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Continuing Lupron
On July 17, 2022, my last ADT vacation was ended due to some progression of metastatic lymph node cancer in CT scan at a PSA of 1.1. My MO put me back on Lupron for six months hoping that PSA would drop to undetectable by the end of the six months. A month of Casodex 50 mg before the a Lupron shot brought
On July 17, 2022, my last ADT vacation was ended due to some progression of metastatic lymph node cancer in CT scan at a PSA of 1.1. My MO put me back on Lupron for six months hoping that PSA would drop to undetectable by the end of the six months. A month of Casodex 50 mg before the a Lupron shot brought
dac500
in
Advanced Prostate Cancer
1 year ago
PSMA results 6 weeks post RALP; one peri-anal lymph node
My husbands PSA was . 5 at 6 weeks post RALP. It was a huge kick in the teeth. Today we got his PSMA results which I am hoping is optimistic since only one lymph node in the peri-rectal area lit up, no distant metastasis. Can you give me any ideas of what his next treatment might consist of. Is
My husbands PSA was . 5 at 6 weeks post RALP. It was a huge kick in the teeth. Today we got his PSMA results which I am hoping is optimistic since only one lymph node in the peri-rectal area lit up, no distant metastasis. Can you give me any ideas of what his next treatment might consist of. Is
JLR65
in
Advanced Prostate Cancer
1 year ago
Is the a standard/preferred course of treatment for mixed ductal PC (post- RALP, post recurrence in prostate bed, post radiation)?
Gleason 8, 3 mos post-prostatectomy PSMA showed spot in prostate bed, just finished radiation of pelvic bed, in month 4 of Lupron (2 years planned). No evidence of spread outside prostate bed; recent psa was 0.4 Oncologist is a swell guy, but I don’t sense he has a great depth of experience with ductal
Gleason 8, 3 mos post-prostatectomy PSMA showed spot in prostate bed, just finished radiation of pelvic bed, in month 4 of Lupron (2 years planned). No evidence of spread outside prostate bed; recent psa was 0.4 Oncologist is a swell guy, but I don’t sense he has a great depth of experience with ductal
Caldonia
in
Advanced Prostate Cancer
1 year ago
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PSA result .253 -up from quarterly <.01, <.04,<.064,<.064. Testosterone 45 up from quarterly<5, <10, 22,39. Seeing MO next Tuesday. Comments
17 months on ADT. Should I be worried
17 months on ADT. Should I be worried
alperk
in
Advanced Prostate Cancer
1 year ago
London endocrinologists (private or not) who prescribe T3
I've been taking NDT for a few years but recently my symptoms are returning, and other forums seem to suggest that NDT like Armour and Thyroid S are losing their effectiveness. So I'm thinking of going privately to see if I can get T3 prescribed alongside levothyroxine. Is there a list of endocrinologists
I've been taking NDT for a few years but recently my symptoms are returning, and other forums seem to suggest that NDT like Armour and Thyroid S are losing their effectiveness. So I'm thinking of going privately to see if I can get T3 prescribed alongside levothyroxine. Is there a list of endocrinologists
KMC_71
in
Thyroid UK
1 year ago
Enzaludimide or Abiraterone
I am on ADT plus abi for the last 4.5 years. Getting to where I should start thinking about when it stops working. I have been looking into BAT. Seems that works better with Enza as opposed to Abi. I am going to discuss with my MO but do you think I should change now as opposed to too late?
I am on ADT plus abi for the last 4.5 years. Getting to where I should start thinking about when it stops working. I have been looking into BAT. Seems that works better with Enza as opposed to Abi. I am going to discuss with my MO but do you think I should change now as opposed to too late?
gsun
in
Advanced Prostate Cancer
1 year ago
Doctor makes it seem like I want to have surgery and not like I actually need it
After struggling with severe constant daily pain for a year and a half, a gynaecologist has decided to put me on a waiting list for surgery. I didn't go see him requesting to be put on a list, but he thought it'd be a good idea because hormonal treatment hasn't worked, and painkillers don't help. However
After struggling with severe constant daily pain for a year and a half, a gynaecologist has decided to put me on a waiting list for surgery. I didn't go see him requesting to be put on a list, but he thought it'd be a good idea because hormonal treatment hasn't worked, and painkillers don't help. However
JustPain2
in
Endometriosis UK
1 year ago
Why we add an AART drug to ADT?
