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Preparing for a new chapter
Hello everyone, I’m not use to being on forums but I feel so lost and alone, I don’t know who else to turn to. I’m 28 years old and the oldest daughter of my family. We recently found out my mom (52) is at her end stage of renal disease. She just had a catheter inserted to prepare for Peritoneal Dialysis
Hello everyone, I’m not use to being on forums but I feel so lost and alone, I don’t know who else to turn to. I’m 28 years old and the oldest daughter of my family. We recently found out my mom (52) is at her end stage of renal disease. She just had a catheter inserted to prepare for Peritoneal Dialysis
AC320
in
Kidney Dialysis
4 years ago
Mom vs. Covid-19
My mom caught the virus shortly before she was to be discharged from rehab center after a terrible spinal infection. A few days after her positive test result, they sent her to the hospital to give her the best chance possible. At first she had no symptoms but once at the hospital she was placed in ICU
My mom caught the virus shortly before she was to be discharged from rehab center after a terrible spinal infection. A few days after her positive test result, they sent her to the hospital to give her the best chance possible. At first she had no symptoms but once at the hospital she was placed in ICU
Axogirl49
in
ICUsteps
4 years ago
Covid: back at square one
So apparently the nurse was a little bit wrong about her findings. We spoke with two doctors (definitely not calling the nurse ever again) and they told us she still not responding to anything except moving her eyes... 😔 The neurologist said the covid could have affected a neuron or something. It could
So apparently the nurse was a little bit wrong about her findings. We spoke with two doctors (definitely not calling the nurse ever again) and they told us she still not responding to anything except moving her eyes... 😔 The neurologist said the covid could have affected a neuron or something. It could
Marcita
in
ICUsteps
4 years ago
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Aortic dissection
Hello, My partner (32) underwent an emergency aortic dissection 7 weeks ago (16th March). The operation lasted 12 hours and was very complicated including being resuscitated twice and 2 blood diffusions. He left the operating theatre in a critical condition. This was followed by 16 days in ICU with many
Hello, My partner (32) underwent an emergency aortic dissection 7 weeks ago (16th March). The operation lasted 12 hours and was very complicated including being resuscitated twice and 2 blood diffusions. He left the operating theatre in a critical condition. This was followed by 16 days in ICU with many
evelyn000
in
British Heart Foundation
4 years ago
Decline of gfr from 35 to 24 in 3 months time
Hello everyone I want to tell something very important and need suggestions from all. I was able to maintain my gfr around 30-35 from last 4 years but suddenly on 15th April, my routine blood tests indicated that gfr has suddenly declined to 24 . Also first time anaemia related to ckd was diagnosed
Hello everyone I want to tell something very important and need suggestions from all. I was able to maintain my gfr around 30-35 from last 4 years but suddenly on 15th April, my routine blood tests indicated that gfr has suddenly declined to 24 . Also first time anaemia related to ckd was diagnosed
Drakula
in
Early CKD Support
4 years ago
Dad not waking up after turning sedation off
My dad is on the vent for 2 weeks and trachy on the 3rd week because of COVID. His oxygen and sats are up and down, but they are stable now. He’s had dialysis and filter as his kidney wasn’t functioning well. They already turned the sedation off and I think this is the second day, he’s not waking up
My dad is on the vent for 2 weeks and trachy on the 3rd week because of COVID. His oxygen and sats are up and down, but they are stable now. He’s had dialysis and filter as his kidney wasn’t functioning well. They already turned the sedation off and I think this is the second day, he’s not waking up
tianaelah
in
ICUsteps
4 years ago
Covid: Not conscious but dispatched from the ICU
So yeah after 29 long days on the ICU my mom has been released from the ICU. I really don't know how I feel about that because even though she's awake she's not conscious (15 days after the sedation was stopped). Meaning she's not communicating at all. I'm afraid, honestly. Afraid something happens and
So yeah after 29 long days on the ICU my mom has been released from the ICU. I really don't know how I feel about that because even though she's awake she's not conscious (15 days after the sedation was stopped). Meaning she's not communicating at all. I'm afraid, honestly. Afraid something happens and
Marcita
in
ICUsteps
4 years ago
Covid 19 and struggling to wake from sedation without Sat's going wild
Hi my father in law is in icu with covid 19. This is his 30th day in an induced coma. We thought we was going to lose him over the weekend as his trach had started bleeding into his lungs. Thankfully they have stopped the bleed. Everytime they try and wake him from sedation all his SAT's go all over
Hi my father in law is in icu with covid 19. This is his 30th day in an induced coma. We thought we was going to lose him over the weekend as his trach had started bleeding into his lungs. Thankfully they have stopped the bleed. Everytime they try and wake him from sedation all his SAT's go all over
Lf91
in
ICUsteps
4 years ago
Intradialytic Hypertension?
Has anyone else been diagnosed with Intradialytic Hypertension? If so, what did you do to manage it or mitigate it? I'm aware that peritoneal dialysis doesn't have this complication. Thanks. https://www.ajkd.org/article/S0272-6386(09)01145-7/pdf Intradialytic Hypertension: A Less-Recognized Cardiovascular
Has anyone else been diagnosed with Intradialytic Hypertension? If so, what did you do to manage it or mitigate it? I'm aware that peritoneal dialysis doesn't have this complication. Thanks. https://www.ajkd.org/article/S0272-6386(09)01145-7/pdf Intradialytic Hypertension: A Less-Recognized Cardiovascular
steve680
in
Kidney Disease
4 years ago
A miracle for mom
Update on my mom so the doctors are giving us any hope My mom’s been into baited 21 days so now they want to takeoff of that and put a tracheotomy tube because they can’t keep her on the ventilator too long. So she’s getting dialysis has infections and her BP is up and down. They did act scan because
Update on my mom so the doctors are giving us any hope My mom’s been into baited 21 days so now they want to takeoff of that and put a tracheotomy tube because they can’t keep her on the ventilator too long. So she’s getting dialysis has infections and her BP is up and down. They did act scan because
Mguzman1
in
ICUsteps
4 years ago
MIRICLE FOR MOM
So my brother just called me that my moms been intubated for 21 days and they can't keep her intubated for that long. They need permission to do a put tracheostomy tube. She still has blood in her brain but is not bleeding. They're putting a new Catheter because they need to give her dialysis again.
