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Tezepelumab/Spirometry with Reversibility
Hi, hope everyone is managing well. I’m just looking to hear others experiences if possible. I’m quite complex and don’t show a high FeNO and spirometry is normal and my asthma is driven by neutrophils for inflammation. Best peak flow is 440, hovering around 220-350 - 220 is pre meds in the morning
Hi, hope everyone is managing well. I’m just looking to hear others experiences if possible. I’m quite complex and don’t show a high FeNO and spirometry is normal and my asthma is driven by neutrophils for inflammation. Best peak flow is 440, hovering around 220-350 - 220 is pre meds in the morning
LottieB36
in
Asthma Community Forum
1 year ago
Rash/swollen lips
Hi all me again, thought I would ask here as you've all been so helpful to me during all of my investigations.So update I'm currently on hydroxychloroquine finished a 6 week course of steroids a few weeks ago and I'm feeling up and down currently, last night however my lips became really painful but
Hi all me again, thought I would ask here as you've all been so helpful to me during all of my investigations.So update I'm currently on hydroxychloroquine finished a 6 week course of steroids a few weeks ago and I'm feeling up and down currently, last night however my lips became really painful but
Haylz2109
in
LUPUS UK
1 year ago
Updated Results and Endo Appt.
Following on from my post the other day, I've had my endo appt and also got the updated results. So on June 9th, my results were as follows:TSH 0.01 mIU/L (0.27 - 4.20) -6.6% Free T4 (fT4) 15.4 pmol/L (11.0 - 25.0) 31.4% Folate - Serum 4.1 ug/L (≥ 3.0) Vitamin B12 (Total) 2000 nmol/L (180 - 900) 252.8%
Following on from my post the other day, I've had my endo appt and also got the updated results. So on June 9th, my results were as follows:TSH 0.01 mIU/L (0.27 - 4.20) -6.6% Free T4 (fT4) 15.4 pmol/L (11.0 - 25.0) 31.4% Folate - Serum 4.1 ug/L (≥ 3.0) Vitamin B12 (Total) 2000 nmol/L (180 - 900) 252.8%
Horsecrazylady79
in
Thyroid UK
1 year ago
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GP insisting on using CRP & ESR as inflammatory markers...and managing to get a creatine kinase blood test ordered...legs are still an issue
Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer to see, she can be a little vague etc. But we ended up going through my meds and she asked about steroids being on my repeat....I said that although
Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer to see, she can be a little vague etc. But we ended up going through my meds and she asked about steroids being on my repeat....I said that although
Wendy39
in
LUPUS UK
11 months ago
Sanurita
I am 73 years old and suffer from chronic eczema I have had lots of steroids an mtx, last meds are acetretin, which combined with steroids but since weening off the steroids, itching has returned, so have to wait next appointment for next meds, has anyone else experienced similar??
I am 73 years old and suffer from chronic eczema I have had lots of steroids an mtx, last meds are acetretin, which combined with steroids but since weening off the steroids, itching has returned, so have to wait next appointment for next meds, has anyone else experienced similar??
Sanurita
in
NRAS
1 year ago
RA complicated by arthritis in knees
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Mama-K
in
NRAS
8 months ago
What I learned about steroids and blood sugar levels from wearing a continuous glucose monitor (CGM) on the ZOE program
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
tangocharlie
in
PMRGCAuk
1 year ago
Lespoz
Hi my father's 18months into his 14month prognosis bless him he's had chemo radiotherapy unfortunately his mobility has become very bad due to the numbness in his left hand side of his body so all treatments stopped except steroids he had a fall 10 weeks ago and l organised hospital equipment for home
Hi my father's 18months into his 14month prognosis bless him he's had chemo radiotherapy unfortunately his mobility has become very bad due to the numbness in his left hand side of his body so all treatments stopped except steroids he had a fall 10 weeks ago and l organised hospital equipment for home
Lezpopz
in
Glioblastoma Support
1 year ago
Constant lower Back/Left Bum cheek pain
Hi All,I have adenomyosis and I have been having constant and chronic lower back pain and pain on my left bum cheek for 9 months. Does anyone else with adenomyosis have this problem? I've had a laparoscopy and endo wasn't found but I wouldn't be surprised if I have it too. It's tormenting me and hugely
Hi All,I have adenomyosis and I have been having constant and chronic lower back pain and pain on my left bum cheek for 9 months. Does anyone else with adenomyosis have this problem? I've had a laparoscopy and endo wasn't found but I wouldn't be surprised if I have it too. It's tormenting me and hugely
ABFr23
in
Endometriosis UK
8 months ago
Is this a lupus rash?
Does anyone think that this is a lupus rash. It keeps flaring up. This year I’ve had 2 courses of steroids. I am also on hydroxychloroquine which I’ve been on for 10 years now. In June I started on methotrexate. I have a phone call tomorrow with the rheumatologist nurse. Is it worth asking to see
Does anyone think that this is a lupus rash. It keeps flaring up. This year I’ve had 2 courses of steroids. I am also on hydroxychloroquine which I’ve been on for 10 years now. In June I started on methotrexate. I have a phone call tomorrow with the rheumatologist nurse. Is it worth asking to see
elizabeth-57
in
LUPUS UK
1 year ago
How can I lower my thyroid antibodies
Hi everyone, I’m hoping someone can help me. I’ve had recurrent miscarriages and it has been suggested this is because of high thyroid antibodies - mine are 255, my TSH is 1.6. I have had one successful pregnancy but was on steroids and a small dose of Levothyroxine. Does anyone know if there are
Hi everyone, I’m hoping someone can help me. I’ve had recurrent miscarriages and it has been suggested this is because of high thyroid antibodies - mine are 255, my TSH is 1.6. I have had one successful pregnancy but was on steroids and a small dose of Levothyroxine. Does anyone know if there are
Char2383
in
Thyroid UK
1 year ago
advice on sulfasalazine and the sun
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
Fish1230
in
NRAS
11 months ago
I am off Pred since April, but do I still have PMR?
