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Vitamin B9
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Using up my B1 Thiamine.
I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient is to do a trial. The blood test is useless. Functional Deficiency of a Vitamin may be nothing more than a work around for not understanding
I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient is to do a trial. The blood test is useless. Functional Deficiency of a Vitamin may be nothing more than a work around for not understanding
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Prostrate Cancer treatment ADT
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
RWRB
in
Osteoporosis Support
2 months ago
blood test-nutrients advice
Hi everyone! First of all, I have to say thank you. This is my first time posting, but I've been lurking around here for a while now and I have already learnt so much from this forum! I was diagnosed with hypothyroidism in Nov 2021 and put on 25mcg levothyroxine. It has been a slow battle to get doctors
Hi everyone! First of all, I have to say thank you. This is my first time posting, but I've been lurking around here for a while now and I have already learnt so much from this forum! I was diagnosed with hypothyroidism in Nov 2021 and put on 25mcg levothyroxine. It has been a slow battle to get doctors
catpotter44
in
Thyroid UK
8 months ago
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Information about frequency of injection
Hi I posted about a sudden deterioration in my health after 4 years of successful self-injection eod, daily or twice a week (depending on how I was doing). My last post questioned whether it was due to a bad batch of B12 depot - unfortunately, using newly ordered B12 doesn't seem to be making an improvement
Hi I posted about a sudden deterioration in my health after 4 years of successful self-injection eod, daily or twice a week (depending on how I was doing). My last post questioned whether it was due to a bad batch of B12 depot - unfortunately, using newly ordered B12 doesn't seem to be making an improvement
LizWilsonpa
in
Pernicious Anaemia Society
2 months ago
Really severe rls plus mds
I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her blood levels to go up. She is taking a needle injection every other day. Last night i stayed up with her again cause it was so severe. Sometimes
I recently was able to see my moms records. She has been told she has mds too. Also there is a problem with her blood levels. The doctors cant seem to get her blood levels to go up. She is taking a needle injection every other day. Last night i stayed up with her again cause it was so severe. Sometimes
SevereRLS-4mom
in
Restless Legs Syndrome
2 months ago
Do I Poke The Bear?
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests and B12 jabs back in the day. I changed surgeries in the early 90's due to moving and have been with this practice ever since. So I'm not sure
Sparklingsunshine
in
Pernicious Anaemia Society
2 months ago
Exhausted still after B12 injection.
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA so do get a lot of tiredness from that and the bucket load of medication I take. I did mention it to the nurse when I had my last injection
Dolly260
in
Pernicious Anaemia Society
2 months ago
Hebden Bridge Help Needed Please
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak to be able to do them effectively as she is so unwell. Please contact me via Chat if you think you could help and I shall put you in touch with
Wwwdot
in
Pernicious Anaemia Society
2 months ago
Test result help (please)
Ask
Please can I get a view from experienced users of what I should be suggesting to my endo consultant the next time I see him. He is very open to what I have to say but I am currently feeling a bit lost as to what to do. My main problem at this stage is my weight. I have put on 2 stone in
Ask
Please can I get a view from experienced users of what I should be suggesting to my endo consultant the next time I see him. He is very open to what I have to say but I am currently feeling a bit lost as to what to do. My main problem at this stage is my weight. I have put on 2 stone in
flohal
in
Thyroid UK
3 months ago
Does anyone know anything about low SigA levels and links with b12 deficiency please?
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my attention as on 2 previous tests, a stool and a saliva test, the SigA was included and very low both times which says can give rise to infections,allergies
Jo5454
in
Pernicious Anaemia Society
2 months ago
Back to life thanks to this forum! GP Next steps though - further levo increase?
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
You've been so helpful. Your collective knowledge has led to a diagnosis of (ords) hashimotos, my levo being upped to 75mg and I'm pain free for the first time in 5 YEARS! Thank you. I feel alive again. I armed myself with printed NICE guidelines and facts/ research and GP didn't resist this time and
CherryPie2
in
Thyroid UK
2 months ago
lapararoscopy
I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to check how it is. The gynae/surgeon has done watchful waiting with me since my diagnosis as he knows I am a carer for my mum and I have no one else
I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to check how it is. The gynae/surgeon has done watchful waiting with me since my diagnosis as he knows I am a carer for my mum and I have no one else
Ova104
in
My Ovacome
2 months ago
Gastritis
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My Gastroenterologist says I haven’t got B12 deficiency ( before endoscopy) last test was 6 months ago! 226 ng/l (178ng/L - 2000ng/L (I did quote
Doris11
in
Pernicious Anaemia Society
2 months ago
Update
Just an update as some one sagested me to try iron and vitamin c as was going away and waiting on seeing a specialist. I did it and it made a massive difference still getting restless legs but it was not as bad as before.Also I stopped taking omeprazole thanks again for the help..
Just an update as some one sagested me to try iron and vitamin c as was going away and waiting on seeing a specialist. I did it and it made a massive difference still getting restless legs but it was not as bad as before.Also I stopped taking omeprazole thanks again for the help..
Bigrob1
in
Restless Legs Syndrome
2 months ago
Vertigo 3 months after starting the B12 treatment
Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing symptoms but wanted to check if someone else has faced vertigo and completely recovered from it. Which medicine did you take for vertigo apart?
Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing symptoms but wanted to check if someone else has faced vertigo and completely recovered from it. Which medicine did you take for vertigo apart?
Trialerror
in
Pernicious Anaemia Society
2 months ago
Help?
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to find something rare that makes sense of all the symptoms but I think it’s just B12 and chronic low iron. She has me on 1x monthly hydrox injection
PlatypusProfit8077
in
Pernicious Anaemia Society
2 months ago
what thyroid or other tests will help in improving heart condition ?
I’ve been hypothyroid for almost 20 years. Only treated / offered levothyroxine. Last full year reduced from 125 to 100 mg then in December gp wanted to go from 125 to 150( don’t think he realised I was on 100. Rang and eventually nurse rang and agreed to 125. At same time having tests about long standing
I’ve been hypothyroid for almost 20 years. Only treated / offered levothyroxine. Last full year reduced from 125 to 100 mg then in December gp wanted to go from 125 to 150( don’t think he realised I was on 100. Rang and eventually nurse rang and agreed to 125. At same time having tests about long standing
Mumsie22
in
Thyroid UK
3 months ago
List of medications to avoid?
Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients - certain antibiotics for instance. Is there a definitive list available? I've searched this forum but can't find anything. I'd really like to
Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients - certain antibiotics for instance. Is there a definitive list available? I've searched this forum but can't find anything. I'd really like to
Myoldcat
in
Pernicious Anaemia Society
2 months ago
Sunshiney days.
Should vit D supplements be adjusted when we are out and about in sunshine? Are amino acids worth taking as supplements? All stuff I come across in random readings. Thanks.
Should vit D supplements be adjusted when we are out and about in sunshine? Are amino acids worth taking as supplements? All stuff I come across in random readings. Thanks.
Calceolaria
in
Thyroid UK
2 months ago
confused re meds
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Cooper02
in
PMRGCAuk
4 months ago
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