Search
Search
About
Log in
Join
Experiences with
TDT 064
Posts
Communities
13,264 public posts
Filter results
Stopping Orgovyx after six months
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
gsun
in
Advanced Prostate Cancer
5 days ago
Rise in psa
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
Runner1957
in
Advanced Prostate Cancer
6 days ago
Internet Myths about Red Meat
I know that many men, egged on by well-meaning caregivers and sometimes doctors, deprive themselves of red meat. Some (non-Hindus) have an almost religious attachment to plant-based diets. I expect they will object to this article. For that reason, it goes into the weeds of what constitutes Internet
I know that many men, egged on by well-meaning caregivers and sometimes doctors, deprive themselves of red meat. Some (non-Hindus) have an almost religious attachment to plant-based diets. I expect they will object to this article. For that reason, it goes into the weeds of what constitutes Internet
Tall_Allen
in
Advanced Prostate Cancer
6 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Strong negative reaction to first Docetaxel treatment
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
4tunate1
in
Advanced Prostate Cancer
7 days ago
New research. Linking Amiodarone inhibiting levothyroxine just published.
I'm a little staggered this is new!! But it is.... And I've experienced a lot of problems with ndt tolerance level even 7 months since Amiodarone was stopped. Beginning to wonder whether Amiodarones had a permenant effect. In Vivo Evaluation of the Pharmacokinetic Interaction between Levothyroxine
I'm a little staggered this is new!! But it is.... And I've experienced a lot of problems with ndt tolerance level even 7 months since Amiodarone was stopped. Beginning to wonder whether Amiodarones had a permenant effect. In Vivo Evaluation of the Pharmacokinetic Interaction between Levothyroxine
waveylines
in
Thyroid UK
7 days ago
Update on prognosis for my husband with stage 4 A cancer.
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
SherryKahn
in
Advanced Prostate Cancer
7 days ago
Reactive hypoglycemia (suspected): low carb/ high protein diet.
Hello everyone. : I have suspected reactive hypoglycemia ( Hashis, MCAS, ME/ CFS, Fibromyalgia, amongst other diagnoses, as well as perimenopausal). Thyroid Meds: Armour NDT. The RH has not yet been confirmed by a medical professional, but due to the ongoing and worsening symptoms, and extreme carb
Hello everyone. : I have suspected reactive hypoglycemia ( Hashis, MCAS, ME/ CFS, Fibromyalgia, amongst other diagnoses, as well as perimenopausal). Thyroid Meds: Armour NDT. The RH has not yet been confirmed by a medical professional, but due to the ongoing and worsening symptoms, and extreme carb
Swissgirl
in
Thyroid UK
7 days ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
7 days ago
Advice on raising NDT
Following on from my post on 26/02/24, my symptoms got worse (increased number of anxiety attacks and unable to cope with pain in head/neck and upper back) and the GP didn't have any ideas, so I saw a thyroid specialist recommended by thyroid UK in April. The doctor had my blood tests done and these
Following on from my post on 26/02/24, my symptoms got worse (increased number of anxiety attacks and unable to cope with pain in head/neck and upper back) and the GP didn't have any ideas, so I saw a thyroid specialist recommended by thyroid UK in April. The doctor had my blood tests done and these
SarrahMay
in
Thyroid UK
8 days ago
Trying to interpret my results
Hi I was wondering if I could ask some advice regarding my latest results. I've just had bloods done so anticipating the usual conversation with my GP about my TSH being too low.... I've screen shot my results since 2015 basically as I've been tracking them as my TSH rarely changes, even with a reduction
Hi I was wondering if I could ask some advice regarding my latest results. I've just had bloods done so anticipating the usual conversation with my GP about my TSH being too low.... I've screen shot my results since 2015 basically as I've been tracking them as my TSH rarely changes, even with a reduction
Bellsonit
in
Thyroid UK
8 days ago
How quickly does TSH increase when you stop taking NDT?
