Hi All,
The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory.
About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt and I was the one screaming. I could not have done it without Buprenorphine. Over a period of 2 months, I transitioned from a 2 mg Neupro patch to 20 mg Buprenorphine patch. For me the result has been nothing short of a miracle. Deep sleep almost every night for the first time in 30 years. I had forgotten what it was like to dream. Quite suddenly a new life had opened up for me. More energy, a better mood. People who don't suffer from RLS may have difficulty understanding what I am talking about, but members of this community know. Aside from some minor burning in my knees and feet everything was hunky dory. Then 2 weeks ago I switched from the patch to the tablet. Mainly because in Brasil, where I live, only the patch is available and it's not cheap. Whereas in the states, the tablets are relatively inexpensive with insurance and I can pick up a 3 month supply when visiting my son in California.
I was doing fairly well on one half of a 2 mg buprenorphine/.5 mg naloxone tablet taken an hour before bedtime. Occasionally I had burning in my feet and knees, but not enough to interfere with my sleep. Then two days ago (I am sorry it took so long to get this point) I woke up in the afternoon from a nap with severe burning in my legs and feet and generally just feeling like something the cat dragged in. This is how I had felt most days before I quit Neupro and it was frightening to say the least. After 3 months of being relatively free of pain, the bottom unexpectedly dropped out completely. I was devastated.
I have tried to pull myself together so I could figure out what has happened. Some might think the burning is a separate health issue from RLS, but I don't think so and neither does my neurologist. In any case, it probably doesn't matter because whatever the cause, the burning disappeared almost completely when I started using the Buprenorphine patch. What I am thinking and hoping is that it is simply a titration issue. At best the patch gives a fairly consistent dose of buprenorphine over a 24 hour period. The tablet on the other hand wanes in strength over 10 hours. If this is correct then 10 hours after taking the tablet I am either going through mini withdrawals or my RLS is breaking through big time. Perhaps this can be corrected by taking a dose every 10 hours or by experimenting until I find the right dose and time to take the tablet so I can avoid waking up feeling like I had been run over by a truck again.
Please, if you have any thoughts about this problem, share them with me. Hopefully, I can figure this out and get back to where I was using the tablet. But if the patch is the best option for me, no matter the higher cost, I will use the patch.
Thanks for reading.