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I am still emotionally destroyed after my Dx, any tips?
Hi guys, I was diagnosed back in December during and ultrasound for something else. Now I have more information since then. My eGFR is 100, my parents are clear, my kidney size is 12.5 and 13.9cm according to the MRI. I don’t have HBP yet but BP isn’t great either. My kidneys are covered in cysts, but
Hi guys, I was diagnosed back in December during and ultrasound for something else. Now I have more information since then. My eGFR is 100, my parents are clear, my kidney size is 12.5 and 13.9cm according to the MRI. I don’t have HBP yet but BP isn’t great either. My kidneys are covered in cysts, but
Theskewer
in
PKD Charity for Autosomal Dominant PKD
6 years ago
hospital visit?
had blood work, was told to go to ER as my gfr is at 13, potassium 4.1, creatinine 4.6 bun 37. like advise as to what would happen. emergency dialysis? do not have fistulia yet.
had blood work, was told to go to ER as my gfr is at 13, potassium 4.1, creatinine 4.6 bun 37. like advise as to what would happen. emergency dialysis? do not have fistulia yet.
rascal01
in
Kidney Dialysis
6 years ago
Can someone give me some advice.
I got on this forum because of my niece. She is the one that has the kidneys failing. She is in the hospital and just started dialysis. The dialysis is not cleaning her blood. They want to do a blood transfusion. The question is will this change the results of a kidney transplant, will the new kidney
I got on this forum because of my niece. She is the one that has the kidneys failing. She is in the hospital and just started dialysis. The dialysis is not cleaning her blood. They want to do a blood transfusion. The question is will this change the results of a kidney transplant, will the new kidney
Garianne
in
Dialysis Support
6 years ago
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I need support please, finding a donor is a challenge!
I am trying hard to find a donor for my fiance. He is a father of four, working professional and goes home to dialysis nightly. I am amazed by his stamina although the reality is he coughs and stresses out each morning. The sleepless nights are affecting his daytime overall feeling. But I call him a
I am trying hard to find a donor for my fiance. He is a father of four, working professional and goes home to dialysis nightly. I am amazed by his stamina although the reality is he coughs and stresses out each morning. The sleepless nights are affecting his daytime overall feeling. But I call him a
NeedingAdonor
in
Kidney Transplant
6 years ago
Hello Everyone
Hello members, my name is Justin Iorii a double kidney transplant patient and a dialysis survivor. If anyone has any questions or concerns on dialysis, pre-transplant, post-transplant, exercise or diet please message me, otherwise I will be on the look out for your posts !
Hello members, my name is Justin Iorii a double kidney transplant patient and a dialysis survivor. If anyone has any questions or concerns on dialysis, pre-transplant, post-transplant, exercise or diet please message me, otherwise I will be on the look out for your posts !
justinskidney
Moderator
in
Power2Save Transplant Community
6 years ago
Nocturnal dialysis
Hi, After several falls starts I have at last started my nocturnal dialysis. First night was Monday evening, went better than I expected. Did an 8 hour session and mNaged to sleep for about half the time. Felt really good the following morning. I have been supplied with more kit, a blood leak sensor
Hi, After several falls starts I have at last started my nocturnal dialysis. First night was Monday evening, went better than I expected. Did an 8 hour session and mNaged to sleep for about half the time. Felt really good the following morning. I have been supplied with more kit, a blood leak sensor
Philipjm
in
Kidney Transplant Patient Support
6 years ago
GRF at 18 eating the right foods
My GFR is 18 I am not on dialyses. I am eating foods at have no salt and no processed foods at all. We seldom eat out. If I have to be on dialysis we are looking at hemodialysis, my husband will be my caregiver. What was your GFR when you went on dialysis?
My GFR is 18 I am not on dialyses. I am eating foods at have no salt and no processed foods at all. We seldom eat out. If I have to be on dialysis we are looking at hemodialysis, my husband will be my caregiver. What was your GFR when you went on dialysis?
Dorestan
in
Kidney Disease
6 years ago
Next Stage Dialysis
Has anyone heard of and or tried the Next Stage Dialysis clinics? They are relatively new and the machines are claimed to be easier on your body. I just switched from a 32 seat clinic to a 7 seat clinic. Wondering your thoughts. It’s a lot quieter .
Has anyone heard of and or tried the Next Stage Dialysis clinics? They are relatively new and the machines are claimed to be easier on your body. I just switched from a 32 seat clinic to a 7 seat clinic. Wondering your thoughts. It’s a lot quieter .
Pennstate
in
Kidney Dialysis
6 years ago
Arthritis of the hands
Afternoon all I have SLE & most of the issues which come with it including kidney failure, dialysis & a transplant. I started a nail course in January which includes Manicures & Pedicures. One day in class we were practicing our manicure techniques on each other & the manicure treatment chosen for me
Afternoon all I have SLE & most of the issues which come with it including kidney failure, dialysis & a transplant. I started a nail course in January which includes Manicures & Pedicures. One day in class we were practicing our manicure techniques on each other & the manicure treatment chosen for me
Taurion
in
LUPUS UK
6 years ago
finding a diet
I was advised to choose a diet to get on. which one would be best for me? vegan or what. 63, chronic pancreatis, diabetic, esrd not on dialysis yet.
