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Dad in icu with covid 8 weeks. Doctor talking about end of life care
Hi all my dad has been in intensive care for 8 weeks during this time he had bipap for a week then his lung collapsed and he was placed on a ventilator 24 hours later we were called to the hospital as his organs were failing but after being placed on dialysis he got a bit better. After 2 weeks on the
Hi all my dad has been in intensive care for 8 weeks during this time he had bipap for a week then his lung collapsed and he was placed on a ventilator 24 hours later we were called to the hospital as his organs were failing but after being placed on dialysis he got a bit better. After 2 weeks on the
Mrs_blounty
in
ICUsteps
3 years ago
Chronic Constipation
I have been on PD since Jan 2016. Recently, my issues with constipation have gotten to a very frustrating level. I have tried: Prunes; more fruits/veggies; OTC softeners; laxatives; yogurt; probiotics; exercise.....and it is to a chronic stage. If I take prescription Linzess or Trulance provided
I have been on PD since Jan 2016. Recently, my issues with constipation have gotten to a very frustrating level. I have tried: Prunes; more fruits/veggies; OTC softeners; laxatives; yogurt; probiotics; exercise.....and it is to a chronic stage. If I take prescription Linzess or Trulance provided
TaffyTwoshoes27
in
Kidney Dialysis
3 years ago
Help me with your experience of dialysis.
Hi there, I'm about to start dialysis and I'm in a quandary as to which type to choose. I would like to hear from members of the community with their comments and experience. Thanks in advance. Andy
Hi there, I'm about to start dialysis and I'm in a quandary as to which type to choose. I would like to hear from members of the community with their comments and experience. Thanks in advance. Andy
Irelandy
in
Kidney Dialysis
3 years ago
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About to start dialysis.
Hi there, I'm about to start dialysis and I'm in a quandary as to which type to choose. I would like to hear from members of the community with their comments and experience. Thanks in advance. Andy.
Hi there, I'm about to start dialysis and I'm in a quandary as to which type to choose. I would like to hear from members of the community with their comments and experience. Thanks in advance. Andy.
Irelandy
in
Early CKD Support
3 years ago
Vaginal Dryness & Bacterial Vaginosis
Does anyone deal with vaginal dryness or constant bacterial vaginosis? Ever since being on dialysis this has been an issue for me and no one has been of any help to me. I am a young woman in a relationship and these issues are a big insecurity for me. Any advice or help from anyone!? ** Lubricants/moisturizers
Does anyone deal with vaginal dryness or constant bacterial vaginosis? Ever since being on dialysis this has been an issue for me and no one has been of any help to me. I am a young woman in a relationship and these issues are a big insecurity for me. Any advice or help from anyone!? ** Lubricants/moisturizers
KSewing95
in
Kidney Disease
3 years ago
Graft for Dialysis
I'm getting ready for dialysis. My vascular surgeon told me that my veins are too small for AV Fistula. He recommended that, although difficult to predict, I should wait until I'm ready to start dialysis and just about one month prior to that I should have a Graft put in, ready to be used for dialysis
I'm getting ready for dialysis. My vascular surgeon told me that my veins are too small for AV Fistula. He recommended that, although difficult to predict, I should wait until I'm ready to start dialysis and just about one month prior to that I should have a Graft put in, ready to be used for dialysis
Rognoni
in
Kidney Disease
3 years ago
Dialysis
hi my partner is on dialysis he has high hemoglobin and extremmly bad RLS.does anyone else know if blood thinners can cause RLS ?
hi my partner is on dialysis he has high hemoglobin and extremmly bad RLS.does anyone else know if blood thinners can cause RLS ?
murano
in
Restless Legs Syndrome
3 years ago
Exercise on PD
I'm new here & new to PD dialysis. I was diagnosed with a rare kidney disease when an infant. I am now 76 years old and count myself blessed to have avoided dialysis til now. My egfr went to 7 and , for the first time, I was really fatigued. My current question is how to regain my fitness. My PD nurse
I'm new here & new to PD dialysis. I was diagnosed with a rare kidney disease when an infant. I am now 76 years old and count myself blessed to have avoided dialysis til now. My egfr went to 7 and , for the first time, I was really fatigued. My current question is how to regain my fitness. My PD nurse
alport45
in
Kidney Dialysis
3 years ago
Kidney biopsy doesn’t show signs of disease
Finally got the results of my kidney biopsy. Doctor called me this morning and told me there is no sign of disease on my biopsy. What the heck does that mean? Let me refresh you guys. Diagnosed CKD stage 3. 44/F. Ultrasound in Jan showed no signs of disease. July 2020 was my very first GFR score. July
Finally got the results of my kidney biopsy. Doctor called me this morning and told me there is no sign of disease on my biopsy. What the heck does that mean? Let me refresh you guys. Diagnosed CKD stage 3. 44/F. Ultrasound in Jan showed no signs of disease. July 2020 was my very first GFR score. July
JaimieL
in
Kidney Disease
3 years ago
Kidney Transplant Waitlist
I met one patient at dialysis clinic couple years ago. I saw him did quick treatment just couple months then disappear. I asked tech where was he. Tech said that guy got the kidneys. He was judge in downtown. He had premium health ins. That was lied that you have to wait 7 to 10 years on waiting list
I met one patient at dialysis clinic couple years ago. I saw him did quick treatment just couple months then disappear. I asked tech where was he. Tech said that guy got the kidneys. He was judge in downtown. He had premium health ins. That was lied that you have to wait 7 to 10 years on waiting list
Jumbo1
in
Kidney Disease
3 years ago
Now lost the job, no EDD. I can't pay treatment bills any more.
