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Father, 55yrs, diagnosed with prostate cancer
In August 2022 my father was having slight pain in lower back since 2 months, when MRI spine was done later it showed mets , PSMA PET showed positive lymph nodes in pelvic area and skeletal lesions. And PSA was 380.He had undergone BL orchiedctomy and biopsy 3 days after pet scan and biopsy revealed
In August 2022 my father was having slight pain in lower back since 2 months, when MRI spine was done later it showed mets , PSMA PET showed positive lymph nodes in pelvic area and skeletal lesions. And PSA was 380.He had undergone BL orchiedctomy and biopsy 3 days after pet scan and biopsy revealed
Helllfire
in
Advanced Prostate Cancer
2 years ago
going off hormone therapy
When I started hormone therapy about a year and a half ago (zytiga and firmagon) I started losing weight despite eating like a horse. In researching hormone therapy., There was a nature article saying hormone therapy has a side effect of muscle loss. I started out at 185 and now I am down to 130. as
When I started hormone therapy about a year and a half ago (zytiga and firmagon) I started losing weight despite eating like a horse. In researching hormone therapy., There was a nature article saying hormone therapy has a side effect of muscle loss. I started out at 185 and now I am down to 130. as
carguy1000
in
Advanced Prostate Cancer
2 years ago
Intemittent hormone therapy with orgovyx (relugolex) plus nubequa and avodart
Anyone doing this and what’s your protocol and how are you doing. Iam going on my third month this Friday. Psa went from 3,5 to .8 in the first mo.
Anyone doing this and what’s your protocol and how are you doing. Iam going on my third month this Friday. Psa went from 3,5 to .8 in the first mo.
rococo
in
Advanced Prostate Cancer
2 years ago
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Should I add in T3 and where do I source it ?
I have been panhypopituitary ( 27 yrs) due to a pituitary tumour . I replace all pituitary hormone including levothyroxine as I don’t make TSH . My endo team only check T4 which is always running at the top of the normal range . At my last check I was asked to reduce my dose as it was about 2 points
I have been panhypopituitary ( 27 yrs) due to a pituitary tumour . I replace all pituitary hormone including levothyroxine as I don’t make TSH . My endo team only check T4 which is always running at the top of the normal range . At my last check I was asked to reduce my dose as it was about 2 points
Ratkinson
in
Thyroid UK
2 years ago
Increased Incontinence 2.5 years into stage 4
Diagnosed with stage 4 June 2020 with only treatment being ADT. Currently on Xtandi and Lupron. I have a couple questions for this amazing group. On my last 6 month Lupron injection the nurse injected the medicine very fast and spent a considerable time mopping up what was leaking out. I usually ask
Diagnosed with stage 4 June 2020 with only treatment being ADT. Currently on Xtandi and Lupron. I have a couple questions for this amazing group. On my last 6 month Lupron injection the nurse injected the medicine very fast and spent a considerable time mopping up what was leaking out. I usually ask
Hidden
in
Advanced Prostate Cancer
2 years ago
hormone therapy goes full circle
https://youtube.com/shorts/MsJdKrT1dPc?feature=share
https://youtube.com/shorts/MsJdKrT1dPc?feature=share
Darryl
Partner
in
Advanced Prostate Cancer
2 years ago
Chemo for Pelvic Lymph Nodes
Hi all, When I was diagnosed with metastatic prostate cancer 3.5 years ago, I had small mets scattered on my spine and mets in prostate and pelvic lymph nodes. The ADT has eliminated the spine mets, but the lymph nodes continue to grow. Will Chemo kill the lymph node mets or is it more effective for
Hi all, When I was diagnosed with metastatic prostate cancer 3.5 years ago, I had small mets scattered on my spine and mets in prostate and pelvic lymph nodes. The ADT has eliminated the spine mets, but the lymph nodes continue to grow. Will Chemo kill the lymph node mets or is it more effective for
carguy
in
Advanced Prostate Cancer
2 years ago
PSA #’s elevated from sex (After ADT and RT) part Deux
As a follow up to my post last week similar title), I retested after abstaining from sex, exercise and heavy work for 60 hours and my PSA went from .8 to .7! I failed to mention that in addition to sex, I have been going to the gym on a very regular basis and physically work daily as well! Soooo there
As a follow up to my post last week similar title), I retested after abstaining from sex, exercise and heavy work for 60 hours and my PSA went from .8 to .7! I failed to mention that in addition to sex, I have been going to the gym on a very regular basis and physically work daily as well! Soooo there
Jimhoy
in
Prostate Cancer Network
2 years ago
Considering options regarding salvage radiation.