I buy some of my NDT without a script, I take 120mg per day. My GP prescribes me 90mg a day. So I get the rest elsewhere. My GP doesn’t understand that TSH is suppressed on NDT, and I’m not going to be successful in educating him. My TSH was 0.01 on 150mg, but I reduced to 120mg about 5 or 6 weeks ago
I buy some of my NDT without a script, I take 120mg per day. My GP prescribes me 90mg a day. So I get the rest elsewhere. My GP doesn’t understand that TSH is suppressed on NDT, and I’m not going to be successful in educating him. My TSH was 0.01 on 150mg, but I reduced to 120mg about 5 or 6 weeks ago
CountryMidwife
in
Thyroid UK
8 days ago
Prostrate Cancer treatment ADT
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
RWRB
in
Osteoporosis Support
8 days ago
Trial of eConsult service
My GP practice has recently launched the eConsult service where it said I could get the results of tests etc, so I tried it. I asked for the results from a recent blood test, and gave the date and time. The one that was supposed to be just vitamins. I had one email back saying the request would be
My GP practice has recently launched the eConsult service where it said I could get the results of tests etc, so I tried it. I asked for the results from a recent blood test, and gave the date and time. The one that was supposed to be just vitamins. I had one email back saying the request would be
serenfach
in
Thyroid UK
9 days ago
Hashimoto's remission
Hello, is it possible to put your antibodies (TgAb and TPOAb) into remission (i.e zero) on Levothyroxine only, following a root cause approach to lifestyle? Has anyone achieved this, or is NDT required? TIA
Hello, is it possible to put your antibodies (TgAb and TPOAb) into remission (i.e zero) on Levothyroxine only, following a root cause approach to lifestyle? Has anyone achieved this, or is NDT required? TIA
Merrymoo
in
Thyroid UK
9 days ago
QoL Tall Trees and PSA Update
https://youtu.be/TbFN3uYda_c?si=s0hWKrOIU7HRywjr https://www.nps.gov/seki/learn/nature/sherman.htm https://youtu.be/HHnA1yIO4Cc?si=AvUvLmeLel_z7NwI https://www.atlasobscura.com/articles/meet-general-sherman-the-largest-tree-in-the-world-by-volume Road trip babee, been in CA since 1976 and this is
https://youtu.be/TbFN3uYda_c?si=s0hWKrOIU7HRywjr https://www.nps.gov/seki/learn/nature/sherman.htm https://youtu.be/HHnA1yIO4Cc?si=AvUvLmeLel_z7NwI https://www.atlasobscura.com/articles/meet-general-sherman-the-largest-tree-in-the-world-by-volume Road trip babee, been in CA since 1976 and this is
dockam
in
Advanced Prostate Cancer
9 days ago
Chewing Thyroid-S before swallowing?
Is it really necessary to chew NDT? I've done it most of my life but recently started swallowing it whole because of my teeth. I take my thyroid medicine at around 4 am and go back to sleep sometimes for several hours. I've had a lot of cavities and dry mouth for the last year and a half. I don't know
Is it really necessary to chew NDT? I've done it most of my life but recently started swallowing it whole because of my teeth. I take my thyroid medicine at around 4 am and go back to sleep sometimes for several hours. I've had a lot of cavities and dry mouth for the last year and a half. I don't know
Easylover
in
Thyroid UK
9 days ago
Stage 4 A Prostate cancer
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone therapy for a good prognosis. He is 65 healthy and no symptoms. PSA was 11. Has a history of prostrate cancer. Was wondering if we should get
My partner was diagnosed with stage 4 A prostate cancer with spread to pelvic lymph nodes. Oncologist has recommended surgery followed by radiation and hormone therapy for a good prognosis. He is 65 healthy and no symptoms. PSA was 11. Has a history of prostrate cancer. Was wondering if we should get
SherryKahn
in
Advanced Prostate Cancer
9 days ago
xtandi plus talzenna
Has anyone else been down this treatment to add Talzenna to their adt treatments? I started only a few days ago. Side effects seem to be severe. Kidney pain, back pain, brain fog, fatigue. I stopped after only day three. Awaiting my MO to respond to the call for help. I feel way too medicated.
Has anyone else been down this treatment to add Talzenna to their adt treatments? I started only a few days ago. Side effects seem to be severe. Kidney pain, back pain, brain fog, fatigue. I stopped after only day three. Awaiting my MO to respond to the call for help. I feel way too medicated.
Apd66
in
Advanced Prostate Cancer
9 days ago
HRT, low white blood cell count & NDT
I have been having appointments with my GP to try and get an HRT prescription. She wanted a blood test doing first - I have been taking NDT for about 8 years (doing really well on it) and basically my GP didn't understand it, stopped calling me in for blood tests and I haven't been for years. The blood
I have been having appointments with my GP to try and get an HRT prescription. She wanted a blood test doing first - I have been taking NDT for about 8 years (doing really well on it) and basically my GP didn't understand it, stopped calling me in for blood tests and I haven't been for years. The blood
Raucous
in
Thyroid UK
10 days ago
What is the recommended medication to start on please?
I'm having a telephone consultation with my endocrinologist tonight & after a lot of reading (on this site as well) I'm considering asking for NDT? This will be my first time being medicated so would really appreciate any advice from you? You all have far more experience than I & have been invaluable
I'm having a telephone consultation with my endocrinologist tonight & after a lot of reading (on this site as well) I'm considering asking for NDT? This will be my first time being medicated so would really appreciate any advice from you? You all have far more experience than I & have been invaluable
Elle137
in
Thyroid UK
10 days ago
1
2
3
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
7856 results
Advanced Prostate Cancer
3937 results
Prostate Cancer Network
418 results
View top 10 communities
Sort by
Most Relevant
Newest