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DI02 Gene test
As if I hadn’t spent sufficient thousands on trying to find the answers I went and did a DI02 test to see whether I had difficulty in converting T4 to T3. Primarily to present my findings to the endo in the hope I may get Liothyronine on the NHS. The result came back saying the TT genotype appears
As if I hadn’t spent sufficient thousands on trying to find the answers I went and did a DI02 test to see whether I had difficulty in converting T4 to T3. Primarily to present my findings to the endo in the hope I may get Liothyronine on the NHS. The result came back saying the TT genotype appears
RydeBeach
in
Thyroid UK
3 months ago
non hormonal suggestions
hi! I was diagnosed with endo in 2019, avoided any hormonal treatment until last year due to past experiences of the pill. March last yr I went for a private fertility check and they said my endo looked worse and was now also adenomyosis. Suggestion was a mirena coil to stop periods. I went for
hi! I was diagnosed with endo in 2019, avoided any hormonal treatment until last year due to past experiences of the pill. March last yr I went for a private fertility check and they said my endo looked worse and was now also adenomyosis. Suggestion was a mirena coil to stop periods. I went for
Sophiealice_
in
Endometriosis UK
4 months ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
maley2711
in
Advanced Prostate Cancer
4 months ago
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EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
JazzMan42
in
Advanced Prostate Cancer
4 months ago
Addition of an ARSI to standard ADT significantly increases the risk of fractures and falls in men with prostate cancer
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Graham49
in
Advanced Prostate Cancer
4 months ago
Starting clinical trial of AVR-766
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
rsgdmd
in
Advanced Prostate Cancer
4 months ago
Is there any evidence that ADT deteriorates the myelin insulating neuropathways?
That's the question.
That's the question.
Eadgbe
in
Advanced Prostate Cancer
4 months ago
Rising PCA - on ADT Holiday
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Kkash
in
Advanced Prostate Cancer
4 months ago
Urinary urgency after treatment .. occasional
One side effect I’ve noticed is an occasional sudden need to urinate. Like when you were a young kid stuck on a school bus and had to really really go. This doesn’t happen all the time but maybe 20% of the time so several times a day. I’ve had brachytherapy (5 months ago), external radiation (3 months
One side effect I’ve noticed is an occasional sudden need to urinate. Like when you were a young kid stuck on a school bus and had to really really go. This doesn’t happen all the time but maybe 20% of the time so several times a day. I’ve had brachytherapy (5 months ago), external radiation (3 months
Yokohama2023
in
Prostate Cancer Network
4 months ago
Help with timing of NDT prior to blood tests
Hello. Would any of you knowledgeable people be able to advise me of the best time to take NDT prior to blood tests. I take Armour 1 grain twice a day. The first is usually around 6am and the second around 3pm. Does the same convention for blood tests when on Levo and Lio apply to NDT? Is 9am still
Hello. Would any of you knowledgeable people be able to advise me of the best time to take NDT prior to blood tests. I take Armour 1 grain twice a day. The first is usually around 6am and the second around 3pm. Does the same convention for blood tests when on Levo and Lio apply to NDT? Is 9am still
Piglet1956
in
Thyroid UK
4 months ago
High TSH and High T4
Hi all! Hoping someone can answer this for me. The last week I have been getting serious symptoms with bradycardia, PVCs, and then Tachycardia, sweating, chest pressure/tightness, severe arm and leg aches. I finally ended up going to emergency. They kept me for observation and checked my heart which
Hi all! Hoping someone can answer this for me. The last week I have been getting serious symptoms with bradycardia, PVCs, and then Tachycardia, sweating, chest pressure/tightness, severe arm and leg aches. I finally ended up going to emergency. They kept me for observation and checked my heart which
brethor9
in
Thyroid UK
4 months ago
Spot Radiation before Pluvicto?
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
spouse21
in
Advanced Prostate Cancer
4 months ago
Very high blood pressure
I was diagnosed with high blood pressure and subsequently Hashimotos about 20 yrs ago. I was prescribed medication for my hypertension but unfortunately it has never stabilised and remained very high.My latest reading was 175 /109 and I have had no choice but to add further medication., I am not overweight
I was diagnosed with high blood pressure and subsequently Hashimotos about 20 yrs ago. I was prescribed medication for my hypertension but unfortunately it has never stabilised and remained very high.My latest reading was 175 /109 and I have had no choice but to add further medication., I am not overweight
Nutcase52
in
Thyroid UK
4 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
4 months ago
T3 only blood results
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
RydeBeach
in
Thyroid UK
4 months ago
Help pls! Feeling very ill !
Hi all, my previous post about liquid thyrox was failed at the first try, split doses..it hit me even harder..so scared had to stop right away!! This test was on 16 Jan 24 was on 5 days 100mg + 2 days 75mg TSH too low 0.07.. as Im losing too much weight (~10 kg) after foods poison then seen nutritionist
Hi all, my previous post about liquid thyrox was failed at the first try, split doses..it hit me even harder..so scared had to stop right away!! This test was on 16 Jan 24 was on 5 days 100mg + 2 days 75mg TSH too low 0.07.. as Im losing too much weight (~10 kg) after foods poison then seen nutritionist
Snqanq
in
Thyroid UK
4 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
4 months ago
results help
high can I get some advice for these results. Im currently on 2.5 grains of Armour NDT Thanks I can’t figure out how to post 2 photos. I’ll post the other separately
high can I get some advice for these results. Im currently on 2.5 grains of Armour NDT Thanks I can’t figure out how to post 2 photos. I’ll post the other separately
Bigfraz76
in
Thyroid UK
4 months ago
NDT source please
Hello all, Please can anyone with information DM me on sourcing NDT? Kind regards
Hello all, Please can anyone with information DM me on sourcing NDT? Kind regards
Butterfly275
in
Thyroid UK
4 months ago
NDT taken at same time as Trospium - issues
I hope this is OK to post here? Taking NDT at the same time of another medication may have implications. I’ve been on NDT for the past few months, replacing Levothyroxine. Having been taking Levo first thing in the morning, I continued with taking NDT at the same time. So, having taking Trospium
I hope this is OK to post here? Taking NDT at the same time of another medication may have implications. I’ve been on NDT for the past few months, replacing Levothyroxine. Having been taking Levo first thing in the morning, I continued with taking NDT at the same time. So, having taking Trospium
JMN2017
in
Thyroid UK
4 months ago
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