Search
Search
About
Log in
Join
Experiences with
Topical steroids
Posts
Communities
17,107 public posts
Filter results
Me Again
Hi everyone, just an update in my miserable journey. My private as I still haven’t even reached the waiting list for an NHS one I am on the waiting list to get to the actual waiting list. Had informed me I have Inflammatory arthritis as well as PMR. I Am unable to take methotrexate so am on Hydroxychloroquine
Hi everyone, just an update in my miserable journey. My private as I still haven’t even reached the waiting list for an NHS one I am on the waiting list to get to the actual waiting list. Had informed me I have Inflammatory arthritis as well as PMR. I Am unable to take methotrexate so am on Hydroxychloroquine
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
Timings
I have managed to get down to 5mg which I have been taking now for 2weeks after being diagnosed with PMR 2 years ago. In that time I have put on 11kg! partially due to changing my job from ward based and very busy to a mainly office based job for the probation service. I feel like a whale going from
I have managed to get down to 5mg which I have been taking now for 2weeks after being diagnosed with PMR 2 years ago. In that time I have put on 11kg! partially due to changing my job from ward based and very busy to a mainly office based job for the probation service. I feel like a whale going from
Holycow2
in
PMRGCAuk
1 year ago
Diverticulitis?
I've had symptoms of self diagnosed diverticulitis for the last week. I thought I'd Google'd it and it seems those on steroids have a higher mortality from it than normal people! I never knew that and although I'm only at an early stage, it bothered me that I'd not read anything about it in the bumph
I've had symptoms of self diagnosed diverticulitis for the last week. I thought I'd Google'd it and it seems those on steroids have a higher mortality from it than normal people! I never knew that and although I'm only at an early stage, it bothered me that I'd not read anything about it in the bumph
CoziNess
in
PMRGCAuk
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Not a bird
Just for a change, I could not resist making this photo available. Not sure whather she wants a bath or finds the sink a cool place to be in this weather. She is one of our five kittens, still for sale. One of her brothers in going to UK in September and we have space in the car for another. All fully
Just for a change, I could not resist making this photo available. Not sure whather she wants a bath or finds the sink a cool place to be in this weather. She is one of our five kittens, still for sale. One of her brothers in going to UK in September and we have space in the car for another. All fully
LissacFrance
in
Lung Conditions Community Forum
1 year ago
films
hi I am on 2mg steroids been on for a month it second time round I got to 2 mg as soon as I go down to 1 mg I get the pain in my muscles in shoulders and neck buttocks need some advice do I go down to 1 1/2 mg for month to see if it works
hi I am on 2mg steroids been on for a month it second time round I got to 2 mg as soon as I go down to 1 mg I get the pain in my muscles in shoulders and neck buttocks need some advice do I go down to 1 1/2 mg for month to see if it works
Movies5178
in
PMRGCAuk
1 year ago
Steriod Injection
Hi Started Methotrexate 15mg 6 weeks ago. Before that I was on a weaning dose of Prednisolone, which was 15mg when I started Mtx. After finishing steroids 2 weeks ago, pain has returned. Rang RA nurses who arranged a steroid injection my thigh (pain in ankles, knee and shoulders) , but the pain has
Hi Started Methotrexate 15mg 6 weeks ago. Before that I was on a weaning dose of Prednisolone, which was 15mg when I started Mtx. After finishing steroids 2 weeks ago, pain has returned. Rang RA nurses who arranged a steroid injection my thigh (pain in ankles, knee and shoulders) , but the pain has
Tinker72
in
NRAS
11 months ago
eczema
morning everyone, can I ask does anyone get bother with their skin. I get what I call a fibro rash on my chest sometimes but it usually goes after a few days. Now I have eczema like symptoms on my face,it’s awful. Steroid cream helps but it just keeps coming back especially on my eyelids. I know I can
morning everyone, can I ask does anyone get bother with their skin. I get what I call a fibro rash on my chest sometimes but it usually goes after a few days. Now I have eczema like symptoms on my face,it’s awful. Steroid cream helps but it just keeps coming back especially on my eyelids. I know I can
Purplelife123
in
Fibromyalgia Action UK
1 year ago
Update.
