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Hashimotos - inflammatory arthritis - hydroxychloroquine
After telling the consultant how unimpressed I was with his dept, my non treatment and their non diagnosis skills, he agreed it was inflammatory, likely autoimmune and perhaps I could have
steroid
injections
or hydroxychloroquine.
After telling the consultant how unimpressed I was with his dept, my non treatment and their non diagnosis skills, he agreed it was inflammatory, likely autoimmune and perhaps I could have
steroid
injections
or hydroxychloroquine.
Ziburu
in
Thyroid UK
1 year ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
GCA and Vision update
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very concerned about my eyesight. I still see double at a distance, though it’s not as divergent as it was, I can read again up close, though, without
Lenore58
in
PMRGCAuk
7 months ago
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Multiple short courses of steroids for cough
Hi all, My 8 year old suffers from what we think is cough variant asthma. Any viral infection (colds etc) just sets-off a horrible cascading coughing that just gets worse and worse over 3-4 days, until we need to give oral steroids. We often blast him with Ventolin (as much as 8-10 puffs every 4 hrs
Hi all, My 8 year old suffers from what we think is cough variant asthma. Any viral infection (colds etc) just sets-off a horrible cascading coughing that just gets worse and worse over 3-4 days, until we need to give oral steroids. We often blast him with Ventolin (as much as 8-10 puffs every 4 hrs
Ollie1976
in
Asthma Community Forum
7 months ago
urinary urgency after SBRT
my husband finished SBRT last week. He has been having urinary urgency mostly at night with slow flow and dribbling. His radiologist had him to take steroids for 5 days, but no improvement. His urologist told him to double his alfuzison. He started that a couple days ago and no improvement. His ruination
my husband finished SBRT last week. He has been having urinary urgency mostly at night with slow flow and dribbling. His radiologist had him to take steroids for 5 days, but no improvement. His urologist told him to double his alfuzison. He started that a couple days ago and no improvement. His ruination
Jewelrylady
in
Advanced Prostate Cancer
7 months ago
night time pains
I have posted a number of times about night time pain …which I am still getting! However by taking an enema each morning when waking I get rid of the wind and normally have a bowel movement and can have a good day. However at night when going to bed I get wind and two hours later I am awake. I get
I have posted a number of times about night time pain …which I am still getting! However by taking an enema each morning when waking I get rid of the wind and normally have a bowel movement and can have a good day. However at night when going to bed I get wind and two hours later I am awake. I get
Reindeer1
in
IBS Network
2 months ago
SPARX3 study of treadmill exercise for Parkinson’s recruiting at 24 sites
Participants in the study, who must have a disease duration shorter than three years, will be randomly assigned to 18 months of treadmill exercise, for 30 minutes four times per week. This aerobic workout will be done either at high intensity — to keep patients’ heart rates at 80% to 85% of maximum
Participants in the study, who must have a disease duration shorter than three years, will be randomly assigned to 18 months of treadmill exercise, for 30 minutes four times per week. This aerobic workout will be done either at high intensity — to keep patients’ heart rates at 80% to 85% of maximum
Farooqji
in
Cure Parkinson's
2 months ago
prednisolone 3 week course followd by surgery
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
Hi please can anyone advise how long to wait in between a prednisolone course and surgery ? I have heard from the nurses that if you have an IM steroid injection they postpone surgery for 6 to 8 weeks to allow the imunosuppresant effects to wear off before surgery. my RA consultant seems to think
lindyloo2018
in
NRAS
1 year ago
Should I keep pushing to be tested? Or are the doctors right?
