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Been Recently Diagnosed With Having MGUS But Don’t Fully Understand This New Diagnosis
Any Body Heard Of This Diagnosis As Well As An APS Sufferer My paraproteinaemia has Raised To 20 it Was 16 in August Obviously Another Blood Test In 3 Months Time , Obviously I’m Under Hematology At Our Local Hospital
Any Body Heard Of This Diagnosis As Well As An APS Sufferer My paraproteinaemia has Raised To 20 it Was 16 in August Obviously Another Blood Test In 3 Months Time , Obviously I’m Under Hematology At Our Local Hospital
Markgammon06
in
Hughes Syndrome APS Forum
1 year ago
Lung Volume Reduction
Diagnosed in 2011 had 58 per cent lung function at the time now down to 32 per cent been waiting for 3 years to have lung volume reduction surgery finally had all tests done just before christmas , at Royal Brompton have a meeting with consultants end of feb when they will tell me what my options
Diagnosed in 2011 had 58 per cent lung function at the time now down to 32 per cent been waiting for 3 years to have lung volume reduction surgery finally had all tests done just before christmas , at Royal Brompton have a meeting with consultants end of feb when they will tell me what my options
T4vdub
in
Lung Conditions Community Forum
1 year ago
Raynauds type symptoms?
Hi my fingers have gone completely white sometimes and the odd time black. This has only happened a maybe 5 times and I notice because my arm or hand and finger feels numb tingly. I have Lupus SLE and APS (medications warfarin and hydroxychloroquine). I sent a photo to the GP and we had a telephone
Hi my fingers have gone completely white sometimes and the odd time black. This has only happened a maybe 5 times and I notice because my arm or hand and finger feels numb tingly. I have Lupus SLE and APS (medications warfarin and hydroxychloroquine). I sent a photo to the GP and we had a telephone
Bobbydoodle
in
LUPUS UK
1 year ago
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Advice please - CBD
Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home for palliative care. He is non-verbal, he has no mobility, he is doubley incontinent and is bedbound. My mum now has carers that come in 4 times
Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home for palliative care. He is non-verbal, he has no mobility, he is doubley incontinent and is bedbound. My mum now has carers that come in 4 times
Stormtrooper4
in
PSP Association
1 year ago
PharmaTher Submits FDA Meeting Package to Discuss Phase 3 Program and Fast Track Designation for KETARX™ (Ketamine) in PD
https://www.benzinga.com/pressreleases/23/02/g30671310/pharmather-holdings-submits-fda-meeting-package-to-discuss-phase-3-program-and-fast-track-designat?utm_source=dlvr.it&utm_medium=twitter TORONTO, Feb. 01, 2023 (GLOBE NEWSWIRE) -- PharmaTher Holdings Ltd. (the "Company" or "PharmaTher") PHRRF
https://www.benzinga.com/pressreleases/23/02/g30671310/pharmather-holdings-submits-fda-meeting-package-to-discuss-phase-3-program-and-fast-track-designat?utm_source=dlvr.it&utm_medium=twitter TORONTO, Feb. 01, 2023 (GLOBE NEWSWIRE) -- PharmaTher Holdings Ltd. (the "Company" or "PharmaTher") PHRRF
Hidden
in
Cure Parkinson's
1 year ago
CATCH-UP CORNER...FEBRUARY WEEK 1... Slip off the Running Shoes and COME on In... EVERYONE is WELCOME!