I was developed kidneys failure before 2002(first diagnosed was stage 2). Kidneys are like household water filter. When they were expired. They are unrepairable. Kidneys slowly decline from stage 2 to stage 5(final). I started dialysis since 2015. I have been working in electronic field. Then I developed
I was developed kidneys failure before 2002(first diagnosed was stage 2). Kidneys are like household water filter. When they were expired. They are unrepairable. Kidneys slowly decline from stage 2 to stage 5(final). I started dialysis since 2015. I have been working in electronic field. Then I developed
Jumbo1
in
Kidney Disease
3 years ago
Amoxicillin...
I have been following for a while. Time to post. 4 years go my labs indicated egfr in 60s. Sudden decline. My PC not concerned. I told her my dad went on dialysis in his 60's passed away 25 year ago so never new the cause. he was not diabetic. His sis ter lost a kidney young also. Not polycystic for
I have been following for a while. Time to post. 4 years go my labs indicated egfr in 60s. Sudden decline. My PC not concerned. I told her my dad went on dialysis in his 60's passed away 25 year ago so never new the cause. he was not diabetic. His sis ter lost a kidney young also. Not polycystic for
kellyscats1
in
Kidney Disease
3 years ago
Needle pain
Hi I have been on dialysis since March and when being needled most of time needle hits nerves,I have tried elma cream 2hours before needling as well as have local and cold spray but when needle hits nerves it so painful that needle is taken out.fistula in arm is fine.I was told I may have to have chest
Hi I have been on dialysis since March and when being needled most of time needle hits nerves,I have tried elma cream 2hours before needling as well as have local and cold spray but when needle hits nerves it so painful that needle is taken out.fistula in arm is fine.I was told I may have to have chest
raelers
in
Dialysis Support
3 years ago
Dialysis
Hi seeking help,I have been on dialysis three months, fistula in arm fine , but when needling is done hits my nerves and so painful that I don’t continue dialysis,I have used emla cream and nurse gives local plus cold spray but when nerves are hit it’s unbearable,I have been told I may have to have
Hi seeking help,I have been on dialysis three months, fistula in arm fine , but when needling is done hits my nerves and so painful that I don’t continue dialysis,I have used emla cream and nurse gives local plus cold spray but when nerves are hit it’s unbearable,I have been told I may have to have
raelers
in
Kidney Disease
3 years ago
Kidney Disease Solution
For us CKD is a family affair. Out of nine children, five of us have this disease. Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed
For us CKD is a family affair. Out of nine children, five of us have this disease. Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed
ishymal
in
Kidney Disease
3 years ago
Moved around
My husband has a new dialysis manager that’s very young and hasn’t been a manager for long. She has the center in an uproar by moving people around daily each treatment and changing the doctor’s prescription of medications on the machine. It’s so frustrating to hear my husband talk about it and I feel
My husband has a new dialysis manager that’s very young and hasn’t been a manager for long. She has the center in an uproar by moving people around daily each treatment and changing the doctor’s prescription of medications on the machine. It’s so frustrating to hear my husband talk about it and I feel
JEanes55
in
Kidney Dialysis
3 years ago
Prepare for dialysis.
Hi all, my egfr dropped from 17 last September to 14 and I have been told to prepare for dialysis. Is it too late to improve on this figure? And what can I expect from dialysis. Will my energy levels improve? Any comments or suggestions will be appreciated.
Hi all, my egfr dropped from 17 last September to 14 and I have been told to prepare for dialysis. Is it too late to improve on this figure? And what can I expect from dialysis. Will my energy levels improve? Any comments or suggestions will be appreciated.
Irelandy
in
Kidney Dialysis
3 years ago
Time for Fistula?
I'm a male 79 years old. My Creatinine level is at 4.0 and my GFR is at 13. I finally decided to do In-Center HD. From other members experience, am I still on time to have a Fistula put in? Will it mature on time when dialysis is needed to start? Trying to avoid access in the neck. Also, according to
I'm a male 79 years old. My Creatinine level is at 4.0 and my GFR is at 13. I finally decided to do In-Center HD. From other members experience, am I still on time to have a Fistula put in? Will it mature on time when dialysis is needed to start? Trying to avoid access in the neck. Also, according to
Rognoni
in
Kidney Disease
3 years ago
Down on luck
What are my options? I need a kidney within a year or two, No insurance, do not qualify for medicaid in Texas, basically homeless. I am 57 so do not qualify to retire yet and still not on dialysis.
What are my options? I need a kidney within a year or two, No insurance, do not qualify for medicaid in Texas, basically homeless. I am 57 so do not qualify to retire yet and still not on dialysis.
Mckenzie277
in
Kidney Disease
3 years ago
Please help me!
Please help me, my 54 year old husband has just been diagnosed with CKD stage 4, his eGFR was 22. We found out by accident, he had no symptoms and has always been well. We think he has had this for a while and is currently on steroids to try to reduce the inflammation in his kidneys. Last blood test
Please help me, my 54 year old husband has just been diagnosed with CKD stage 4, his eGFR was 22. We found out by accident, he had no symptoms and has always been well. We think he has had this for a while and is currently on steroids to try to reduce the inflammation in his kidneys. Last blood test
Hidden
in
Kidney Disease
3 years ago
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