In response to a post asking if adding enzalutamide to ADT is beneficial: Xtandi would increase T levels if not simultaneously using an LHRH ADT. It blocks AR in hypothalamus leading to perception of deficit and increased LH and testicular testosterone. So enzalutamide or apalutamide used without ADT
In response to a post asking if adding enzalutamide to ADT is beneficial: Xtandi would increase T levels if not simultaneously using an LHRH ADT. It blocks AR in hypothalamus leading to perception of deficit and increased LH and testicular testosterone. So enzalutamide or apalutamide used without ADT
MateoBeach
in
Fight Prostate Cancer
1 year ago
Advice on blood results based on increase.
Hello I increased my thyroid medication as I have been struggling, I’ve been freezing cold, suffering from anxiety and weight gain. Back in June 2022 I started on HRT as I was having peri menopausal symptoms, and started on one pump of Oestrogel , and 200mcg nightly of Progesterone 14 days on, 14
Hello I increased my thyroid medication as I have been struggling, I’ve been freezing cold, suffering from anxiety and weight gain. Back in June 2022 I started on HRT as I was having peri menopausal symptoms, and started on one pump of Oestrogel , and 200mcg nightly of Progesterone 14 days on, 14
Peanut31
in
Thyroid UK
1 year ago
reminder pre testing please
so sorry I’ve searched and can’t find the recommendation for when to take last dose of NDT before blood tests. My test is at 09:20 … I usually take one at bedtime and one when I wake… shall I just miss the one when I wake? I’ve looked at pinned posts but can’t find the info… thanks so much
so sorry I’ve searched and can’t find the recommendation for when to take last dose of NDT before blood tests. My test is at 09:20 … I usually take one at bedtime and one when I wake… shall I just miss the one when I wake? I’ve looked at pinned posts but can’t find the info… thanks so much
Alwayssearching
in
Thyroid UK
1 year ago
Private NDT Endos Armour etc
Hi all, Please would someone private msg me a list of private endos who will prescribe NDT. I have mostly in range markers but only just in range but so many symptoms of hypothyroidism: Dry skin Thinning eyebrows Cold extremities/intolerance Chills Huge fatigue Gut issues/food intolerances Vitiligo
Hi all, Please would someone private msg me a list of private endos who will prescribe NDT. I have mostly in range markers but only just in range but so many symptoms of hypothyroidism: Dry skin Thinning eyebrows Cold extremities/intolerance Chills Huge fatigue Gut issues/food intolerances Vitiligo
Pro675
in
Thyroid UK
1 year ago
Post RT decisions on ADT and relative risk benefit
apologies for long ramble again … Next month I discuss how long to stay on HT (zoladex) after RT last December. I can feel like dealing with some multi headed hydra trying to balance risks/benefits especially as I have G9 (albeit maybe locally contained) and my personal comorbidities. As I reflect
apologies for long ramble again … Next month I discuss how long to stay on HT (zoladex) after RT last December. I can feel like dealing with some multi headed hydra trying to balance risks/benefits especially as I have G9 (albeit maybe locally contained) and my personal comorbidities. As I reflect
SimMartin
in
Advanced Prostate Cancer
1 year ago
Mucin and Hypo symptoms
Recently, I stumbled upon information about mucin and hypothyroidism. This is another lightbulb moment for me while struggling with hypo symptoms. I tried (and failed) the pinch test and my legs and upper arms have the most visual signs of mucin. I have read posts where individuals that were on T3 found
Recently, I stumbled upon information about mucin and hypothyroidism. This is another lightbulb moment for me while struggling with hypo symptoms. I tried (and failed) the pinch test and my legs and upper arms have the most visual signs of mucin. I have read posts where individuals that were on T3 found
KriVa
in
Thyroid UK
1 year ago
Testing on NDT or T3 or Combo
There have recently been posts by people querying whether testing by endos after having food and medication is right or not. Obviously they are testing to see what the peak levels in our blood are at that given point of day but as some have rightly said, we won't be having that level constantly in our
There have recently been posts by people querying whether testing by endos after having food and medication is right or not. Obviously they are testing to see what the peak levels in our blood are at that given point of day but as some have rightly said, we won't be having that level constantly in our
Delgor
in
Thyroid UK
1 year ago
Erfa 30mg starting questions (NDT)
Hello, I just started taking erfa 30mg for very low T3: -2.8 I tried previously T3 on its own, but I'm not sure if I was doing it correctly. I was only taking 10mg a day but each time I tried I was feeling very sick and highly strung (like too much coffee), therefore we decided to try a NDT. I'm just
Hello, I just started taking erfa 30mg for very low T3: -2.8 I tried previously T3 on its own, but I'm not sure if I was doing it correctly. I was only taking 10mg a day but each time I tried I was feeling very sick and highly strung (like too much coffee), therefore we decided to try a NDT. I'm just
ratqueenxo
in
Thyroid UK
1 year ago
Calling all BAT-men ...
