PMR, FIBRO, GCA
I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve energy again.
Sorry to complain. You do so well then “Bam!” a darn flare!
Can anyone relate?
Yes, I can relate, after five years and down to 1mg. Early this morning I have very bad shoulder pain. I've taken 5mg this morning. It's a case of trying to catch a flare. Time will tell.
Why not try half a mg drop next time? You did a 50% drop going from 2mg to 1mg. That’s really hard on your body.
Further to Mary’s comment, you probably have dropped too much - but I think because Rayos is slow release it has a covering so therefore cannot be cut.
Are you following a slow taper plan - if not suggest you try next time around - see here for a few - healthunlocked.com/pmrgcauk...
But you do need to catch it quickly, hope you have - and remember the fatigue may be due to your adrenals glands not on top form yet - even after stopping Pred they can take a while to get back to normal. If that continues you might need to get them checked.
Ouch! I am sharing the fatigue with you. Not at all sure what triggered it. Back to the swooning journey towards bed for the past month. I must look up chair yoga.
Bear in mind you HALVED the dose of pred. I know it is difficult with Rayos/Lodotra because you have no 1/2mg options other than using plain pred in some way - and that is where a slow approach like DSNS can help. One day new dose, several days old dose, always getting the new dose days a bit closer together and extending it as required.
The fatigue is probably also due to a relatively big kick at adrenal function that is struggling to adjust.
But 2mg is a low low dose and doing only good not harm. I shan't be worrying if I get under 5mg!
Thank you. Great suggestion. I will try that next time. What does DSNS stand for?
Flare up PMR extreme fatigue 
Flare? 
Trying to control flare but getting into yo-yoing with pred
Oh no is this a flare up ???
Help flare up out of control
