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Lupus art gallery anyone..I feel inspired!!
It seems to me that we have many talented individuals on this forum n I believe that art in any way shape or form is a wonderful way of expressing ourselves..be it arts, crafts,music etc..whatever the medium I strongly believe that it helps us to get through the autoimmune stuff that we all have to deal
It seems to me that we have many talented individuals on this forum n I believe that art in any way shape or form is a wonderful way of expressing ourselves..be it arts, crafts,music etc..whatever the medium I strongly believe that it helps us to get through the autoimmune stuff that we all have to deal
Krazykat26
in
LUPUS UK
5 years ago
Pip update and dry eyes, mouth😵
Hello a while ago I posted about a PIP assessment.... Thank you any one who replied...sorry I didn't say 'thanks' back then. So I am waiting for them to decide whether I can still have PIP. Here's hoping🙄 On another note does any one have any thoughts on this - I am on the biologic tocilizumab. In recent
Hello a while ago I posted about a PIP assessment.... Thank you any one who replied...sorry I didn't say 'thanks' back then. So I am waiting for them to decide whether I can still have PIP. Here's hoping🙄 On another note does any one have any thoughts on this - I am on the biologic tocilizumab. In recent
Mouseling
in
NRAS
5 years ago
Thrombophlebitis
So last week I thought I must have banged my leg as I had a red tender area (felt like a bruise coming) but over the week it’s got bigger so decided I better go to the drs. I wondered if I had thrombophlebitis but thought ‘nahhh I’m on warfarin!’ Low and behold I do have thrombophlebitis. This is he
So last week I thought I must have banged my leg as I had a red tender area (felt like a bruise coming) but over the week it’s got bigger so decided I better go to the drs. I wondered if I had thrombophlebitis but thought ‘nahhh I’m on warfarin!’ Low and behold I do have thrombophlebitis. This is he
kateb81
in
Hughes Syndrome APS Forum
5 years ago
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Good article on issues with nursing homes in the USA
Nursing home kitchens in 'horrible' condition endanger the elderly, advocates say. An investigation found food safety problems at nursing homes nationwide. https://www.nbcnews.com/news/us-news/nursing-home-kitchens-horrible-condition-endanger-elderly-advocates-say-n1061216
Nursing home kitchens in 'horrible' condition endanger the elderly, advocates say. An investigation found food safety problems at nursing homes nationwide. https://www.nbcnews.com/news/us-news/nursing-home-kitchens-horrible-condition-endanger-elderly-advocates-say-n1061216
Hidden
in
Cure Parkinson's
5 years ago
Headaches and dry nose
I have lots of debilitating symptoms but there is something really troubling me I would like to get help with. I wake every morning with severe headache. As a consequence I am afraid of sleep now. I have a lot of allergies. I am allergic to many things including cats, dogs, pollens, grasses etc. I also
I have lots of debilitating symptoms but there is something really troubling me I would like to get help with. I wake every morning with severe headache. As a consequence I am afraid of sleep now. I have a lot of allergies. I am allergic to many things including cats, dogs, pollens, grasses etc. I also
Details
in
Ehlers-Danlos Support UK
5 years ago
Eye problems
Just Seen my normal eye check up and told them I had blurry vision in my left eye. Having been seen by a senior optometrist she said that as I had an eye appointment with St Thomas on the 23rd that I should call them to move it forward as it looked like macular degeneration (at 48 years of age) so St
Just Seen my normal eye check up and told them I had blurry vision in my left eye. Having been seen by a senior optometrist she said that as I had an eye appointment with St Thomas on the 23rd that I should call them to move it forward as it looked like macular degeneration (at 48 years of age) so St
Greenmil3
in
Hughes Syndrome APS Forum
5 years ago
Wtf is going on with me
Has anyone here had dry mouth ca. Anxiety do this my dry mouth started monday night
Has anyone here had dry mouth ca. Anxiety do this my dry mouth started monday night
Meleinagarcia
in
Anxiety Support
5 years ago
Flare
PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve
PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve
Dream21
in
PMRGCAuk
5 years ago
Retinopathy Risk in Lupus Increases With Longer Hydroxychloroquine Use
Hydroxychloroquine retinopathy in lupus patients.
Katie Robinson October 1, 2019 The incidence of retinopathy among systemic lupus erythematosus (SLE) patents treated with hydroxychloroquine increased with longer treatment duration, but could be predicted by monitoring blood levels of the drug
Hydroxychloroquine retinopathy in lupus patients.
Katie Robinson October 1, 2019 The incidence of retinopathy among systemic lupus erythematosus (SLE) patents treated with hydroxychloroquine increased with longer treatment duration, but could be predicted by monitoring blood levels of the drug
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Taking Prednisolone if that’s the correct spelling for a Steroid for chest infection.all good.
Hi yes l was on it for a week with no ill effects on good cleared chest infection quickly, l was more concerned about my Glaucoma but that was fine as well as the doctor said it would be.so all good.
Hi yes l was on it for a week with no ill effects on good cleared chest infection quickly, l was more concerned about my Glaucoma but that was fine as well as the doctor said it would be.so all good.
Harrietia
in
Lung Conditions Community Forum
5 years ago
I’ve not long been diagnosed with skin lupus, but if there is any UV (even when it’s raining), I get a flare up.
