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Creating a Kidney Club to help transplant and dialysis patients learn to be their own best advocates
When I was a transplant patient at Downstate Medical Center in Brooklyn, New York, the PA along with the Social Worker and other medical staff affiliated with the transplant doctors and the dialysis center started the Brooklyn Kidney Club to help bring awareness to patients suffering from kidney disease
When I was a transplant patient at Downstate Medical Center in Brooklyn, New York, the PA along with the Social Worker and other medical staff affiliated with the transplant doctors and the dialysis center started the Brooklyn Kidney Club to help bring awareness to patients suffering from kidney disease
BetterKidney4Me
Moderator
in
Power2Save Transplant Community
7 years ago
Just rambling and venting
My nephrologist is adamant about me getting a fistula placement for dialysis asap. He is having me apply for a program here that will help me pay for it. He also wants to do a biopsy, but that's not happening right now, I can't afford it. I had them look at my prior health records and in 2014 & 2015
My nephrologist is adamant about me getting a fistula placement for dialysis asap. He is having me apply for a program here that will help me pay for it. He also wants to do a biopsy, but that's not happening right now, I can't afford it. I had them look at my prior health records and in 2014 & 2015
sheydreams
in
Kidney Disease
7 years ago
being active in the community
It's difficult some times to miss activities because of doing five days of dialysis weekly. we can schedule around the activities but it's still can be burden. But it keeps me alive to do the things that I can do. It is want it is.
It's difficult some times to miss activities because of doing five days of dialysis weekly. we can schedule around the activities but it's still can be burden. But it keeps me alive to do the things that I can do. It is want it is.
Dkgus53
in
Dialysis Support
7 years ago
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Triple Bypass Surgery w/ Renal & Liver Failure.
Hello, My mother had triple bypass surgery 4 days ago. The day after surgery she completed physical & occupational therapy, but into the next morning she experienced kidney failure and was placed on dialysis it’s now day 3 and dialysis is still in place, but now there is an issue with her liver. Today
Hello, My mother had triple bypass surgery 4 days ago. The day after surgery she completed physical & occupational therapy, but into the next morning she experienced kidney failure and was placed on dialysis it’s now day 3 and dialysis is still in place, but now there is an issue with her liver. Today
Alinsky
in
ICUsteps
7 years ago
Peritoneal Dialysis
I would just like to share my experience with peritoneal dialysis. If you haven't read my previous post introducing myself, here a shorter version. I started off with emergency hemodialysis due to high blood pressure. Once my blood pressure was stabilized I was able to get my surgery for my catheter
I would just like to share my experience with peritoneal dialysis. If you haven't read my previous post introducing myself, here a shorter version. I started off with emergency hemodialysis due to high blood pressure. Once my blood pressure was stabilized I was able to get my surgery for my catheter
PUREkatniss
in
Kidney Dialysis
7 years ago
Stopping dialysis
Question. If someone stops their dialysis treatments & let nature take its course, would it be considered suicide? This question has been on my mind for a while now.
Question. If someone stops their dialysis treatments & let nature take its course, would it be considered suicide? This question has been on my mind for a while now.
ddwebangel
in
Kidney Dialysis
7 years ago
Burning sick feeling
Hi all Hope you are having a good weekend and feeling ok at the moment. Need some advice, in stage 5 CKD and currently not on dialysis with gfr of 8 at the moment, was previously 7. I have a fistula which was already in June but having to have a narrowing sorted on Wednesday. My consultant has delayed
Hi all Hope you are having a good weekend and feeling ok at the moment. Need some advice, in stage 5 CKD and currently not on dialysis with gfr of 8 at the moment, was previously 7. I have a fistula which was already in June but having to have a narrowing sorted on Wednesday. My consultant has delayed
Charlene_Coxhead
in
Dialysis Support
7 years ago
Peripheral neuropathy
I am V Susheela 65 years old feet 6 inches and 70kilos.longtime diabetic.under insulin and medication.20R 30N (huminsulin 100u/ml) before breakfast 16R before lunchand 20R 30N before supper. Fastingsugar 120/+_ and PP 250+orminus. HBA1C 8.5 LATEST In addition I am also taking gliclazide 60 inthe morning
I am V Susheela 65 years old feet 6 inches and 70kilos.longtime diabetic.under insulin and medication.20R 30N (huminsulin 100u/ml) before breakfast 16R before lunchand 20R 30N before supper. Fastingsugar 120/+_ and PP 250+orminus. HBA1C 8.5 LATEST In addition I am also taking gliclazide 60 inthe morning
Csvenkatasubramanian
in
Diabetes India
7 years ago
Transitions and coping
Hello all! I'm excited to say that I'm in the third phase of getting ready for transplant and my evaluation is a week from today! I have mixed feelings about it, ranging from excitement to nervousness. I've read the schedule and it's two days at OHSU for classes, meeting the nutritionist, social worker
Hello all! I'm excited to say that I'm in the third phase of getting ready for transplant and my evaluation is a week from today! I have mixed feelings about it, ranging from excitement to nervousness. I've read the schedule and it's two days at OHSU for classes, meeting the nutritionist, social worker
Ladybug_05
in
Kidney Disease
7 years ago
Experiecing edema
Hello everyone, Has anyone been experiencing edema on either their feet or face after dialysis treatment? A few weeks ago I have been getting edema on my face. To make the swelling go away I wipe or compress a cold towel on my eyes. The water eventually comes out on my eyes on it's own. Lately
Hello everyone, Has anyone been experiencing edema on either their feet or face after dialysis treatment? A few weeks ago I have been getting edema on my face. To make the swelling go away I wipe or compress a cold towel on my eyes. The water eventually comes out on my eyes on it's own. Lately
PUREkatniss
in
Kidney Disease
7 years ago
Experiencing Edema on Feet
Hello everyone, Has anyone been experiencing edema on either their feet or face after dialysis treatment? A few weeks ago I have been getting edema on my face. To make the swelling go away I wipe or compress a cold towel on my eyes. The water eventually comes out on my eyes on it's own. Lately I have
Hello everyone, Has anyone been experiencing edema on either their feet or face after dialysis treatment? A few weeks ago I have been getting edema on my face. To make the swelling go away I wipe or compress a cold towel on my eyes. The water eventually comes out on my eyes on it's own. Lately I have
PUREkatniss
in
Kidney Dialysis
7 years ago
Is it coincidence?
