honored to offer a peer-support community for those living with Non-Hodgkin's Lymphoma, their families and their loved ones. Connect with patients like you and share your experiences. Discuss treatment, recovery, diagnoses, and help other patients through their journey. PEN is a nonprofit (501(c)(3) Public Charity) based in the US that works to help you gain confidence and strength to get yourself the best care and most personalized treatment. We are here to help you stand up and advocate for yourself and become informed so that you can make the right decisions for you. Giving medical advice or promoting alternative treatment that is not proven by clinical trials and approved by regulatory agencies is prohibited. Your participation should be respectful, honest and in the spirit of supporting and learning from others
LUPUS UK
32,125 members
This HealthUnlocked Community is a peer support forum facilitated by LUPUS UK - The national registered charity for people affected by lupus and assisting those approaching diagnosis. This community is available for anybody affected by lupus to get information, support and advice from other people who are similarly affected. We welcome people with any form of lupus (SLE, discoid lupus, drug-induced lupus, cutaneous lupus etc.) as well as those with associated conditions such as mixed connective tissue disease (MCTD) and undifferentiated connective tissue disease (UCTD). The community discusses a wide range of topics including; diagnosis, symptoms, medical appointments, medications and support available. LUPUS UK provides a wide range of publications about lupus which are free to read and download on our website HERE: https://www.lupusuk.org.uk/publications/ Please consider paying £10 a year to become a member of LUPUS UK. You will receive our magazine three times a year and our charity to support others, fund medical research and Specialist Lupus Nurses. JOIN HERE: https://www.lupusuk.org.uk/shop/#!/Memberships/c/14192101/offset=0&sort=normal
Bone Health and Osteoporosis UK
5,984 members
This community is a welcoming and safe space for you to share your experiences, and we hope you’ll connect and find support with other people in a similar situation. Find our community guidelines here: https://healthunlocked.com/bonehealth/posts/150617024/b-community-guidelines-for-bone-health-and-osteoporosis-uk-b [b]Royal Osteoporosis Society[/b] We’re the Royal Osteoporosis Society – the UK’s largest national charity dedicated to improving bone health and beating osteoporosis. And we’re here for everyone living with osteoporosis or supporting someone. We equip people with practical information and support to take action on their bone health. • Visit our website https://theros.org.uk/, we have lots of fact sheets and booklets available to download and print, covering everything from general bone health, diagnosing osteoporosis and fragility fractures, osteoporosis drug treatments and living with spinal fractures. • What is Osteoporosis? Find our more through our information film https://youtu.be/DNExgVo8zsc?si=ArZ--vxYx6I_IclG • Join our membership - By becoming a Member of the ROS you can access exclusive benefits including your free book: All About Osteoporosis, Osteoporosis News magazines, a monthly member e-newsletter and so much more! The Royal Osteoporosis Society is a UK based organisation, and all of the content, information and support available here is based on UK treatments and care. If you’re from another country you may wish to look at these organisations: https://www.osteoporosis.foundation/our-network/the-committees#committee-of-national-societies [b]My Story[/b] Interested in telling your story to help us raise awareness of osteoporosis? Your real-life experiences help us engage with people who don't know about the condition. Email mystory@theros.org.uk and a member of the team will be in touch. For more information, visit https://theros.org.uk/how-you-can-help/get-involved/raise-awareness/share-your-story/ [b]Connect with us! [/b] Join our mailing list - https://theros.org.uk/ros-news-sign-up/ You tube - https://www.youtube.com/c/osteoporosissociety Facebook -https://www.facebook.com/RoyalOsteoSoc Instagram - https://www.instagram.com/royalosteosoc/ X - https://twitter.com/royalosteosoc
HepNS
284 members
HepNS is a charitable organization that reduces the impact of hepatitis through support, information and education.
HFI Connect - Hepatitis
958 members
We are a peer support community for people affected by hepatitis. It is run by The Hepatitis Foundation International (HFI), a non-profit organization established in 1994 working to eradicate chronic hepatitis for 500 million people globally. Here you can connect with others like you, ask questions, share your experiences and support one another. HFI also runs a community for people living with HepC: https://healthunlocked.com/hepatitisc-chat
LIVErNORTH
428 members
We are a adult liver patient support group based at the Freeman Hospital in Newcastle upon Tyne, England. Whatever kind of liver disease you may have, we are here to support you. Whilst we will endeavour to assist you with any queries relating to liver disease it would be inappropraite for us to comment on liver function blood test as there are too many variables involved to generalise. Your hepatologist is the appropriate person to ask for advice in this instance.
British Liver Trust
37,795 members
The British Liver Trust helps everyone affected by any liver condition, providing support, information and guidance, and lobbying for improved services across the country. Liver Disease is the only cause of death on the increase and affects an estimated 20% of the population. Only by increasing awareness of the risks, campaigning and funding research will we reduce the impact of liver disease in the future.
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