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TINGLY FEET
The tingly feeling seems just like having a flare when I need to increase my
steroids
. It goes as soon as I get up in the morning. I have arthritis in both knees as well as PMR. I feel like I am falling to bits.
The tingly feeling seems just like having a flare when I need to increase my
steroids
. It goes as soon as I get up in the morning. I have arthritis in both knees as well as PMR. I feel like I am falling to bits.
Wallydb
in
PMRGCAuk
4 months ago
Plasma Viscosity + Tapering
I’m not sure whether to take that as the inflammation is increasing and the PMR is still very much active or whether being at such a low level of
steroids
my adrenal glands aren’t quite working as they should/catching up. It’s now making me very nervous about any further decrease in steroid dose.
I’m not sure whether to take that as the inflammation is increasing and the PMR is still very much active or whether being at such a low level of
steroids
my adrenal glands aren’t quite working as they should/catching up. It’s now making me very nervous about any further decrease in steroid dose.
RedRum1968
in
PMRGCAuk
3 months ago
Issues sleeping, and other things
Two weeks ago I started doxy followed by azithro & 10 days of
steroids
. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week ago I did an extra long sea session, to clear as much as I could.
Two weeks ago I started doxy followed by azithro & 10 days of
steroids
. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week ago I did an extra long sea session, to clear as much as I could.
PW_R
in
Lung Conditions Community Forum
3 months ago
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Hello all - 71 years old and hoping to run!
Now at 71, I've got various health problems and have put on a stone plus from taking
steroids
daily for 18 months. So, I have started Coach to 5k again, but Ive only done my first run 4 days ago. I got pain in my legs, hips and lower back after only 4 x 60 second runs.
Now at 71, I've got various health problems and have put on a stone plus from taking
steroids
daily for 18 months. So, I have started Coach to 5k again, but Ive only done my first run 4 days ago. I got pain in my legs, hips and lower back after only 4 x 60 second runs.
Handloomweaver
in
Couch to 5K
19 days ago
Steroids, statins, strange query
I was put on 80mg Atvostatin mid Aug following a TIA/Afib episode and diagnosis. From mid September I started to suffer an intermittent throbbing, burning pain on the ball of my foot and last three toes. It comes on suddenly such as during the short 1 mile walk I’ve just completed. Bloods in Sept showed
I was put on 80mg Atvostatin mid Aug following a TIA/Afib episode and diagnosis. From mid September I started to suffer an intermittent throbbing, burning pain on the ball of my foot and last three toes. It comes on suddenly such as during the short 1 mile walk I’ve just completed. Bloods in Sept showed
Bluey-1
in
PMRGCAuk
8 months ago
Eye problems following catheter ablation
I have previously been a long term patient for prednisolone (I had polymyalgia) and finally came off the
steroids
in January this year.
I have previously been a long term patient for prednisolone (I had polymyalgia) and finally came off the
steroids
in January this year.
Karendeena
in
Atrial Fibrillation Support
28 days ago
Immunology
I’ve had the following procedures: Laparoscopy with dye (adhesions found) Hysteroscopy (normal) The last round I was on:
Steroids
Clexane Aspirin Prontogest (finally no break through bleed during the tww) Endometrium appeared trilaminar measuring transabdominally 7.1mm (full bladder therefore
I’ve had the following procedures: Laparoscopy with dye (adhesions found) Hysteroscopy (normal) The last round I was on:
Steroids
Clexane Aspirin Prontogest (finally no break through bleed during the tww) Endometrium appeared trilaminar measuring transabdominally 7.1mm (full bladder therefore
Anonymou5
in
Fertility Network UK
5 months ago
Maybe not PMR update 5 years on
Good morning after 5 years next month on
steroids
with a PMR diagnosis I am headed down a different treatment path.
Good morning after 5 years next month on
steroids
with a PMR diagnosis I am headed down a different treatment path.
Pawscat11
in
PMRGCAuk
2 months ago
Private Dexa Scan
He says he will arrange a dexa scan when/if I am off
steroids
, which he says may be in 1 - 1.5 years time. If it shows good bone density I can stop the bisphosphonate. I am happy with this but would like to have a private dexa scan now so I can know the baseline.
He says he will arrange a dexa scan when/if I am off
steroids
, which he says may be in 1 - 1.5 years time. If it shows good bone density I can stop the bisphosphonate. I am happy with this but would like to have a private dexa scan now so I can know the baseline.
kalgoorlie
in
PMRGCAuk
4 months ago
Recurring infections?
She had said at our last appt that I should start tapering again and go to 9mg but though I am keen to get off
steroids
as soon as I can, I don’t think it wise to reduce just yet , but am I putting myself in a Catch 22 where the
steroids
are actually making it harder for me to recover?
She had said at our last appt that I should start tapering again and go to 9mg but though I am keen to get off
steroids
as soon as I can, I don’t think it wise to reduce just yet , but am I putting myself in a Catch 22 where the
steroids
are actually making it harder for me to recover?
