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GPs treating patients differently ?

blackmememe profile image
20 Replies

I have asthma and take Montelukast and use a Fostair inhaler I also have nasal polyps that come and go usually when I have a cold or virus.

I have never been offered or had it suggested that I should have an emergency course of steroids in case I get a chest infection ( and I have had a couple of bad ones ) and when I do I have to almost beg for the 5 day course why ? yes its not idle to take them as the last GP repeatedly told me in our phone call ( the last course I had was 6 months earlier )

but if I am suffering with an infection or my nasal polyps are stopping me breathing is a couple of courses a year that bad ?

Reading posts on here people seem to have good Asthma management with their GP maybe I should be more assertive ?

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blackmememe
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20 Replies
Homely2 profile image
Homely2Administrator

The key for asthma management for me is have access to a medic who gets my asthma.

I have a hospital asthma nurse and a GP asthma nurse who both understand my asthma, while I have more trouble with some of the gps and my consultant. One GP, who mainly handles the urgent cases, insists I have to wheeze to have asthma.

So I would do some research as who at your gp practice might understand asthma. I simply asked my gp asthma nurse, who told me which of the GPS are any good at asthma. I would then do my best to get the correct medic, which for me actually is normally an asthma nurse and if she is unavailable there is one GP out of 7 who I prefer.

I would also ring the asthma UK helpline to make sure you understand which drugs are best for you when having an exacerbation, so you know what to ask for.

blackmememe profile image
blackmememe in reply toHomely2

Good advice thank you x

Chip_y2kuk profile image
Chip_y2kuk

Rescue packs/emergency course of steroids .... are normally something a hospital asks the doctor to do ... my GP wouldn't give me a rescue pack until the hospital said so.... the hospital said so and the GP couldn't give me one quick enough.

Homely2 profile image
Homely2Administrator in reply toChip_y2kuk

My gp surgery and local hospital both strictly forbid rescue packs. The theory is that when ill you ring your gp surgery.

Chip_y2kuk profile image
Chip_y2kuk in reply toHomely2

Yes I understand that logic but I also have antibiotics in my rescue pack and as someone that's needed/had antibiotics and steroids every 2-3 months for the last 8 years.... the hospital decided it was "essential, in case I couldn't be seen by a doctor"

But yes I understand that *normally* if your sick enough to need steroids your sick enough to be seen by the GP and should be.

CallysMum profile image
CallysMum in reply toHomely2

That theory is fine, providing you CAN see a doctor, ours are like unicorns, we've heard tell of them, but not seen one.

Chip_y2kuk profile image
Chip_y2kuk in reply toCallysMum

Truth be told it was an urgent care doctor that told me to *ask* my respiratory team/GP for a rescue pack in case I couldn't be seen ..... and it was around the time earlier this year that the strikes where on and doctors where in and out of hospitals/GP surgeries

But yes my GP surgery now has a paramedic who triages the calls of a morning and is able to direct to the best place for care, the nurse tells me this is because there is a massive shortage of GP's in the NHS since covid (not good)

crille profile image
crille

Hi,

I agree with Homely2 with what he wrote in his reply. I just want to add that I have very good results with Budesonide nasal spray to keep the polyps from recurring. Have been on Budesonide for some years now, and I am free of polyps and all the problems that come with them.

blackmememe profile image
blackmememe in reply tocrille

Thank you I am going to ask to try this

SuziElley profile image
SuziElley

Well I’ve just tried to contact my surgery this morning. The online contact told me no more spaces available until tomorrow to even lodge my symptoms for someone to read. This was at 8:30am. I tried phoning the surgery, no luck there. A recorded message saying no more phone calls being taken! So I’ve been unable to contact my GP surgery at all today! What are we coming to? I don’t want to go to A&E as that would mean a wait of many hours sitting among all the other germs! If they would only let me keep an emergency supply of steroids I could manage my asthma myself!!

blackmememe profile image
blackmememe in reply toSuziElley

I totally agree I am not even trying to call my GP today as it is impossible to speak with anyone on a Monday , if I can tomorrow it will be Thursday before a Prescription is ready to collect its not good enough !

SuziElley profile image
SuziElley in reply toblackmememe

I can’t remember when I actually saw my GP face to face. I’ve spoken to him on the phone and he’s been very supportive about my long Covid, but at the moment I’m frustrated because I know all I need is a course of steroids.

blackmememe profile image
blackmememe in reply toSuziElley

Yes me to just a course of steroids and the nasal polyp and chest infection would be sorted but I will have to be talked down to and told I have already had them twice this year, why can they not just get you to sign something to say you are prepared to take the risk , I hope you get sorted soon x

Mandevilla profile image
Mandevilla

So much is down to the individual GP. Mine is very outdated in his views, believes asthma triggers are always allergies (so getting worse due to exercise, chest infections, stress or weather is 'in your mind') and that asthma should primarily be managed by Ventolin - fortunately, the asthma nurse is brilliant and now has me on a daily inhaler which actually works!

I have a friend in another area who has occasional, mild summer asthma, for which she needs Ventolin maybe 2-3 times a season and nothing else. Her GP has sent her for every flu and Covid jab available on the basis that asthma makes her 'more vulnerable' to Covid, and she only has to ask for something to be given it...

blackmememe profile image
blackmememe in reply toMandevilla

Te GP at my surgery recommended Fostair but told me to use a spacer and 2 puffs once a day and my asthma got worse over the next few weeks , by chance I spoke to the asthma nurse and explained she was shocked and embarrassed to tell me the GP got it wrong as the inhaler is dry powder and should never be used with a spacer and by stopping brown inhaler and telling me 2 puffs once a day he had halved my dose !

Eastend555 profile image
Eastend555

Dont worry there just saving money for the gps next payrise

blackmememe profile image
blackmememe in reply toEastend555

Dont forget their Christmas Bonus

Eastend555 profile image
Eastend555

LOL YOU GOT IT

Poshcards profile image
Poshcards

I too am on Fostair 200/6 and Montelukast for my asthma, I also have very weakened immune system due to Lupus etc, yet have never been given emergency meds etc and I dont know why!

blackmememe profile image
blackmememe in reply toPoshcards

It seems many of us are just lost in the system x

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