"I had robotic radical prostatectomy in April 2019 with Gleason Score of 4+3, clear margins, and unilateral nerve sparing, (one seminal vesicle implicated). Since surgery I now have no problems with incontinence, and using Trimix injection (12 units) has work well for the ED. 18 months post-operation
"I had robotic radical prostatectomy in April 2019 with Gleason Score of 4+3, clear margins, and unilateral nerve sparing, (one seminal vesicle implicated). Since surgery I now have no problems with incontinence, and using Trimix injection (12 units) has work well for the ED. 18 months post-operation
jacro
in
Advanced Prostate Cancer
2 years ago
Any Miracles out there ?
Hello , Christmas time around the corner . Anyone here have similar to my cancer . Oligo-metatastic to 1 pelvic lymph node . Had 3 fractions SBRT to the tumor , then 25 imrt to the entire pelvic field . . Tall Allen sent me a link in the past that there is hope for a cure in this situation . I would
Hello , Christmas time around the corner . Anyone here have similar to my cancer . Oligo-metatastic to 1 pelvic lymph node . Had 3 fractions SBRT to the tumor , then 25 imrt to the entire pelvic field . . Tall Allen sent me a link in the past that there is hope for a cure in this situation . I would
reconjj
in
Advanced Prostate Cancer
2 years ago
New drug for treating hot flashes under FDA review
This article appeared in Natl Geographic's online daily. Because it is behind a paywall, I have copied it below. While the drug is primarily intended for menopausal women, the article notes that future beneficiaries could include men taking drugs for prostate cancer. Is it possible to cure hot
This article appeared in Natl Geographic's online daily. Because it is behind a paywall, I have copied it below. While the drug is primarily intended for menopausal women, the article notes that future beneficiaries could include men taking drugs for prostate cancer. Is it possible to cure hot
garyjp9
in
Advanced Prostate Cancer
2 years ago
Time course of radiation effects
My profile shows more details but in summary I have Gleason 4+4 prostate cancer, diagnosed 7/15 and treated with radical prostatectomy followed by pelvic radiation and 18 months of Lupron. After about 18 months off treatment new spread to sacral bone was found on choline 11 PET scan. This was radiated
My profile shows more details but in summary I have Gleason 4+4 prostate cancer, diagnosed 7/15 and treated with radical prostatectomy followed by pelvic radiation and 18 months of Lupron. After about 18 months off treatment new spread to sacral bone was found on choline 11 PET scan. This was radiated
Apisdorsata
in
Advanced Prostate Cancer
2 years ago
Chemo/Pluvicto or Clinical Trial?
I have stage 4, mcrpc with mets to pelvic lymph nodes and prostate. ADT (Firmagon and Zytiga) kept PSA undetectable for ~2.5 years, then PSA started to rise. I had radiation to prostate in March of this year, which did not help. I started a clinical trial in October at NYU (LAVA 1207 immunotherapy)
I have stage 4, mcrpc with mets to pelvic lymph nodes and prostate. ADT (Firmagon and Zytiga) kept PSA undetectable for ~2.5 years, then PSA started to rise. I had radiation to prostate in March of this year, which did not help. I started a clinical trial in October at NYU (LAVA 1207 immunotherapy)
carguy
in
Advanced Prostate Cancer
2 years ago
Prostate Oncologist recommendations in Vegas?
