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Sialic acid storage disorders
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Zoledronic Acid - rare side effects?
I had an infusion on 1 March 2023 in the UK....and immediately had awful muscle pain and stomach issues - including vomiting, nausea, feeling of grit rubbing my stomach wall, severe stomach distension and pain on eating, loss of appetite, change in taste, alternating constipation and diarrhoea. I am
I had an infusion on 1 March 2023 in the UK....and immediately had awful muscle pain and stomach issues - including vomiting, nausea, feeling of grit rubbing my stomach wall, severe stomach distension and pain on eating, loss of appetite, change in taste, alternating constipation and diarrhoea. I am
Green_girl
in
Bone Health and Osteoporosis UK
6 months ago
Is all the extra medication needed?
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Stargiver
in
PMRGCAuk
6 months ago
Help needed
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Tedsgran
in
Bone Health and Osteoporosis UK
6 months ago
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Experiances with Kaiser SF?
Hi All, I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens
Hi All, I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens
trregan
in
Prostate Cancer Network
9 months ago
Itching for answers.... thankyou!
(Me = 80/JAK2 /ET/Hydroxycarbamide for 13years) I am very grateful to everyone that has replied to my list of queries about itching/pruritis. I have been aware for some years that it is a subject that has been repeatedly raised but felt that there did not seem to be a firm definition of cause or solution
(Me = 80/JAK2 /ET/Hydroxycarbamide for 13years) I am very grateful to everyone that has replied to my list of queries about itching/pruritis. I have been aware for some years that it is a subject that has been repeatedly raised but felt that there did not seem to be a firm definition of cause or solution
quanglewangle
in
MPN Voice
6 months ago
Is there a chat network for people with osteoporosis in England?
I have just been diagnosed with osteoporosis and my Dr prescribed Alendronic Acid 70 mg once a week, but after reading the side affects of taking it am unsure whether to take them. So far I have only broken my wrist bone about ten years ago when I had a fall, I have small aches and pains and have neuropathy
I have just been diagnosed with osteoporosis and my Dr prescribed Alendronic Acid 70 mg once a week, but after reading the side affects of taking it am unsure whether to take them. So far I have only broken my wrist bone about ten years ago when I had a fall, I have small aches and pains and have neuropathy
Mylovelys
in
Bone Health and Osteoporosis UK
6 months ago
alendronic acid
I have lichen planus in my mouth. Will alendronic acid make it worse
I have lichen planus in my mouth. Will alendronic acid make it worse
Ambiwalker
in
Bone Health and Osteoporosis UK
6 months ago
Alendronic acid tablets 😠
I’ve been taking these for a few months and understand that they have to be swallowed properly, and whilst upright, as they can cause problems in the oesophagus. Does anyone one else struggle with these blooming things, even with loads of water etc. Why oh why do they have to be the size of a horse
I’ve been taking these for a few months and understand that they have to be swallowed properly, and whilst upright, as they can cause problems in the oesophagus. Does anyone one else struggle with these blooming things, even with loads of water etc. Why oh why do they have to be the size of a horse
Cfmad298601
in
PMRGCAuk
6 months ago
My MPN family need help/advice for natural way to treat minor Osteoporosis.
Happy New Year to you all and may it be a great one. I recently had a Dexa Scan and result is minor of Osteoporosis I guess that would be Osteopenia. Suggestion is by my GP to take Alendronic Acid, which after reading information about it raised many questions. Can i take it or there is more kinder
Happy New Year to you all and may it be a great one. I recently had a Dexa Scan and result is minor of Osteoporosis I guess that would be Osteopenia. Suggestion is by my GP to take Alendronic Acid, which after reading information about it raised many questions. Can i take it or there is more kinder
light
in
MPN Voice
6 months ago
ED after SBRT?
