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Vitamin B12 / Folic acid
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Deficiency vs Broken
Hi Guys As usual I have been mulling over my recent GP experience of rolling eyes (aka “looking for their brain” courtesy of Narwhal!). I don’t think GPs get the difference between a body being deficient in B12 and a body whose B12 system is broken. Mixteca made the analogy of putting fuel in a
Hi Guys As usual I have been mulling over my recent GP experience of rolling eyes (aka “looking for their brain” courtesy of Narwhal!). I don’t think GPs get the difference between a body being deficient in B12 and a body whose B12 system is broken. Mixteca made the analogy of putting fuel in a
Wwwdot
in
Pernicious Anaemia Society
9 months ago
I'm always confused
I don't understand if you should or shouldn't take folate if you have low b12
I don't understand if you should or shouldn't take folate if you have low b12
Popcorn12345
in
Pernicious Anaemia Society
3 months ago
Osteoporosis - treatment or not ??
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
mullochs
in
PMRGCAuk
5 months ago
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Disposal of used syringes from SI (Cardiff)
Hi all, I was self injecting every month until my GP took my B12 levels (along with other tests) pre-summer and they were over 1000. She basically said they wouldn’t continue their injections unless I stopped. I diligently stopped but have started to notice the symptoms creeping up again before my
Hi all, I was self injecting every month until my GP took my B12 levels (along with other tests) pre-summer and they were over 1000. She basically said they wouldn’t continue their injections unless I stopped. I diligently stopped but have started to notice the symptoms creeping up again before my
Squirrel_enthusiast
in
Pernicious Anaemia Society
9 months ago
skin reaction to B12 injections
Hi, I was prescribed the 6 injections every 2 days. Soon after the fourth injection I developed red bumpy skin on my forehead some of which looked like spots. After the 5th I developed a cluster of similar spots along my jawline that were uncomfortable. This is very unusual for me. My husband is administering
Hi, I was prescribed the 6 injections every 2 days. Soon after the fourth injection I developed red bumpy skin on my forehead some of which looked like spots. After the 5th I developed a cluster of similar spots along my jawline that were uncomfortable. This is very unusual for me. My husband is administering
Sparkleros
in
Pernicious Anaemia Society
9 months ago
Back to square one
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
My Dr checked my thyroid levels with some other blood tests without me knowing, so I had taken my T4 (50mcg) about an hour before! Based on the results, she said I was now fine and took me off the medication. I tried to argue saying it needed to be before my meds and she said that was wrong. I had always
BethH77
in
Thyroid UK
3 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
3 months ago
low B12
hi can anyone help me? How do I link my old post to a new one today as I would like some advice many thanks (so people don’t get confused)
hi can anyone help me? How do I link my old post to a new one today as I would like some advice many thanks (so people don’t get confused)
Doris11
in
Thyroid UK
9 months ago
Monitor My Health iron test - lack of ranges
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
I spent a bit more money on my MMH test this year as I’ve never had an iron panel done but have always had low iron indicators on a full blood test. I didn’t get complete results as ferritin failed (posting the kit back took 48 hours when it was tracked to take 24) but the results I did get, I can’
Bearo
in
Thyroid UK
3 months ago
Methylfolate dose for B12 injections
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try methylfolate. However, there seems no information on the recommended dose for supporting injections. Is anyone else on it, and how much do you take
MindfulSquirrel
in
Pernicious Anaemia Society
3 months ago
Update GP lied to our faces and some links for purchasing b12 please
So I updated you all last week on the visit to go last week where I believed she was gaslighting myself and my partner. Since then we have managed to access his medical records. One of the things I mentioned to her was his low result 5 years ago which was 222. She then went on to say he was tested 3
So I updated you all last week on the visit to go last week where I believed she was gaslighting myself and my partner. Since then we have managed to access his medical records. One of the things I mentioned to her was his low result 5 years ago which was 222. She then went on to say he was tested 3
Nic878
in
Pernicious Anaemia Society
9 months ago
sons bloods
my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73 ( 0.38-5.53) T4 10.4 ( 7.90-14.40). He probably has undiagnosed autism and has been diagnosed with dyspraxia.He has been struggling with recall
my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73 ( 0.38-5.53) T4 10.4 ( 7.90-14.40). He probably has undiagnosed autism and has been diagnosed with dyspraxia.He has been struggling with recall
Hectorsmum2
in
Pernicious Anaemia Society
4 months ago
iron and b12 test results
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
How am I doing with iron and b12? i posted before about my thyroid results and have reduced my Levo a tiny amount pending testing again in a few weeks time I now have the rest of my results (minus ferritin and folate ) from MMH. I can see that my iron and b12 are not dire but neither are they optimal
Bearo
in
Thyroid UK
4 months ago
Still having symptoms of hypothyroidism despite medication - any advice?
