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My yoga and nutrition community for you to follow
Hi All - as a naturopathic nutritional therapist and yoga teacher as well as having been on the journey with my own kidneys from childhood through dialysis and transplantation, some of you will notice I have been posting in this group. In case it is also helpful, you can follow my own community here
Hi All - as a naturopathic nutritional therapist and yoga teacher as well as having been on the journey with my own kidneys from childhood through dialysis and transplantation, some of you will notice I have been posting in this group. In case it is also helpful, you can follow my own community here
WhollyAligned
in
Early CKD Support
6 years ago
Questions about Protein and Supplements for weight training after transplant
Hi, I'm new on this site and had a general question for those who are athletic and have had a kidney transplant. I have had a very successful kidney and pancreas cadaver transplant for about 9 years now. I am becoming more active and spending more time in the gym. I've been reading the common literature
Hi, I'm new on this site and had a general question for those who are athletic and have had a kidney transplant. I have had a very successful kidney and pancreas cadaver transplant for about 9 years now. I am becoming more active and spending more time in the gym. I've been reading the common literature
ShutterGhost
in
Kidney Transplant
6 years ago
DIALYSIS PATIENT DEPRESSION TOOLKIT
The last week or two have seen some questions asked about Dialysis and the options, or modalities, available. Beyond deciding which method to choose there are many other things to be aware of when facing ESRD and all that entails. The toolkit below can help you find your way through the process and
The last week or two have seen some questions asked about Dialysis and the options, or modalities, available. Beyond deciding which method to choose there are many other things to be aware of when facing ESRD and all that entails. The toolkit below can help you find your way through the process and
Hidden
in
Kidney Disease
6 years ago
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PD dialysis
Does anyone have recommendation as to starting PD v. in center Hemo. No partner so home Hemo seems problematic. Infection, discomfort with fluid in abdomen with PD. Hemo seems hard to sit in a chair for 3-4 hours, and maybe washed out afterwards.
Does anyone have recommendation as to starting PD v. in center Hemo. No partner so home Hemo seems problematic. Infection, discomfort with fluid in abdomen with PD. Hemo seems hard to sit in a chair for 3-4 hours, and maybe washed out afterwards.
miketrial
in
Kidney Disease
6 years ago
New post on Kidney Diet Tips
Just received this and since there have been a few questions regarding diet, I thought it would be helpful: New post on Kidney Diet Tips Tips for Following a Kidney Diet by Torie Yackanicz Following a kidney diet takes education, diet tools and resources, and help from family and healthcare teams
Just received this and since there have been a few questions regarding diet, I thought it would be helpful: New post on Kidney Diet Tips Tips for Following a Kidney Diet by Torie Yackanicz Following a kidney diet takes education, diet tools and resources, and help from family and healthcare teams
lowraind
in
Early CKD Support
6 years ago
Keeping hydrated with kidney disease
Right now in the the northeast of the United States, we are in a very dry bad drought. The temperatures have been staying in the 90's with high humidity. When the weather is like this, it is important to stay hydrated. But that can be tricky with kidney disease depending on the stage you are in. For
Right now in the the northeast of the United States, we are in a very dry bad drought. The temperatures have been staying in the 90's with high humidity. When the weather is like this, it is important to stay hydrated. But that can be tricky with kidney disease depending on the stage you are in. For
Bassetmommer
NKF Ambassador
in
Kidney Disease
6 years ago
No "thrill"
Has anyone had problems with their av fistula? I was dialysing very well unti last friday when after dialysis my blood presure dropped and the next day i couldn't feel the "thrill" on my fistula it just stopped working allofthe sudden..i have it on my forearm and now i sort of fell a small "thrill" on
Has anyone had problems with their av fistula? I was dialysing very well unti last friday when after dialysis my blood presure dropped and the next day i couldn't feel the "thrill" on my fistula it just stopped working allofthe sudden..i have it on my forearm and now i sort of fell a small "thrill" on
Newatdis
in
Dialysis Support
6 years ago
New stage 5
Hi. I am new to the group. New stage 5 and getting a fistula tomorrow. Told it is urgent. I am hoping to have a graft but was told my vessels are too small they would try. I’m 50 kids at home going to college. Still slugging along working. Tired. Itchy(thought I had scabbies, before I was diagnosed😂
Hi. I am new to the group. New stage 5 and getting a fistula tomorrow. Told it is urgent. I am hoping to have a graft but was told my vessels are too small they would try. I’m 50 kids at home going to college. Still slugging along working. Tired. Itchy(thought I had scabbies, before I was diagnosed😂
Poly3
in
Kidney Dialysis
6 years ago
Dialysis Options
In preparation for dialysis which I hope will not happen, I need to make a decision about center or home. I have been doing a lot of research. I am wondering about people's experiences. I would like to do home dialysis, but do not have a partner, is this really necessary ? I do know people who do
In preparation for dialysis which I hope will not happen, I need to make a decision about center or home. I have been doing a lot of research. I am wondering about people's experiences. I would like to do home dialysis, but do not have a partner, is this really necessary ? I do know people who do
Frankie24
in
Kidney Disease
6 years ago
Blood pressure.
