Another update : My husband and i have finally... - CLL Support

CLL Support

22,530 members38,700 posts

Another update

Nikkij81 profile image
12 Replies

My husband and i have finally got answers we needed as last Thursday and Friday we were badly let down by the medical professionals. Monday afternoon this week finally saw a cll specialist and was fully informed of what was going on he was severely anaemic and is currently on steroids as basically his white cells are attacking his red cells also has a large lymph node on his kidney also on folic acid aswell got a petscan in a weeks time and then will get to know what and when his treatment will start

Written by
Nikkij81 profile image
Nikkij81
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Takingchances profile image
Takingchances

Glad you have some answers, keep us updated good luck to your husband

Nikkij81 profile image
Nikkij81 in reply to Takingchances

Thank you and I certainly will

Poodle2 profile image
Poodle2

Happy to hear they are dealing with the issues now. Praying that he can start treatment and he starts feeling better soon. 🙏🏻

Nikkij81 profile image
Nikkij81

Thank you

Hilo13 profile image
Hilo13

I feel your frustration believe me good luck will bethinking of you

Nikkij81 profile image
Nikkij81

Thank you

Sanders9 profile image
Sanders9

So sorry you have had to battle to get to this point. I hope you get the answers you need and your husband gets the right treatment. Keep engaging positively with the health professionals in this waiting period as the wheel that squeaks loudest gets heard. Keep us updated. Here if you need to vent

Nikkij81 profile image
Nikkij81 in reply to Sanders9

It was so scary not knowing but we are a little calmer now and thank you

Thursday45 profile image
Thursday45

At least you know what is going on now. Wishing your husband all the best.

Nikkij81 profile image
Nikkij81

Thank you

spi3 profile image
spi3

So glad you now see a CLL Specialist and praying for a quick recovery for your husband and peace of mind to you both

Nikkij81 profile image
Nikkij81

Thank you

You may also like...

another quick update

haematologist has requested as she tells me it’s lymph nodes that are fused together? Please if...

Update

yesterday and all went well his haemoglobin has stabilised and also his white cell count has stayed...

An update

informed that his haemoglobin had gone down dramatically from 113 to 67 and his white cell count...

Update

has been for his 3 monthly check up.  He has been on Idelalisib for 9 months now and his bloods are...

Update.

aside my latest counts are Haemoglobin - 141, White cell count - 5.9. Platelets - 202. But there...