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Flare treatment
Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like my steroids, HRT snd Levothyroxine have all suddenly stopped working and my mood has plummeted. Suspect it might be adrenal glands but now have a PMR flare to deal with. I had a dose of cold couple of months ago and some
Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like my steroids, HRT snd Levothyroxine have all suddenly stopped working and my mood has plummeted. Suspect it might be adrenal glands but now have a PMR flare to deal with. I had a dose of cold couple of months ago and some
Body_bonkers
in
PMRGCAuk
2 months ago
Sore top of the head / scalp after steroids
Hi all, Just wondering if anyone has a sore top of the head / scalp after they take steroids? I added this comment to my main post about Mum's health but wanted to open a new one just incase anyone else has experienced this ache. Have a great weekend.
Hi all, Just wondering if anyone has a sore top of the head / scalp after they take steroids? I added this comment to my main post about Mum's health but wanted to open a new one just incase anyone else has experienced this ache. Have a great weekend.
quicklyinsignificant
in
Thyroid UK
2 months ago
Inhalers
Hi, Three years ago I developed severe asthma which lead to me being hospitalised 4 times in 18 months and having to have I'v steroids and antibiotics subsequently I've been diagnosed with brocho malaria and adrenal insufficiency. My consultant put me on spiriva respimant, symbicort and Alvesco inhalers
Hi, Three years ago I developed severe asthma which lead to me being hospitalised 4 times in 18 months and having to have I'v steroids and antibiotics subsequently I've been diagnosed with brocho malaria and adrenal insufficiency. My consultant put me on spiriva respimant, symbicort and Alvesco inhalers
McMD
in
Asthma Community Forum
2 months ago
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STUCK IN A PRED RUT
I first posted in 2018.. Since then I have managed to reduce from 20mg with pain and flares to 7mg. I am having nose bleeds and the ENT Consultant has told me to ‘get off’ the steroids. I have for the last 10 days 1/4mg daily reduction. It has been agony. Shoulder and upper leg pain, brain fog
I first posted in 2018.. Since then I have managed to reduce from 20mg with pain and flares to 7mg. I am having nose bleeds and the ENT Consultant has told me to ‘get off’ the steroids. I have for the last 10 days 1/4mg daily reduction. It has been agony. Shoulder and upper leg pain, brain fog
Pmrmolly2018
in
PMRGCAuk
2 months ago
MRI to Check things out
Well I had the MRI this morning. To be honest I was in a lot of pain with the plexopathy and found it difficult to stay still during the scan. I developed pins and needles during it too in my right hand. I'm also suffering vertigo so felt incrediblynauseous when i laid down and got up slowly from the
Well I had the MRI this morning. To be honest I was in a lot of pain with the plexopathy and found it difficult to stay still during the scan. I developed pins and needles during it too in my right hand. I'm also suffering vertigo so felt incrediblynauseous when i laid down and got up slowly from the
Viklou
in
My MSAA Community
2 months ago
Flare caused by stress and overexertion
hello all, I was diagnosed with PMR in April 2020 and spent 3 years on steroids. Using lots of advice from this site I have been off steroids and pain free for just over a year. My exercise tolerance was back to normal and long walks , even uphill were not a problem. Unfortunately the last few weeks
hello all, I was diagnosed with PMR in April 2020 and spent 3 years on steroids. Using lots of advice from this site I have been off steroids and pain free for just over a year. My exercise tolerance was back to normal and long walks , even uphill were not a problem. Unfortunately the last few weeks
larkthebark
in
PMRGCAuk
2 months ago
Pain following Asthma Attack
Hi I had an bad attack 4 weeks ago and stupidly went about my day and worked through it, after 5 days I gave in and had to go off work sick. I contacted my gp who gave me steroids and antibiotics. but 4 weeks on im on 2nd lot of antibiotics and 3rd course of steroids now on weening dose. im still not
Hi I had an bad attack 4 weeks ago and stupidly went about my day and worked through it, after 5 days I gave in and had to go off work sick. I contacted my gp who gave me steroids and antibiotics. but 4 weeks on im on 2nd lot of antibiotics and 3rd course of steroids now on weening dose. im still not
tigga61
in
Living with Asthma
2 months ago
Ok to take Rennies?
