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Just Venting
I went to see my oncologist this morning. I live in a city and go to locally well known cancer clinic associated with an research hospital. I was there for a three month check in and blood work as I have been stable on AI and Ibance for the past year. The last six weeks had been rough, due to a cold
I went to see my oncologist this morning. I live in a city and go to locally well known cancer clinic associated with an research hospital. I was there for a three month check in and blood work as I have been stable on AI and Ibance for the past year. The last six weeks had been rough, due to a cold
Suite1000
in
My Breast Cancer Community
4 months ago
Adult Whooping Cough longer term and associated symptoms.
Hi folks I had whooping cough with it starting the beginning of April this year. Symptoms were a dry cough, swollen pharynx and Larynx with my voice going many times. Coughing so much I would vomit multiple times and almost pass out with being so lightheaded during the coughing bouts. Stridor with
Hi folks I had whooping cough with it starting the beginning of April this year. Symptoms were a dry cough, swollen pharynx and Larynx with my voice going many times. Coughing so much I would vomit multiple times and almost pass out with being so lightheaded during the coughing bouts. Stridor with
Qski1
in
Lung Conditions Community Forum
3 months ago
Overcoming anxiety about going out
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Gingergus
in
The Roy Castle Lung Cancer Foundation
4 months ago
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Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
4 months ago
Change of steroid inhaler
This week changed from foster next haler to spiriva.The first few days my cough has seemed much worse with phlegm. Now 6 days cough seems less. Anyone had this experience? Thanks
This week changed from foster next haler to spiriva.The first few days my cough has seemed much worse with phlegm. Now 6 days cough seems less. Anyone had this experience? Thanks
Msccruises
in
Asthma Community Forum
3 months ago
Pluvicto patient
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
Reltubs
in
Advanced Prostate Cancer
4 months ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
4 months ago
common cold lingers
back in April 2020 i had covid the first time (that was early before we knew anything) since then when i get a cold (head cold, sinus infection, common cold) i notice that i feel bad for like 3-5 days but i will have a lingering cough for like a 5-10 days afterwards. i was blaming it on covid and the
back in April 2020 i had covid the first time (that was early before we knew anything) since then when i get a cold (head cold, sinus infection, common cold) i notice that i feel bad for like 3-5 days but i will have a lingering cough for like a 5-10 days afterwards. i was blaming it on covid and the
pete-paz
in
CLL Support
3 months ago
Anyone have withdrawal symptoms when dropping a treatment?
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
Elle713
in
SHARE Metastatic Breast Cancer
4 months ago
Ethanol Ablation
Hi, I'm wondering if anyone has experienced Ethanol Ablation on thyroid lobe? The last post I can find was 2yrs ago. I guess it must be more in use now. My husband was scheduled for right lobe removal operation next Thursday then received a letter from his Consultant yesterday saying that on checking
Hi, I'm wondering if anyone has experienced Ethanol Ablation on thyroid lobe? The last post I can find was 2yrs ago. I guess it must be more in use now. My husband was scheduled for right lobe removal operation next Thursday then received a letter from his Consultant yesterday saying that on checking
Maggiesmum
in
Thyroid UK
4 months ago
Piqray/alpelesib. Oncologists. And various.
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Timtam56
in
SHARE Metastatic Breast Cancer
4 months ago
I am terminal
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Pumpkininja
in
My Ovacome
4 months ago
help determining stage
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
blackchurch
in
Advanced Prostate Cancer
4 months ago
My diagnosis after 6 years, Lymphoma EMZL, AL Amyloidosis and Myeloma
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Pipido36
in
The Roy Castle Lung Cancer Foundation
4 months ago
Op update
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
georgiageorgia182
in
My Ovacome
4 months ago
this might help
i’ve had scabies for the last month and a half, and I have done as much research as possible. Couldn’t find anything that was working for me today I took petroleum jelly, mixed it with tea tree oil, smothered my body in. It sat around in it for five hours, watching the scabies pour out of my body, wiping
i’ve had scabies for the last month and a half, and I have done as much research as possible. Couldn’t find anything that was working for me today I took petroleum jelly, mixed it with tea tree oil, smothered my body in. It sat around in it for five hours, watching the scabies pour out of my body, wiping
Tina2479
in
BASHH
7 months ago
Voice volume issues post ICU
Hello! I was in ICU in February. I thought I just had a bad cough… I’d lost my voice and thrown up and felt shocking and my GP told me it was viral and to take aspirin. Two days later, I was blue-lighted to hospital with Flu, severe pneumonia, strep A and sepsis. I went into septic shock and was put
Hello! I was in ICU in February. I thought I just had a bad cough… I’d lost my voice and thrown up and felt shocking and my GP told me it was viral and to take aspirin. Two days later, I was blue-lighted to hospital with Flu, severe pneumonia, strep A and sepsis. I went into septic shock and was put
Lucindar
in
ICUsteps
3 months ago
Why do MO have one stop Zytiga and Prednisone during Cabazitaxel And Carboplatin treatment for pca Adenocarcinoma liver Mets?
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Jak2 question and PV question (have medical anxiety so nervous)
Hey everyone sorry for such a long message. I'm a 28M and have had consistent high RBC, HGB, HCT counts for about 8 years now. The numbers though are ever so slightly elevated and range from (5.9-6.1 RBC), (16.7-17.2HGB),and(49-50.4 HCT) during those 8 years they each either went up or down and did NOT
Hey everyone sorry for such a long message. I'm a 28M and have had consistent high RBC, HGB, HCT counts for about 8 years now. The numbers though are ever so slightly elevated and range from (5.9-6.1 RBC), (16.7-17.2HGB),and(49-50.4 HCT) during those 8 years they each either went up or down and did NOT
HockeyFan47
in
MPN Voice
4 months ago
New treatment
2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative. Anyone
2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative. Anyone
JulieB76
in
SHARE Metastatic Breast Cancer
4 months ago
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