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High BP during dialysis
Hello, everyone! Today I’m reaching out on behalf of a friend who hasn’t joined this community yet but would greatly appreciate any advice you can offer. Her mom has been on dialysis for about 3 months and is having a rough go of it. During treatment her mom’s pressure shoots up dangerously high,
Hello, everyone! Today I’m reaching out on behalf of a friend who hasn’t joined this community yet but would greatly appreciate any advice you can offer. Her mom has been on dialysis for about 3 months and is having a rough go of it. During treatment her mom’s pressure shoots up dangerously high,
Learning_as_we_go
in
Kidney Dialysis
1 day ago
Insurance and transplant woes
I have two things yet to do to get back active on the list after being in the hospital for 2 months last fall. One is a discussion with the transplant nephrologist which since I live 3 hours away they said I could do as a telehealth. That was set up today after dialysis but before it started they
I have two things yet to do to get back active on the list after being in the hospital for 2 months last fall. One is a discussion with the transplant nephrologist which since I live 3 hours away they said I could do as a telehealth. That was set up today after dialysis but before it started they
horsie63
in
Kidney Dialysis
2 days ago
ANCA vasculitis & kidneys
Recently I developed red rashes (purpura) on my legs/thigh. Examined by a dermatogist as skin vasculitis I treated it with prescription meds and ointment. The rashes are now all gone in a week. But I recently learned that such a red rash "may" indicate ANCA vascultis in the glomeruli as a possible cause
Recently I developed red rashes (purpura) on my legs/thigh. Examined by a dermatogist as skin vasculitis I treated it with prescription meds and ointment. The rashes are now all gone in a week. But I recently learned that such a red rash "may" indicate ANCA vascultis in the glomeruli as a possible cause
Snowcountry
in
Kidney Dialysis
3 days ago
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Kidney gfr
So last time my mam was told her kidneys were at 6% and yesterday while we were at a&e she's been told her kidneys are at 30% is this normal my mam has been on dialysis for 10 months.
So last time my mam was told her kidneys were at 6% and yesterday while we were at a&e she's been told her kidneys are at 30% is this normal my mam has been on dialysis for 10 months.
Jk2023
in
Kidney Dialysis
4 days ago
Allergic to dialysis tape?
Is anyone else here allergic to, or irritated by, the paper tape that the dialysis lab technicians place on your arm during treatment? I get terrible red, itchy, painful, crusty rashes on the part of my arm where the tape adheres to. The clinic says they will try to special order silk tape for
Is anyone else here allergic to, or irritated by, the paper tape that the dialysis lab technicians place on your arm during treatment? I get terrible red, itchy, painful, crusty rashes on the part of my arm where the tape adheres to. The clinic says they will try to special order silk tape for
chicagotrekkie
in
Kidney Dialysis
5 days ago
Over 65? Newly low eGFR?
In the three years I've participated here I see many posts from new folks that do not include their age. Those of us with diagnosed CKD pipe up and offer suggestions for diet, labs, readings and more. All the advice can help to calm or scare new folks. We often fail to ask a simple question though,
In the three years I've participated here I see many posts from new folks that do not include their age. Those of us with diagnosed CKD pipe up and offer suggestions for diet, labs, readings and more. All the advice can help to calm or scare new folks. We often fail to ask a simple question though,
barbara55109
in
Kidney Disease
10 days ago
Paying for Dialysis
When you get the news that you have CKD money may not be the first thing that you think of but it should be the second thing as paying for treatment can be more of a life disruption than the treatment it self. I didn’t look into programs that assist you with the out of pocket expenses early enough
When you get the news that you have CKD money may not be the first thing that you think of but it should be the second thing as paying for treatment can be more of a life disruption than the treatment it self. I didn’t look into programs that assist you with the out of pocket expenses early enough
ZenPDX
in
Kidney Dialysis
10 days ago
fell kt/v again going to do EXTRANEAL bags question about that
Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine
Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine
Beachgirl32
in
Kidney Dialysis
15 days ago
Numbers higher
I stopped eating sweets, and it has helped me improve my Stage # 3 to Stage 2. Now, I want to get to Stage 1, and then I will have no kidney issues at all. I believe Everything is Possible with a Lifestyle change. I decided that I didn't choose to be on dialysis and knew if I didn't change what I
I stopped eating sweets, and it has helped me improve my Stage # 3 to Stage 2. Now, I want to get to Stage 1, and then I will have no kidney issues at all. I believe Everything is Possible with a Lifestyle change. I decided that I didn't choose to be on dialysis and knew if I didn't change what I
purifire7777
in
Kidney Disease
18 days ago
GFR and dialysis
Does everyone know what their GFR number is since they’ve started PD or HD I was just wondering if it improves or declines with dialysis. Thanks
Does everyone know what their GFR number is since they’ve started PD or HD I was just wondering if it improves or declines with dialysis. Thanks
TDPowers
in
Kidney Disease
19 days ago
Using cannabis oil for rls.