Hi there, how is everyone doing? My blood pressure is below 200 for the 1st time in more than a year. I am really happy about the improvement but unfortunately I have to go for dialysis as my numbers for creatinine, Grf, etc are skyrocketing and my kidneys are failing according to my doctor. Anyways,
Hi there, how is everyone doing? My blood pressure is below 200 for the 1st time in more than a year. I am really happy about the improvement but unfortunately I have to go for dialysis as my numbers for creatinine, Grf, etc are skyrocketing and my kidneys are failing according to my doctor. Anyways,
fish320
in
Early CKD Support
6 years ago
Saying hello to you all. I'm a nutritionist and yoga teacher specialising in kidneys based in London
Hi All. Just wanted to reach out and let you know my specific interest in working with kidneys having experienced the journey myself. Through dialysis, transplantation, back to dialysis and how one can still thrive and live a beautiful life. Every person's journey with their kidneys will be unique so
Hi All. Just wanted to reach out and let you know my specific interest in working with kidneys having experienced the journey myself. Through dialysis, transplantation, back to dialysis and how one can still thrive and live a beautiful life. Every person's journey with their kidneys will be unique so
WhollyAligned
in
Early CKD Support
6 years ago
Kidney Buddy
I'm new to this site. I was diagnosed with kidney disease at 26. I started dialysis at 55 & received a new kidney at 64. I would LOVE to have a kidney "buddy" again! My close friend who had been thru my similar experiences with ESRD passed about a year ago. We shared so much, especially support that
I'm new to this site. I was diagnosed with kidney disease at 26. I started dialysis at 55 & received a new kidney at 64. I would LOVE to have a kidney "buddy" again! My close friend who had been thru my similar experiences with ESRD passed about a year ago. We shared so much, especially support that
VicMc
in
Kidney Dialysis
6 years ago
Living Donation and Blood Pressure
I am considering offering to be a live donor for my father who is about to go on dialysis. I am 50 years old and very healthy; however, whenever I have my blood pressure checked it is around 130-135/80 which I guess is technically categorized as stage 1 hypertension. It has been in this range for the
I am considering offering to be a live donor for my father who is about to go on dialysis. I am 50 years old and very healthy; however, whenever I have my blood pressure checked it is around 130-135/80 which I guess is technically categorized as stage 1 hypertension. It has been in this range for the
MNCrapps
in
Kidney Donation
6 years ago
Here to help
Here to answer questions you might have about home dialysis and kidney transplantation. I was on dialysis for. A year and recently received a kidney transplant.
Here to answer questions you might have about home dialysis and kidney transplantation. I was on dialysis for. A year and recently received a kidney transplant.
Mirna67
in
Kidney Dialysis
6 years ago
From dialysis to transplant
Hello I’m a 50 year old female with polycystic kidney disease I was in dialysis for a year and end stage renal for 2 then I got lucky Nd received a kidney this year from a twelve year old that past away I’m here to answer questions you might have or just to be a friend. Sometimes we need to talk to
Hello I’m a 50 year old female with polycystic kidney disease I was in dialysis for a year and end stage renal for 2 then I got lucky Nd received a kidney this year from a twelve year old that past away I’m here to answer questions you might have or just to be a friend. Sometimes we need to talk to
Mirna67
in
Kidney Dialysis
6 years ago
Can I donate unused Manual PD supplies?
My husband was on Manual PD for two months, then was switched to using an overnight cycler a few months ago. I have 15 boxes of Manual PD bags--the supplier won't take them back, the dialysis clinic said to just open the bags and pour them down the toilet. Any suggestions?
My husband was on Manual PD for two months, then was switched to using an overnight cycler a few months ago. I have 15 boxes of Manual PD bags--the supplier won't take them back, the dialysis clinic said to just open the bags and pour them down the toilet. Any suggestions?
pdbetterhalf
in
Kidney Dialysis
6 years ago
Anyone on NxStage Home Hemo Dialysis?
Are you having trouble w/NxStage? I.E. receiving supplies, receiving the right orders, they not sending return boxes for unusable items, etc.?
Are you having trouble w/NxStage? I.E. receiving supplies, receiving the right orders, they not sending return boxes for unusable items, etc.?
wolfmom94
in
Kidney Dialysis
6 years ago
Hello I'm Joey's mom, yes newbie here
Ok, I admit it! I've been putting off introducing myself. But here I am! Ok, here goes. I am the mother, caregiver, & dialysis tech to my 23 yr old son. He was born w/kidney disease, so I've been doing this a long time! I PD'd him when he was about 8 months old to 2 yrs 3 months, when I gave him my kidney
Ok, I admit it! I've been putting off introducing myself. But here I am! Ok, here goes. I am the mother, caregiver, & dialysis tech to my 23 yr old son. He was born w/kidney disease, so I've been doing this a long time! I PD'd him when he was about 8 months old to 2 yrs 3 months, when I gave him my kidney
wolfmom94
in
Kidney Dialysis
6 years ago
After Three years I am been taken off my medication for my illness Anca vasculitis.
On June 2015 I only had days to live my kidneys where at 6% I was send to hospital in Letterkenny Donegal IRELAND, After blood tests in A&E I was rushed into tensive care I was rushed by ambulance to beaumont hospital Dublin Where the consultant and team was waiting for me coming in the hospital
On June 2015 I only had days to live my kidneys where at 6% I was send to hospital in Letterkenny Donegal IRELAND, After blood tests in A&E I was rushed into tensive care I was rushed by ambulance to beaumont hospital Dublin Where the consultant and team was waiting for me coming in the hospital
Fred27
in
Vasculitis UK
6 years ago
Dialysis vs. Transplant Survival Rates
My father (age 74) is in the process of starting peritoneal dialysis. While he has had high blood pressure for most of his adult life and developed type II diabetes around 10 years ago, he has been living a pretty active healthy lifestyle. I am considering offering to be a live donor and am trying
My father (age 74) is in the process of starting peritoneal dialysis. While he has had high blood pressure for most of his adult life and developed type II diabetes around 10 years ago, he has been living a pretty active healthy lifestyle. I am considering offering to be a live donor and am trying
MNCrapps
in
Kidney Donation
6 years ago
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