Hello all! I'm excited to say that I'm in the third phase of getting ready for transplant and my evaluation is a week from today! I have mixed feelings about it, ranging from excitement to nervousness. I've read the schedule and it's two days at OHSU for classes, meeting the nutritionist, social worker and maybe some other individuals (my memory isn't the best) and testing to get me on the list. I'm hoping that everything goes well and I will have my parents with me for support. I've been waiting for evaluation for a few months and now that I'm doing my labs for it, it's finally sinking in that I'll be on the list and have a chance at a new kidney.
I'll admit that it's a lot for me to take in; I don't remember a time that I've been "healthy" and the possibility of recieving a new kidney (hoping for live donation from a family member) is difficult for me to imagine. I'm also at a point where I might need dialysis, but I'm keeping my fingers crossed that I can get a donor in time.
How have you all coped with this transition? I know that having CKD my entire life doesn't help, since I don't know a life without it. I'm also having a rough time with the whole "getting worse before it gets better" bit. In the last few months, I've gone from exercising for 45 minutes 4 times a week to barely being able to go up a flight of stairs and be awake for more than 8 hours at a time without utter exhaustion, memory problems and concentration issues. I don't bounce back like I feel like I should and it gets tough sometimes.
Thank you all for your input and have a lovely night!