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Suboptimal Cortisol levels following Synacthen test
I’ve just turned 60 and used to be a sportsperson. I’ve been on predisolene for 5 1/2 years and unable to get below 5mg despite several slow attempts. My rheumy suggested a short synacthen test via Endo which was 8 months later. I barely function on 5mg with doing bare minimum, giving up my small flower
I’ve just turned 60 and used to be a sportsperson. I’ve been on predisolene for 5 1/2 years and unable to get below 5mg despite several slow attempts. My rheumy suggested a short synacthen test via Endo which was 8 months later. I barely function on 5mg with doing bare minimum, giving up my small flower
Heucera1
in
PMRGCAuk
5 months ago
Am I overdoing it?
Started my PMR journey in May 2023. Diagnosed with PMR, then in July was told my bloods didn't confirm this so advised rapid taper. Symptoms returned very quickly. End of July back on steroids 15mg. I’ve been tapering very successfully since then and am now down to 4.5mg (tapering 0.5mg every 2 weeks
Started my PMR journey in May 2023. Diagnosed with PMR, then in July was told my bloods didn't confirm this so advised rapid taper. Symptoms returned very quickly. End of July back on steroids 15mg. I’ve been tapering very successfully since then and am now down to 4.5mg (tapering 0.5mg every 2 weeks
RedRum1968
in
PMRGCAuk
5 months ago
is it back again?
I’ve been off prednisolone for almost a year now and I’m really, really stiff in the mornings and I literally hobble out of bed. During the night I wake several times with throbbing pain deep in my leg muscles and also sometimes in my arms. I feel as if it sometimes spirals round my groin and legs so
I’ve been off prednisolone for almost a year now and I’m really, really stiff in the mornings and I literally hobble out of bed. During the night I wake several times with throbbing pain deep in my leg muscles and also sometimes in my arms. I feel as if it sometimes spirals round my groin and legs so
Tayzee
in
PMRGCAuk
5 months ago
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Prickly Cuties
Hello everyoneJust popping in to show you these three cuties being lovingly cared for by a Hedgehog Rescue Centre. They've had record numbers of hedgehogs due to them coming out of hibernation too early thanx to climate change. I hope your all coping with the long waits for assessments and treatments
Hello everyoneJust popping in to show you these three cuties being lovingly cared for by a Hedgehog Rescue Centre. They've had record numbers of hedgehogs due to them coming out of hibernation too early thanx to climate change. I hope your all coping with the long waits for assessments and treatments
misty14
in
LUPUS UK
5 months ago
Chemo and diabetes
Does anyone have raised blood sugar levels as a result of taking steroids for chemotherapy? My doctor has increased my medication but my levels are still high. I wondered whether there's anything else that might help eg a particular diet. Thanks.
Does anyone have raised blood sugar levels as a result of taking steroids for chemotherapy? My doctor has increased my medication but my levels are still high. I wondered whether there's anything else that might help eg a particular diet. Thanks.
Swimbuddy
in
My Ovacome
5 months ago
feel so helpless#meds#scaring#things to avoid#recovery#help
I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad scarring all up legs which seems to be taking a very long time to heal and fade. She’s been having flareup approximately every two weeks, not as
I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad scarring all up legs which seems to be taking a very long time to heal and fade. She’s been having flareup approximately every two weeks, not as
Dizzyliddy
in
Vasculitis UK
2 months ago
Transplant Route
Hi everyone. I was diagnosed with primary MF 9 years ago and have been relatively well managed on Ruxolitinib for most of that time. Recently however my platelets have been consistently low, 37, 56, 59 and about same now. My spleen has enlarged again and I have been put on a reduced dose of Ruxolitinib
Hi everyone. I was diagnosed with primary MF 9 years ago and have been relatively well managed on Ruxolitinib for most of that time. Recently however my platelets have been consistently low, 37, 56, 59 and about same now. My spleen has enlarged again and I have been put on a reduced dose of Ruxolitinib
Cazbolac
in
MPN Voice
5 months ago
eosinophils, cough, alopecia
My health issue started first with alopecia back April 2021 when I noticed my mustache having a patch spot. Than slowly it spread all over mustache and beard towards Sept 2022. During that same time, I noticed hair start falling in clusters. Did not fall entirely but called diffuse alopecia. However
My health issue started first with alopecia back April 2021 when I noticed my mustache having a patch spot. Than slowly it spread all over mustache and beard towards Sept 2022. During that same time, I noticed hair start falling in clusters. Did not fall entirely but called diffuse alopecia. However
Ashlander
in
Living with Asthma
5 months ago
Dear Friends This is Mom asking
Hey you all ! I am a foremost a _MOM_ poster. This is the start of my post but not sure what to do or ask. Please help me and provide inputs on how to navigate with this unknown area-abyss of information. My story below. The start...My son did not get a seizure but somehow he got a cramp/crunth like
Hey you all ! I am a foremost a _MOM_ poster. This is the start of my post but not sure what to do or ask. Please help me and provide inputs on how to navigate with this unknown area-abyss of information. My story below. The start...My son did not get a seizure but somehow he got a cramp/crunth like
Haku949
in
My MSAA Community
5 months ago
Swollen red cheek andslight jaw pain on one side.
