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Sialic acid storage disorders
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Selegiline run out
I was told recently by my pharmacist they couldn't get any Selegiline and to ask my GP for an alternative. I still have 60 10mg tablets left and will have to inform GP soon. (I'm still waiting on my first appointment with neurologist in my new location, been waiting months as unfortunately I had to
I was told recently by my pharmacist they couldn't get any Selegiline and to ask my GP for an alternative. I still have 60 10mg tablets left and will have to inform GP soon. (I'm still waiting on my first appointment with neurologist in my new location, been waiting months as unfortunately I had to
Ardbeg28
in
Cure Parkinson's
1 year ago
The lonely cycle
I've struggled with anxiety and depression my entire life but I spent most of my 20s using drugs and alcohol as a coping mechanism. I still have some substance abuse issues but the more I deal with those the more overwhelming the depression and anxiety is. I can't seem to keep my home clean or up on
I've struggled with anxiety and depression my entire life but I spent most of my 20s using drugs and alcohol as a coping mechanism. I still have some substance abuse issues but the more I deal with those the more overwhelming the depression and anxiety is. I can't seem to keep my home clean or up on
ekhctohct
in
Anxiety and Depression Support
1 year ago
Alendronic Acid
After a Dexa scan report my rheumatologist said she thought I should start on Alendronic acid as I was just borderline for osteoporosis. My mother has it and her spine is crumbling so I thought it sounded like a good idea. Was I bit worried when I got the medication but went ahead and started. I had
After a Dexa scan report my rheumatologist said she thought I should start on Alendronic acid as I was just borderline for osteoporosis. My mother has it and her spine is crumbling so I thought it sounded like a good idea. Was I bit worried when I got the medication but went ahead and started. I had
Gilliancheche
in
NRAS
1 year ago
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preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
1 year ago
Introduction
Hello, My name is Chris, and I am a recovering alcoholic, with 8 and a half years, I am really struggling with anxiety, PTSD, depression, and lately just “confusion”.
Hello, My name is Chris, and I am a recovering alcoholic, with 8 and a half years, I am really struggling with anxiety, PTSD, depression, and lately just “confusion”.
LMTFAP
in
Anxiety and Depression Support
7 months ago
PD sucks
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
reefeye
in
Cure Parkinson's
11 months ago
**TW** TFMR Trisomy 18 help needed
Hi,Not the update I wanted to post. A very detailed anatomy scan today showed positive signs for Trisomy 18. The consultant said he was sorry and gave me my options. I've chosed to terminate the pregnancy for medical reasons as this abnormality isn't compatible with life. I'm absolutely heartbroken
Hi,Not the update I wanted to post. A very detailed anatomy scan today showed positive signs for Trisomy 18. The consultant said he was sorry and gave me my options. I've chosed to terminate the pregnancy for medical reasons as this abnormality isn't compatible with life. I'm absolutely heartbroken
Molliemoo85
in
Fertility Network UK
1 year ago
20 July 2023 Every little bit helps
G'day my ms family. How are YOU today? No, how are YOU really? I know I do not tell my wife every little thing and I know it works the same for her. There is a little apprehension always in the back of your head deep down where people do not see. This is normal. Do not panic. We all
G'day my ms family. How are YOU today? No, how are YOU really? I know I do not tell my wife every little thing and I know it works the same for her. There is a little apprehension always in the back of your head deep down where people do not see. This is normal. Do not panic. We all
RoyceNewton
in
My MSAA Community
1 year ago
Advice desperately needed please
Has anybody who can only take Zentiva hydroxychloroquine been offered IPCA Hydroxychloroquine? Has it same make up as Quinoric or bristol laborotories? If you have did you tolerate it ok please. As yet again cannot get Zentiva!! I find it so frustrating, that I am now in tears over it, any info very
Has anybody who can only take Zentiva hydroxychloroquine been offered IPCA Hydroxychloroquine? Has it same make up as Quinoric or bristol laborotories? If you have did you tolerate it ok please. As yet again cannot get Zentiva!! I find it so frustrating, that I am now in tears over it, any info very
Poshcards
in
LUpus Patients Understanding and Support
1 year ago
Vitamin B research webinar
Yesterday 15.11.23 there was such a very informative Glaucoma UK webinar. For anyone who missed it luckily it will be available on Glaucoma UK' You tube' in a few weeks. Prof. Guss Gazzard gave such a good, clear explanation of this disease, and included the pros and cons of his Vitamin B research
Yesterday 15.11.23 there was such a very informative Glaucoma UK webinar. For anyone who missed it luckily it will be available on Glaucoma UK' You tube' in a few weeks. Prof. Guss Gazzard gave such a good, clear explanation of this disease, and included the pros and cons of his Vitamin B research
muddledme
in
Glaucoma UK
9 months ago
anxiety over having no anxiety
hi everyone, i have previously shared on here that i suffer from extreme anxiety everyday. i was on 40 mg of prozac but my doctor moved it up to 80mg. i’m also on buspar 5mg. and i know these medications help me stop feeling anxious. but i keep on getting scared because i have moments of complete peace