Good morning forum friends... First of all , I offer HUGE apologies for the Corner being opened a day late! No, I was not on strike... I was just a tad snowed under , not real snow, just a pile of running gear! I was looking for a particular outfit for my running, it was taking a while, which led
Good morning forum friends... First of all , I offer HUGE apologies for the Corner being opened a day late! No, I was not on strike... I was just a tad snowed under , not real snow, just a pile of running gear! I was looking for a particular outfit for my running, it was taking a while, which led
Oldfloss
Administrator
in
Couch to 5K
1 year ago
Electric Blanket
I may well be too late asking this but been using an electric blanket for years in the winter months. I have Primary Lymphoedema. The last 2 years developed severe bulbous painful varicose veins to right leg and now starting on left. GP won’t refer me due to the Lymphoedema. I often get sharp pains,
I may well be too late asking this but been using an electric blanket for years in the winter months. I have Primary Lymphoedema. The last 2 years developed severe bulbous painful varicose veins to right leg and now starting on left. GP won’t refer me due to the Lymphoedema. I often get sharp pains,
Shaz09
in
LSN
1 year ago
APIXABAN
Just got home from the ER. I had a CT scan done of my head and everything was fine so they let me drive home. There is a lot of discussion and worry about "apixaban" and bleeding and other problems. I want to put everyone's fears to rest. Got mad at myself about 3 hours ago and slammed my head against
Just got home from the ER. I had a CT scan done of my head and everything was fine so they let me drive home. There is a lot of discussion and worry about "apixaban" and bleeding and other problems. I want to put everyone's fears to rest. Got mad at myself about 3 hours ago and slammed my head against
kocoach
in
Atrial Fibrillation Support
1 year ago
Mitochondrial Dysfunction and Parkinson’s Disease—Near-Infrared Photobiomodulation as a Potential Therapeutic Strategy
This article references the 830 nm near infrared that is in the inexpensive red light hat I posted about earlier. https://www.frontiersin.org/articles/10.3389/fnagi.2020.00089/full The red light LEDs are 660 nm and the article references 670 nm, but hey it's half of them that are to the nm. https
This article references the 830 nm near infrared that is in the inexpensive red light hat I posted about earlier. https://www.frontiersin.org/articles/10.3389/fnagi.2020.00089/full The red light LEDs are 660 nm and the article references 670 nm, but hey it's half of them that are to the nm. https
TomandDon
in
Cure Parkinson's
1 year ago
Fluctuation of Platelet Count
Good day. Since May 2022 through January 2023 I have had 4 Blood Draws. The first showed Platelets stable at 150. Then they dropped considerably (31 pts) to 119 (11/22). They recovered slightly to 122 (12/22) and now presently have recovered all the way back to 150 (28 pts) (1/23). I am fully aware
Good day. Since May 2022 through January 2023 I have had 4 Blood Draws. The first showed Platelets stable at 150. Then they dropped considerably (31 pts) to 119 (11/22). They recovered slightly to 122 (12/22) and now presently have recovered all the way back to 150 (28 pts) (1/23). I am fully aware
Floydpup
in
CLL Support
1 year ago
my life...
I suffer from PTSD..cancer in remmision...depresion an anxiety and take no meds..how are you guys doing out there????👋
I suffer from PTSD..cancer in remmision...depresion an anxiety and take no meds..how are you guys doing out there????👋
lchipita
in
Anxiety Support
1 year ago
how do you afford Lupron and other cancer drugs…even with insurance coverage?
Hey! My husband is covered under UHC and a 3mo injection of Lupron is crazy high and the out of pocket we pay is also very high. I’m in the process of researching Orgovyxv to use instead, but not sure if insurance covers it. Thanks for your input!
Hey! My husband is covered under UHC and a 3mo injection of Lupron is crazy high and the out of pocket we pay is also very high. I’m in the process of researching Orgovyxv to use instead, but not sure if insurance covers it. Thanks for your input!
Newdiag-NC
in
Advanced Prostate Cancer
1 year ago
Anyone have experience of taking Imiquimod when taking hydroxycarbamide?
I don't post on here often but have now been diagnosed with VAIN2. I am currently being treated with hydroxycarbamide & low dose aspirin for JAK2 positive MPN (high platelets but treatment is currently keeping these within normal range). My gynaecologist wants me to start on imiquimod rather than any
I don't post on here often but have now been diagnosed with VAIN2. I am currently being treated with hydroxycarbamide & low dose aspirin for JAK2 positive MPN (high platelets but treatment is currently keeping these within normal range). My gynaecologist wants me to start on imiquimod rather than any
Devilgirl
in
MPN Voice
1 year ago
Normal blood work
Doctor rang me today and said all my bloods were normal, hospital text me saying they've saying my orthopaedics appointment has been cancelled for the second time I have avascular necrosis of both hips and all my joint hurt, still getting pain in the right ribcage and left side as well
Doctor rang me today and said all my bloods were normal, hospital text me saying they've saying my orthopaedics appointment has been cancelled for the second time I have avascular necrosis of both hips and all my joint hurt, still getting pain in the right ribcage and left side as well
Hidden
in
British Liver Trust
1 year ago
Photobiomodulation
Hi all, just heard about this treatment using infra red light. Someone told me it is being used to help Parkinson's and Alzheimer's sufferers, but when I checked one of the websites out it said it was suitable for TBIs too . So I was just wondering if anyone had tried it?