Menno1525
in
PMRGCAuk
5 months ago
hip stiffness
Advice please as I don’t want to increase the
steroids
if it’s considered unnecessary but I don’t want to be adding to the “dripping tap”
Advice please as I don’t want to increase the
steroids
if it’s considered unnecessary but I don’t want to be adding to the “dripping tap”
Nanatoo
in
PMRGCAuk
3 months ago
Aches and pains PMR?
It is clear that as I reduce
steroids
, inflammation marker goes up. So—question is, what level of methylpred should I go up to? I am not sure the aches and pains are a flare. Thanks for your thoughts. BTW, doc suggests going to 5 mgs. I am not sure that’s enough.
It is clear that as I reduce
steroids
, inflammation marker goes up. So—question is, what level of methylpred should I go up to? I am not sure the aches and pains are a flare. Thanks for your thoughts. BTW, doc suggests going to 5 mgs. I am not sure that’s enough.
Merryfield
in
PMRGCAuk
4 months ago
renal crisis
I’ve been coming down my
steroids
and I’m now on 8 mg been doing half a mil every two weeks . I’ve been having sickness and dihorea all week of and on with stomach aches and feeling rough.
I’ve been coming down my
steroids
and I’m now on 8 mg been doing half a mil every two weeks . I’ve been having sickness and dihorea all week of and on with stomach aches and feeling rough.
Shaza123
in
PMRGCAuk
6 months ago
Pluvicto still working well
Side effects: • A little tired, but that is offset by a week of
steroids
. It hasn't lasted more than a week after the are
steroids
tapered off • Upset gut or "slight nausea" which went away and came back -- now taking an anti-nausea drug that has taken care of this.
Side effects: • A little tired, but that is offset by a week of
steroids
. It hasn't lasted more than a week after the are
steroids
tapered off • Upset gut or "slight nausea" which went away and came back -- now taking an anti-nausea drug that has taken care of this.
Miccoman
in
Advanced Prostate Cancer
5 months ago
Newly diagnosed PMR
on
steroids
. Is my dose too low to cover me for 24hrs or is this just natural that they can’t be effective for 24hrs? I am 53 and otherwise healthy. I drink very little alcohol but do smoke. I eat very little sugar but do overindulge in carbs. I am conscious I need to address this.
on
steroids
. Is my dose too low to cover me for 24hrs or is this just natural that they can’t be effective for 24hrs? I am 53 and otherwise healthy. I drink very little alcohol but do smoke. I eat very little sugar but do overindulge in carbs. I am conscious I need to address this.
NewPMR53
in
PMRGCAuk
1 month ago
State of the NHS
Within two hours I got a text saying they were prescribing
steroids
and I could pick them up at the chemist next door to the surgery later that afternoon. Btw I have an emergency pack of
steroids
for my asthma.
Within two hours I got a text saying they were prescribing
steroids
and I could pick them up at the chemist next door to the surgery later that afternoon. Btw I have an emergency pack of
steroids
for my asthma.
TwoPuffsAl
in
Asthma Community Forum
7 months ago
Avatrombopag or should I try living with a low count? Does anybody have experience of either please?
Steroids
have been working well for me and usually a short course of a low dose will maintain my count for over 12 months. This year I have had a run of viral infections and COVID and have needed to take more
steroids
for a longer period.
Steroids
have been working well for me and usually a short course of a low dose will maintain my count for over 12 months. This year I have had a run of viral infections and COVID and have needed to take more
steroids
for a longer period.
janran
in
ITP Support Association
7 months ago
dealing with Norovirus
Can anyone advise what to do if I am unable to take my daily dose of
steroids
due to sickness? Or if i'm sick after I take my
steroids
(coated Pred) will they still be ok? You really are the experts and my only real guidance as to what I may need to do in the event.
Can anyone advise what to do if I am unable to take my daily dose of
steroids
due to sickness? Or if i'm sick after I take my
steroids
(coated Pred) will they still be ok? You really are the experts and my only real guidance as to what I may need to do in the event.
bonio
in
PMRGCAuk
6 months ago
Thigh pain
And came off
steroids
because I was up and down, then I developed osteoarthritis in last 2 years.in my back, neck and hips.While walking up a hil I developed thigh pain, thought it was a hamstring injury, I have had it for 3 months, but its quiet unbearable, I've had MRI on cervical spine,Lumbar spine
And came off
steroids
because I was up and down, then I developed osteoarthritis in last 2 years.in my back, neck and hips.While walking up a hil I developed thigh pain, thought it was a hamstring injury, I have had it for 3 months, but its quiet unbearable, I've had MRI on cervical spine,Lumbar spine
Healthliving
in
PMRGCAuk
4 months ago
Reducing steroids
Have been diagnosed with PMR early 2023.I started on 15mg and have been told by GP to reduce to 5mg. Have taken 15mg for just over two months, reduced to 12.5 for two weeks then to 10 for two weeks, I'm getting some really bad headaches is this too guick or is this normal
Have been diagnosed with PMR early 2023.I started on 15mg and have been told by GP to reduce to 5mg. Have taken 15mg for just over two months, reduced to 12.5 for two weeks then to 10 for two weeks, I'm getting some really bad headaches is this too guick or is this normal
Spudleyboy
in
PMRGCAuk
10 months ago
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