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Lupron 12 vs. 18 Months
This is a follow-up to a post I made in January of this year. I was diagnosed at age 50, Gleason score 3+4 (10% pattern 4), highest PSA of 10.1, high-risk Decipher 0.84, PI, and some evidence of ECE. I was PSMA-negative. I started Lupron and was treated at UCLA in late October 2023 with SBRT on the MRIdian
This is a follow-up to a post I made in January of this year. I was diagnosed at age 50, Gleason score 3+4 (10% pattern 4), highest PSA of 10.1, high-risk Decipher 0.84, PI, and some evidence of ECE. I was PSMA-negative. I started Lupron and was treated at UCLA in late October 2023 with SBRT on the MRIdian
sptill72
in
Prostate Cancer Network
6 days ago
Do not trust your first bone scan
If you are diagnosed with prostate cancer and get a bone scan, this will often reveal a few bone metastases. Then your MO will give you the verdict: lifelong ADT. Usually you will not get radiation or surgery of the prostate because the tumor has already spread. However, there is a study by Dr. Thomas
If you are diagnosed with prostate cancer and get a bone scan, this will often reveal a few bone metastases. Then your MO will give you the verdict: lifelong ADT. Usually you will not get radiation or surgery of the prostate because the tumor has already spread. However, there is a study by Dr. Thomas
GP24
in
Advanced Prostate Cancer
6 days ago
2 spots
I was undetected for a year after pelvic radiation then my PSA went up to .04 so we did a PSMA scan and discovered 2 spots, although one was on a rib. My PSA was .36 so the spots were radiated. I am having a slight pain in the area where the rib is located. My PSA has gone down to .26 so it’s moving
I was undetected for a year after pelvic radiation then my PSA went up to .04 so we did a PSMA scan and discovered 2 spots, although one was on a rib. My PSA was .36 so the spots were radiated. I am having a slight pain in the area where the rib is located. My PSA has gone down to .26 so it’s moving
Howard53545
in
Advanced Prostate Cancer
8 days ago
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blood in urine
Prostate removed have been on adt for 3 years & xtandi treatment for 3 months, I exercise a lot. Today I did floor exercises, weights and swam 500 meters fast. When I went to the bathroom to urinate it was all blood. I was told by my oncologist to go to the hospital if the second urination is all
Prostate removed have been on adt for 3 years & xtandi treatment for 3 months, I exercise a lot. Today I did floor exercises, weights and swam 500 meters fast. When I went to the bathroom to urinate it was all blood. I was told by my oncologist to go to the hospital if the second urination is all
Stevegr
in
Advanced Prostate Cancer
8 days ago
Update on visit to gp🙈
Hi everyone ❤️ Update on visit to gp yesterday, firstly I will say she was one of the most down to earth gps I've ever seen👍 she had all my information to hand, she'd obviously done her homework which is rare with some , if not all gps today. I took my roseway information and tablets [ NDT] with me
Hi everyone ❤️ Update on visit to gp yesterday, firstly I will say she was one of the most down to earth gps I've ever seen👍 she had all my information to hand, she'd obviously done her homework which is rare with some , if not all gps today. I took my roseway information and tablets [ NDT] with me
birkie
in
Thyroid UK
9 days ago
Positive case studies
Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013
Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013
TomsD1
in
Advanced Prostate Cancer
9 days ago
Newly diagnosed Gleason 9
Hi all, I recently had my prostate taken out and got upgraded to Gleason 9, T3b, seminal vessel and extra prosthetic extension with positive margins but no lymph nodes. I am 56, very fit, and will get my first post operative PSA in September. My pre-op was 9.5. I know a lot of people on this forum
Hi all, I recently had my prostate taken out and got upgraded to Gleason 9, T3b, seminal vessel and extra prosthetic extension with positive margins but no lymph nodes. I am 56, very fit, and will get my first post operative PSA in September. My pre-op was 9.5. I know a lot of people on this forum
OppositePlatypus9910
in
Advanced Prostate Cancer
10 days ago
Do you take Adrenal Support?