Have had restless legs badly the last couple of years. I have iga neropathy, kidney disease and after twenty five years of it am now on dialyisis. My rls became bad about eighteen months ago when I got anaemia. I have been on Sifrol. Recently have begun taking cannabis oil, 4ml twice a day. I have
Have had restless legs badly the last couple of years. I have iga neropathy, kidney disease and after twenty five years of it am now on dialyisis. My rls became bad about eighteen months ago when I got anaemia. I have been on Sifrol. Recently have begun taking cannabis oil, 4ml twice a day. I have
art37
in
Restless Legs Syndrome
19 days ago
Using cannabis oil for rls.
Have had restless legs badly the last couple of years. I have iga neropathy, kidney disease and after twenty five years of it am now on dialyisis. My rls became bad about eighteen months ago when I got anaemia. I have been on Sifrol. Recently have begun taking cannabis oil, 4ml twice a day. I have
Have had restless legs badly the last couple of years. I have iga neropathy, kidney disease and after twenty five years of it am now on dialyisis. My rls became bad about eighteen months ago when I got anaemia. I have been on Sifrol. Recently have begun taking cannabis oil, 4ml twice a day. I have
art37
in
Restless Legs Syndrome
19 days ago
fell kt/v test
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
hey I had a uti that doesn’t want to go away I’m just finishing my second round of antibiotics. I ask dialysis center that will the Kt/v test be affected that I’m hardly making urine only did 100 ml in 24 hours before uti I had a nice urine stream .well they said no it won’t effect it we’ll call today
Beachgirl32
in
Kidney Dialysis
24 days ago
Constipation - any ideas with restricted fluid intake because of dialysis?
I eat a lot of fruit and vegetables but that's getting old quickly
I eat a lot of fruit and vegetables but that's getting old quickly
Hidden
in
Kidney Dialysis
25 days ago
Question about dialysis
I was hoping someone could tell me how do they do dialysis if you don’t have good veins. Mine are so tiny even blood draws are difficult let alone a iv started. I’ve had major abdominal surgery three times so a lot of scar tissue and mesh . Hopefully I never need it but in the back of my mind I always
I was hoping someone could tell me how do they do dialysis if you don’t have good veins. Mine are so tiny even blood draws are difficult let alone a iv started. I’ve had major abdominal surgery three times so a lot of scar tissue and mesh . Hopefully I never need it but in the back of my mind I always
Chimama
in
Kidney Disease
25 days ago
itchy skin
to know if the itch i have is related to the proteinuria i have since i get it on the head back arms or leg s or feet i heard loss of proteins in the urine makes everything dehydrated and that that s when the itch comes Dry skin is seen in 50% to 80% of people who undergo dialysis to treat kidney disease
to know if the itch i have is related to the proteinuria i have since i get it on the head back arms or leg s or feet i heard loss of proteins in the urine makes everything dehydrated and that that s when the itch comes Dry skin is seen in 50% to 80% of people who undergo dialysis to treat kidney disease
Pantwhite
in
Kidney Disease
25 days ago
Another update 4/13.
Feels strange to day would have been our son Johns 63rd birthday. He passed last Nov. I stood beside Bills hospital thinking of John & praying for Bill to come back there is still much to be done. They restarted dialysis on him & he does have a feeding tube in place. all his numbers look good. they
Feels strange to day would have been our son Johns 63rd birthday. He passed last Nov. I stood beside Bills hospital thinking of John & praying for Bill to come back there is still much to be done. They restarted dialysis on him & he does have a feeding tube in place. all his numbers look good. they
kycmary
in
My MSAA Community
26 days ago
Nifedipine/blood pressure
it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus encouraging people to often be able to advocate for themselves with the medics. I was diagnosed in 2015 but like many others believe the Scleroderma
it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus encouraging people to often be able to advocate for themselves with the medics. I was diagnosed in 2015 but like many others believe the Scleroderma
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
27 days ago
What a week!! (Starting HD, continued)
Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my first three rounds. Low Venous Flowrate, but they seemed to handle it, and ordered a Fistulagram. So, this past Monday, I drove to Duluth (114 miles, door to door) for that procedure, done in the Interventional
Where was I? Ah, yes. I had just spent 3 days in the hospital getting in-patient dialysis for my first three rounds. Low Venous Flowrate, but they seemed to handle it, and ordered a Fistulagram. So, this past Monday, I drove to Duluth (114 miles, door to door) for that procedure, done in the Interventional
PeaB4YouGo
in
Kidney Dialysis
30 days ago
from PD to HD
Hi everyone. This is question is for anyone who is either having HD or has had PD and is switching to HD. I have been a PD patient since the beginning of my journey. I chose it as I felt it would allow me to go on working partime and have a next to normal life balance. Unfortunately, my PD exit site
Hi everyone. This is question is for anyone who is either having HD or has had PD and is switching to HD. I have been a PD patient since the beginning of my journey. I chose it as I felt it would allow me to go on working partime and have a next to normal life balance. Unfortunately, my PD exit site
Imaanforever
in
Kidney Dialysis
1 month ago
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