I wondered if anyone could please share their thoughts on my situation. I was diagnosed with subclinical hypothyroidism around 8 years ago, but didn’t have any symptoms (apart from some fatigue). Then, after contracting COVID in 2020, I began to have symptoms like 30-35lb weight gain (unexplained),
I wondered if anyone could please share their thoughts on my situation. I was diagnosed with subclinical hypothyroidism around 8 years ago, but didn’t have any symptoms (apart from some fatigue). Then, after contracting COVID in 2020, I began to have symptoms like 30-35lb weight gain (unexplained),
melissa-b
in
Thyroid UK
4 months ago
Should I push for a test?
Update - I have realised that a few more results have come through. He ordered dsDNA but apparently the sample was lost or there wasn't enough? He ordered ENA Antibody test but the result says unknown? ANA Test - Anti-nuclear factor level POSITIVE - Titre > 1:640 ANA PATTERN SPECKLED In the presence
Update - I have realised that a few more results have come through. He ordered dsDNA but apparently the sample was lost or there wasn't enough? He ordered ENA Antibody test but the result says unknown? ANA Test - Anti-nuclear factor level POSITIVE - Titre > 1:640 ANA PATTERN SPECKLED In the presence
EllsBells591
in
Pernicious Anaemia Society
9 months ago
Postpartum depression
A recent release described a newly-developed drug for postpartum depression. Effects of the drug are said to last 45days. Cost is greater than $10,000 USD. No mention was made at all of nutrients. I seemed to recall a connection between postpartum depression and B12; a quick search on regular Google
A recent release described a newly-developed drug for postpartum depression. Effects of the drug are said to last 45days. Cost is greater than $10,000 USD. No mention was made at all of nutrients. I seemed to recall a connection between postpartum depression and B12; a quick search on regular Google
WiscGuy
in
Pernicious Anaemia Society
9 months ago
B supplement
Please could you advise me if it is OK to take Homocystix Plus as a B supplement? I have been taking Thorne Basic Plus and Nature's Best Vit B 12. However Vit B12 now over 500. I started flushing more and think I'm developing Rosacea . Looked online and found Niacin can be a factor in flushing. Also
Please could you advise me if it is OK to take Homocystix Plus as a B supplement? I have been taking Thorne Basic Plus and Nature's Best Vit B 12. However Vit B12 now over 500. I started flushing more and think I'm developing Rosacea . Looked online and found Niacin can be a factor in flushing. Also
Shellian
in
Thyroid UK
4 months ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Is it helpful to try to 'fight' fatigue?
I am going to an appointment later today to discuss my test results and begin B12 injections. The doctor's surgery is 3 minutes walk away but still the thought of having to go to 6 appointments in 2 weeks to get these injections is daunting. I rarely leave my home at all. I am not sure it is possible
I am going to an appointment later today to discuss my test results and begin B12 injections. The doctor's surgery is 3 minutes walk away but still the thought of having to go to 6 appointments in 2 weeks to get these injections is daunting. I rarely leave my home at all. I am not sure it is possible
Permexpi
in
Pernicious Anaemia Society
9 months ago
Hot flushes
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
NewPMR53
in
PMRGCAuk
8 days ago
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