I contacted this forum, for the first time, just over 4 months ago as I had reduced my steroids from 5mg to 2.5mg and I felt ill. I was concerned that my PMR had returned. I was given some very useful advice and I contacted my GP who is very supportive. My GP suggested that I had steroid withdrawal
I contacted this forum, for the first time, just over 4 months ago as I had reduced my steroids from 5mg to 2.5mg and I felt ill. I was concerned that my PMR had returned. I was given some very useful advice and I contacted my GP who is very supportive. My GP suggested that I had steroid withdrawal
Pjso
in
PMRGCAuk
1 year ago
stiffness
Hi I have read that people experience lot of stiffness with PMR , especially in the mornings . However , I never do , maybe slightly for a few mins. GPS say I do have pmr. My inflammation levels were 39 in the spring . I was given 40mg steroids per day , as suspected GCA . Then saw a rheumy who
Hi I have read that people experience lot of stiffness with PMR , especially in the mornings . However , I never do , maybe slightly for a few mins. GPS say I do have pmr. My inflammation levels were 39 in the spring . I was given 40mg steroids per day , as suspected GCA . Then saw a rheumy who
TedTheMaineCoon
in
PMRGCAuk
11 months ago
The Plot Thickens…
I posted a few days ago about shoulder pain. It has got worse and is in both shoulders and is affecting my neck. It is far worse in the morning. My Osteopath gave me a private doctor’s contact details so I could see them for a cortisone injection. I had the appointment this morning and it turned out
I posted a few days ago about shoulder pain. It has got worse and is in both shoulders and is affecting my neck. It is far worse in the morning. My Osteopath gave me a private doctor’s contact details so I could see them for a cortisone injection. I had the appointment this morning and it turned out
MsWhistledown
in
Thyroid UK
9 months ago
Mental Health
Hi. Up until now which is a week after i had a heart attack and stent fitted, ive been a bit up and down but now im finding myself speculating on my future especially to do with work. I work in train maintenance and its heavy going, stressful with shift work and long hours and ezposure to diesel fumes
Hi. Up until now which is a week after i had a heart attack and stent fitted, ive been a bit up and down but now im finding myself speculating on my future especially to do with work. I work in train maintenance and its heavy going, stressful with shift work and long hours and ezposure to diesel fumes
BaronFrankenstein
in
British Heart Foundation
9 months ago
Newly diagnosed
Hi all, i was diagnosed today with PMR, this is the 1st day of my journey into the unknown. Is there anyone who isn't on steroid treatment. I'm unable to have steroids and was wondering how the alternatives work. Thanks on advance
Hi all, i was diagnosed today with PMR, this is the 1st day of my journey into the unknown. Is there anyone who isn't on steroid treatment. I'm unable to have steroids and was wondering how the alternatives work. Thanks on advance
Joann63
in
PMRGCAuk
1 year ago
GCA temple pain getting worse again
Hi All, first time posting so here goes -Diagnosed with GCA in November 2022, put on 60mg prednisolone, symptoms stabilised quite quickly, but felt unwell taking steroids, had so many side effects, consultant put me on tocilizumab about 5 months ago and was told to taper /reduce prednisolone slowly
Hi All, first time posting so here goes -Diagnosed with GCA in November 2022, put on 60mg prednisolone, symptoms stabilised quite quickly, but felt unwell taking steroids, had so many side effects, consultant put me on tocilizumab about 5 months ago and was told to taper /reduce prednisolone slowly
maisydaisy58
in
PMRGCAuk
1 year ago
covid
Hi all Have just tested positive for covid. I’ve managed to reduce steroids to 2mg per day. Should I now increase the dose. I’m waiting to hear from a clinician about anti vitals Thank you
Hi all Have just tested positive for covid. I’ve managed to reduce steroids to 2mg per day. Should I now increase the dose. I’m waiting to hear from a clinician about anti vitals Thank you
Ana-16
in
PMRGCAuk
1 year ago
I am on the edge
I am so struggling right now. Had copper coil put in for couple of months now. Stabbing pain, periods lasting for over a week, very strong bleeding I never had before (cannot manage to get to toilet fast enough to change a pad, ruined clothes, car seat, embarrassed myself etc But the worst is to come
I am so struggling right now. Had copper coil put in for couple of months now. Stabbing pain, periods lasting for over a week, very strong bleeding I never had before (cannot manage to get to toilet fast enough to change a pad, ruined clothes, car seat, embarrassed myself etc But the worst is to come
AiZe
in
BASHH
1 year ago
advice re knee pain.
