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Pelvic pain may be entrapped nerves
Dear friends. For anyone with pelvic pain which is undiagnosed. Please look up ACNES which stands for abdominal cutanous nerve entrapment syndrome. I've suffered from abdominal / pelvic pain for the last 3 years. All tests done with urology, gynaecology, and gastroenterology came back negative.
Dear friends. For anyone with pelvic pain which is undiagnosed. Please look up ACNES which stands for abdominal cutanous nerve entrapment syndrome. I've suffered from abdominal / pelvic pain for the last 3 years. All tests done with urology, gynaecology, and gastroenterology came back negative.
Sunrach
in
Pelvic Pain Support Network
1 year ago
steroid injection
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
bakingD
in
NRAS
1 year ago
Feeling despondent
Hi I last posted when I was waiting for my first biologic Imraldi which turned out to be Hyrimoz another bio similar. Before getting my first biologic injection on 7th June, rheumatology did in fact give me another steroid injection 80mg in the bum 19 days previously ! That eased thing’s slightly
Hi I last posted when I was waiting for my first biologic Imraldi which turned out to be Hyrimoz another bio similar. Before getting my first biologic injection on 7th June, rheumatology did in fact give me another steroid injection 80mg in the bum 19 days previously ! That eased thing’s slightly
Akaka
in
NRAS
1 year ago
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Medical Canabis
hi their I’ve recently applied for medical Canabis from a private hospital which I’m paying for but I applied for it to help relieve the pain and to come off my medication but today they've said they are booking me In to see a Psychiatry to have my mental health checked and I may be able to have it under
hi their I’ve recently applied for medical Canabis from a private hospital which I’m paying for but I applied for it to help relieve the pain and to come off my medication but today they've said they are booking me In to see a Psychiatry to have my mental health checked and I may be able to have it under
Rhino03z
in
Pain Concern
1 year ago
update on Steroid Injection.
Just an update on my last post. As I mentioned I had the X-ray and scan done privately as there is a long wait for scans on NHS. They were both done and the results were sent straight through to the GP. I had Hoped to get the steroid injection within a couple of days again privately. I telephoned the
Just an update on my last post. As I mentioned I had the X-ray and scan done privately as there is a long wait for scans on NHS. They were both done and the results were sent straight through to the GP. I had Hoped to get the steroid injection within a couple of days again privately. I telephoned the
Macas
in
PMRGCAuk
1 year ago
Methotrexate for the summer
Hi lovely friends, Some of you will recall back in February that I had a flare with rash that my Rheumy, Dr A, didn’t recognise as a Lupus rash. He is still adamant it wasn’t Lupus then but that the progression, which 2 weeks later was confirmed by the Dermatologist as a Lupus rash, was! 🤷🏼♀️
Hi lovely friends, Some of you will recall back in February that I had a flare with rash that my Rheumy, Dr A, didn’t recognise as a Lupus rash. He is still adamant it wasn’t Lupus then but that the progression, which 2 weeks later was confirmed by the Dermatologist as a Lupus rash, was! 🤷🏼♀️
Spotty-ewe
in
LUPUS UK
1 year ago
Scared
Hi there, I'm 38 year old active, fit woman. I've been diagnosed with severe cervical stenosis at c6-7 with radiculopathy. Have had symptoms for 20+ years not realising what it was. Then last summer after having an appendectomy and 3 weeks rest, the pain behind left shoulder blade and in neck flared
Hi there, I'm 38 year old active, fit woman. I've been diagnosed with severe cervical stenosis at c6-7 with radiculopathy. Have had symptoms for 20+ years not realising what it was. Then last summer after having an appendectomy and 3 weeks rest, the pain behind left shoulder blade and in neck flared
Rewe
in
Cervical Myelopathy
1 year ago
Hi all an update on my new rheumy
Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist. Well I have to say he was brilliant listened to me, Then going on my symptoms and doing an ultrasound on my hands and looking at all my blood
Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist. Well I have to say he was brilliant listened to me, Then going on my symptoms and doing an ultrasound on my hands and looking at all my blood
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
Dreading seeing the Rheumatologist
Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in who we see). It took him a couple of years to finally diagnose PMR. During that time I’d become almost housebound. He insisted I take the
Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in who we see). It took him a couple of years to finally diagnose PMR. During that time I’d become almost housebound. He insisted I take the
Bramble2000
in
PMRGCAuk
1 year ago
Slow, slow, quick quick slow -to taper or not?