So my brother just called me that my moms been intubated for 21 days and they can't keep her intubated for that long. They need permission to do a put tracheostomy tube. She still has blood in her brain but is not bleeding. They're putting a new Catheter because they need to give her dialysis again.
Mguzman1
in
ICUsteps
4 years ago
Co-vid 19 - third week in ICU for Mum
My Mum has been in ICU ventilated, and at some points on dialysis, for 17 days now. She is off antibiotics and medicine for her blood pressure at the moment. Last week she seemed to be making some progress on being weaned from the ventilation and sedation, but the doctors now seems to think they will
My Mum has been in ICU ventilated, and at some points on dialysis, for 17 days now. She is off antibiotics and medicine for her blood pressure at the moment. Last week she seemed to be making some progress on being weaned from the ventilation and sedation, but the doctors now seems to think they will
LAClarke
in
ICUsteps
4 years ago
How to stop periods ?
My Sister is on dialysis since last 2 years. Since last 7-8 months she is having her period on weekly basis ? Kindly suggest how to stop her periods.
My Sister is on dialysis since last 2 years. Since last 7-8 months she is having her period on weekly basis ? Kindly suggest how to stop her periods.
prathamupadhyay
in
Kidney Dialysis
4 years ago
INDIA AND CKD
Hello everyone I read on many platforms that in most countries, the medicare covers all the treatment, medicines, dialysis, everything. But in India they will never give u mediclaim policy even if u are ckd patient in early stage. I also read that in many counties, the end stage renal patients irrespective
Hello everyone I read on many platforms that in most countries, the medicare covers all the treatment, medicines, dialysis, everything. But in India they will never give u mediclaim policy even if u are ckd patient in early stage. I also read that in many counties, the end stage renal patients irrespective
Drakula
in
Early CKD Support
4 years ago
Night sweats
Here we go again, the last quarter of last year I found myself waking up during the night absolutely drenched in sweat to the point where I thought I'd actually wet myself. Asking my consultant he said it was because there was activity with the kidneys causing this, since starting dialysis in December
Here we go again, the last quarter of last year I found myself waking up during the night absolutely drenched in sweat to the point where I thought I'd actually wet myself. Asking my consultant he said it was because there was activity with the kidneys causing this, since starting dialysis in December
Hidden
in
LUPUS UK
4 years ago
A Miracle For MyMom
Hi my name is Maggie, I Was googling how long a person stays sedated and came across something that said a little hope.My mom has been in the hospital for about a month now she has the coronavirus and has been in ICU since April 3rd. I believe it’s been about eight or nine days that she’s been off for
Hi my name is Maggie, I Was googling how long a person stays sedated and came across something that said a little hope.My mom has been in the hospital for about a month now she has the coronavirus and has been in ICU since April 3rd. I believe it’s been about eight or nine days that she’s been off for
Mguzman1
in
ICUsteps
4 years ago
Pre- Dialysis arterial graft
Had an arterial graft inserted into my arm from the elbow to the armpit. I am 3 weeks out from this surgery and I am still dealing with a lot of pain and redness. I can't have any clothing on the area but still the redness and pain persists. I've even tried a different detergent hoping to find a remedy
Had an arterial graft inserted into my arm from the elbow to the armpit. I am 3 weeks out from this surgery and I am still dealing with a lot of pain and redness. I can't have any clothing on the area but still the redness and pain persists. I've even tried a different detergent hoping to find a remedy
bjesh2020
in
Kidney Dialysis
4 years ago
Transplant
My husband is currently on dialysis for the last two years. He received an offer for a living donor from a friend of a friend. However, the donor lives in another country, and this has all been put on hold due to the current situation. We are feeling very disappointed at the moment. Hopefully things
My husband is currently on dialysis for the last two years. He received an offer for a living donor from a friend of a friend. However, the donor lives in another country, and this has all been put on hold due to the current situation. We are feeling very disappointed at the moment. Hopefully things
239227
in
Kidney Transplant
4 years ago
COVID: doesn't wake up from induced coma
My mom is 55y and has covid. She was put on ventilator since 31th of March. They turned off her sedation on 15th of April and she still didn't wake up. She has her eyes open but that's all. They said her lungs are better, she make dialysis every other day because her kidneys are not working properly
My mom is 55y and has covid. She was put on ventilator since 31th of March. They turned off her sedation on 15th of April and she still didn't wake up. She has her eyes open but that's all. They said her lungs are better, she make dialysis every other day because her kidneys are not working properly
Marcita
in
ICUsteps
4 years ago
Not waking from Sedation
Hi, I’ve posted a few times about my dad who is in ICU with Covid-19. This is day 14. His oxygen requirement has went back up to 60%. He is now completely off sedation - at the weekend he was scrunching his face up and moving his arms in response to touch etc but now he is doing nothing. They are
Hi, I’ve posted a few times about my dad who is in ICU with Covid-19. This is day 14. His oxygen requirement has went back up to 60%. He is now completely off sedation - at the weekend he was scrunching his face up and moving his arms in response to touch etc but now he is doing nothing. They are
Heartgal151
in
ICUsteps
4 years ago
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