Hi All, I am still debating AS vs SBRT at this time, although My urologist and RO plus NY Proton Center are telling me I should move forward with treatment. My urologist put me on Cialis to help with a bit of an enlarged prostate and slower urinary flow. It seems to have helped. I saw on a Prostate
Hi All, I am still debating AS vs SBRT at this time, although My urologist and RO plus NY Proton Center are telling me I should move forward with treatment. My urologist put me on Cialis to help with a bit of an enlarged prostate and slower urinary flow. It seems to have helped. I saw on a Prostate
LBRV711
in
Prostate Cancer Network
9 months ago
Treating muscle pain post zoledronic acid infusion
I had my first zoledronic acid infusion just over 24 hours ago. I was recommended to take some paracetamol before bed, which I did. I had some migraine associated visual disturbances just before I turned my light out, but slept through OK. This morning I developed a headache, so took more paracetamol
I had my first zoledronic acid infusion just over 24 hours ago. I was recommended to take some paracetamol before bed, which I did. I had some migraine associated visual disturbances just before I turned my light out, but slept through OK. This morning I developed a headache, so took more paracetamol
Angel_doll
in
PMRGCAuk
6 months ago
Having pain for 3/4 weeks
Hello, I was wondering if anyone else struggle with pain when they are not on their period. I struggle with cramps, lower back pain and hip pain the week before my period, the week of my period and the week after so I seem to only get 1 week out of 4 where I'm not in pain. I had an internal ultrasound
Hello, I was wondering if anyone else struggle with pain when they are not on their period. I struggle with cramps, lower back pain and hip pain the week before my period, the week of my period and the week after so I seem to only get 1 week out of 4 where I'm not in pain. I had an internal ultrasound
Lucyfield11
in
Endometriosis UK
6 months ago
Hysteroscopy bleeding
Hi everyone!I had hysteroscopy on 14th of December to remove polyp. It was a but painful (I went without sedation) but bearable and quick. Had no bleeding afterwards. On 19th of December I had my first day of periods, as it was due. And on the second day I had so much blood and so many clots that I went
Hi everyone!I had hysteroscopy on 14th of December to remove polyp. It was a but painful (I went without sedation) but bearable and quick. Had no bleeding afterwards. On 19th of December I had my first day of periods, as it was due. And on the second day I had so much blood and so many clots that I went
Shadaelle
in
Endometriosis UK
6 months ago
Omeprazole query
Recently diagnosed and on prednisolone; also prescribed Alendronic acid (weekly dose) and Omeprazole. I thought my GP said that as I have no history of gastric problems to only take the Omeprazole in the evening before I take the alendronic acid the next day. But she has prescribed enough for once daily
Recently diagnosed and on prednisolone; also prescribed Alendronic acid (weekly dose) and Omeprazole. I thought my GP said that as I have no history of gastric problems to only take the Omeprazole in the evening before I take the alendronic acid the next day. But she has prescribed enough for once daily
Wheelygood99
in
PMRGCAuk
6 months ago
Zoledronic acid plus teriparatide
Hi everyone, newbie here. My wife is about to go onto treatment for fairly severe osteoporosis after a fall involving fractures to 3 lumbar vertebrae. According to a letter from her consultant to her GP, the consultant seemingly wants her to go onto zoledronic acid plus teriparatide. We're due to discuss
Hi everyone, newbie here. My wife is about to go onto treatment for fairly severe osteoporosis after a fall involving fractures to 3 lumbar vertebrae. According to a letter from her consultant to her GP, the consultant seemingly wants her to go onto zoledronic acid plus teriparatide. We're due to discuss
tcpace
in
Osteoporosis Support
6 months ago
DX 5 years on Dec 26th. What I’ve learned about my PD. Please Read! It might be helpful.
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
38yroldmale
in
Cure Parkinson's
6 months ago
Good news on the bone density front
Hi, this group is helpful and supportive and feels like an extended family. So I just wanted to share a bit of good news. I had a DXA 18 months ago not long after starting Prednisolone and my scores were: -0.1 in the spine which was healthy but not so good in the hip: -1.9 Total Hip T score
Hi, this group is helpful and supportive and feels like an extended family. So I just wanted to share a bit of good news. I had a DXA 18 months ago not long after starting Prednisolone and my scores were: -0.1 in the spine which was healthy but not so good in the hip: -1.9 Total Hip T score
Animalover65
in
PMRGCAuk
6 months ago
Latest Results for Advice
December 2023
TSH
2.240
mIU/L - (Range: 0.27 - 4.2) Free T3 X
2.9
pmol/L - (Range: 3.1 - 6.8) Free Thyroxine
18.2
pmol/L - (Range: 12 - 22) CRP HS
0.974
mg/L - (Range: < 3) Ferritin
144.00
ug/L - (Range: 30 - 650) Folate - Serum
33.5
nmol/L - (
December 2023
TSH
2.240
mIU/L - (Range: 0.27 - 4.2) Free T3 X
2.9
pmol/L - (Range: 3.1 - 6.8) Free Thyroxine
18.2
pmol/L - (Range: 12 - 22) CRP HS
0.974
mg/L - (Range: < 3) Ferritin
144.00
ug/L - (Range: 30 - 650) Folate - Serum
33.5
nmol/L - (
Albaangel
in
Thyroid UK
6 months ago
Sifrol (Pramipexole) and Gambling addiction
Hi I am new here and at rock bottom. I've been prescribed Sifrol for Restless Legs Syndrome for, at a guess 4-5 years. During this time I have developed a gambling addiction which has worsened. Issue is I also have anxiety/depression and medicated for this also, this condition has not stemmed from
Hi I am new here and at rock bottom. I've been prescribed Sifrol for Restless Legs Syndrome for, at a guess 4-5 years. During this time I have developed a gambling addiction which has worsened. Issue is I also have anxiety/depression and medicated for this also, this condition has not stemmed from
KPPA
in
Restless Legs Syndrome
2 days ago
Disopyramide Replacement?
Hi all, I have been on Disopyramide (Rhythmodan Retard 250mg) for the past 5/6 years, but now finding it almost impossible to obtain from the pharmacists in the Wiltshire area, so I am looking for an alternative. Back in January, my GP switched me to Bisprolol, but that didn't work as its rate rather
Hi all, I have been on Disopyramide (Rhythmodan Retard 250mg) for the past 5/6 years, but now finding it almost impossible to obtain from the pharmacists in the Wiltshire area, so I am looking for an alternative. Back in January, my GP switched me to Bisprolol, but that didn't work as its rate rather
DE-AF
in
Atrial Fibrillation Support
4 days ago
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