Hi all, just heard about this treatment using infra red light. Someone told me it is being used to help Parkinson's and Alzheimer's sufferers, but when I checked one of the websites out it said it was suitable for TBIs too . So I was just wondering if anyone had tried it?
FlowerPower62
in
Headway
2 years ago
Jaw claudication - what is it like for you?
Can anyone please describe to me how jaw claudication feels to them? I experienced a sudden, very uncomfortable, strange sensation in my right jaw yesterday for the first time since being diagnosed and put on pred in June 2021. (I've tapered right down to 1/ 1.5 mg on alternating days and have been on
Can anyone please describe to me how jaw claudication feels to them? I experienced a sudden, very uncomfortable, strange sensation in my right jaw yesterday for the first time since being diagnosed and put on pred in June 2021. (I've tapered right down to 1/ 1.5 mg on alternating days and have been on
Octi
in
PMRGCAuk
1 year ago
Something else!
Has anyone had breast surgery or any other kind really while still on 15mg Prednisolone. It’s making me very nervous. Been down to 6mg but back on 30mg because of GCA/ vasculitis flare. Reduced to 15mg but a bit stuck. Waiting to see Rheumatologist in 2 weeks.
Has anyone had breast surgery or any other kind really while still on 15mg Prednisolone. It’s making me very nervous. Been down to 6mg but back on 30mg because of GCA/ vasculitis flare. Reduced to 15mg but a bit stuck. Waiting to see Rheumatologist in 2 weeks.
broomfield28
in
PMRGCAuk
1 year ago
Alzheimer's, APOE4 gene and HRT - testing for the APOE4 gene
In the news today (14 January 2023) they talk about the possible reduction in Alzheimer's from taking HRT. I cannot take HRT (and have no desire to) due to my ovarian (sub-type endometrioid) cancer and endometrial cancer both being oestrogen receptor positive. However, what I found interesting to read
In the news today (14 January 2023) they talk about the possible reduction in Alzheimer's from taking HRT. I cannot take HRT (and have no desire to) due to my ovarian (sub-type endometrioid) cancer and endometrial cancer both being oestrogen receptor positive. However, what I found interesting to read
SarahBa
in
My Ovacome
2 years ago
Moving on from a Tracheostomy
Sorry - another question from me. As it was a slightly different topic, I thought I'd start a new thread. My dad has had a trachy now for just over two weeks, following two weeks fully sedated on a ventilator due to pneumonia. He is much improved and breathing unaided for 36 hours so far. He is also
Sorry - another question from me. As it was a slightly different topic, I thought I'd start a new thread. My dad has had a trachy now for just over two weeks, following two weeks fully sedated on a ventilator due to pneumonia. He is much improved and breathing unaided for 36 hours so far. He is also
Pookyal
in
ICUsteps
2 years ago
Not DVT....different focus for anxiety!
Further to my post from earlier this week.....I had a raised D dimer Saturday when attended UCC, started on Apixaban, had scan today for DVT. Dr told me there is NO clot! He wouldn't say what else it could be, he will scan again in a week, take the thinners til I have used the weeks supply.....but not
Further to my post from earlier this week.....I had a raised D dimer Saturday when attended UCC, started on Apixaban, had scan today for DVT. Dr told me there is NO clot! He wouldn't say what else it could be, he will scan again in a week, take the thinners til I have used the weeks supply.....but not
hollyrain
in
Anxiety Support
1 year ago
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