hi, I’m a 58yr old, who suffers from an inflammatory arthritis, called ankylosing spondylitis, and mainly affects the spine but also peripheral joints. 10 weeks ago, I was on holiday in Devon, and suddenly noticed my left knee was buckling. A week later it gave way in the shower and I fell and gashed
hi, I’m a 58yr old, who suffers from an inflammatory arthritis, called ankylosing spondylitis, and mainly affects the spine but also peripheral joints. 10 weeks ago, I was on holiday in Devon, and suddenly noticed my left knee was buckling. A week later it gave way in the shower and I fell and gashed
Runrig01
in
Arthritis Action
1 year ago
update PMR or Neck Problem
Just putting this here as I don’t know if anyone can see it on my thread, sorry if repeating myself. UPDATE Just spoke to GP. Not a successful call. When I mentioned neck/arm he says I haven’t got PMR & wants me off the steroids. I’m worried now in case I reduce and I really have got PMR again as well
Just putting this here as I don’t know if anyone can see it on my thread, sorry if repeating myself. UPDATE Just spoke to GP. Not a successful call. When I mentioned neck/arm he says I haven’t got PMR & wants me off the steroids. I’m worried now in case I reduce and I really have got PMR again as well
Purplelamp
in
PMRGCAuk
1 year ago
PMR, travelling abroad, emergency pack of Pred ( “ sick day rules”) in case of illness
Hello, I’m off to a small Greek island next week where there are limited medical facilities - there are doctors but no pharmacy. I’ve just had a bit of a frustrating conversation with a GP during which I was trying to explain that should I unfortunately become ill eg Covid ( I hope not of course !) would
Hello, I’m off to a small Greek island next week where there are limited medical facilities - there are doctors but no pharmacy. I’ve just had a bit of a frustrating conversation with a GP during which I was trying to explain that should I unfortunately become ill eg Covid ( I hope not of course !) would
ChrissieHW
in
PMRGCAuk
1 year ago
Periods delayed after steroid injections
Hi,Has anyone had the experience of their periods being delayed after having steroid injections. If so, for how long? I'm a week late. They haven't been this late in a long while. I have an IVF consultation next month so I'm worried they won't return Thanks
Hi,Has anyone had the experience of their periods being delayed after having steroid injections. If so, for how long? I'm a week late. They haven't been this late in a long while. I have an IVF consultation next month so I'm worried they won't return Thanks
ABFr23
in
NRAS
9 months ago
Heart failure and fatigue
I was diagnosed with moderate/severe LV failure earlier this year. I'm now taking 7.5mg bisoprolol, with entrestol 24/26, dapaglyflozine and eplerenone, and been on these doses for about 6 weeks. Although my BP and heartrate has been brought down very well by the heart meds, it's a struggle to keep
I was diagnosed with moderate/severe LV failure earlier this year. I'm now taking 7.5mg bisoprolol, with entrestol 24/26, dapaglyflozine and eplerenone, and been on these doses for about 6 weeks. Although my BP and heartrate has been brought down very well by the heart meds, it's a struggle to keep
whisperit
in
British Heart Foundation
1 year ago
1
...
64
65
66
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
3744 results
Asthma Community Forum
2370 results
NRAS
2353 results
View top 10 communities
Sort by
Most Relevant
Newest