I was diagnosed with skin lupus but I have it so severe, is it normal to get flare ups even when the UV Ray is only 1? It looks like I have red eye shadow, my ears are red and scaly, if it gets higher than 5 UV, I have to stay in. I’ve been told to get the UV film up on my windows. I have 4 types of
I was diagnosed with skin lupus but I have it so severe, is it normal to get flare ups even when the UV Ray is only 1? It looks like I have red eye shadow, my ears are red and scaly, if it gets higher than 5 UV, I have to stay in. I’ve been told to get the UV film up on my windows. I have 4 types of
Teanna
in
LUPUS UK
5 years ago
EMDR
Hello ... has anyone out there tried EMDR to help reduce their tinnitus? I believe it’s quite new!
Hello ... has anyone out there tried EMDR to help reduce their tinnitus? I believe it’s quite new!
1Dar
in
Tinnitus UK
5 years ago
Diagnosed with PV but normal RBC count
Recently diagnosed with PV (JAK2+) however my blood counts are quite a bit different to others that I see posting here. My RBC count has been normal for as long as I can see (in fact towards the low end of the normal range), however its my WBC count that is high. My platelets are high but just at the
Recently diagnosed with PV (JAK2+) however my blood counts are quite a bit different to others that I see posting here. My RBC count has been normal for as long as I can see (in fact towards the low end of the normal range), however its my WBC count that is high. My platelets are high but just at the
Fuzzy_Duck
in
MPN Voice
5 years ago
Dry Eye and Sjögren’s Syndrom
It is estimated that more than 330 million people currently suffer from Dry Eye Syndrome worldwide. Although often misunderstood, the complex disease can even lead to a chronic vision threatening disorder, conjunctivochalasis (CCh). Certain modern day conveniences are thought to be a cause in the increase
It is estimated that more than 330 million people currently suffer from Dry Eye Syndrome worldwide. Although often misunderstood, the complex disease can even lead to a chronic vision threatening disorder, conjunctivochalasis (CCh). Certain modern day conveniences are thought to be a cause in the increase
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Hydroxychlorquine alternative
Hi all, has anyone had to come off Hydroxychlorquine and if so what alternative was offered? I’ve got Sjögren’s, Lupus and RA with lung disease and on Hydroxychlorquine and Mycophenolate plus steroids but have been told by Rheumy nurse to stop Hydroxy due to macular degeneration disease started in my
Hi all, has anyone had to come off Hydroxychlorquine and if so what alternative was offered? I’ve got Sjögren’s, Lupus and RA with lung disease and on Hydroxychlorquine and Mycophenolate plus steroids but have been told by Rheumy nurse to stop Hydroxy due to macular degeneration disease started in my
Barbs51
in
LUPUS UK
5 years ago
W8R3 - Running while drunk
Well that made for an interesting experience. Despite being up all night working the nightshift, I still managed to get my sleepy self around the Plymvalley Parkrun for my third parkrun. My head was definitely in bed asleep as I felt like a disoriented zombie. My feet plodding on, one foot infront of
Well that made for an interesting experience. Despite being up all night working the nightshift, I still managed to get my sleepy self around the Plymvalley Parkrun for my third parkrun. My head was definitely in bed asleep as I felt like a disoriented zombie. My feet plodding on, one foot infront of
Bike_and_Run
Graduate
in
Couch to 5K
5 years ago
Jay 20 Experiences the Autumn Fall!
Hi everyone. I previously wrote to say how great I thought the Viviscal pills were. Well for a time they really seemed to be helping. I am just writing in to say alas my lovely thick hair is yet again starting to fall out and in quite big chunks. My scalp recently became very dry and itchy which has
Hi everyone. I previously wrote to say how great I thought the Viviscal pills were. Well for a time they really seemed to be helping. I am just writing in to say alas my lovely thick hair is yet again starting to fall out and in quite big chunks. My scalp recently became very dry and itchy which has
Jay2O
in
Alopecia UK
5 years ago
Dental extraction and prolia
I need to have an extraction and my last prolia injection was November 2018. My dentist has given me the name of a oral surgeon as he doesn't want to take the risk of my jaw not healing. Has anyone had this type of Surgery.
I need to have an extraction and my last prolia injection was November 2018. My dentist has given me the name of a oral surgeon as he doesn't want to take the risk of my jaw not healing. Has anyone had this type of Surgery.
Angels-delight
in
NRAS
5 years ago
Aneurysm repair side effects
I had an unruptured, 28mm ,wide necked Annie coiled and stented in June 2018 . Since then I’ve had to learn to walk , bathe and dress myself which I have managed to do although I can only walk with a walker. My main problem is that my face is still numb , loss of vision , my eye doesn’t close properly
I had an unruptured, 28mm ,wide necked Annie coiled and stented in June 2018 . Since then I’ve had to learn to walk , bathe and dress myself which I have managed to do although I can only walk with a walker. My main problem is that my face is still numb , loss of vision , my eye doesn’t close properly
Shon48
in
Headway
5 years ago
How long after stopping injections do symptoms return?
Sorry I've been such a pest lately, but I'm sort of at a precipice here. Per my other recent posts, I have temporarily stopped injections in attempting to diagnose my B12D (for the last 57 days). This morning, my right two middle fingers were more numb than usual and my "MS Hug" was gripping me from
Sorry I've been such a pest lately, but I'm sort of at a precipice here. Per my other recent posts, I have temporarily stopped injections in attempting to diagnose my B12D (for the last 57 days). This morning, my right two middle fingers were more numb than usual and my "MS Hug" was gripping me from
AirAl
in
Pernicious Anaemia Society
5 years ago
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