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Metastatic PC
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
saniku
in
Advanced Prostate Cancer
1 year ago
? Ashwagandha and Maca Root If Hypo
Hi.If anyone who regularly uses Ashwagandha and/or Maca Root, I would love to hear of their experience taking these. I have recently read that both Ashwagandha and Maca Root are natural ways to help rebalance hormones in menopausal women. I am not sure though, if they adversely affect thyroid meds.
Hi.If anyone who regularly uses Ashwagandha and/or Maca Root, I would love to hear of their experience taking these. I have recently read that both Ashwagandha and Maca Root are natural ways to help rebalance hormones in menopausal women. I am not sure though, if they adversely affect thyroid meds.
Hidden
in
Thyroid UK
1 year ago
Weight LOSS on ADT
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
LessPaul
in
Advanced Prostate Cancer
1 year ago
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Hypothyroidism, chronic cystitis and histamine intolerance
Can anyone recommend good sources of information on the connection between hypothyroidism, recurrent cystitis and histamine/oxalate intolerance or possibly MCAS? I have had recurrent cystitis for many years, but in the past 2 years, it has become unbearable and I can be on antibiotics for weeks on end
Can anyone recommend good sources of information on the connection between hypothyroidism, recurrent cystitis and histamine/oxalate intolerance or possibly MCAS? I have had recurrent cystitis for many years, but in the past 2 years, it has become unbearable and I can be on antibiotics for weeks on end
Reefseeker
in
Thyroid UK
1 year ago
Goserelin - side effects profile variability between implants
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
OK, I know that living with PCa can play havoc with my relationship with reality that uncertainty is about the only sure fire certainty. So I am aware that the side effects of ADT are both real and yet also exacerbated or lessened by my mood, which of course is also subject to the impact of having
SimMartin
in
Advanced Prostate Cancer
1 year ago
Endo F/up soon,how best to handle criticism of TSH being 0.083 (0.27-4.2) please.
Hello again Everyone, I am dreading my F/up with a 'gestational diabetes' endocrinologist this week. I am neither diabetic or pregnant (ha! at my age). A very nice lady but knows nothing of NDT, very little on Hashi's,and obsessed with science based evidence. I am currently taking 1 3/8 grain of
Hello again Everyone, I am dreading my F/up with a 'gestational diabetes' endocrinologist this week. I am neither diabetic or pregnant (ha! at my age). A very nice lady but knows nothing of NDT, very little on Hashi's,and obsessed with science based evidence. I am currently taking 1 3/8 grain of
Gillybean1
in
Thyroid UK
1 year ago
ADT Prostaplan
I have been on this with an implant every 3 months, What is the usa equivalent? I have never seen this mentioned in any discussions and need to know more from anyone on the same treatment. pros and cons
I have been on this with an implant every 3 months, What is the usa equivalent? I have never seen this mentioned in any discussions and need to know more from anyone on the same treatment. pros and cons
Stevegr
in
Advanced Prostate Cancer
1 year ago
Darolutimide as monotherapy
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
RugbyVLS
in
Advanced Prostate Cancer
1 year ago
On vacation!
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
SpencerBoy11
in
Advanced Prostate Cancer
1 year ago
bone strength
Here’s a good detailed explanation of how exercise works to strengthen bones. I’ve always concentrated on muscle building and muscle strength and endurance, but an important part is the bone strengthening that also occurs. Even more important now that I’m on ADT. https://youtu.be/1gToyjm4NNA
Here’s a good detailed explanation of how exercise works to strengthen bones. I’ve always concentrated on muscle building and muscle strength and endurance, but an important part is the bone strengthening that also occurs. Even more important now that I’m on ADT. https://youtu.be/1gToyjm4NNA
Gym-rat
in
Advanced Prostate Cancer
1 year ago
Are PSMA negative mets usually castrate resistant?
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
V10fanatic
in
Advanced Prostate Cancer
1 year ago
3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 μg/L
down to <
0.01 μg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
🙈🙉🙊. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
After 3 years my PSA went from
20.3 μg/L
down to <
0.01 μg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
🙈🙉🙊. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
doc1947g
in
Advanced Prostate Cancer
1 year ago
Hello everyone...