Just started on oral steroids and wondered if anyone knows if it's OK to use Rennies for minor indigestion?, I mean, not loads, just occasionally?
Just started on oral steroids and wondered if anyone knows if it's OK to use Rennies for minor indigestion?, I mean, not loads, just occasionally?
Fluffontoast
in
NRAS
2 months ago
methotrexate advice
I’ve been on steroids for six months since being diagnosed with PMR. I’ve had a lot of difficulties with them and have been referred to rheumatology. The consultant is going to try me on methotrexate. I’d be grateful for any tipis, suggestions, advice from anyone who has tried methotrexate. I know it
I’ve been on steroids for six months since being diagnosed with PMR. I’ve had a lot of difficulties with them and have been referred to rheumatology. The consultant is going to try me on methotrexate. I’d be grateful for any tipis, suggestions, advice from anyone who has tried methotrexate. I know it
Freshairfiend
in
PMRGCAuk
2 months ago
inflammation on hydroxychloroquine and 5mg of prednisolone
hello, I saw my rheumatologist today after complaining about my painful hands and wrists. The doctor mentioned that I don’t show any signs of inflammation on my hands or anywhere else. The reason I am confused is because I have been on hydroxychloroquine and prednisolone since September of last year
hello, I saw my rheumatologist today after complaining about my painful hands and wrists. The doctor mentioned that I don’t show any signs of inflammation on my hands or anywhere else. The reason I am confused is because I have been on hydroxychloroquine and prednisolone since September of last year
Morepasta
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
91% of lupus patients report using steroids to manage symptoms
Global survey highlights urgent need for treatments with fewer side effects About 91% of lupus patients report they are currently taking or had been using oral steroids to manage their symptoms, according to a global survey of more than 7,700 patients. The World Lupus Federation (WLF) released findings
Global survey highlights urgent need for treatments with fewer side effects About 91% of lupus patients report they are currently taking or had been using oral steroids to manage their symptoms, according to a global survey of more than 7,700 patients. The World Lupus Federation (WLF) released findings
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Sick sick sick
Well it's been a long time since I had awful flares. 4 weeks of severe asthma chrmest inflammation, skin inflammation, bowel inflammation, joint inflammation, eye and ear inflammation.. Been horrible but genius rheumy has given me 3 weeks of antibiotics and high dose oral steroids. Next week tcz infusion
Well it's been a long time since I had awful flares. 4 weeks of severe asthma chrmest inflammation, skin inflammation, bowel inflammation, joint inflammation, eye and ear inflammation.. Been horrible but genius rheumy has given me 3 weeks of antibiotics and high dose oral steroids. Next week tcz infusion
allanah
in
NRAS
2 months ago
How do you deal with a very dry mouth?
