My bio has most of the brief history of my recent diagnosis.
I’m on month 3 of Xtandi plus Orgovyx and just met with Rad Onc at Duke for initial consultation.
Plan is low dose IMRT over 20 days (every day for 5 days in a row each week). Expect to remain on existing doublet Tx for at least the next 18 months. Will begin in early October.
Luckily although my prostate cancer “hid” with peak baseline of 6, it has responded very quickly and positively to Xtandi and Orgovx with PSA last week at .002 and my PET/CT scan in May showing tumor shrinkage and in some areas disappearing from baseline CT.
I just turned 55 in May and initial diagnosis was Gleason 10, stage 4 with Mets to bladder neck, pelvic lymph nodes, vas deferens, and perineum. Due to that and highly “undifferentiated cells” from initial biopsy Dr George at Duke was first concerned this wouldn’t act like “normal prostate cancer”.
No other visceral Mets or bone Mets thank God.
Therefore, my case is definitely rare as I still have my prostate and no plans to remove it at this point. Curious if anyone has had (or seen if a provider) a similar situation.
Physically I’m doing well with typical ADT side effects, but minimal fatigue. I work out at least 4 times a week and walk every day. Have focused on better diet and less alcohol as well and have actually dropped about 12 lbs since biopsy and my BP is normal as well as most bloodwork. I’m a tad anemic but Dr G said that’s what happens when you have almost no testosterone.
