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Quick update on my journey
My bio has most of the brief history of my recent diagnosis. I’m on month 3 of Xtandi plus Orgovyx and just met with Rad Onc at Duke for initial consultation. Plan is low dose IMRT over 20 days (every day for 5 days in a row each week). Expect to remain on existing doublet Tx for at least the next
My bio has most of the brief history of my recent diagnosis. I’m on month 3 of Xtandi plus Orgovyx and just met with Rad Onc at Duke for initial consultation. Plan is low dose IMRT over 20 days (every day for 5 days in a row each week). Expect to remain on existing doublet Tx for at least the next
Clippedwingz
in
Prostate Cancer Under 60
14 days ago
Teva, Teva, every where, Nor any tab of Venc
Yesterday, I went to pick up some owing levothyroxine - three packs of 25 and one pack of 100. The pharmacy has been helpful since I moved to them some time ago. I having consistently been getting Aristo Vencamil 100 and Wockhardt 25. But this time - all four packs were Hillcross. You are likely aware
Yesterday, I went to pick up some owing levothyroxine - three packs of 25 and one pack of 100. The pharmacy has been helpful since I moved to them some time ago. I having consistently been getting Aristo Vencamil 100 and Wockhardt 25. But this time - all four packs were Hillcross. You are likely aware
helvella
Thyroid UK
in
Thyroid UK
15 days ago
Help with obtaining medication
Dear community I don’t know if I am allowed to post this and I am a complete novice to social chats I struggle to keep up with family what’s app groups but here goes. I was told by my doctor after giving birth to my daughter I was having an awful time she was ill I felt terrible and couldn’t stop
Dear community I don’t know if I am allowed to post this and I am a complete novice to social chats I struggle to keep up with family what’s app groups but here goes. I was told by my doctor after giving birth to my daughter I was having an awful time she was ill I felt terrible and couldn’t stop
Poppit77
in
Thyroid UK
15 days ago
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NDT cost ?
Looking into changing to NDT from my present Levo. Wondered about the price ?How have you benefited if you have changed ? Thanks in advance ☺️
Looking into changing to NDT from my present Levo. Wondered about the price ?How have you benefited if you have changed ? Thanks in advance ☺️
Bigsi
in
Thyroid UK
15 days ago
Nubeqa info please
Hi , I started Nubeqa (Darolutamide )1200 mg 2 tabs twice daily this week along with continued ADT . I’ve never had a stomach issue in my life but that’s all changed. I’m constantly nauseous most of the day.It starts almost immediately after the morning dose which I’ve tried before food with food and
Hi , I started Nubeqa (Darolutamide )1200 mg 2 tabs twice daily this week along with continued ADT . I’ve never had a stomach issue in my life but that’s all changed. I’m constantly nauseous most of the day.It starts almost immediately after the morning dose which I’ve tried before food with food and
Walliam
in
Advanced Prostate Cancer
15 days ago
Recent iron results - not sure what to do now
Hi everyone, I've recently had an iron panel (NHS) after 10 weeks of supplementing with 1 then 2 x Three arrows per day, as well as taking cacao liquid (as recommended here) in the hope of increasing my stubbornly low ferritin. However I'm not sure how to read the results so any advice very welcome
Hi everyone, I've recently had an iron panel (NHS) after 10 weeks of supplementing with 1 then 2 x Three arrows per day, as well as taking cacao liquid (as recommended here) in the hope of increasing my stubbornly low ferritin. However I'm not sure how to read the results so any advice very welcome
Becsf
in
Thyroid UK
15 days ago
Blood test with GP want to be armed with information
Hi I am due to have a blood test with my GP surgery for my thyroid. This is the annual one. I use a combination of levo and also use NDT which I source myself. My GP isn’t aware of my NDT nor do I have any intention of telling them. Every year since my old GP retired it is a constant battle to
Hi I am due to have a blood test with my GP surgery for my thyroid. This is the annual one. I use a combination of levo and also use NDT which I source myself. My GP isn’t aware of my NDT nor do I have any intention of telling them. Every year since my old GP retired it is a constant battle to
Peanut31
in
Thyroid UK
16 days ago
Waiting for the Other Shoe to Drop
61 with oligometastatic prostate cancer. PSA is currently down to 0.02 today after 6 months of Lupron and Erleada from PSA 150 in late Dec. '23. Started on Megestrol Acetate back in April, really reduced the side effects of ADT for me. My figure also looks about the as before treatment. I had a trans-rectal
61 with oligometastatic prostate cancer. PSA is currently down to 0.02 today after 6 months of Lupron and Erleada from PSA 150 in late Dec. '23. Started on Megestrol Acetate back in April, really reduced the side effects of ADT for me. My figure also looks about the as before treatment. I had a trans-rectal
TheLarch
in
Advanced Prostate Cancer
17 days ago
Happy anniversary?