What do you take please and is it helping? Seeking views because I have done two adrenal saliva tests in Feb 2023 and 2024 and both were low, showing adrenal fatigue stage II. I’ve been on NDT Armour for a year and my FT3 has increased to mid-upper range. The private thyroid Dr didn’t increase
What do you take please and is it helping? Seeking views because I have done two adrenal saliva tests in Feb 2023 and 2024 and both were low, showing adrenal fatigue stage II. I’ve been on NDT Armour for a year and my FT3 has increased to mid-upper range. The private thyroid Dr didn’t increase
Insomania
in
Thyroid UK
10 days ago
Need some help
Hello everyone I am in desperate with some help, I'm hoping the knowledgeable people are able to. Up to 2 months ago I was taking LDN along with Adrenavive 11 daily, including not eating certain foods that were causing my brain foggy. Work out the it Casein, gluten and reacting to some processed meets
Hello everyone I am in desperate with some help, I'm hoping the knowledgeable people are able to. Up to 2 months ago I was taking LDN along with Adrenavive 11 daily, including not eating certain foods that were causing my brain foggy. Work out the it Casein, gluten and reacting to some processed meets
csavery8753
in
Thyroid UK
10 days ago
New prescription of ERFA with levo decrease
Hi everyone I've recently had my first consult with a recommended Endo on TUK list and also some people in my local thyroid group. Mostly good reviews but one person unhappy with him. He's putting me on NDT as says I'm not converting FT4 to FT3 as I suspected. So sorry its so long, I've tried to ask
Hi everyone I've recently had my first consult with a recommended Endo on TUK list and also some people in my local thyroid group. Mostly good reviews but one person unhappy with him. He's putting me on NDT as says I'm not converting FT4 to FT3 as I suspected. So sorry its so long, I've tried to ask
Opal79
in
Thyroid UK
10 days ago
Gp just rang...🤔
Hi everyone ❤️ A gp as just rang asking me to see her today at 4.45, I have no doubt this is in relation to the letter I wrote to the practice manager in the awful treatment I have received by the surgery concerning synthetic thyroid medication they have been pushing on me the last 5 years. I think
Hi everyone ❤️ A gp as just rang asking me to see her today at 4.45, I have no doubt this is in relation to the letter I wrote to the practice manager in the awful treatment I have received by the surgery concerning synthetic thyroid medication they have been pushing on me the last 5 years. I think
birkie
in
Thyroid UK
10 days ago
Advice T3 vs TSH levels
Hi All - I've been following advice on supplements and timing of tests but NHS has problems with results and need advice as what to do - I take Armour NDT with Levo. Haven't had a conversation with them about it, changing practices and moving back to the states for a period of time but will be back
Hi All - I've been following advice on supplements and timing of tests but NHS has problems with results and need advice as what to do - I take Armour NDT with Levo. Haven't had a conversation with them about it, changing practices and moving back to the states for a period of time but will be back
EchoWS
in
Thyroid UK
10 days ago
Adrenal Transformation Protocol by Dr Isabella Wentz
I’m reading Adrenal Transformation Protocol by Dr Isabella Wentz and wondering if it’s worth giving it a go. I have done two adrenal saliva tests in Feb 2023 and 2024 and both were low, showing adrenal fatigue stage II. I’ve been on NDT Armour for a year and my FT3 has increased to mid-upper range
I’m reading Adrenal Transformation Protocol by Dr Isabella Wentz and wondering if it’s worth giving it a go. I have done two adrenal saliva tests in Feb 2023 and 2024 and both were low, showing adrenal fatigue stage II. I’ve been on NDT Armour for a year and my FT3 has increased to mid-upper range
Insomania
in
Thyroid UK
11 days ago
starting NDT
hello I’ve been on levothyroxine for about 15 years and today I’m switching to NDT. My practioner told me to start at 15mg then increase to 30mg ,60mg being the maximum. As I hadn’t received her email yet I took 30 mg today which was too much. Tomorrow I’ll start at 15 mg,how often should I increase
hello I’ve been on levothyroxine for about 15 years and today I’m switching to NDT. My practioner told me to start at 15mg then increase to 30mg ,60mg being the maximum. As I hadn’t received her email yet I took 30 mg today which was too much. Tomorrow I’ll start at 15 mg,how often should I increase
Sonicfairydust
in
Thyroid UK
11 days ago
Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or take an intermittent break for a few weeks beforehand?
Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or break from the Nubeqa for a few weeks beforehand?When getting a PSMA PET scan, I often here advice about temporarily pausing use of whatever drugs that are effectively keeping the PSA scores down at nadir or below .1. The purpose
Should I take Nubeqa continuously when going to a PSMA Pylarify PET scan or break from the Nubeqa for a few weeks beforehand?When getting a PSMA PET scan, I often here advice about temporarily pausing use of whatever drugs that are effectively keeping the PSA scores down at nadir or below .1. The purpose
GeorgeGlass
in
Advanced Prostate Cancer
11 days ago
Gleason 8 on HRT
I was recently diagnosed with localized prostate cancer Gleason 8, which fortunately was caught early. After initial discussions with my healthcare team, I've begun hormone therapy, receiving my first injection about three to four weeks ago, along with a 28-day course of tablets. This decision came after
I was recently diagnosed with localized prostate cancer Gleason 8, which fortunately was caught early. After initial discussions with my healthcare team, I've begun hormone therapy, receiving my first injection about three to four weeks ago, along with a 28-day course of tablets. This decision came after
Njugs
in
Prostate Cancer Network
12 days ago
what’s the best exercise and nutrition while on Abiraterone/Prednisone and Lupron.
I’m 44 years old with PCa. I’m on ADT for the last 18 months and had radiation and chemo a year ago. I have fatigue and find it very difficult to get the energy to workout. It’s also difficult to get motivation. Does anyone have any suggestions on workouts and nutrition during this treatment?
I’m 44 years old with PCa. I’m on ADT for the last 18 months and had radiation and chemo a year ago. I have fatigue and find it very difficult to get the energy to workout. It’s also difficult to get motivation. Does anyone have any suggestions on workouts and nutrition during this treatment?
Jumpingbellybeans
in
Advanced Prostate Cancer
12 days ago
Help with iron results
Posting again as for some reason had no replies last time. Recently had an iron panel and ferritin blood test with following results. Ferritin - 46 (13-150) Iron - 21.6 (6.6-26) Unsaturated iron binding - 21.3 LOW (24.2-70.1) Total iron binding capacity - 43 (41-77) Iron binding saturation
Posting again as for some reason had no replies last time. Recently had an iron panel and ferritin blood test with following results. Ferritin - 46 (13-150) Iron - 21.6 (6.6-26) Unsaturated iron binding - 21.3 LOW (24.2-70.1) Total iron binding capacity - 43 (41-77) Iron binding saturation
Becsf
in
Thyroid UK
13 days ago
Unfavorable Intermediate PCa--treatment
Treated at UCSF. Chose radiation plus 4 months ADT (Orgovyx) due to concern of local meta. Dr. Shinohara performed tp biopsy and tp placement of markers. Alexander Gottschalk is my RO. Treatment: commencing 2 months after start of ADT, 2 fractions of Cyberknife to prostate. 25 fractions IMRT
Treated at UCSF. Chose radiation plus 4 months ADT (Orgovyx) due to concern of local meta. Dr. Shinohara performed tp biopsy and tp placement of markers. Alexander Gottschalk is my RO. Treatment: commencing 2 months after start of ADT, 2 fractions of Cyberknife to prostate. 25 fractions IMRT
gualala
in
Prostate Cancer Network
13 days ago
New way to delay resistance in prostate cancer
In vitro/in vivo but ready for clinical. I have found and tried to read the paper...what I understood is "great news!" but don't ask me to explain better than this: Prostate cancer treated with androgen deprivation therapy (ADT) can (will) develop into castration-resistant prostate cancer (CRPC), making
In vitro/in vivo but ready for clinical. I have found and tried to read the paper...what I understood is "great news!" but don't ask me to explain better than this: Prostate cancer treated with androgen deprivation therapy (ADT) can (will) develop into castration-resistant prostate cancer (CRPC), making
Maxone73
in
Advanced Prostate Cancer
13 days ago
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