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Its my turn to worry now
Well, after over two years of stable numbers, I had a 4 point drop in my GFR. My creatinine also went up. I am frustrated but I am not going to let that stop me. I feel fine and I asked my nephrologist to retest me in a month. All of my other labs look fine or stable. I have not had blood tests in
Well, after over two years of stable numbers, I had a 4 point drop in my GFR. My creatinine also went up. I am frustrated but I am not going to let that stop me. I feel fine and I asked my nephrologist to retest me in a month. All of my other labs look fine or stable. I have not had blood tests in
Bassetmommer
NKF Ambassador
in
Kidney Disease
4 years ago
I'm new here!
I'm new here. I just started dialysis. Hate it. My brother is a living donor. But all the red tape to get a transplant! Something about covid!
I'm new here. I just started dialysis. Hate it. My brother is a living donor. But all the red tape to get a transplant! Something about covid!
godspeed
in
Kidney Disease
4 years ago
Cramp during dialysis
New starter to HD. I'm concerned about getting cramp during dialysis. How will this be managed when I'm hooked up and cant jump about? I normally end up rolling around on the floor in agony. Any one else suffer and if so, what do you do?
New starter to HD. I'm concerned about getting cramp during dialysis. How will this be managed when I'm hooked up and cant jump about? I normally end up rolling around on the floor in agony. Any one else suffer and if so, what do you do?
Juliepkd
in
Kidney Dialysis
4 years ago
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I am new to this forum, and would like to ask some questions on my fathers behalf.
My farther has been on self dialysis now for 3 years and has recently been very messed up with not sleeping at all for over a month even thought he has been prescribed temazepam and other sleep aiding drugs but have not taken effect. He got himself to a stage that he was ready to give it all up and come
My farther has been on self dialysis now for 3 years and has recently been very messed up with not sleeping at all for over a month even thought he has been prescribed temazepam and other sleep aiding drugs but have not taken effect. He got himself to a stage that he was ready to give it all up and come
Dad2020
in
Kidney Dialysis
4 years ago
2 months in; still fighting but her doctors want to stop treatment
I hope everyone has been doing okay these last couple of weeks. In my last post, I described how my mom’s blood pressure was low and her doctors wanted to stop dialysis. It was later revealed to us that her blood pressure was low due to septicemia related to bacterial pneumonia and that her doctors had
I hope everyone has been doing okay these last couple of weeks. In my last post, I described how my mom’s blood pressure was low and her doctors wanted to stop dialysis. It was later revealed to us that her blood pressure was low due to septicemia related to bacterial pneumonia and that her doctors had
ChrissyJames
in
ICUsteps
4 years ago
New to this
Hello. I've taken care of my father with disabilities since high school. He just started dialysis at home this week and is really struggling emotionally. I'm encouraging him to get on one of these groups, talk to others and thought I'd lead by example. Him struggling is hard to see and hard to live with
Hello. I've taken care of my father with disabilities since high school. He just started dialysis at home this week and is really struggling emotionally. I'm encouraging him to get on one of these groups, talk to others and thought I'd lead by example. Him struggling is hard to see and hard to live with
JSStories
in
Care Community
4 years ago
New to Stage 4 CKD
I am 47 years old and have stage 4 ckd and congestive heart failure. My EGR is at 22 and ejection fraction is at 23% My kidney doc told me to look to family members for a donation for transplant, but to no avail there is no one. If that's the case, shouldn't they be looking towards dialysis? Also
I am 47 years old and have stage 4 ckd and congestive heart failure. My EGR is at 22 and ejection fraction is at 23% My kidney doc told me to look to family members for a donation for transplant, but to no avail there is no one. If that's the case, shouldn't they be looking towards dialysis? Also
thomascald
in
Kidney Disease
4 years ago
Gabapentin a nightmare drug!
I am a renal patient with only 8% kidney function who went onto PD Dialysis in April 2020 but it was a disaster!. Apart from peritonitis I also developed nephropathy in my feet for which I was prescribed the drug gabapentin (only 100 mg per day) for the pain. This immediately made me feel dizzy. I was
I am a renal patient with only 8% kidney function who went onto PD Dialysis in April 2020 but it was a disaster!. Apart from peritonitis I also developed nephropathy in my feet for which I was prescribed the drug gabapentin (only 100 mg per day) for the pain. This immediately made me feel dizzy. I was
OVERPAR
in
Kidney Disease
4 years ago
Peritoneal Dialysis & insomnia
Hi guys. I'm new to 'health unlocked', & am trying to resolve the problem of not being able to sleep during my nighttime transfer. I have been on PD for two years, the first 18 months of which worked with no problems at all, then I gradually started to have problems dropping off to sleep & staying asleep.I
Hi guys. I'm new to 'health unlocked', & am trying to resolve the problem of not being able to sleep during my nighttime transfer. I have been on PD for two years, the first 18 months of which worked with no problems at all, then I gradually started to have problems dropping off to sleep & staying asleep.I
fishe
in
Sleep Matters
4 years ago
Struggling with depression
Hi, I was reccomended this site by a social worker. I'm hoping maybe to find support on here. I'm a 21 year old female, and I've struggled with anxiety pretty much my entire life. About a year ago I was diagnosed with postpartum depression. Soon after, I started getting sick, and on December 3rd, 2019
Hi, I was reccomended this site by a social worker. I'm hoping maybe to find support on here. I'm a 21 year old female, and I've struggled with anxiety pretty much my entire life. About a year ago I was diagnosed with postpartum depression. Soon after, I started getting sick, and on December 3rd, 2019
Kat_21
in
Anxiety and Depression Support
4 years ago
Dialysis question - advice please
Good morning! As some of you know my brother was in ICU for many weeks due to COVID. He is now in a specialist renal hospital as his kidneys are still not working. He is doing well apart from this. I have seen him a couple of times on the ward - he is very ‘skinny’ but seems to be perky enough in
Good morning! As some of you know my brother was in ICU for many weeks due to COVID. He is now in a specialist renal hospital as his kidneys are still not working. He is doing well apart from this. I have seen him a couple of times on the ward - he is very ‘skinny’ but seems to be perky enough in
RiaJam
in
ICUsteps
4 years ago
Just wondering
I meant to say I am not on dialysis yet. Is there a diabetic out there who is on dialysis ? And how do you cope?
