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iga vasculitis
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
Frosty_nights89
in
Vasculitis UK
6 months ago
Timings
I have managed to get down to 5mg which I have been taking now for 2weeks after being diagnosed with PMR 2 years ago. In that time I have put on 11kg! partially due to changing my job from ward based and very busy to a mainly office based job for the probation service. I feel like a whale going from
I have managed to get down to 5mg which I have been taking now for 2weeks after being diagnosed with PMR 2 years ago. In that time I have put on 11kg! partially due to changing my job from ward based and very busy to a mainly office based job for the probation service. I feel like a whale going from
Holycow2
in
PMRGCAuk
10 months ago
Itchy Rash Help Please!
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Hi! I'm new here & relatively new to being hypothyroid too (Dec 2022) & I'm so glad I found this forum for help! Sorry for long description & awful pics, but I'm desperate now & need this lovely forum's opinions. I have searched the site for similar issue to my own too. Began on 50mcg Levothyroxine
Urbanski
in
Thyroid UK
8 months ago
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considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
5 months ago
Vaginal soreness
I am experiencing very sore vagina internal and externally around my vulva. I had thrush back in July and had a few repeat courses of the anti fungal treatment and also steroid cream but have had a recent retest for thrush which was negative and don't currently have itching. To be honest I wonder if
I am experiencing very sore vagina internal and externally around my vulva. I had thrush back in July and had a few repeat courses of the anti fungal treatment and also steroid cream but have had a recent retest for thrush which was negative and don't currently have itching. To be honest I wonder if
Jojams
in
Menopause and Perimenopause Support
8 months ago
Diverticulitis?
I've had symptoms of self diagnosed diverticulitis for the last week. I thought I'd Google'd it and it seems those on steroids have a higher mortality from it than normal people! I never knew that and although I'm only at an early stage, it bothered me that I'd not read anything about it in the bumph
I've had symptoms of self diagnosed diverticulitis for the last week. I thought I'd Google'd it and it seems those on steroids have a higher mortality from it than normal people! I never knew that and although I'm only at an early stage, it bothered me that I'd not read anything about it in the bumph
CoziNess
in
PMRGCAuk
10 months ago
immunosuppressed, covid positive - anyone have an experience with antivirals?
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
ruablue
in
Myositis UK
6 months ago
Covid positive with ILD - antiviral experience ?
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with ILD. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it for last 4 years). I wonder if anyone could share their Covid experiences and
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with ILD. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it for last 4 years). I wonder if anyone could share their Covid experiences and
ruablue
in
Living with Interstitial Lung Disease (ILD)
6 months ago
Covid positive - anyone with antiviral experience
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Oxygen levels after pneumonia
I was discharged from hospital one week ago having suffered a bout of pneumonia and a RSV I was treated in isolation. I know it will take weeks to recover, but I’m concerned about my oxygen level which hovers around 87-89. Any advice?
I was discharged from hospital one week ago having suffered a bout of pneumonia and a RSV I was treated in isolation. I know it will take weeks to recover, but I’m concerned about my oxygen level which hovers around 87-89. Any advice?
Nanny49
in
Lung Conditions Community Forum
8 months ago
More to deal with. Early birthday gift I guess.
I get all my shots as soon as they are available. Besides, Lupron had current flu, covid and RVS. Thought I must have caught flu and but feeling different about it. Worst sore throat every and continually spit phlegm and spittle. Went to our local ER and came up with the winner, COVID! Caught it
I get all my shots as soon as they are available. Besides, Lupron had current flu, covid and RVS. Thought I must have caught flu and but feeling different about it. Worst sore throat every and continually spit phlegm and spittle. Went to our local ER and came up with the winner, COVID! Caught it
SpencerBoy11
in
Advanced Prostate Cancer
6 months ago
Seeking information about encephalomalacia
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Jasper65
in
Headway
5 months ago
films
hi I am on 2mg steroids been on for a month it second time round I got to 2 mg as soon as I go down to 1 mg I get the pain in my muscles in shoulders and neck buttocks need some advice do I go down to 1 1/2 mg for month to see if it works
hi I am on 2mg steroids been on for a month it second time round I got to 2 mg as soon as I go down to 1 mg I get the pain in my muscles in shoulders and neck buttocks need some advice do I go down to 1 1/2 mg for month to see if it works
Movies5178
in
PMRGCAuk
11 months ago
Father has had PBC for 16 years - Odd complications since COVID?
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Kylewillmott
in
PBC Foundation
6 months ago
Should I go ahead with Covid Jab?
I am aged 80 and have my 5th Covid jab booked for Thursday I am steady on 5mg pred with no PRM symptoms. Should I go ahead with the jab and if so, what might I look out for?
I am aged 80 and have my 5th Covid jab booked for Thursday I am steady on 5mg pred with no PRM symptoms. Should I go ahead with the jab and if so, what might I look out for?
kangaroojohn
in
PMRGCAuk
6 months ago
Update.
I contacted this forum, for the first time, just over 4 months ago as I had reduced my steroids from 5mg to 2.5mg and I felt ill. I was concerned that my PMR had returned. I was given some very useful advice and I contacted my GP who is very supportive. My GP suggested that I had steroid withdrawal
I contacted this forum, for the first time, just over 4 months ago as I had reduced my steroids from 5mg to 2.5mg and I felt ill. I was concerned that my PMR had returned. I was given some very useful advice and I contacted my GP who is very supportive. My GP suggested that I had steroid withdrawal
Pjso
in
PMRGCAuk
11 months ago
Help with test results
Hi all. I've been having tests as my doctor believes I may have occupational asthma (I work with flour and other flour based ingredients). My blood results have come back as normal but my chest x-ray state the following which I don't understand... "Heart size and mediastinal contours are within normal
Hi all. I've been having tests as my doctor believes I may have occupational asthma (I work with flour and other flour based ingredients). My blood results have come back as normal but my chest x-ray state the following which I don't understand... "Heart size and mediastinal contours are within normal
EMJAY1401
in
Asthma Community Forum
8 months ago
Covid and testing
Good morning all, My daughter, diagnosed last summer, has thyroid blood tests scheduled for Monday morning (GP). However, she actively has Covid at the moment. Should we reschedule? Thanks
Good morning all, My daughter, diagnosed last summer, has thyroid blood tests scheduled for Monday morning (GP). However, she actively has Covid at the moment. Should we reschedule? Thanks
J972
in
Thyroid UK
6 months ago
Bam ibs
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
Netbet22
in
IBS Network
8 months ago
Lichenoid Dermatitis
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
Skywriter0
in
MY SKIN
10 months ago
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