Hi I’ve been on the PMR sight for a year , after Gp said I had it . Put on steroids & have had appointments with rheumatologist. After blood tests, scans & X-rays the rheumatologist says I have rotator cuff disease which being referred to shoulder surgeon and more than likely sjogrens. Blood test
Hi I’ve been on the PMR sight for a year , after Gp said I had it . Put on steroids & have had appointments with rheumatologist. After blood tests, scans & X-rays the rheumatologist says I have rotator cuff disease which being referred to shoulder surgeon and more than likely sjogrens. Blood test
TedTheMaineCoon
in
Sjogren's Support
2 months ago
Swapping/stopping mtx
Hello, I don’t often post here but I’m feeling very low and need some advice. I’ve had RA since 2012 (diagnosed at 32), I was started on mtx and then Sulfasalazine was added and 5 years ago enatercept, things haven’t been that bad apart from I’ve been really breathless and breathing heavy for the past
Hello, I don’t often post here but I’m feeling very low and need some advice. I’ve had RA since 2012 (diagnosed at 32), I was started on mtx and then Sulfasalazine was added and 5 years ago enatercept, things haven’t been that bad apart from I’ve been really breathless and breathing heavy for the past
Scooooby
in
NRAS
2 months ago
I think it’s PPMS
Hello, my name is Danny and I’m 44yrs old. About 18m ago I started to noticed when running my left leg started to ache more. More recently after a long walk the toes on my left foot would slap down. I had an issue exasperation with stiffness in both legs, weakness in my right arm and double vision
Hello, my name is Danny and I’m 44yrs old. About 18m ago I started to noticed when running my left leg started to ache more. More recently after a long walk the toes on my left foot would slap down. I had an issue exasperation with stiffness in both legs, weakness in my right arm and double vision
Ramdogg
in
My MSAA Community
2 months ago
Meniscus tear/PMR flare update
I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I had requested more 5mg pred tablets on the MyGP app and last Friday got a call from the pharmacist at my GP surgery to say doctor wants me to drop to 4mg for 4 weeks then taper down every four weeks!! This was the GP who
I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I had requested more 5mg pred tablets on the MyGP app and last Friday got a call from the pharmacist at my GP surgery to say doctor wants me to drop to 4mg for 4 weeks then taper down every four weeks!! This was the GP who
Mfaepink1973
in
PMRGCAuk
2 months ago
Double diagnosis
Hi has anyone on here been diagnosed with both RA and psoriatic arthritis? If so would you mind telling me what drugs you are on? I am seropositive rheumatoid but I have been in a flare since my shingles jab in Jan. I recently started with additional difficulty with my tendons in my ankles and significant
Hi has anyone on here been diagnosed with both RA and psoriatic arthritis? If so would you mind telling me what drugs you are on? I am seropositive rheumatoid but I have been in a flare since my shingles jab in Jan. I recently started with additional difficulty with my tendons in my ankles and significant
Shelby37
in
NRAS
2 months ago
Stereotypes, getting older and illness
Hi, I just had a thought about the psychological effects of experiencing a chronic illness. When I experienced 3 months of undiagnosed PMR 2 years ago the effects were very debilitating and I remember thinking this must be it- its game over. Then came the thought if ever I get well enough just to go
Hi, I just had a thought about the psychological effects of experiencing a chronic illness. When I experienced 3 months of undiagnosed PMR 2 years ago the effects were very debilitating and I remember thinking this must be it- its game over. Then came the thought if ever I get well enough just to go
Animalover65
in
PMRGCAuk
2 months ago
Does PMR affect one side of your body more than the other ?
I have only just been diagnosed two weeks ago but I have noticed a distinct difference in how PMR is affecting my RHS more than my left . And how long the steroids are taking to kick in in the morning . I’m doing 5mg at 2am and the rest whenever I wake , normally between 5 and 6 am with no real
I have only just been diagnosed two weeks ago but I have noticed a distinct difference in how PMR is affecting my RHS more than my left . And how long the steroids are taking to kick in in the morning . I’m doing 5mg at 2am and the rest whenever I wake , normally between 5 and 6 am with no real
Murphysauntie
in
PMRGCAuk
2 months ago
..... and now the next thing comes along !!
Hi, As if I thought things could not get any worse, I have just been diagnosed with sciatica, having suffered with the PMR for the past year and wondered if anyone has suffered from this having PMR as well, so if they are related or not. ? Would it be possible also that could be a PMR flare ? although
Hi, As if I thought things could not get any worse, I have just been diagnosed with sciatica, having suffered with the PMR for the past year and wondered if anyone has suffered from this having PMR as well, so if they are related or not. ? Would it be possible also that could be a PMR flare ? although
gillsky8
in
PMRGCAuk
2 months ago
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