We moved to southern Utah a year ago and the trips back to Michigan every three months for doc visits, tests and shots are becoming too much for my guy. Does anyone know of a good doc in Las Vegas or even Salt Lake? (History - M was diagnosed 18 months ago with all cores positive, Gleason 10, pelvic
We moved to southern Utah a year ago and the trips back to Michigan every three months for doc visits, tests and shots are becoming too much for my guy. Does anyone know of a good doc in Las Vegas or even Salt Lake? (History - M was diagnosed 18 months ago with all cores positive, Gleason 10, pelvic
VeeBeez
in
Advanced Prostate Cancer
2 years ago
T3 only tiered after breakfast lack of motivation
I was taking 3 years t3 only with 3x 25mg a day. I was doing well. After 2,5 years I got extreme tierdness after eating my first meal (breakfast) doesn't matter if 1-5 hours after getting up. I had to nap. Like a crash. Next meal was no problem with tierdness. When this occur i got after 1 month total
I was taking 3 years t3 only with 3x 25mg a day. I was doing well. After 2,5 years I got extreme tierdness after eating my first meal (breakfast) doesn't matter if 1-5 hours after getting up. I had to nap. Like a crash. Next meal was no problem with tierdness. When this occur i got after 1 month total
charley123
in
Thyroid UK
2 years ago
Finishing up my SBRT treatment this week. Now What?
Greetings, DX'd localized G9 (PSMA Pet clear) in Sept '22. Choose SBRT + 18m ADT as treatment. Finishing up SBRT(week of 12/9/22). My questions are: 1. How do we know that the RT was successfully executed/delivered? I understand the timeline and how to monitor the outcome of PSA recurrence. I want
Greetings, DX'd localized G9 (PSMA Pet clear) in Sept '22. Choose SBRT + 18m ADT as treatment. Finishing up SBRT(week of 12/9/22). My questions are: 1. How do we know that the RT was successfully executed/delivered? I understand the timeline and how to monitor the outcome of PSA recurrence. I want
SierraSix
in
Advanced Prostate Cancer
2 years ago
Can/does NDT elevate slightly oestradiol and progesterone in menopaused women?
I have not found any info on this. Every best wish, G.
I have not found any info on this. Every best wish, G.
Gillybean1
in
Thyroid UK
2 years ago
NDT plus T3
I am back on my new batch of Thyroid s and it seems to be working this time. My question is should I be lowering my NDT by 1/2 grain and adding 6.25mcg of T3. Although I felt well on my previous dose my FT4 was always near the top range. Someone on the site called Jim stated that a high FT4 is not good
I am back on my new batch of Thyroid s and it seems to be working this time. My question is should I be lowering my NDT by 1/2 grain and adding 6.25mcg of T3. Although I felt well on my previous dose my FT4 was always near the top range. Someone on the site called Jim stated that a high FT4 is not good
Brightness14
in
Thyroid UK
2 years ago
feeling worse after starting NDT
I’ve just started ERFA thyroid 7 days ago. 30 mg. It’s my first foray into medication. I have known conversion issues hence one of the reasons why me wanting to start straight off with T4/T3 combination therapy. Although my core. It’s temperature has increased and the tinging and pins and needles
I’ve just started ERFA thyroid 7 days ago. 30 mg. It’s my first foray into medication. I have known conversion issues hence one of the reasons why me wanting to start straight off with T4/T3 combination therapy. Although my core. It’s temperature has increased and the tinging and pins and needles
LucyYoga
in
Thyroid UK
2 years ago
Where to obtain NDT
I have been taking NDT for 20 years. Just moved to Scotland. After seeing a private endocrinologist he suggested I get my medication online, he said I do not need a prescription. I cannot find any online pharmacies that will send me NDT without a prescription! I have been taking Armour Thyroid but
I have been taking NDT for 20 years. Just moved to Scotland. After seeing a private endocrinologist he suggested I get my medication online, he said I do not need a prescription. I cannot find any online pharmacies that will send me NDT without a prescription! I have been taking Armour Thyroid but
LL2356
in
Thyroid UK
2 years ago
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