Hi I have end stage renal disease on dialysis

[Jason55427]

Hi everyone just wanted to say hello

[rascal01]

hello jason55427 63,esrd getting ready for dialysis.

[coaching]

Helloooo

[Jason55427 in reply to coaching]

Hi how are you doing today

[coaching in reply to Jason55427]

Hi, I'm great. Thanks for asking. I've been on dialysis for 26 years this year and i still not gotten used to it. I take everyday with a smile, helps a lot. Keep looking on the bright side Jason.

[cs65 NKF Ambassador]

Hi Jason, Welcome to the dialysis group! I've been on hemodialysis for about a year and a half and have polycystic kidney disease. Am also on the transplant list.

[Jason55427 in reply to cs65]

I have been on dialysis for two years and a couple of months lithium toxicity ruined my kidneys I was prescribed to high of a dose for to long without enough blood tests

[Unityismine in reply to Jason55427]

I also was on lithium for a long time and it caused my kidneys to almost fail. Been on dialysis since January this year and I hate it. I cry a lot lately and want to quit, but I know it is necessary for me to live. I am not accepting being on dialysis, and am depressed. The good news is that I will go on peritoneal dialysis soon.

Thank you for your posts, they are helping me!

[cs65 NKF Ambassador]

That's a bummer! My kidney disease is genetic, but I didn't know I had it until I was 50, then an ultrasound showed it. I was lucky to have 14 years before I had to start dialysis. I'm hoping to be like my brother, who got a kidney 4 years ago. How are you dealing with dialysis? I try to treat it as a part-time job.

[Jason55427 in reply to cs65]

Not really dealing with it to good I hate having to be hooked up to the machine for four and hours three times a week plus hook up time and disconnect time. It's depressing me just thinking about it.

[cs65 NKF Ambassador]

Well, I try to find things to do while I'm there to pass the time. I love to read - that really transports me out of the chair! Sometimes I laugh out loud while I'm reading and they have to tell me it's time to stop and get off the machine! There's always TV and some people bring their smartphones, tablets or laptops. Others do crossword puzzles or Sudoku or draw. Others sleep through their treatments, but I find it hard to sleep there. One girl even brings her guitar and sings. You just have to find your thing. I also love movies on TCM (no commercials!).

[Jason55427 in reply to cs65]

Thank you have a great night

[mingmiley in reply to cs65]

Our center provides the laptops but not too many people use, I do. I liked doing nothing the first hr except to look people, enjoying not doing anything; Then i may watch some news, Sometimes I do little bit of Bible study homework and reading the Bible,And then there is some TV programs I liked to watch like Billy Graham, Dr David Jeremiah, orLove a child; If there's still some time left I may turn to my laptop. Thank You Lord for giving us perseverance and reasonable health so we can still doing dialysis.Amen.

[cs65 NKF Ambassador in reply to mingmiley]

I am addicted to HGTV! The home improvement shows are both entertaining and fascinating in how the contractors solve the many problems that come up once they take walls and floors down. I think that's also why I love to read mysteries and trying to figure out whodunit. I also feel lucky that I'm able to drive myself back and forth from treatments - so many people can't. Have a great day!

[mingmiley in reply to cs65]

Thank you. Hope you have good runs{ dialysis} and easy to pass.

[Unityismine in reply to mingmiley]

Yes, I am grateful for the professional, caring staff, and for having faith in God that he has provided them and the treatment for me. I pray that I may accept this, and become more patient and feel that God is with me. Thank you for your post.

[cs65 NKF Ambassador]

Thanks, you too!

[wlocke]

Hi Jason I hope all is going well today. I started PD last month so I know how you feel. Some shared a lot of good advice. Keep your head up and try to stay positive.

[Jason55427]

I'm doing ok thank you.

[Dixidude39]

I'm holding on with one kidney. My eGFR is 29-30. I'm following a renal diet, but I do feel a bit more fatigued than before my other kidney was removed due to cancer in July 2016. Are you doing home dialysis or do you go to a dialysis center? How long have you been on dialysis? If you go to a dialysis center, what do usually do with your time: watch TV, read, sleep ... OR? Thanks.