My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and swollen. Could this be a flare. She is on 20mg per day of prednisolone.
My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and swollen. Could this be a flare. She is on 20mg per day of prednisolone.
BleatingsheepMAA
in
PMRGCAuk
3 months ago
Steroids for digital ulcer
I have Reynauds, Scleroderma, and Sjogrens. I have been referred to a rheumatologist but only seen GP so far. I have been prescribed steroids (4 x 5mg per day , for 3 days, then reducing number per day) . I am in agonising pain with little effect when I take them. The pain increases in the evening
I have Reynauds, Scleroderma, and Sjogrens. I have been referred to a rheumatologist but only seen GP so far. I have been prescribed steroids (4 x 5mg per day , for 3 days, then reducing number per day) . I am in agonising pain with little effect when I take them. The pain increases in the evening
Crookedfinger
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Bile duct dilation due to steroids
Please can anyone tell me if this can happen with use of steroids. I went to A and E with chest pain, since been diagnosed with hiatus hernia the very latest in the long line of issues. they did a CT scan and came back with nothing other than Intra and extrahepatic bile duct dilation with no cause
Please can anyone tell me if this can happen with use of steroids. I went to A and E with chest pain, since been diagnosed with hiatus hernia the very latest in the long line of issues. they did a CT scan and came back with nothing other than Intra and extrahepatic bile duct dilation with no cause
gillsky8
in
PMRGCAuk
5 months ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
5 months ago
Steroids- dosage
Hi all, I'm just prepping for my 8th transfer after lots of failures and losses. I have had an intralipid infusion today, transfer on Saturday. I have been prescribed steroids (prednisolone) but only 10mg and not for long. For those who were successful, what was your dosage and for how many weeks please
Hi all, I'm just prepping for my 8th transfer after lots of failures and losses. I have had an intralipid infusion today, transfer on Saturday. I have been prescribed steroids (prednisolone) but only 10mg and not for long. For those who were successful, what was your dosage and for how many weeks please
hoping_for_our_time
in
Fertility Network UK
5 months ago
late diagnosis-too old?
hi. I have RA but this is a post about my dad. He is 73 and suddenly developed lots of swelling in his hand, pain in shoulders, pain in groin and just pain! His bloods showed RF greater than 200, inflammatory markers over 100 on each and he had a wrist ultrasound which lit up like a Christmas tree with
hi. I have RA but this is a post about my dad. He is 73 and suddenly developed lots of swelling in his hand, pain in shoulders, pain in groin and just pain! His bloods showed RF greater than 200, inflammatory markers over 100 on each and he had a wrist ultrasound which lit up like a Christmas tree with
Elmo333
in
NRAS
8 months ago
Over Exercise?!!!
Hi. I have always valued all the contributions on this site since I was diagnosed with PMR and GCA in October 2021; this is my first post. Last December I had a PET scan as my ESR and CRP had rocketed ( ESR 102 and ESR 72) and I was definitely in flare mode with increased stiffness and pain. I was put
Hi. I have always valued all the contributions on this site since I was diagnosed with PMR and GCA in October 2021; this is my first post. Last December I had a PET scan as my ESR and CRP had rocketed ( ESR 102 and ESR 72) and I was definitely in flare mode with increased stiffness and pain. I was put
Magsters123
in
PMRGCAuk
5 months ago
Thyroid issues
Hi I haven't been on here awhile due to ill health I have osteoporosis in my spine and I broke my back last year in 4 places, I'm still recovering and started treatment. Since November after a bout on steroids due to poor asthma my body has been in a go fast , palpitations,lost weight, tremors, shakes
Hi I haven't been on here awhile due to ill health I have osteoporosis in my spine and I broke my back last year in 4 places, I'm still recovering and started treatment. Since November after a bout on steroids due to poor asthma my body has been in a go fast , palpitations,lost weight, tremors, shakes
Geordieclaire12573
in
Thyroid UK
5 months ago
PMR/ Hypothroidism
Hello! I had PMR and was totally let down by doctors at surgery, I managed to wean slowly off steroids myself, after 2 years and I’ve been medication free for 8 months!!! However, I wanted to have inflammatory markers checked, had discomfort in shoulder my markers were the best they’ve ever been! Happy
Hello! I had PMR and was totally let down by doctors at surgery, I managed to wean slowly off steroids myself, after 2 years and I’ve been medication free for 8 months!!! However, I wanted to have inflammatory markers checked, had discomfort in shoulder my markers were the best they’ve ever been! Happy
Allcraft
in
PMRGCAuk
5 months ago
Advice for managing adenomyosis
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Sophia_Mama
in
Fertility Network UK
5 months ago
Drug combinations
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
tempusfugi
in
PMRGCAuk
5 months ago
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