It was exactly 1 year ago that I got my first elevated PSA test that started my prostate cancer experience (I don’t like to say “Journey”). Details in my comic. (http://burnscomic.com) After that, I had another PSA test (still elevated a month later), a pelvic MRI (showing pi-rads 5 areas), then a
It was exactly 1 year ago that I got my first elevated PSA test that started my prostate cancer experience (I don’t like to say “Journey”). Details in my comic. (http://burnscomic.com) After that, I had another PSA test (still elevated a month later), a pelvic MRI (showing pi-rads 5 areas), then a
Jpburns
in
Advanced Prostate Cancer
17 days ago
Considering roseway labs for t3 mono
I switched to t3 mono therapy back in March from NDT and I’m feeling so much better on it. I am looking for a uk prescriber who will supply. Do Roseway labs work with t3 mono does anyone know please? And how does their system work. I’ve looked on the website and it looks like you have a consultation
I switched to t3 mono therapy back in March from NDT and I’m feeling so much better on it. I am looking for a uk prescriber who will supply. Do Roseway labs work with t3 mono does anyone know please? And how does their system work. I’ve looked on the website and it looks like you have a consultation
Knackeredandcross
in
Thyroid UK
18 days ago
ADT’s effectiveness and reason for limited success of chemo on prostrate cancer
I was wondering why they don’t just give chemo for Prostrate cancer irrespective of hormone sensitivity. Chemotherapy drugs destroy all rapidly dividing cells (even hair) so why would prostrate cancer cells be spared? I was trying to understand if ADT really kills PC cells or just makes them hibernate
I was wondering why they don’t just give chemo for Prostrate cancer irrespective of hormone sensitivity. Chemotherapy drugs destroy all rapidly dividing cells (even hair) so why would prostrate cancer cells be spared? I was trying to understand if ADT really kills PC cells or just makes them hibernate
Samrecan
in
Advanced Prostate Cancer
18 days ago
palliative radiation treatment questions
In my prior (first) post, I shared about my 82 year old father’s condition. Thanks for all the helpful and thoughtful responses from this community. He has gone off Goserelin (ADT) injection and now just on bicalutamide pills. As his testosterone seems to have returned, he’s now having more energy
In my prior (first) post, I shared about my 82 year old father’s condition. Thanks for all the helpful and thoughtful responses from this community. He has gone off Goserelin (ADT) injection and now just on bicalutamide pills. As his testosterone seems to have returned, he’s now having more energy
running_kiwi
in
Advanced Prostate Cancer
18 days ago
Tips for HDR Brachytherapy 2 Sessions
Hi I will be getting two treatments for HDR Brachytherapy in September at MD Anderson in AZ. Any tips with diet or exercising etc to heal and reduce the discomfort from it. You can see my diagnosis in my profile. Luckily for me prostate cancer has not spread. Currently on Orgovyx ADT . Have been
Hi I will be getting two treatments for HDR Brachytherapy in September at MD Anderson in AZ. Any tips with diet or exercising etc to heal and reduce the discomfort from it. You can see my diagnosis in my profile. Luckily for me prostate cancer has not spread. Currently on Orgovyx ADT . Have been
cnjaz
in
Prostate Cancer Network
18 days ago
PSA holding low!!
Hi all, I just want to give notice to everyone :-) that the PSA is still at a low level after almost 3 years of ADT. So it was 0.03 in July last year. In January it fell to 0.01 and now it went up meaningless, I hope, to 0.02. Good health to everyone!