hi everyone, i have previously shared on here that i suffer from extreme anxiety everyday. i was on 40 mg of prozac but my doctor moved it up to 80mg. i’m also on buspar 5mg. and i know these medications help me stop feeling anxious. but i keep on getting scared because i have moments of complete peace
augustine02
in
Anxiety and Depression Support
7 months ago
Fatty Liver
Hello everyone. A haematologist rang me yesterday and said I have a macrocytosis with no anaemia. My red blood cells are too large. She wants further blood tests and a liver scan. She mentioned fatty liver. I am concerned as I already have a liver enzyme not working now this. Appreciate any help. Thanks
Hello everyone. A haematologist rang me yesterday and said I have a macrocytosis with no anaemia. My red blood cells are too large. She wants further blood tests and a liver scan. She mentioned fatty liver. I am concerned as I already have a liver enzyme not working now this. Appreciate any help. Thanks
Meerkat1234
in
Thyroid UK
1 year ago
Sleeping Aids
Hi all Does anyone have any good sleep aid tablets to recommend that are ok to take whilst on Levothyroxine . My sleep is terrible and my doctor wont help. massive thanks
Hi all Does anyone have any good sleep aid tablets to recommend that are ok to take whilst on Levothyroxine . My sleep is terrible and my doctor wont help. massive thanks
Gyp101
in
Thyroid UK
1 year ago
waking up in a panic
Does anybody else wake up from sleep just overwhelmed with anxiety and negative thoughts? I wake up feeling like this every day I start off in a panic and I’d really like for it to stop now. If you have any suggestions or ideas that might be helpful on how to reduce the morning panic attacks and anxiety
Does anybody else wake up from sleep just overwhelmed with anxiety and negative thoughts? I wake up feeling like this every day I start off in a panic and I’d really like for it to stop now. If you have any suggestions or ideas that might be helpful on how to reduce the morning panic attacks and anxiety
Notsosadanymore
in
Anxiety and Depression Support
7 months ago
fertility supplements
hello ladies, I am 40 plus and undergoing ivf treatment. I had one cycle of failed ivf/ ICSI and have been taking pregnacare conception multivitamins plus omega 3,6,9 and vitabiotics vitamin d daily. Could you please guide on other supplements to support egg quality. My Amy is low and have low egg
hello ladies, I am 40 plus and undergoing ivf treatment. I had one cycle of failed ivf/ ICSI and have been taking pregnacare conception multivitamins plus omega 3,6,9 and vitabiotics vitamin d daily. Could you please guide on other supplements to support egg quality. My Amy is low and have low egg
EatPrayLive
in
Fertility Network UK
9 months ago
PVCs with anxiety or anxiety with PVCs.
I am sooooooo tired of living with PVCs which flare up with my anxiety or wait did I just feel my heart flip flop and now I am anxious? Echo clear, blood pressure good, don't do caffine, well hydrated. Docs said once get your anxiety under control. Don't want to be on meds for pvcs. When I am so calm
I am sooooooo tired of living with PVCs which flare up with my anxiety or wait did I just feel my heart flip flop and now I am anxious? Echo clear, blood pressure good, don't do caffine, well hydrated. Docs said once get your anxiety under control. Don't want to be on meds for pvcs. When I am so calm
Peacely
in
Anxiety and Depression Support
7 months ago
feeling hopeless
my anxiety came back full force about 3 weeks ago. it comes in waves really bad. sometimes i’m okay, and then other times i terrify myself so much. it makes me feel disconnected from myself.. it’s so so so scary. it makes me feel like i want to just disappear. i started therapy this past monday & it
my anxiety came back full force about 3 weeks ago. it comes in waves really bad. sometimes i’m okay, and then other times i terrify myself so much. it makes me feel disconnected from myself.. it’s so so so scary. it makes me feel like i want to just disappear. i started therapy this past monday & it
augustine02
in
Anxiety and Depression Support
7 months ago
hello darkness
I come now feeling depressed and defeated. I feel mostly sad than mad. I am angry about life. I had enough of people breaking my heart, by leaving me to start their new life as an adult. I am hurting deeply. Just as a background about me, I have high functioning autism, bipolar 2, and have suicidal thoughts
I come now feeling depressed and defeated. I feel mostly sad than mad. I am angry about life. I had enough of people breaking my heart, by leaving me to start their new life as an adult. I am hurting deeply. Just as a background about me, I have high functioning autism, bipolar 2, and have suicidal thoughts
KingkittyS
in
Anxiety and Depression Support
1 year ago
Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
1 year ago
Dry skin
I have PBC and started ursodiol in August 2022. It’s in the early stages and my liver enzymes are now normal. But my skin is extremely dry, what do I do? I’m going to ask the specialist but I was wondering if anyone else has this issue. I’ve tried many different lotions and take vitamins but still very
I have PBC and started ursodiol in August 2022. It’s in the early stages and my liver enzymes are now normal. But my skin is extremely dry, what do I do? I’m going to ask the specialist but I was wondering if anyone else has this issue. I’ve tried many different lotions and take vitamins but still very
Chase2022
in
PBCers Organization
1 year ago
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