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Test results
My latest blood tests have just come back. I’d be grateful for comments from the amazing admins please. At the moment I’m not feeling great, my last tests about 8 months ago showed my B12 to be low so I started taking a liquid B12 supplement sublingually. I’m not taking any iron supplements. I take vit
My latest blood tests have just come back. I’d be grateful for comments from the amazing admins please. At the moment I’m not feeling great, my last tests about 8 months ago showed my B12 to be low so I started taking a liquid B12 supplement sublingually. I’m not taking any iron supplements. I take vit
Fox123
in
Thyroid UK
2 months ago
SUV-Max
Hello , Ive been on Eligard , Zytiga , predizone 26 months . Im oligo with 1 tumor in pelvic lymph node that was radiated , then 25 fractions across the pelvic region . The tumor they radiated was at SUV-MAX 24 . All labs are good , not much of side effects . I thought about stopping the meds after
Hello , Ive been on Eligard , Zytiga , predizone 26 months . Im oligo with 1 tumor in pelvic lymph node that was radiated , then 25 fractions across the pelvic region . The tumor they radiated was at SUV-MAX 24 . All labs are good , not much of side effects . I thought about stopping the meds after
reconjj
in
Advanced Prostate Cancer
2 months ago
Dad 2nd BCR. Advice needed...
After a very late salvage radiation + 1 year Lupron. He has been off ADT for 1 year when PSA began to rise again. From 0.01 to 0.03 in less than 2 months then 0.05 after another 3 months. Is this indicative of an aggressive progression and metastasis? The oncologist said that the doubling time is not
After a very late salvage radiation + 1 year Lupron. He has been off ADT for 1 year when PSA began to rise again. From 0.01 to 0.03 in less than 2 months then 0.05 after another 3 months. Is this indicative of an aggressive progression and metastasis? The oncologist said that the doubling time is not
MsBoBo
in
Advanced Prostate Cancer
2 months ago
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5 aRIs and PCa and recurrence.
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
LowT
in
Advanced Prostate Cancer
2 months ago
is this what CR looks like?
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
lokibear0803
in
Advanced Prostate Cancer
2 months ago
Ndt and iodine supplement?
Hello everyone! I started treatment with NDT in t4 6 micrograms and t3 1.4 in December 2023. I tolerate it well and I'm happy about it! From my analysis done this month it turns out that my ft4 is 0.98 and ft3 is 2.69 and the tsh is 1.34... How do you find these analyses? My endocrinologist wants to
Hello everyone! I started treatment with NDT in t4 6 micrograms and t3 1.4 in December 2023. I tolerate it well and I'm happy about it! From my analysis done this month it turns out that my ft4 is 0.98 and ft3 is 2.69 and the tsh is 1.34... How do you find these analyses? My endocrinologist wants to
darkacademia
in
Thyroid UK
2 months ago
Help with labs please? desperate, house bound primarily
Hello, could anyone please help me with interpreting labs? I am on 25mg hydrocortisone for adrenals. 12 hours fasted, except for a tiny sip of diet coke (i wasn't thinking, i barely swallowed it though). No meds, no biotin. Please any advice? TSH 3,38 mU/L Ref: 0,27 - 4,20 T4-total° 8,9 µg/dL Ref
Hello, could anyone please help me with interpreting labs? I am on 25mg hydrocortisone for adrenals. 12 hours fasted, except for a tiny sip of diet coke (i wasn't thinking, i barely swallowed it though). No meds, no biotin. Please any advice? TSH 3,38 mU/L Ref: 0,27 - 4,20 T4-total° 8,9 µg/dL Ref
ratqueenxo
in
Thyroid UK
2 months ago
Bench mark blood tests before switching to NDT
I would welcome any comments or advice on these results and on the process of switching from levothyroxine to NDT. Thank you! Hypothyroidism I have been taking levothyroxin 100 mg for over 30 years since my early 40s. (This is my only medication. Otherwise I keep healthy with yoga, regular exercise
I would welcome any comments or advice on these results and on the process of switching from levothyroxine to NDT. Thank you! Hypothyroidism I have been taking levothyroxin 100 mg for over 30 years since my early 40s. (This is my only medication. Otherwise I keep healthy with yoga, regular exercise
Hipp0cratix
in
Thyroid UK
2 months ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Worried about pulmonary fibrosis if radiating the metastasis in my shoulder blade
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
Mascouche
in
Advanced Prostate Cancer
2 months ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
2 months ago
Cabazitaxel treatment
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
Luylu
in
Prostate Cancer Network
2 months ago
PCA Prognosis?
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Sagewiz
in
Advanced Prostate Cancer
2 months ago
My prostate journey and testosterone side effects
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
PT49
in
Prostate Cancer Network
2 months ago
A little update
Hi all, I just thought I'd give a little update as I've not posted here in about a year and just possibly my experience may be of interest. I am not in ANY way invalidating anyone else's condition or treatment, this is just my story. For years I have struggled with low mood, lacking 'oomph' in life.
Hi all, I just thought I'd give a little update as I've not posted here in about a year and just possibly my experience may be of interest. I am not in ANY way invalidating anyone else's condition or treatment, this is just my story. For years I have struggled with low mood, lacking 'oomph' in life.
Decant
in
Thyroid UK
2 months ago
QoL Recent hike in Japan .. Mount Fuji
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Yokohama2023
in
Advanced Prostate Cancer
2 months ago
An Enlightening Endocrine Adventure
After appeasing an endocrinologist worried about my suppressed TSH by a cunning lab trick -- withholding NDT for three days before going for the blood work -- I realized I needed to titrate up the dose. Many thanks to those who replied with their NDT experience. I cranked it up to nearly double what
After appeasing an endocrinologist worried about my suppressed TSH by a cunning lab trick -- withholding NDT for three days before going for the blood work -- I realized I needed to titrate up the dose. Many thanks to those who replied with their NDT experience. I cranked it up to nearly double what
RockyPath
in
Thyroid UK
2 months ago
any similar stories extensive metastatic prostate cancer
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
Concerneddaughter123
in
Advanced Prostate Cancer
2 months ago
So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
2 months ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
2 months ago
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