(... that's you, Russ!) I am about to begin BAT with a new MO (who works in MA and NH), and am looking for some input from forum members. My MO has an existing contact at Johns Hopkins that he's consulted, but is not (yet) in direct contact with anyone from Denmeade's group so far as I know. A little
(... that's you, Russ!) I am about to begin BAT with a new MO (who works in MA and NH), and am looking for some input from forum members. My MO has an existing contact at Johns Hopkins that he's consulted, but is not (yet) in direct contact with anyone from Denmeade's group so far as I know. A little
noahware
in
Advanced Prostate Cancer
1 year ago
PSA Climbing
my husband’s psa has been climbing for 6 months. He recently left the urologist he was going to and is now going to Roswell Park Comprehensive Cancer Center in Buffalo, NY. They ordered an mri, PSMA pet and biopsy. Nothing shows but his psa keeps rising. They ordered another PSMA pet for 2/16. Advice
my husband’s psa has been climbing for 6 months. He recently left the urologist he was going to and is now going to Roswell Park Comprehensive Cancer Center in Buffalo, NY. They ordered an mri, PSMA pet and biopsy. Nothing shows but his psa keeps rising. They ordered another PSMA pet for 2/16. Advice
Dixiechopper
in
Advanced Prostate Cancer
1 year ago
Vacation Proposal
Post Script: After my long winded post, Dr Borno just phoned. They've decided they would prefer not to rush into a break. Since he's tolerating treatment so well, and his complicated case, they'd rather not rock the boat. So Dr Hala Borno MO and Dr Osama Mohamad RO (UCSF) are collaborating on Jim's
Post Script: After my long winded post, Dr Borno just phoned. They've decided they would prefer not to rush into a break. Since he's tolerating treatment so well, and his complicated case, they'd rather not rock the boat. So Dr Hala Borno MO and Dr Osama Mohamad RO (UCSF) are collaborating on Jim's
JWPMP
in
Advanced Prostate Cancer
1 year ago
Just checking to be sure 6 month break after 5 week radiation treatment is the next best step?
I hope everyone here is finding success and positive moments in this journey as we make our way through this new year ♥️ Hoping to ask for an opinion here just to do my part in making sure my dad gets the best shot at success with this. I will be updating my BIO again this week for anyone with a similar
I hope everyone here is finding success and positive moments in this journey as we make our way through this new year ♥️ Hoping to ask for an opinion here just to do my part in making sure my dad gets the best shot at success with this. I will be updating my BIO again this week for anyone with a similar
FormulaRob
in
Advanced Prostate Cancer
1 year ago
Second Opinion?
In an earlier post I mentioned a vertebral fracture of my thoracic spine that was discovered only because my General Practitioner ordered X-rays because I'd been complaining of back pain for a very long time. I'd told my Onco-team as well. They shrugged it off every time I mentioned it saying, your
In an earlier post I mentioned a vertebral fracture of my thoracic spine that was discovered only because my General Practitioner ordered X-rays because I'd been complaining of back pain for a very long time. I'd told my Onco-team as well. They shrugged it off every time I mentioned it saying, your
Hidden
in
Advanced Prostate Cancer
1 year ago
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