Sometimes I wonder why did I get kidney disease? Why me? But in my situation isn’t it ironic how my very first (real) job I worked for a medical transportation business that transports patients to and from dialysis? And that this became a family business? And that my dad has been a dialysis technician
Sometimes I wonder why did I get kidney disease? Why me? But in my situation isn’t it ironic how my very first (real) job I worked for a medical transportation business that transports patients to and from dialysis? And that this became a family business? And that my dad has been a dialysis technician
PUREkatniss
in
Kidney Disease
7 years ago
Transplant Recipient
I was diagnosed with IGA Nephropothy a lil over 2 years ago. I quickly was diagnosed as stage 5 ESRD. My options were dialysis or transplant. I was lucky enough to have 2 matches. One a very good friend and the other my brother. The first match (friend) had everything approved and surgery scheduled.
I was diagnosed with IGA Nephropothy a lil over 2 years ago. I quickly was diagnosed as stage 5 ESRD. My options were dialysis or transplant. I was lucky enough to have 2 matches. One a very good friend and the other my brother. The first match (friend) had everything approved and surgery scheduled.
tdscherer4
in
Kidney Transplant
7 years ago
weight loss
I know everyone is different, how much weight can i expect to lose while on dialysis?
I know everyone is different, how much weight can i expect to lose while on dialysis?
rascal01
in
Kidney Disease
7 years ago
dialysis 18 years in egypt
my name mohamed mostafa from egypt dialysis from 18 years march (2001) age now 36 years my website Dedicate and support kidney patients their friends and loved ones for the exchange of information http://www.kidneymy.com/ thanks allah i am fine best regards for all
my name mohamed mostafa from egypt dialysis from 18 years march (2001) age now 36 years my website Dedicate and support kidney patients their friends and loved ones for the exchange of information http://www.kidneymy.com/ thanks allah i am fine best regards for all
kidneymy
in
Kidney Dialysis
7 years ago
Is dialysis forever
I am rather new to dialysis, do I have to be on dialysis forever?
I am rather new to dialysis, do I have to be on dialysis forever?
YollyD_NKF
in
Kidney Dialysis
7 years ago
Introducing......
Hello My names is Diane and I am new to this group. I have been on hemodialysis since April 2017. I go to dialysis three days a week. M-W-F. So far I am doing good with my treatments. I currently am just looking around getting familiar with the site. any helpful hints are welcomed Thanks for now,
Hello My names is Diane and I am new to this group. I have been on hemodialysis since April 2017. I go to dialysis three days a week. M-W-F. So far I am doing good with my treatments. I currently am just looking around getting familiar with the site. any helpful hints are welcomed Thanks for now,
lifemicurn
in
Kidney Dialysis
7 years ago
New here - Need recommenadations to keep BP stable
Hello, I am new here. I am 27 years old and I have Hypertension and I was pre-Diabetic but I have been watching my sugar intake. Hypertension is the main cause of my ESRD (End Stage Renal Disease) so now I am currently on peritoneal dialysis and I am currently on the kidney transplant list. I was diagnosed
Hello, I am new here. I am 27 years old and I have Hypertension and I was pre-Diabetic but I have been watching my sugar intake. Hypertension is the main cause of my ESRD (End Stage Renal Disease) so now I am currently on peritoneal dialysis and I am currently on the kidney transplant list. I was diagnosed
PUREkatniss
in
Diabetes & Hypertension Help Society
7 years ago
New kidney precipitant - 4 months post
Hi everyone, I'm new here. Nice to know this is out here! I am 4 months post kidney transplant. My wonderful husband was my donor and we are both doing really well. My new kidney is working great, however, I'm having a hard time dealing with some of the side effects from I believe is the prograf.
Hi everyone, I'm new here. Nice to know this is out here! I am 4 months post kidney transplant. My wonderful husband was my donor and we are both doing really well. My new kidney is working great, however, I'm having a hard time dealing with some of the side effects from I believe is the prograf.
Jenny0604
in
Kidney Transplant
7 years ago
Available funds or grants
Is funds available for transportation to Dialysis centers. Not eligible for Medicard. I have been on dialysis for over two years and have been driving myself three times a week about 20 miles one way. Need help.
Is funds available for transportation to Dialysis centers. Not eligible for Medicard. I have been on dialysis for over two years and have been driving myself three times a week about 20 miles one way. Need help.
Pkrob
in
Kidney Dialysis
7 years ago
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