I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st May and are still recovering. Mark was diagnosed with OA in his knees in March. Despite steroid injections before we left, his knees did not
I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st May and are still recovering. Mark was diagnosed with OA in his knees in March. Despite steroid injections before we left, his knees did not
IdasMum
in
PMRGCAuk
1 year ago
osteoarthritis hip pain
I have so much pain in my hip when walking I have asked to be referred for further help from my doctor. I have had steroid injection x 2 without success and continue to take Cocodamol 8/500 as prescribed now b’cos of pain have been prescribed codeine phosphate 15mg, any advice Would be welcome
I have so much pain in my hip when walking I have asked to be referred for further help from my doctor. I have had steroid injection x 2 without success and continue to take Cocodamol 8/500 as prescribed now b’cos of pain have been prescribed codeine phosphate 15mg, any advice Would be welcome
Margie21
in
Osteoarthritis Action
1 year ago
Rheumatologist appointment help
Good Morning. ( This is a long story so will try to make it as condensed as I can) 4 years ago I was diagnosed with PMR after painful joints, hands arms, shoulders and toes. I was put on a dose of 40mg of pred as they also thought I may have GCA. Although that turned out to be a dental issue. I was
Good Morning. ( This is a long story so will try to make it as condensed as I can) 4 years ago I was diagnosed with PMR after painful joints, hands arms, shoulders and toes. I was put on a dose of 40mg of pred as they also thought I may have GCA. Although that turned out to be a dental issue. I was
Gyspysmum
in
NRAS
1 year ago
Joint pain
My husband has severe joint pain in knees. He is now on Radium 223 treatment. Can he receive steroid injection?
My husband has severe joint pain in knees. He is now on Radium 223 treatment. Can he receive steroid injection?
Docker53
in
Advanced Prostate Cancer
1 year ago
Uncertain PMR or EORA?
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Woollyback1
in
PMRGCAuk
1 year ago
Steroid Injection
I have had right shoulder pain for weeks. The pain starts in my shoulder and then across my upper back. I have had it over the years but this time it’s been really bad. With all the problems trying to see a doctor I have just been taking co-codamol. In the end with the pain and not sleeping I managed
I have had right shoulder pain for weeks. The pain starts in my shoulder and then across my upper back. I have had it over the years but this time it’s been really bad. With all the problems trying to see a doctor I have just been taking co-codamol. In the end with the pain and not sleeping I managed
Macas
in
PMRGCAuk
1 year ago
Wrong diagnosis
Hi everyone, I don't post very much, a bit of a lurker but I will be leaving the group anyway but thought I would share my recent update. Three years ago after raised infection markers at my previous doctors I was diagnosed with PMR and put on 40mg steroids, tapering dose. I was not referred to see
Hi everyone, I don't post very much, a bit of a lurker but I will be leaving the group anyway but thought I would share my recent update. Three years ago after raised infection markers at my previous doctors I was diagnosed with PMR and put on 40mg steroids, tapering dose. I was not referred to see
Gyspysmum
in
PMRGCAuk
1 year ago
prednisolone 3 week course followd by surgery
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
lindyloo2018
in
NRAS
1 year ago
How can I reduce the swelling in my foot and ankle?
Hello I was diagnosed with RA about six weeks ago and am on 20 mg methotrexate and 5 mg folic acid and have had a steroid injection. I can see improvement in other places but my right foot and ankle are swollen so I can only walk really short distances with a limp. I am worried that I will not be able
Hello I was diagnosed with RA about six weeks ago and am on 20 mg methotrexate and 5 mg folic acid and have had a steroid injection. I can see improvement in other places but my right foot and ankle are swollen so I can only walk really short distances with a limp. I am worried that I will not be able
spartacus101
in
NRAS
1 year ago
Atrial fibrillation after steroids
Has anyone experienced atrial fibrillation after starting steroids? 4 years ago I had steroid injections in both knees, and less than 48 hours later suddenly went into persistent rapid AF, having no previous history of it. I found some Dutch research that found new atrial fibrillation was more common
Has anyone experienced atrial fibrillation after starting steroids? 4 years ago I had steroid injections in both knees, and less than 48 hours later suddenly went into persistent rapid AF, having no previous history of it. I found some Dutch research that found new atrial fibrillation was more common
Belle11
in
AF Association
1 year ago
Mycophenolate or Azathioprine ?
Hi friends, Some of you will remember that in February I had an intolerably itchy rash my Rheumy didn’t recognise as being a Lupus rash but was confirmed by Dermy as such. After being on Prednisolone for a total of 7 weeks tapering down by 5 mg per week, my poor innards were screaming. I couldn’t
Hi friends, Some of you will remember that in February I had an intolerably itchy rash my Rheumy didn’t recognise as being a Lupus rash but was confirmed by Dermy as such. After being on Prednisolone for a total of 7 weeks tapering down by 5 mg per week, my poor innards were screaming. I couldn’t
Spotty-ewe
in
LUPUS UK
1 year ago
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