Experiences with

Transactional Analysis

So my husband is currently incarcerated and is still doing dialysis three times a week. He also has been taking his binders three times a day. Before he was incarcerated his phosphorus levels were normal but his latest blood test result shows that his phosphorus level is a 5.9 he can't exactly have a

Hi all I just had surgery today for an av fistula placement. Happy to say all went well, no pain meds were needed. It is very black and blue with some swelling and a bit of red not serious though,. I have elevated and iced it and tried hard to not use it, I'm grateful it was so smooth and very little

What do sneakers have to do with fighting kidney disease? For Randy Yim, they’re everything. Every time he goes to dialysis, he wears a new pair of his favorite sneakers, takes a photo, and shares the story behind them on social media. What started as a way to cope and update his family and friends has

Hi. My husband is now at 12 efrg annd is getting prepared for dialysis. He’s chosen to start with PD overnight, though I’m not looking forward to any alarms going off. Now, to my astonishment, it turns out I also have ckd, though only stage 3a. My efrg is now 56, having been 59 less than a month

I was misdiagnosed with PMR for years. It was eventually diagnosed as vasculitis and it's attacked my kidney. I am not suitable for dialysis and my prognosis is 6 months to live. My egfr is5 and I am Asymptomatic at the moment. IAM angry it took so long to get a proper diagnosis.

Trying to take a survey of transplant patients like me who have high pth and what their doctors recommended. It is not as high as when I was on dialysis but still runs above normal. My doctor has never recommended medication or surgery. I guess due to my blood tests for calcium and I have exhibited

Medicare is so important to transplant patients as well as dialysis patients. The fact that it might be privatized in the new administration has me worried. I am on Medicare with a supplement and am wondering how Medicare advantage programs handle transplant medication and treatments. Presently my medication

Recently diagnosed PAF, no treatment as on dialysis already for kidney failure. Anyone else have similar? Thanks in advance.

My partner recently passed away from decompensated liver disease after developing jaundice and ascites, resulting in having to have kidney dialysis. He was an alcoholic for a number of years and we did not realise his illness was so far advanced. He developed a lot of complications after being admitted

Sorry I haven't been on in a while.I am stage 5 now,Have had my fistula done.Waiting follow up about dialysis.

I got CKD stage 5. I would like to know more about in home treatment options. Any suggestions?

Hi... My best friend has had kidney failure for some years. Six months ago he suddently got very sick again. Multiple blood transfuisions. Dialysis twice a week. Been in ICU more than not last 6 months. Last week he was vomitting blood. He just got out of ICU and is back in again - fluid in lungs and

My father is CKD stage 5 patient with diabetes and blood pressure. He is feeling too weak since we started dialysis (currently twice a week) which is also impacting his mental health. Please advice how we stop the dialysis and control creatinine and urea figures with diet.

I am an 87 year old Male with diabetes, heart disease, and stage four kidney disease. My Nephrologist sent me to a class on types of dialysis and I will be seeing him in January. I am thinking he will probably want me to get a fistula. A little concerned, but take it one day at a time

Hello again, extended family. I’ll start by saying we’re in the UK, where things are different in many ways. Anyone else here from our side of the Atlantic? I am my husband’s carer and he will soon start dialysis. The obvious choice seems to be nightly PD if you can learn how to do it, but it seems too

Natural disasters like earthquakes, floods, or electrical power blackouts can disrupt crucial healthcare services, like dialysis treatment. The good news? You can prepare for emergencies. Kidney Community Emergency Response Project Director Keely Lenoir is here to tell you how. Learn more at: https:/

hello all I am aware a kidney transplant impacts our immune system as the meds are immunosupresssion. However, does this mean we have no immune system at all when we have a transplant? lastly, with dialysis is our immune system suppressed? I am current at 40 egfr and have no impact on my immune

Hello All just wanted to know how many years have or was on dialysis and how did you cope? I may end up here and I am 34.. I hear you can’t live long on dialysis but with a transplant you can not sure how true this is

hello Anyone with an O blood group how long did it take you to get a kidney transplant while being on dialysis? My understanding is O blood group is hardest because we can only take from O. Thanks

Hello I'm currently a dialysis patient, diabetic, and heart failure I was recently diagnosed with. So my question is there anyone living with heart failure and doing dialysis?I'm not sure on what I should be feeling finding out about living with heart failure. Any advice would help. Thank you for your