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Stem cell and bone marrow transplants
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Oxygen and Holidays
Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are
Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are
mary1956
in
Lung Conditions Community Forum
3 years ago
COVID-19 patient receives lung transplant from living donors.
Doctors in Japan announced Thursday they have successfully performed the world’s first transplant of lung tissue from living donors to a patient with severe lung damage from COVID-19. The recipient, identified only as a woman from Japan’s western region of Kansai, is recovering after the nearly 11-hour
Doctors in Japan announced Thursday they have successfully performed the world’s first transplant of lung tissue from living donors to a patient with severe lung damage from COVID-19. The recipient, identified only as a woman from Japan’s western region of Kansai, is recovering after the nearly 11-hour
2greys
in
Lung Conditions Community Forum
3 years ago
Dangers of drinking alcohol with a kidney transplant ?
What are peoples experiences with drinking alcohol ? My son is 21 and doing very well 9 months post kidney transplant. I know he will feel peer pressure to perhaps imbibe on occasion. What are the dangers? I am worried he will make a bad decision and not much I can do about it.
What are peoples experiences with drinking alcohol ? My son is 21 and doing very well 9 months post kidney transplant. I know he will feel peer pressure to perhaps imbibe on occasion. What are the dangers? I am worried he will make a bad decision and not much I can do about it.
Qdog
in
Kidney Transplant
3 years ago
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Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Kidney Recipients
HI. I'm looking to chat with people who have had kidney transplants to find out about what it was like from pre-op to surgery to recovery to life after transplant. Thanks.
HI. I'm looking to chat with people who have had kidney transplants to find out about what it was like from pre-op to surgery to recovery to life after transplant. Thanks.
Hidden
in
Kidney Transplant
3 years ago
Information for people in the UK on Tocilizumab (Ro-Actemra) injections
Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been prescribed subcutaneous Tocilizumab injections, I have a couple of items of news. First of all, along with my husband, I have been a participant
Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been prescribed subcutaneous Tocilizumab injections, I have a couple of items of news. First of all, along with my husband, I have been a participant
Suzita76
in
PMRGCAuk
3 years ago
The Rice Diet Revisited- Who & what drove Dr. Kempner to invent the Rice Diet!
Dr Walter Kempner ( 1903-1997) was Nazi Refugee in Germany during world war-2, who taught in Dukes University. During 1939, he was treating his hypertension Patients with Kidney failure. Those days there was no kidney transplant , no dialysis....and the patients those days knew that the final outcome
Dr Walter Kempner ( 1903-1997) was Nazi Refugee in Germany during world war-2, who taught in Dukes University. During 1939, he was treating his hypertension Patients with Kidney failure. Those days there was no kidney transplant , no dialysis....and the patients those days knew that the final outcome
namaha
Administrator
in
Diabetes India
3 years ago
Struggling with ectopics and enlarged left ventricle
Hello, I am new to this group. I am feeling very nervous and worried as I have been struggling for sometime with ectopic beats, now been told my left ventricle is enlarged as is my heart. Hoping medication will improve things, otherwise I will be placed on the heart transplant list. I am 48 and had surgery
Hello, I am new to this group. I am feeling very nervous and worried as I have been struggling for sometime with ectopic beats, now been told my left ventricle is enlarged as is my heart. Hoping medication will improve things, otherwise I will be placed on the heart transplant list. I am 48 and had surgery
andrea_waffle7
in
British Heart Foundation
3 years ago
Hepatic encephalopathy
My dad has decompensated liver disease and is awaiting a liver transplant. He is currently in hospital due to a serious gallbladder infection and internal bleeds. He has acities and had an abdominal tap placed Saturday. The medical team appear pleased that there is some progress with this. Today we
My dad has decompensated liver disease and is awaiting a liver transplant. He is currently in hospital due to a serious gallbladder infection and internal bleeds. He has acities and had an abdominal tap placed Saturday. The medical team appear pleased that there is some progress with this. Today we
HH21
in
British Liver Trust
3 years ago
What Immunocompromised People Should Know About the CDC Recommendations for Fully Vaccinated People
It may not be time to ease up on your COVID-19 mitigation efforts quite yet. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Guidelines for Fully Vaccinated Immunocompromised People Tatiana Ayazo The U.S. Centers for Disease Control and
It may not be time to ease up on your COVID-19 mitigation efforts quite yet. Learn more about our FREE COVID-19 Patient Support Program for chronic illness patients and their loved ones. Guidelines for Fully Vaccinated Immunocompromised People Tatiana Ayazo The U.S. Centers for Disease Control and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
A Happy Rebirthday message from Jaycee.
