Search
Search
About
Log in
Join
Experiences with
TDT 064
Posts
Communities
13,465 public posts
Filter results
ED, ADT and Orgasm
I've been on Lupron for prostate cancer and am in my 4th of 6 months. I finished radiation therapy a month ago. I'm able to get a really good erection from 100 mg of Viagra but require direct stimulation. Before ADT, I could get hard just *thinking* about sex. Several guys have told me I'm lucky I
I've been on Lupron for prostate cancer and am in my 4th of 6 months. I finished radiation therapy a month ago. I'm able to get a really good erection from 100 mg of Viagra but require direct stimulation. Before ADT, I could get hard just *thinking* about sex. Several guys have told me I'm lucky I
PrettyUnhappyGuy
in
Erectile Dysfunction Support
16 hours ago
Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
17 hours ago
What type of NDT product/brand might suit me? Please help :)
Hello Everyone, I have Hypothyroidism and severe Hypothyroid myopathy. Hypothyroid myopathy makes me: • Very stiff and weak in muscles and joints • Can't work or study • Spend most of the day stretching or lying on the couch or walking outside I have been taking Levothyroxine for almost a
Hello Everyone, I have Hypothyroidism and severe Hypothyroid myopathy. Hypothyroid myopathy makes me: • Very stiff and weak in muscles and joints • Can't work or study • Spend most of the day stretching or lying on the couch or walking outside I have been taking Levothyroxine for almost a
KJELLSTROM1234
in
Thyroid UK
2 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
T3 private source
I wonder is it possible to source T3 outside of UK as you can with NDT? Been on NDT a few years but this latest batch doesn’t seem to suit like it usually does. Please PM me if know of a reliable source. Thank you.
I wonder is it possible to source T3 outside of UK as you can with NDT? Been on NDT a few years but this latest batch doesn’t seem to suit like it usually does. Please PM me if know of a reliable source. Thank you.
Veritate
in
Thyroid UK
2 days ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
2 days ago
Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
2 days ago
A other appointment to nhs endocrinologist🙄
Hi everyone ❤️ So I spoke to gp today in regards to the endocrinologist report from June 21st in which the endocrinologist as recommended I see an endo who will pescribe ndt 😡 this appointment is at Newcastle RIV, does anyone know if they have a good endocrinologist at Newcastle RIV??,I have no idea
Hi everyone ❤️ So I spoke to gp today in regards to the endocrinologist report from June 21st in which the endocrinologist as recommended I see an endo who will pescribe ndt 😡 this appointment is at Newcastle RIV, does anyone know if they have a good endocrinologist at Newcastle RIV??,I have no idea
birkie
in
Thyroid UK
3 days ago
Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
3 days ago
Zometa and Dexa scan
Onco has suggested Zometa as husband has been on ADT for several years. I am reluctant to throw another med at him if it's not definitely necessary. So would you recommend Dexa scan to check for problems before simply accepting Zometa? [Further info: He has never had bone mets show on regular nuclear
Onco has suggested Zometa as husband has been on ADT for several years. I am reluctant to throw another med at him if it's not definitely necessary. So would you recommend Dexa scan to check for problems before simply accepting Zometa? [Further info: He has never had bone mets show on regular nuclear
Proflac
in
Advanced Prostate Cancer
3 days ago
A maternal brain hormone that builds bone - Nature - Published: 10 July 2024
[i]This recent research paper in Nature is potentially ground-breaking for the understanding of essential mechanisms involved with bone health. It's findings are related to hormonal changes during the start of mid-pregnancy lactation and early newborn nurturing that could possibly lay the foundation
[i]This recent research paper in Nature is potentially ground-breaking for the understanding of essential mechanisms involved with bone health. It's findings are related to hormonal changes during the start of mid-pregnancy lactation and early newborn nurturing that could possibly lay the foundation
cujoe
in
Fight Prostate Cancer
3 days ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
3 days ago
Building Bones and Shrinking Moobs
Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to
Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to
Flydad
in
Advanced Prostate Cancer
3 days ago
Sorted with natural thyroid medication ..but!! 🫡
Hi everyone ❤️ I posted a few days ago about my private prescription for ndt , [hope I'm allowed to post that bit]🙈 , I am at the moment waiting on the delivery of said medication and hoping it works for me. In the meantime I have received the endocrinologists report and have now received a gp appointment
Hi everyone ❤️ I posted a few days ago about my private prescription for ndt , [hope I'm allowed to post that bit]🙈 , I am at the moment waiting on the delivery of said medication and hoping it works for me. In the meantime I have received the endocrinologists report and have now received a gp appointment
birkie
in
Thyroid UK
4 days ago
Metathesized Breast Cancer after 28 years
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
Notofu4me
in
SHARE Metastatic Breast Cancer
4 days ago
Hypo symptoms but doctors unsympathetic
Hi, I am post menopausal, 58 yrs old. For the last 18 months I have been struggling with pain in my neck/throat, left hand side, centred on thyroid area but radiates up into throat even ears and down into chest, so it has been hard to locate. Have been checked over by ENT and also had an endoscopy which
Hi, I am post menopausal, 58 yrs old. For the last 18 months I have been struggling with pain in my neck/throat, left hand side, centred on thyroid area but radiates up into throat even ears and down into chest, so it has been hard to locate. Have been checked over by ENT and also had an endoscopy which
menochar
in
Thyroid UK
5 days ago
Taxol-Anyone had experience with Taxol
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
DinNorCal
in
SHARE Metastatic Breast Cancer
5 days ago
primary tumor
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
muttonman
in
Advanced Prostate Cancer
5 days ago
Slight PSA rise and MO discontinuing ADT due to fatigue
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Superbfloor
in
Advanced Prostate Cancer
5 days ago
A 4 Year Journey
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
lockerroombuddy
in
Prostate Cancer And Gay Men
6 days ago
looking for input - RIsing PSA with Negative PSMA Pet scan
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
ND1988
in
Advanced Prostate Cancer
6 days ago
1
2
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
7916 results
Advanced Prostate Cancer
4037 results
Prostate Cancer Network
436 results
View top 10 communities
Sort by
Most Relevant
Newest