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Country Health practice
If anyone uses Country Health for their thyroid support, please can you let me know how you got on. I am wondering if it will be cheaper to go down this route for a private prescription for my ndt. thank you x
If anyone uses Country Health for their thyroid support, please can you let me know how you got on. I am wondering if it will be cheaper to go down this route for a private prescription for my ndt. thank you x
Lynneypin
in
Thyroid UK
5 months ago
PSMA PET Looks Good But PSA Rising
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
FaithOverFear104
in
Advanced Prostate Cancer
5 months ago
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
5 months ago
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Is this too little or too much NDT Armour symptom?
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Gillybean1
in
Thyroid UK
5 months ago
Switching NDTs
Hiya. I am currently trialling a switch to another NDT. I would be grateful if any folk that have done this could advise on dosing during the switch please. Would it be a case of just switching at the same dose, or starting again? Any thoughts would be much appreciated, thanks!
Hiya. I am currently trialling a switch to another NDT. I would be grateful if any folk that have done this could advise on dosing during the switch please. Would it be a case of just switching at the same dose, or starting again? Any thoughts would be much appreciated, thanks!
MindfulMoments
in
Thyroid UK
5 months ago
Unexpected early end to ADT
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
Prostateless2020
in
Prostate Cancer Network
5 months ago
De-escellation of ADT with modern RT treatment
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
Don_1213
in
Prostate Cancer Network
5 months ago
Can we trust AI analysis?
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Mgtd
in
Prostate Cancer Network
5 months ago
Switching from NDT back to T3 only
Is something like NDT (T4) withdrawal symptoms possible? To be exact, if you are on T3 only but due to some circumstances have to take NDT for a couple of weeks as a replacement and then again can switch back to T3 only, then because of the longer half-life of T4 (up to 9 days I've read), can it become
Is something like NDT (T4) withdrawal symptoms possible? To be exact, if you are on T3 only but due to some circumstances have to take NDT for a couple of weeks as a replacement and then again can switch back to T3 only, then because of the longer half-life of T4 (up to 9 days I've read), can it become
Nipitiri
in
Thyroid UK
5 months ago
Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
5 months ago
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
5 months ago
SIDE EFFECTS FROM HYPO MEDS
Anyone else out there who’s resistant to all the hypothyroid meds they’ve tried? Over the last year I’ve tried Synthroid, Synthroid with Cytomel, Erfa, Erfa with Synthroid, and compounded NDT - which is pretty much all we have available to us in Canada. They all increase my hypo symptoms and give
Anyone else out there who’s resistant to all the hypothyroid meds they’ve tried? Over the last year I’ve tried Synthroid, Synthroid with Cytomel, Erfa, Erfa with Synthroid, and compounded NDT - which is pretty much all we have available to us in Canada. They all increase my hypo symptoms and give
Fairydancer
in
Thyroid UK
5 months ago
Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
5 months ago
ArteraAI Test
it seems that all prostate cancer patients with localized tumor(s) with Intermediate Risk should receive the ArteraAI test to prognosticate/predict how ADT would impact 5, 10, 15 years metastasis. It seems about 2/3 of these patients do not receive any added benefit from ADT therapy. There are many
it seems that all prostate cancer patients with localized tumor(s) with Intermediate Risk should receive the ArteraAI test to prognosticate/predict how ADT would impact 5, 10, 15 years metastasis. It seems about 2/3 of these patients do not receive any added benefit from ADT therapy. There are many
Bourbon2024
in
Prostate Cancer Network
5 months ago
Update on my thyroid medication 🤦♀️
Hi everyone ❤️ I posted some weeks ago about my appointment with an endocrinologist on Dec 27th, who just stopped my T3 prescription and put me back on T4 levothyroxin to which in her own report she stated... This lady is intolorent to both T4 and T3, therefore I recommend she goes back on T4 levothyroxin
Hi everyone ❤️ I posted some weeks ago about my appointment with an endocrinologist on Dec 27th, who just stopped my T3 prescription and put me back on T4 levothyroxin to which in her own report she stated... This lady is intolorent to both T4 and T3, therefore I recommend she goes back on T4 levothyroxin
birkie
in
Thyroid UK
5 months ago
Prescribed NDT on NHS now doctor refusing to prescribe. Help!
I has to move GP Practise and before moving to current one I asked to speak to a GP. Receptionist said it wasnt necessary if a nhs consultant has recommended they will prescribe. So wouldn't get a doctor to phone me. I moved. All seem good but my repeats were not being set up. So became concerned.
I has to move GP Practise and before moving to current one I asked to speak to a GP. Receptionist said it wasnt necessary if a nhs consultant has recommended they will prescribe. So wouldn't get a doctor to phone me. I moved. All seem good but my repeats were not being set up. So became concerned.
waveylines
in
Thyroid UK
5 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
5 months ago
THC Gummies and psilocybin
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Worked_the_World
in
Advanced Prostate Cancer
5 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
5 months ago
Looking back on my thyroid journey, a success story and motivation to keep on fighting :)
Two years ago an occupational health advisor wrote a review of my condition for my employer that broke my heart. I was 2 months into taking NDT and finally starting to see some improvements in my Hashimoto’s symptoms. I was gradually building up my stamina and able to go for a 15 minute walk, and I
Two years ago an occupational health advisor wrote a review of my condition for my employer that broke my heart. I was 2 months into taking NDT and finally starting to see some improvements in my Hashimoto’s symptoms. I was gradually building up my stamina and able to go for a 15 minute walk, and I
StellaTed
in
Thyroid UK
5 months ago
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