Experiances with Kaiser SF?

[trregan]

Hi All,

I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens. They did not suggest cialis and seem unconcerned about any sexual functioning.

I'm 74, the psa is .3 and the rest of me is in ok shape. My question is about the long term use of Flomax and the unlikely event that I will every have any sort of erection.

Appreciate your comments.

T

[Tall_Allen]

I found that one Rapaflo worked better than 2 Flomax, but everyone's different.

Why is your libido shot? Are you taking ADT?

Can you get erections with ED meds? with Trimix?

[trregan in reply to Tall_Allen]

Not on ADT. Haven't tried ED meds or Trimix...My testerone is low and Kaiser doctors have not mentioned or inquired about my libido, etc.

[Tall_Allen in reply to trregan]

How low is your T? Was it that low before therapy?

I took low-dose Viagra for 9 months as protective of my penile blood vessels. Maybe email this to your urologist:

auajournals.org/article/S00...

[trregan in reply to Tall_Allen]

Oct 12, 2023

340ng/dL <=19 ng/dL

Jul 26, 2023

436ng/dL <=19 ng/dL

Apr 17, 2023

366ng/dL<=19 ng/dL

Oct 12, 2022 and Sept 2022

<20ng/dL<=19 ng/dL

April 7,2022 275 ng/dl

[Tall_Allen in reply to trregan]

So, if I'm reading that correctly, your T level is normal. Have you discussed your lack of libido with a psychotherapist?

[EdinBmore]

Similar experience with docs not talking about sex. I don't get it. Anyhoo, you might want to consider ED meds (a study I was in recommended 60 mg of sildenifil 3 times a wk), penis pump, watch porn, masturbate. Got to keep the blood flowing. And, it might be worthwhile to find a counselor who knows about the impact of PCa on our bodies and minds. Don't suffer in silence.

Good luck to you.

EdinBaltimore

[BanjoPicker]

I found that Kaiser was giving minimal care to both me and my wife. Switched to Sutter six years ago. Still need to insist on treatments I want to pursue, but find Sutter more responsive than Kaiser.

[Baldylocks]

From what I read here for the most part you and I track the same course except a very few years apart and my arousal came from females. I was put on flomax and daily cialis to avoid the exact symptoms you’ve feared. Coming up on my first year since release from treatment I am still on flomax and cialis. I was told without the flomax I would suffer to urinate and without play and stimulation of my penis (of course this includes stimuli for mental arousal) this the daily pill. Did you have a strong libido prior to treatment? Did you masturbate before? Someone here suggested watching porn, is that something you’re into or perhaps some other form of erotica? Is there a sexual partner in your life? Obviously you don’t need to respond here but answer these questions to yourself. Every bit of my sexual interest changed after treatment and I’ve found a course that works for me, you can too. More often than not our health team shy away from deep discussions on our sexual health. As one oncologist on my team told me “our concentration is saving your life”. I get it, the sex is only important to us after we’re put right to live. HealthUnlocked is that good place to find encouragement and answers to fit your needs, I’ve found it to be so and can never say enough to thank you all.

Best to you