I meant to say I am not on dialysis yet. Is there a diabetic out there who is on dialysis ? And how do you cope?
Quita55
in
Kidney Dialysis
4 years ago
Just wondering
I am currently on dialysis yet. My question is there a dialysis patient who also has diabetes? I how do you cope having to do dialysis and manage your diabetes on a daily basis. Do you have any tips you can share with me so when I start dialysis I will have a some information I maybe able to use
I am currently on dialysis yet. My question is there a dialysis patient who also has diabetes? I how do you cope having to do dialysis and manage your diabetes on a daily basis. Do you have any tips you can share with me so when I start dialysis I will have a some information I maybe able to use
Quita55
in
Kidney Dialysis
4 years ago
Blood pressure issues
Anyone else have problems with low blood pressure at the end of your dialysis run?
Anyone else have problems with low blood pressure at the end of your dialysis run?
Rabbit34
in
Kidney Disease
4 years ago
Low carb works -slowly but it’s a new way to eat -not a diet it’s a way of life
Hello I’m 9 years post transplant and have gained about 40 pounds after the rejection and second transplant. I’ve lost about twenty after understanding what function the kidney plays un bloating and weight gain. Read up on it to get a new prospective, if your kidney is only sub-working I’m still at stage
Hello I’m 9 years post transplant and have gained about 40 pounds after the rejection and second transplant. I’ve lost about twenty after understanding what function the kidney plays un bloating and weight gain. Read up on it to get a new prospective, if your kidney is only sub-working I’m still at stage
mtwskk
in
Kidney Transplant
4 years ago
Peritoneal vs Incenter Nocturnal Dialysis
If I do not get a transplant first, I may have to choose a method of dialysis. My doctor recommends peritoneal but I'm attracted to incenter nocturnal dialysis. Does anyone have information on how each compares in regards to how the recipient feels generally from each?
If I do not get a transplant first, I may have to choose a method of dialysis. My doctor recommends peritoneal but I'm attracted to incenter nocturnal dialysis. Does anyone have information on how each compares in regards to how the recipient feels generally from each?
Leroy1
in
Kidney Disease
4 years ago
Low blood pressure...they want to stop dialysis...please any advice is needed
My mom’s doctors are now saying that her blood pressure is very low, likely due to all the infections she has been fighting off. She has been on dialysis since her kidneys haven't been functioning properly because of an autoimmune disease. They can’t treat the disease due to her infections...and it seems
My mom’s doctors are now saying that her blood pressure is very low, likely due to all the infections she has been fighting off. She has been on dialysis since her kidneys haven't been functioning properly because of an autoimmune disease. They can’t treat the disease due to her infections...and it seems
ChrissyJames
in
ICUsteps
4 years ago
Recurring pneumonia in PT dialysis
My husband is on peritoneal dialysis. He has a kidney donor but we have been fighting pneumonia for 9 months now and its holding up the transplant. He recently had a broncoscope done to help with diagnosis as antibiotics were not working. Inconclusive results. Were told to wait 3 months and do another
My husband is on peritoneal dialysis. He has a kidney donor but we have been fighting pneumonia for 9 months now and its holding up the transplant. He recently had a broncoscope done to help with diagnosis as antibiotics were not working. Inconclusive results. Were told to wait 3 months and do another
CDubs22
in
Kidney Dialysis
4 years ago
Of-Presidents-Policies-and-Patients
One year ago the administration signed an EO on Advancing American Kidney Health. This letter from two key members of AAKP was in my mail today and I thought I'd share it with everyone in the community. July 10, 2020 Paul T. Conway and Edward V. Hickey III As two kidney patients who have lived at
One year ago the administration signed an EO on Advancing American Kidney Health. This letter from two key members of AAKP was in my mail today and I thought I'd share it with everyone in the community. July 10, 2020 Paul T. Conway and Edward V. Hickey III As two kidney patients who have lived at
Hidden
in
Kidney Disease
4 years ago
Hows every doing 💪🙏😛
Me Hello my fellow warriors 🙏my name is Dave i first joined this group i guess about 2 years ago whenw i was blessed with a kidney transplant🙏Ivecome a long way since my health now is better than when i first became sick 10 years ago my last laB results put me at a gfr of 74% i had to have a double
Me Hello my fellow warriors 🙏my name is Dave i first joined this group i guess about 2 years ago whenw i was blessed with a kidney transplant🙏Ivecome a long way since my health now is better than when i first became sick 10 years ago my last laB results put me at a gfr of 74% i had to have a double
Gotthecall_123
in
Kidney Transplant
4 years ago
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