After 15 months on Pred. I managed to wean myself off them. I always had aches and tiredness, but as it was not unbearable and I rested a lot I thought this was better than remaining on steroids. I stopped the steroids beginning of April ‘23. I still feeel tired all the time, and I am slow and
After 15 months on Pred. I managed to wean myself off them. I always had aches and tiredness, but as it was not unbearable and I rested a lot I thought this was better than remaining on steroids. I stopped the steroids beginning of April ‘23. I still feeel tired all the time, and I am slow and
Fetlar73
in
PMRGCAuk
1 year ago
Advice please! re inhalers, steroids, personality, voice... and breathing balance.
Any advice? I have been diagnosed with asthma. I also have past sinus polyps and take pantoprazole for stomach acid. I feel like I have inflammation from my ears to my insides. I get quite wheezy but mostly in throat and upper chest - sometimes sounds like I have a little bird cheeping in my throat
Any advice? I have been diagnosed with asthma. I also have past sinus polyps and take pantoprazole for stomach acid. I feel like I have inflammation from my ears to my insides. I get quite wheezy but mostly in throat and upper chest - sometimes sounds like I have a little bird cheeping in my throat
Leith24
in
Asthma Community Forum
1 year ago
Some good news, yay!
After all my recent whining …some good news Doc gonna change me off Ozempic onto Monjauro (sp?) Queasiness so bad had to lie down in dinner host’s living room Sed rate 9…well into normal range Ac1..down from 8.4 to 7.2. Hope it improves as I reduce steroids. At 10 mgs methyl pred without
After all my recent whining …some good news Doc gonna change me off Ozempic onto Monjauro (sp?) Queasiness so bad had to lie down in dinner host’s living room Sed rate 9…well into normal range Ac1..down from 8.4 to 7.2. Hope it improves as I reduce steroids. At 10 mgs methyl pred without
Merryfield
in
PMRGCAuk
1 year ago
Itchy ear
I have really bad itchy in my ears . anyone recommend any ointment please. I can’t use drops because I have hole in my ear drum. dr gave me steroids ointment but didn’t work then they gave me tablets also no help. Now they said they can’t do anything 😢. My T also loud always change. ears painful. So
I have really bad itchy in my ears . anyone recommend any ointment please. I can’t use drops because I have hole in my ear drum. dr gave me steroids ointment but didn’t work then they gave me tablets also no help. Now they said they can’t do anything 😢. My T also loud always change. ears painful. So
sun_1234
in
Tinnitus UK
1 year ago
Aching legs
Does anyone have an opinion on why my thighs and ankles are so painful when I’m in bed , also have swollen hot feet.? I can manage the pain through the day but can’t sleep at night My haemo thinks it might be Polymyalgia rheumatica but I’m not convinced and don’t want to take steroids. I’m trying
Does anyone have an opinion on why my thighs and ankles are so painful when I’m in bed , also have swollen hot feet.? I can manage the pain through the day but can’t sleep at night My haemo thinks it might be Polymyalgia rheumatica but I’m not convinced and don’t want to take steroids. I’m trying
Juliet46
in
MPN Voice
1 year ago
Rash on neck comes and goes away. Steroid cream and antihistamines not working. Been happening for 3 months
I have this itchy neck rash that mainly flairs up or comes back on the weekends. Tried steroid cream. It does know it down, but comes back again. On multiple antihistamines one in the morning and one at night and that doesn't seem to help. I take a daily multivitamin and fiber in the morning, but
I have this itchy neck rash that mainly flairs up or comes back on the weekends. Tried steroid cream. It does know it down, but comes back again. On multiple antihistamines one in the morning and one at night and that doesn't seem to help. I take a daily multivitamin and fiber in the morning, but
Whiteacres
in
MY SKIN
1 year ago
Hello
Hi, I’m 20 and going into my last year of University. I was diagnosed last year, but the symptoms were mild so I didn’t really pay attention to it. I didn’t really understand what it meant and I thought it was going to get better or stay mild so I wouldn’t need the medication. I delayed starting the
Hi, I’m 20 and going into my last year of University. I was diagnosed last year, but the symptoms were mild so I didn’t really pay attention to it. I didn’t really understand what it meant and I thought it was going to get better or stay mild so I wouldn’t need the medication. I delayed starting the
poppies_are_red
in
LUPUS UK
1 year ago
overlapping symptoms
hi all I’ve finally seen a rheumatologist and he wasn’t able to give me a diagnosis as he says I don’t present the classic symptoms for any one particular autoimmune disease but I have overlapping symptoms of more than one condition. The hair loss and rash seem to be puzzling them too. I’ve been prescribed
hi all I’ve finally seen a rheumatologist and he wasn’t able to give me a diagnosis as he says I don’t present the classic symptoms for any one particular autoimmune disease but I have overlapping symptoms of more than one condition. The hair loss and rash seem to be puzzling them too. I’ve been prescribed
TheRedOnes
in
LUPUS UK
9 months ago
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