I was advised to choose a diet to get on. which one would be best for me? vegan or what. 63, chronic pancreatis, diabetic, esrd not on dialysis yet.
rascal01
in
Kidney Disease
6 years ago
Hi I have end stage renal disease on dialysis
Hi everyone just wanted to say hello
Hi everyone just wanted to say hello
Jason55427
in
Kidney Dialysis
6 years ago
Hi everybody I start dialysis in morning - they tell me “ don’t worry you will be okay keep positive”
I had a chest virus for a few weeks that turned to pneumonia (water retention in legs and feet) . My efg has been12 for last 2 years but feeling good and quite fit - but it dropped to 7 in hospital with all the tablets etc. I’m at the QA hospital near Portsmouth that’s the nearest renal for me. Tomorrow
I had a chest virus for a few weeks that turned to pneumonia (water retention in legs and feet) . My efg has been12 for last 2 years but feeling good and quite fit - but it dropped to 7 in hospital with all the tablets etc. I’m at the QA hospital near Portsmouth that’s the nearest renal for me. Tomorrow
dipes
in
Early CKD Support
6 years ago
I HAVE SOME SAD NEWS
My uncle has passed away it was yesterday morning that he passed. He was 83 years old. His kidneys had failed him he was on dialysis three times a week. He was in constant pain. I know everyone says these things but he has know more pain. He was a very good person. He is now with his Mom .Dad and brother
My uncle has passed away it was yesterday morning that he passed. He was 83 years old. His kidneys had failed him he was on dialysis three times a week. He was in constant pain. I know everyone says these things but he has know more pain. He was a very good person. He is now with his Mom .Dad and brother
ssdw1958
in
Pain Concern
6 years ago
SAD NEW TO TELL
Hi all I have some sad news my Uncle passed away yesterday morning. I know everyone says, that he has know more pain but this is so true. He was 83 years old and both of his kidneys had failed and he was on dialysis and he has other issues. But now he is at peace with his Mom,Dad, sister and brother.
Hi all I have some sad news my Uncle passed away yesterday morning. I know everyone says, that he has know more pain but this is so true. He was 83 years old and both of his kidneys had failed and he was on dialysis and he has other issues. But now he is at peace with his Mom,Dad, sister and brother.
ssdw1958
in
My MSAA Community
6 years ago
Confused About GFR/BUN, UTI Symptoms & What Urologist Said
Hi. New here. I'm totally confused. I've had same UTI symptoms since December. Went through 3 rounds anti-biotics from urgent care. Still hurt, heavy pressure, sharp pain, burning, pain in sides & back. Saw urologist in Feb, he ordered US on kidneys/bladder...and X-ray on urinary system. I picked up
Hi. New here. I'm totally confused. I've had same UTI symptoms since December. Went through 3 rounds anti-biotics from urgent care. Still hurt, heavy pressure, sharp pain, burning, pain in sides & back. Saw urologist in Feb, he ordered US on kidneys/bladder...and X-ray on urinary system. I picked up
msplumuniq
in
Early CKD Support
6 years ago
Doctor, doctor give me this news: Primary care and CKD
Many conversations have happened here regarding our Primary Care Physicians and their not telling us early enough about CKD. I found this in my current mail files and thought it was timely enough to share a physicians thoughts. Everyone’s mind jumps right to end-stage renal disease and dialysis when
Many conversations have happened here regarding our Primary Care Physicians and their not telling us early enough about CKD. I found this in my current mail files and thought it was timely enough to share a physicians thoughts. Everyone’s mind jumps right to end-stage renal disease and dialysis when
Hidden
in
Kidney Disease
6 years ago
Home Dialysis
Well I’m going to do home dialysis. After 3 years of drudgery, going to the center every other day I’ve decided to go for it. Me and my wife start training April 4, it’s got to be better. After beating cancer 3 times and quadruple heart bypass, failure is not an option. I’ll make 71 next month and thought
Well I’m going to do home dialysis. After 3 years of drudgery, going to the center every other day I’ve decided to go for it. Me and my wife start training April 4, it’s got to be better. After beating cancer 3 times and quadruple heart bypass, failure is not an option. I’ll make 71 next month and thought
mickey1406
in
Kidney Dialysis
6 years ago
I am 16 and not quite sure what I should do
I'm new here. I am 16 and have a function in my left kidney of 27% and my right 76%, I have had a low function since march 2013 and it had just gone down and down. I have been having back pain, feeling nauseous, feeling fatigue, have a shortness of breath, struggle to concentrate in school and at work
I'm new here. I am 16 and have a function in my left kidney of 27% and my right 76%, I have had a low function since march 2013 and it had just gone down and down. I have been having back pain, feeling nauseous, feeling fatigue, have a shortness of breath, struggle to concentrate in school and at work
Ellenibarlow
in
Kidney Disease
6 years ago
New to this
Hello, Been on dialysis for over a year. One transplant list for year. This is a great idea; thought about doing a page on FB for dialysis patients.
Hello, Been on dialysis for over a year. One transplant list for year. This is a great idea; thought about doing a page on FB for dialysis patients.
ijh413
in
Kidney Disease
6 years ago
Support group needed for in-laws
My 72 year old father in law was diagnosed with kidney failure and undergoes dialysis every other day. My mother in law googled recently and found information out where she believes he only has 2-3 years left of living. I am trying to find them a support group, a hotline, something or someone that they
My 72 year old father in law was diagnosed with kidney failure and undergoes dialysis every other day. My mother in law googled recently and found information out where she believes he only has 2-3 years left of living. I am trying to find them a support group, a hotline, something or someone that they
politicalcmiller
in
Kidney Dialysis
6 years ago
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