Hi there, I am really struggling. I have always felt like something was not right about my menstrual cycle. I’m now 22, and have been bleeding consistently and sometimes heavily since December 2023. This is the worst it has ever been, and I finally decided to seek treatment for something I have ignored
Hi there, I am really struggling. I have always felt like something was not right about my menstrual cycle. I’m now 22, and have been bleeding consistently and sometimes heavily since December 2023. This is the worst it has ever been, and I finally decided to seek treatment for something I have ignored
PrueyBug
in
Endometriosis UK
4 days ago
After my hip operation: PMR quiet (thank goodness) while everything else goes mad
caftan’s recent post about their upcoming hip operation prompted me to write this. I read the post, and the responses, to see if there was anything I could add, but there wasn’t. I’m 73, and my op in early Feb went really well; I’m now almost as active as I expect to be. My pred dosage has been managed
caftan’s recent post about their upcoming hip operation prompted me to write this. I read the post, and the responses, to see if there was anything I could add, but there wasn’t. I’m 73, and my op in early Feb went really well; I’m now almost as active as I expect to be. My pred dosage has been managed
calibriel
in
PMRGCAuk
7 days ago
shingles
I havnt posted for ages mainly because I’m generally very fit and well and do vast amounts of excercise but hoping for some possible explanations. Diagnosed 01/18 aged 71 now I had shingles 12 yrs ago but wasn’t very ill with it I arranged my first shingles jab for end Sept 23 No side effects but
I havnt posted for ages mainly because I’m generally very fit and well and do vast amounts of excercise but hoping for some possible explanations. Diagnosed 01/18 aged 71 now I had shingles 12 yrs ago but wasn’t very ill with it I arranged my first shingles jab for end Sept 23 No side effects but
Coffeejenny
in
CLL Support
3 months ago
What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
3 months ago
Sezary Syndrome.
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with Venetoclax, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings? I greatly
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with Venetoclax, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings? I greatly
Champlain
in
CLL Support
3 months ago
Brain dead
I’m worried how bad my cognitive function has become under steroids and that it may get worse with struggling adrenal glands as I drop below 10mg. Rational part of me says it will eventually improve but I had unresolved brain fog prior before to steroids and so it could be further decline caused by
I’m worried how bad my cognitive function has become under steroids and that it may get worse with struggling adrenal glands as I drop below 10mg. Rational part of me says it will eventually improve but I had unresolved brain fog prior before to steroids and so it could be further decline caused by
Body_bonkers
in
PMRGCAuk
7 months ago
Losing my hair
Thank you all so much for your posts. Lots of useful info and humour. Loved the Dolly Parton story. I am very grateful to have found people on the same journey as me who 'Get it' When I fell out of the blue and fractured my hip in August 2022 I thought I would never recover but two surgeries and some
Thank you all so much for your posts. Lots of useful info and humour. Loved the Dolly Parton story. I am very grateful to have found people on the same journey as me who 'Get it' When I fell out of the blue and fractured my hip in August 2022 I thought I would never recover but two surgeries and some
bookbear68
in
PMRGCAuk
7 months ago
Transfer day ….
My two eggs survived to day 3…. One was 8 cell and the other 10 cell. I’ve got steroids this time so I’m really hoping it helps with NK cells. Had lap surgery a few months ago too so I’m hoping for a better environment for them will help also. So any tips now…foods to eat, things to avoid. I’ve taken
My two eggs survived to day 3…. One was 8 cell and the other 10 cell. I’ve got steroids this time so I’m really hoping it helps with NK cells. Had lap surgery a few months ago too so I’m hoping for a better environment for them will help also. So any tips now…foods to eat, things to avoid. I’ve taken
Rol81
in
Fertility Network UK
7 months ago
denosumab
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
RosettaClapp
in
CLL Support
3 months ago
Steroids and Radium 223
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
Hi Hopefully my husband will start Radium 223 in 4-6 weeks. He recently stopped abiraterone after 5 months as his PSA was doubling every month. While he was on abiraterone he was taking 2mgs of dexamethasone, although 1mg for the last month. He’s currently taking 6mgs of prednisilone but our question
NLondon43
in
Advanced Prostate Cancer
7 months ago
gp recommends her advice for every flare up
I spoke to my gp today after starting steroids two weeks ago for PMR. We discussed what to do if I have a flare up, especially when I’m tapering. She said I should contact her with any flare up, as I may need a blood test. I’ve read on the forum how you tend to manage your own dosages with flare ups.
I spoke to my gp today after starting steroids two weeks ago for PMR. We discussed what to do if I have a flare up, especially when I’m tapering. She said I should contact her with any flare up, as I may need a blood test. I’ve read on the forum how you tend to manage your own dosages with flare ups.
Freshairfiend
in
PMRGCAuk
7 months ago
PMR/Prednisolone and dental implants
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Tiggy70
in
PMRGCAuk
7 months ago
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