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Vitamin B9
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Post SCT update
I'm now +58 days and 3 weeks out of hospital. So far (touch wood, fingers crossed) I'm not showing any signs of GVHD or other abnormal symptoms but I know this can all still happen as my recovery progresses. Consultant has reduced the Mycophenolate (in place of Cyclosporin which didn't agree with me)
I'm now +58 days and 3 weeks out of hospital. So far (touch wood, fingers crossed) I'm not showing any signs of GVHD or other abnormal symptoms but I know this can all still happen as my recovery progresses. Consultant has reduced the Mycophenolate (in place of Cyclosporin which didn't agree with me)
Flyingsteamer
in
MPN Voice
2 months ago
Micro Dosing
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
2 months ago
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Hypothyroidism and weightloss
Good morning everyone,I am hoping for some good news stories to keep me going. I have gained 2 1/2 stone since I developed hypothyroidism, and I am finding it so so difficult to shift it again even though my current dose of t4/t3 seems to work really well in other aspects (hypo tiredness gone, depression
Good morning everyone,I am hoping for some good news stories to keep me going. I have gained 2 1/2 stone since I developed hypothyroidism, and I am finding it so so difficult to shift it again even though my current dose of t4/t3 seems to work really well in other aspects (hypo tiredness gone, depression
flohal
in
Thyroid UK
2 months ago
starting on ndt Thyroid-S
I’ve been struggling with Thyroid -S for the last one year. Had signs of over medication even thought TSH was 1.5. However other symptoms improved, like my digestion was amazing , no stomach issues etc. I’m now on a t4/t3 combo and my stomach issues are back, my back is hurting etc and would love to
I’ve been struggling with Thyroid -S for the last one year. Had signs of over medication even thought TSH was 1.5. However other symptoms improved, like my digestion was amazing , no stomach issues etc. I’m now on a t4/t3 combo and my stomach issues are back, my back is hurting etc and would love to
MiaMam
in
Thyroid UK
9 months ago
Timings of NDT and iron supplements
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Maldeerum
in
Thyroid UK
5 months ago
Any Help to break free of this rut I'm in??
I have battled mental illness most of my life(I'm 52). In 2015 in the span of a couple of months I found out my eldest daughter had been in a mentally abusive relationship, that eventually caused her a liver infection from being unable to eat a normal meal. She too has battled anxiety all her life. They
I have battled mental illness most of my life(I'm 52). In 2015 in the span of a couple of months I found out my eldest daughter had been in a mentally abusive relationship, that eventually caused her a liver infection from being unable to eat a normal meal. She too has battled anxiety all her life. They
Bookmama20
in
Anxiety and Depression Support
2 months ago
I think I need a reset
I have battled mental illness most of my life(I'm 52). In 2015 in the span of a couple of months I found out my eldest daughter had been in a mentally abusive relationship, that eventually caused her a liver infection from being unable to eat a normal meal. She too has battled anxiety all her life. They
I have battled mental illness most of my life(I'm 52). In 2015 in the span of a couple of months I found out my eldest daughter had been in a mentally abusive relationship, that eventually caused her a liver infection from being unable to eat a normal meal. She too has battled anxiety all her life. They
Bookmama20
in
Mental Health Support
2 months ago
Ultrasound and Vitamin D
Hello. I posted on here last week looking some advice on my latest blood tests. I have had and underactve thyroid for almost 3 years but have been experiencing all of the symptoms that I had prior to being diagnosed (and taking Thyroxine - I have always been on 50mg). I have just received blood results
Hello. I posted on here last week looking some advice on my latest blood tests. I have had and underactve thyroid for almost 3 years but have been experiencing all of the symptoms that I had prior to being diagnosed (and taking Thyroxine - I have always been on 50mg). I have just received blood results
Flo1000
in
Thyroid UK
4 months ago
Daily back pain
I have had daily middle / upper back pain for 2 and a half years. I have pernicious anaemia too. G.p. thinks my pain is muscular. I've seen several physiotherapists. The current one thinks my pain is muscular caused by poor posture. I think she's probably right. I think it's been exacerbated by my job
I have had daily middle / upper back pain for 2 and a half years. I have pernicious anaemia too. G.p. thinks my pain is muscular. I've seen several physiotherapists. The current one thinks my pain is muscular caused by poor posture. I think she's probably right. I think it's been exacerbated by my job
Suesue246
in
Pain Concern
2 months ago
Fatigue, anemia, blood test results
Would anyone give their interpretation of the following blood test results (ref.range in the brackets and those out of the ranges in bold letters)? ALAT 19 (<34) ASAT 22 (15-35) GGT 9 (9-36)
FERRITIN 4,2 (10-204)
B12 340 (138-652) HEMOGRAM: Hb 132 (121-150) Hct 42,5% (37-45%) WBC
Would anyone give their interpretation of the following blood test results (ref.range in the brackets and those out of the ranges in bold letters)? ALAT 19 (<34) ASAT 22 (15-35) GGT 9 (9-36)
FERRITIN 4,2 (10-204)
B12 340 (138-652) HEMOGRAM: Hb 132 (121-150) Hct 42,5% (37-45%) WBC
