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My Story by Lady Elaine
Hi I am lady Elaine. I have stage 3B bilateral renal carcinoma. I had my left kidney removed. And I have had a RFA done on my right kidney. My goal is trying to keep off of dialysis but trying to find a diet is so so hard. I hope somebody out there can help me.
Hi I am lady Elaine. I have stage 3B bilateral renal carcinoma. I had my left kidney removed. And I have had a RFA done on my right kidney. My goal is trying to keep off of dialysis but trying to find a diet is so so hard. I hope somebody out there can help me.
ElaineKeith
in
Early CKD Support
6 years ago
Stage 4 CKD and getting on transplant list
Hi, I am new to this community and am interested in knowing more about Stage 4 CKD. My doctor does not want me to go on dialysis but to be put on a kidney transplant list. What are the types of things that need to be done before getting on a transplant list
Hi, I am new to this community and am interested in knowing more about Stage 4 CKD. My doctor does not want me to go on dialysis but to be put on a kidney transplant list. What are the types of things that need to be done before getting on a transplant list
LaVMills4
in
Kidney Disease
6 years ago
Why do we cramp after dialysis & how come Drs want to suck out every ounce of fluid in the body especially what is needed in our bones
I haven't been on in a while since I was denied a 3rd transplant in January. All was very positive but the surgeon DID NOT WANT TO WAIST A KIDNEY if they couldn't find a place to put it or the new meds would be too harsh for me. I have been severely depressed. I've been sick all my life so living with
I haven't been on in a while since I was denied a 3rd transplant in January. All was very positive but the surgeon DID NOT WANT TO WAIST A KIDNEY if they couldn't find a place to put it or the new meds would be too harsh for me. I have been severely depressed. I've been sick all my life so living with
ddwebangel
in
Kidney Dialysis
6 years ago
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I am CKD Stage 2 and How Long I would Be Able To Survive until Starting My Dialysis
Dear friends, I'm 31 years old with no family history of any disease. 3 months back I have been diagnosed with the following:- CKD Stage 2, GFR 72%, Creatinine Level 117, Phosphate 4.xx (The rest of the result are all good) I am worried about my health. In past, I did done bodybuilding and consume proteins
Dear friends, I'm 31 years old with no family history of any disease. 3 months back I have been diagnosed with the following:- CKD Stage 2, GFR 72%, Creatinine Level 117, Phosphate 4.xx (The rest of the result are all good) I am worried about my health. In past, I did done bodybuilding and consume proteins
hanep
in
Early CKD Support
6 years ago
Problems with a certain dialysis nurse.
I've been having problems with a certain dialysis nurse. She is very unprofessional. Shes rude to me snd a couple other patients. She doesn't wash her hands like shes suppose to and I've noticed her stripping machines of their tubing and disposing of it in the biohazard box. She doesn't wash or change
I've been having problems with a certain dialysis nurse. She is very unprofessional. Shes rude to me snd a couple other patients. She doesn't wash her hands like shes suppose to and I've noticed her stripping machines of their tubing and disposing of it in the biohazard box. She doesn't wash or change
Jessi1027
in
Kidney Dialysis
6 years ago
Ask me anything!
Hi, this is Katy Wilkens, I am a renal dietitian who loves to help people with questions about the healthiest way to eat on dialysis. I have worked with people on dialysis for the last 38 years, and am happy to share my suggestions and ideas with you.
Hi, this is Katy Wilkens, I am a renal dietitian who loves to help people with questions about the healthiest way to eat on dialysis. I have worked with people on dialysis for the last 38 years, and am happy to share my suggestions and ideas with you.
KatyWilkens
in
Kidney Dialysis
6 years ago
Diet
I have been on dialysis now for 2 yrs and would like to know what is the best diet to lose weight to meet the transplant goal.
I have been on dialysis now for 2 yrs and would like to know what is the best diet to lose weight to meet the transplant goal.
foxesden
in
Kidney Dialysis
6 years ago
Latest ‘Ask Me Anything's’ on HealthUnlocked
Latest ‘Ask Me Anything's’ announced on HealthUnlocked, covering HIV, ovarian cancer, metastatic breast cancer and kidney dialysis - read more in our latest blog: http://blog.healthunlocked.com/post/170303599463/new-ask-me-anythings-on-a-range-of-subjects
Latest ‘Ask Me Anything's’ announced on HealthUnlocked, covering HIV, ovarian cancer, metastatic breast cancer and kidney dialysis - read more in our latest blog: http://blog.healthunlocked.com/post/170303599463/new-ask-me-anythings-on-a-range-of-subjects
MaddieHU
HealthUnlocked
in
HealthUnlocked Blog
6 years ago
Has anyone with GPA - vasculitis gotten their kidneys back?