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
PC-In-NC
in
Prostate Cancer Network
1 year ago
3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 μg/L
down to
0.02 μg/L
and Testosterone from
438.04ng/dL
down to
60.57 ng/dL
🙈🙉🙊. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently I fell and broke
After 3 years my PSA went from
20.3 μg/L
down to
0.02 μg/L
and Testosterone from
438.04ng/dL
down to
60.57 ng/dL
🙈🙉🙊. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently I fell and broke
doc1947g
in
Prostate Cancer Network
1 year ago
T3 ONLY - Issues - Please help
Hi all, After many years on Thyroid S, my NHS endo has convinced me to trial t3 only, I have been taking 20 mcg at 6.30am and 10mcg at 10pm. I have been on this dose for approx 4 weeks, and in the last week, I have had the worst outbreak of skin blisters on my forehead and above my lip (this used
Hi all, After many years on Thyroid S, my NHS endo has convinced me to trial t3 only, I have been taking 20 mcg at 6.30am and 10mcg at 10pm. I have been on this dose for approx 4 weeks, and in the last week, I have had the worst outbreak of skin blisters on my forehead and above my lip (this used
dizzy1979
in
Thyroid UK
1 year ago
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa?
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa regardless of free to total PSA ratio ?
mCRPC. Total PSA is up from 1.2 to 2.1 in 2 months, but free PSA went to 14% from 5%. Can this be hyperplasia, or in ADT any PSA up is PCa regardless of free to total PSA ratio ?
Manilo
in
Advanced Prostate Cancer
1 year ago
T level test
Having my first PSA test since IMRT in a few weeks. (last ADT/Lupron was early February. 90 day. Salvage IMRT Radiation ended Early January. Is there a reason my doc didn't order T level test to coincide with the PSA? Seems like you would track increases or Nadirs etc, having them tested the same time
Having my first PSA test since IMRT in a few weeks. (last ADT/Lupron was early February. 90 day. Salvage IMRT Radiation ended Early January. Is there a reason my doc didn't order T level test to coincide with the PSA? Seems like you would track increases or Nadirs etc, having them tested the same time
runtrails
in
Advanced Prostate Cancer
1 year ago
Four Years Results
Hello Everyone, I am reading this forum every day and getting very valuable information. Thank you so much. My hats off to all of you for sharing your experience and knowledge over here and providing much-needed knowledge and compassion to each other. My Case: First diagnosed @ age 71 with PCA in
Hello Everyone, I am reading this forum every day and getting very valuable information. Thank you so much. My hats off to all of you for sharing your experience and knowledge over here and providing much-needed knowledge and compassion to each other. My Case: First diagnosed @ age 71 with PCA in
Pheart2
in
Advanced Prostate Cancer
1 year ago
headaches when moving from NDT to t3 and Levo.
I’ve been on NDT which hasn’t been working anymore as my t4 too low but when I increase my t3 goes too high. I dropped my NDT from 200mg to 40mg and started the t3 2 weeks ago expecting to start Levo a few days after. But my GP surgery is refusing to prescribe it after my private consultant recommended
I’ve been on NDT which hasn’t been working anymore as my t4 too low but when I increase my t3 goes too high. I dropped my NDT from 200mg to 40mg and started the t3 2 weeks ago expecting to start Levo a few days after. But my GP surgery is refusing to prescribe it after my private consultant recommended
Kitkat1982
in
Thyroid UK
1 year ago
Switching from NDT to T3 only - what dose?
Hi, I have been on NDT since 2016, and surely had some relief when starting. Before NDT I really had no life. But as I still have a lot of symptoms (the worse being extreme fatigue), I decided to try to taper off to see if I was over medicated. So this spring I tapered from 2,75 grains to 1,25 grains
Hi, I have been on NDT since 2016, and surely had some relief when starting. Before NDT I really had no life. But as I still have a lot of symptoms (the worse being extreme fatigue), I decided to try to taper off to see if I was over medicated. So this spring I tapered from 2,75 grains to 1,25 grains
Whippets88
in
Thyroid UK
1 year ago
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