Nipitiri
in
Thyroid UK
2 months ago
Overton and B1
Current Trial (14 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warrnted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin
Current Trial (14 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warrnted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Medication Advice
Hi Do I require my medication to be adjusted with these results. I’m on 75mg T3 4.1 ( 3.10-6.80 pmol/L ) T4 14.8 ( 11.90 - 21.60 pmol/L ) Tsh 1.33 ( 0.27-4.20 mlu/L I have put weight on a stone in 2 months and I have been getting terrible cramps in my legs. I have low vitamin D & low folate
Hi Do I require my medication to be adjusted with these results. I’m on 75mg T3 4.1 ( 3.10-6.80 pmol/L ) T4 14.8 ( 11.90 - 21.60 pmol/L ) Tsh 1.33 ( 0.27-4.20 mlu/L I have put weight on a stone in 2 months and I have been getting terrible cramps in my legs. I have low vitamin D & low folate
Carebear52
in
Thyroid UK
2 months ago
TSH levels lowered after iodine spike - advice on next steps needed
Hi everyone, I hope that you are all well. I have an update on my journey and just wanted some advice as I am still very new to this. My journey started a few months ago. I've tried to condense everything below. Just to state I have had various blood tests and they are all optimal (cholestral, Vitamin
Hi everyone, I hope that you are all well. I have an update on my journey and just wanted some advice as I am still very new to this. My journey started a few months ago. I've tried to condense everything below. Just to state I have had various blood tests and they are all optimal (cholestral, Vitamin
SunshineHPower
in
Thyroid UK
2 months ago
Hi everyone.Back from not so sunny Spain (lashed down)
Hi, my holiday did me the world of good but I was totally stressed free!I've tapered to 9mg from 10mg and feel ok. I'm asking advice about Calcium and Vit D supplements.... My Dr never advised so I just bought some....but wondering if I'm taking the right supplement... Any advice from you all would be
Hi, my holiday did me the world of good but I was totally stressed free!I've tapered to 9mg from 10mg and feel ok. I'm asking advice about Calcium and Vit D supplements.... My Dr never advised so I just bought some....but wondering if I'm taking the right supplement... Any advice from you all would be
Tescohednesford
in
PMRGCAuk
2 months ago
Sciatica link to low b12?
Hiya all,Does anyone have any experience of sciatica linked with inadequate amounts of b12 ? I usually have injections monthly ( self inject bi- monthly and have gp bi- monthly) I've heard it can be related but gp+ chiropractor say if my level is high (1000 last test) then nothing to do with it Thank
Hiya all,Does anyone have any experience of sciatica linked with inadequate amounts of b12 ? I usually have injections monthly ( self inject bi- monthly and have gp bi- monthly) I've heard it can be related but gp+ chiropractor say if my level is high (1000 last test) then nothing to do with it Thank
luckymaria
in
Pernicious Anaemia Society
2 months ago
Increased dose of vitamin C
My wife came across this video about a week ago: https://lizearlewellbeing.com/podcast/vitamin-c-dr-thomas-e-levy/ I gave it a go (Sodium Ascorbate /15grams every hour / 8 times a day+ Altrient C - Liposomal Vitamin C, 1000mg/ 3 sachets per day). It felt really good! Side effect :) kicked in almost
My wife came across this video about a week ago: https://lizearlewellbeing.com/podcast/vitamin-c-dr-thomas-e-levy/ I gave it a go (Sodium Ascorbate /15grams every hour / 8 times a day+ Altrient C - Liposomal Vitamin C, 1000mg/ 3 sachets per day). It felt really good! Side effect :) kicked in almost
Bear1927
in
Cure Parkinson's
2 months ago
My drs reduced my levo and now I'm having a mare.
So I've been suffering with swelling and pins and needles recently and my dr has said it must be my thyroid He's reduced levo from 100mcg to 75mcg. My t4 has gone from 13 to 11. The edema is worse now.. However my testerone has gone from normal 0.8... range 0.3-1.9 to 2.5!!! Does anyone know why
So I've been suffering with swelling and pins and needles recently and my dr has said it must be my thyroid He's reduced levo from 100mcg to 75mcg. My t4 has gone from 13 to 11. The edema is worse now.. However my testerone has gone from normal 0.8... range 0.3-1.9 to 2.5!!! Does anyone know why
jparsss
in
Thyroid UK
5 months ago
Injection reactions?
Hello lovely people. I started SI three weeks ago and each time I'm left with a red, itchy patch of above the area I've injected into (not the actual injection site, but next to it where the needle will have deposited the B12 under my skin). Because I'm on EOD injections this means just when one stops
Hello lovely people. I started SI three weeks ago and each time I'm left with a red, itchy patch of above the area I've injected into (not the actual injection site, but next to it where the needle will have deposited the B12 under my skin). Because I'm on EOD injections this means just when one stops
ClaireWF1346
in
Pernicious Anaemia Society
2 months ago
Dosage
Hello everyone, can someone tell me how much B12 I should take to get my levels up to a reasonable standard - everything is in Ug and not sure what the relates to i.e. mg or mcg or IU's. Thanks for any help you can give me. A
Hello everyone, can someone tell me how much B12 I should take to get my levels up to a reasonable standard - everything is in Ug and not sure what the relates to i.e. mg or mcg or IU's. Thanks for any help you can give me. A
posthinking01
in
Pernicious Anaemia Society
2 months ago
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