Has anyone with GPA - vasculitis gotten their kidneys back? I was diagnosed on March 18, 2017 and have been on dialysis ever since. I currently do CPD dialysis while I sleep. I really want my kidneys back, but I am ready to give up on that hope and get my transplant process going. My research shows
Has anyone with GPA - vasculitis gotten their kidneys back? I was diagnosed on March 18, 2017 and have been on dialysis ever since. I currently do CPD dialysis while I sleep. I really want my kidneys back, but I am ready to give up on that hope and get my transplant process going. My research shows
cpierce1016
in
Vasculitis UK
6 years ago
Vasculitis – GPA
On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis – GPA. I am a white female. I was hospitalized until April 15, 2017. During my stay I had numerous blood tests, CAT scans, Ultrasounds, Endoscopy, Port put in my neck and then chest for dialysis, blood clots, 2 intestinal blockages
On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis – GPA. I am a white female. I was hospitalized until April 15, 2017. During my stay I had numerous blood tests, CAT scans, Ultrasounds, Endoscopy, Port put in my neck and then chest for dialysis, blood clots, 2 intestinal blockages
cpierce1016
in
Vasculitis UK
6 years ago
Latest gfr
Hi all new here. I was given the news that my egfr was 54% in Oct 16 since then it's been on the decrease with 2 increase but not remarkable ones. Today's visits for results were 25% I'm truly shocked although I'm in stage 4 it's such a bug decline in 15 months is it me? I hate hate hate the thought
Hi all new here. I was given the news that my egfr was 54% in Oct 16 since then it's been on the decrease with 2 increase but not remarkable ones. Today's visits for results were 25% I'm truly shocked although I'm in stage 4 it's such a bug decline in 15 months is it me? I hate hate hate the thought
Salw2104
in
Dialysis Support
6 years ago
Severely swollen feet and ankles with fibro
I’ve had fibro for almost 12 years now. This has never effected me before however my feet have always ached every day but now they are so swollen. I’ve gone from a size 5 to having to wear size 8. Not just my feet but around my ankles and the back of my feet too. They are rock hard. I was seriously
I’ve had fibro for almost 12 years now. This has never effected me before however my feet have always ached every day but now they are so swollen. I’ve gone from a size 5 to having to wear size 8. Not just my feet but around my ankles and the back of my feet too. They are rock hard. I was seriously
Corny67
in
Thyroid UK
6 years ago
Chronic kidney disease stage 3 - help
I was diagnosed with ckd3 last year. Recent results showed my creatine level at 101! Is that abnormally high? How do I get it down? I don't feel like the doctors have given me enough information, and am worried I may end up on dialysis at some point. I'm only 41, so not particularly old. Anyone with
I was diagnosed with ckd3 last year. Recent results showed my creatine level at 101! Is that abnormally high? How do I get it down? I don't feel like the doctors have given me enough information, and am worried I may end up on dialysis at some point. I'm only 41, so not particularly old. Anyone with
cstrutt
in
Kidney Disease
6 years ago
Need urgent Help plz...
Hi I know what I’m going to explain is not sensible but it’s happening and I have to do something about it. I came to know just an hour ago that my sister (32years )is visiting me tomorrow from Pakistan for 6 days as a visitor. She usually has haemodialysis dialysis three times a week. I have not made
Hi I know what I’m going to explain is not sensible but it’s happening and I have to do something about it. I came to know just an hour ago that my sister (32years )is visiting me tomorrow from Pakistan for 6 days as a visitor. She usually has haemodialysis dialysis three times a week. I have not made
elak
in
Dialysis Support
6 years ago
Dad has kidney failure and I'm very concerned
Hi all, My Dad who is 68 yrs old has been told to go through dialysis. His serum creatine levels is 8.1 and Blood urea is 135. He is currently in India and I am in the UK. I am worried that he won't be able to come and visit me!
Hi all, My Dad who is 68 yrs old has been told to go through dialysis. His serum creatine levels is 8.1 and Blood urea is 135. He is currently in India and I am in the UK. I am worried that he won't be able to come and visit me!
ashishs221
in
Dialysis Support
6 years ago
My aunt in ICU on multiple machines
My aunt has been in the hosp since tues. She was diagnosed with a really bad case of pneumonia. sin thatn she has been intubated and in a sleep coma. Due to mutli organ failure they have placed a ECMO, CRRT and a dialysis machine. The doctors are talking about pulling the plug in two days. Should she
My aunt has been in the hosp since tues. She was diagnosed with a really bad case of pneumonia. sin thatn she has been intubated and in a sleep coma. Due to mutli organ failure they have placed a ECMO, CRRT and a dialysis machine. The doctors are talking about pulling the plug in two days. Should she
sragsac
in
ICUsteps
6 years ago
Get off of Dialysis
Hello, why dont we concern ourselves with how to get off of dialysis, I know all doctors say it is not possible !
Hello, why dont we concern ourselves with how to get off of dialysis, I know all doctors say it is not possible !
tansiman
in
Dialysis Support
6 years ago
Dialysis help
Hi my wife and I are moving back to the uk in February after a long spell working abroad, what is the process for my wife to get dialysis with the NHS ....do I need to contact our GP and then get a referral....? We don’t know how the procedure works or does this even exist on the NHS ....any help would
Hi my wife and I are moving back to the uk in February after a long spell working abroad, what is the process for my wife to get dialysis with the NHS ....do I need to contact our GP and then get a referral....? We don’t know how the procedure works or does this even exist on the NHS ....any help would
Kevlar65
in
Dialysis Support
6 years ago
Live Q&A January 31st on NKF's Dialysis Community
Join us on our dialysis community on January 31st for a live Q&A with a renal dietitian on the dialysis diet! https://healthunlocked.com/nkf-dialysis/posts/137114366/save-the-date-live-q-a
Join us on our dialysis community on January 31st for a live Q&A with a renal dietitian on the dialysis diet! https://healthunlocked.com/nkf-dialysis/posts/137114366/save-the-date-live-q-a
KelliC_NKF
in
Kidney Disease
6 years ago
Exercise
Can I exercise while on dialysis?
Can I exercise while on dialysis?
YollyD_NKF
in
Kidney Dialysis
6 years ago
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