Many of you may remember Jaycee. She used to be a frequent contributor on this site. She has asked me to pass on a message. On this day in 2019, at the ripe young age of 68, Jaycee underwent her liver transplant The months leading up to that transplant was indeed a worrying time, full of uncertainties
Many of you may remember Jaycee. She used to be a frequent contributor on this site. She has asked me to pass on a message. On this day in 2019, at the ripe young age of 68, Jaycee underwent her liver transplant The months leading up to that transplant was indeed a worrying time, full of uncertainties
Richard-Allen
in
British Liver Trust
3 years ago
Living in the USA with CLL and want to know where to sign up for your COVID-19 Vaccination? A State-by-State List
[/i] [i]- Severely immunocompromised cancer patients, such as those who recently received a
stem
cell
transplant
, should receive the COVID-19 vaccine, but they should discuss with their oncologist the optimal timing to receive the vaccine.
[/i] [i]- Severely immunocompromised cancer patients, such as those who recently received a
stem
cell
transplant
, should receive the COVID-19 vaccine, but they should discuss with their oncologist the optimal timing to receive the vaccine.
AussieNeil
Partner
in
CLL Support
4 years ago
New transplant hooray
Hi. I just got my kidney transplant on Valentines day 2021. Just wanted to say hi.
Hi. I just got my kidney transplant on Valentines day 2021. Just wanted to say hi.
snowbound
in
Kidney Transplant
3 years ago
Low Oxygen Levels
I’m getting very worried about my oxygen levels. I have chronic hypersensitivity Pneumonitis with Fibrosis. On 24 hour oxygen and on lung transplant list. Trying to stay fit to help with the post operative recovery but the slightest activity now makes my SAT’s plummet. Despite using the oxygen, my levels
I’m getting very worried about my oxygen levels. I have chronic hypersensitivity Pneumonitis with Fibrosis. On 24 hour oxygen and on lung transplant list. Trying to stay fit to help with the post operative recovery but the slightest activity now makes my SAT’s plummet. Despite using the oxygen, my levels
mary1956
in
Lung Conditions Community Forum
3 years ago
Diabetes Type 2, PD and Berberine
Diabetes is a common disease that affects many Americans and 90 to 95% of diabetics have Type 2 Diabetes Mellitus (T2DM). I will be discussing T2DM and one option to help deal with it effectively based on multiple studies. Type 1 Diabetes (T1D) is significantly less common so I will focus this discussion
Diabetes is a common disease that affects many Americans and 90 to 95% of diabetics have Type 2 Diabetes Mellitus (T2DM). I will be discussing T2DM and one option to help deal with it effectively based on multiple studies. Type 1 Diabetes (T1D) is significantly less common so I will focus this discussion
chartist
in
Cure Parkinson's
3 years ago
Kidney Transplant advice
My mum had a kidney transplant 15 years ago the Doctors tell us that it is now running at 30% would they not consider putting her on dialysis
My mum had a kidney transplant 15 years ago the Doctors tell us that it is now running at 30% would they not consider putting her on dialysis
YveCoffee
in
Couch to 5K
3 years ago
Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
UniversallyPersonal
in
CLL Support
4 years ago
Immunogenicity of COVID-19 Vaccine in Organ Transplant Recipients
Immunogenicity of a Single Dose of SARS-CoV-2 Messenger RNA Vaccine in Solid Organ Transplant Recipients https://jamanetwork.com/journals/jama/fullarticle/2777685 “In this study of immunogenicity of the first dose of the mRNA SARS-CoV-2 vaccine among solid organ transplant recipients, the majority
Immunogenicity of a Single Dose of SARS-CoV-2 Messenger RNA Vaccine in Solid Organ Transplant Recipients https://jamanetwork.com/journals/jama/fullarticle/2777685 “In this study of immunogenicity of the first dose of the mRNA SARS-CoV-2 vaccine among solid organ transplant recipients, the majority
Kidney2014
in
Kidney Transplant
3 years ago
New to group
Hi I have just discovered this group and for my first post I though I would post my heart problems story. Last year I was diagnosed with Dilated Cardiomyopathy and had a severe case of heart failure. I had just turned 38 at the time. I had a bad case of flu for a few weeks before the diagnosis. All
Hi I have just discovered this group and for my first post I though I would post my heart problems story. Last year I was diagnosed with Dilated Cardiomyopathy and had a severe case of heart failure. I had just turned 38 at the time. I had a bad case of flu for a few weeks before the diagnosis. All
HarryJK
in
British Heart Foundation
3 years ago
Quick Question to anyone previously shielding, over 70 and in Scotland
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Froggie70
in
LUPUS UK
4 years ago
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