Hi all, I just want to give notice to everyone :-) that the PSA is still at a low level after almost 3 years of ADT. So it was 0.03 in July last year. In January it fell to 0.01 and now it went up meaningless, I hope, to 0.02. Good health to everyone!
Paulo1968
in
Advanced Prostate Cancer
18 days ago
Hydrocortisone before blood test
I have a 9am blood test tomorrow to coincide with my doc’s follow up in a fortnight. I’ve had a terrible time with 2 grains of NDT and have returned to using hydrocortisone at 5mg am 2.5 lunchtime alongside 1/2 armour at bedtime. 1/2 armour is all I can manage without crashing. The HC brings immediate
I have a 9am blood test tomorrow to coincide with my doc’s follow up in a fortnight. I’ve had a terrible time with 2 grains of NDT and have returned to using hydrocortisone at 5mg am 2.5 lunchtime alongside 1/2 armour at bedtime. 1/2 armour is all I can manage without crashing. The HC brings immediate
Jamima
in
Thyroid UK
18 days ago
Gp just called about NDT at Newcastle 🤦
Hi everyone ❤️ Firstly feeling good stomach wise on the rosway labs NDT 👍 as I said I don't expect to be doing cartwheels down the road just yet😂 because I still fell tired and fatigued, obviously my TSH was 45.66 on May 31st so I reckon it's going to take some time for me to start to get some energy
Hi everyone ❤️ Firstly feeling good stomach wise on the rosway labs NDT 👍 as I said I don't expect to be doing cartwheels down the road just yet😂 because I still fell tired and fatigued, obviously my TSH was 45.66 on May 31st so I reckon it's going to take some time for me to start to get some energy
birkie
in
Thyroid UK
18 days ago
Visiting a Private GP, Practitioner or Endocrinologist
Thyroid UK has a rule of not mentioning comments about doctors that you visit on the actual community although discussion can be had via the private message system. We want to ensure that people are aware that our list of private GPs and practitioners and our list of NHS and private endocrinologists
Thyroid UK has a rule of not mentioning comments about doctors that you visit on the actual community although discussion can be had via the private message system. We want to ensure that people are aware that our list of private GPs and practitioners and our list of NHS and private endocrinologists
TUKOffice
Thyroid UK
in
Thyroid UK
18 days ago
Xtandi and Intermittent
I started Xtandi 2 months ago and got PSA undetectable. <.001. Now, my doctor suggest me to reduce from 4 tablets per say to 3 tablets per day. A month ago, I say "no", reasoning that reduction of the amount may create an early resistance to Xtandi. But he is persistent. He said no necessarily.
I started Xtandi 2 months ago and got PSA undetectable. <.001. Now, my doctor suggest me to reduce from 4 tablets per say to 3 tablets per day. A month ago, I say "no", reasoning that reduction of the amount may create an early resistance to Xtandi. But he is persistent. He said no necessarily.
Domas
in
Advanced Prostate Cancer
18 days ago
It is a similar question to many. where to buy? with lab results
I wont but vitamins Bit D antibodies here (as apart from folate) cannot produce methyl folate, B12, Vit D all midrange big (ferritin is always high so might get tested for iron overload), never ever any thyroid antibodies. I will just post the thyroid today, before covid on 3 grains NDT and 2 Grains
I wont but vitamins Bit D antibodies here (as apart from folate) cannot produce methyl folate, B12, Vit D all midrange big (ferritin is always high so might get tested for iron overload), never ever any thyroid antibodies. I will just post the thyroid today, before covid on 3 grains NDT and 2 Grains
Crunchieeagle
in
Thyroid UK
19 days ago
Update on me taking NTD..👍
Hi everyone ❤️ Just a little up date on how I'm progressing on the roseway NDT capsules, I'm now on day 12 and so far I've had no stomach or intestinal problems 🙌 Ho!! how nice it is not to have ANY diarrhoea, cramping, inflammation in my bowels no metallic after taste , no headache or acid wash
Hi everyone ❤️ Just a little up date on how I'm progressing on the roseway NDT capsules, I'm now on day 12 and so far I've had no stomach or intestinal problems 🙌 Ho!! how nice it is not to have ANY diarrhoea, cramping, inflammation in my bowels no metallic after taste , no headache or acid wash
birkie
in
Thyroid UK
19 days ago
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