Search
Search
About
Log in
Join
Experiences with
Sialic acid storage disorders
Posts
Communities
15,912 public posts
Filter results
I want to help if I can
I have be dx in1986 w/ RRMS, I had be misdiagnosed approximately 5 times, one of the Dr.s telling me to quit my job in a jail because I was a woman. Long story short I went completely paralyzed and in a rehab for approximately 6 weeks. I learned to walk, talk, adl, etc until my release when I went
I have be dx in1986 w/ RRMS, I had be misdiagnosed approximately 5 times, one of the Dr.s telling me to quit my job in a jail because I was a woman. Long story short I went completely paralyzed and in a rehab for approximately 6 weeks. I learned to walk, talk, adl, etc until my release when I went
BlondiePink
in
My MSAA Community
8 months ago
Looking for advice, yet again, please.
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
Mulberry100
in
Restless Legs Syndrome
9 months ago
Osteoporosis treatment
I have recently been diagnosed with PBC and am taking 1000mg ursodeoxycholic acid daily. I just had a routine bone density done and it resulted that I have osteopenia in my hips and osteoporosis in my spine. Doctor prescribed 2 Osteocare daily plus Bisphosphonate Acid once I have a bill of good dental
I have recently been diagnosed with PBC and am taking 1000mg ursodeoxycholic acid daily. I just had a routine bone density done and it resulted that I have osteopenia in my hips and osteoporosis in my spine. Doctor prescribed 2 Osteocare daily plus Bisphosphonate Acid once I have a bill of good dental
Dora57
in
PBC Foundation
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Restless Legs Syndrome
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
Longwaytoofar
in
Restless Legs Syndrome
10 months ago
This New Year's Eve is Weird!!!
I plan to have a party somehow for 2024 going into 2025 because this one SUCKS A**!! Ok, so I am alive and breathing, I have a roof over my head and food to eat so by goodness I am thankful 🙏🏽🙏🏽, buttt.... because I'm in a trauma filled situation mentally and financially, this day ain't it!! I remember
I plan to have a party somehow for 2024 going into 2025 because this one SUCKS A**!! Ok, so I am alive and breathing, I have a roof over my head and food to eat so by goodness I am thankful 🙏🏽🙏🏽, buttt.... because I'm in a trauma filled situation mentally and financially, this day ain't it!! I remember
Cat_cat44
in
Anxiety and Depression Support
6 months ago
Weight gain and osteoporosis
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
Raga72
in
PMRGCAuk
10 months ago
I figured out how to tolerate antibiotics (trimethoprim in this case) without huge neuropathic pain flare!! (for real this time!)
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
Whoa182
in
Pernicious Anaemia Society
10 months ago
TRT anyone?
I was Dx Gleason 8 (4+4) 2015 at 70 years old; had IMRT (25 sessions) & seeds early 2016; shortly after PSA went to .44, but progressively increased to 1.95 by Jan 16 2018; then started dropping: Feb 26 was 1.3, Apr 2 was 1.18, then July 2 it dropped to 0.83. by 11/29/19 0.11 PSA 6/2/20 0.06 8/31
I was Dx Gleason 8 (4+4) 2015 at 70 years old; had IMRT (25 sessions) & seeds early 2016; shortly after PSA went to .44, but progressively increased to 1.95 by Jan 16 2018; then started dropping: Feb 26 was 1.3, Apr 2 was 1.18, then July 2 it dropped to 0.83. by 11/29/19 0.11 PSA 6/2/20 0.06 8/31
900312611
in
Advanced Prostate Cancer
1 year ago
(Very) Irregular Periods Post Recovery
Hello, I wanted to ask if anyone in this community experienced persistent menstrual dysfunction following recovery from anorexia? For some background, I had anorexia from ages 11 - 18. I reached the menarche (had my first period) at 17, following weight restoration. My eating patterns and BMI have
Hello, I wanted to ask if anyone in this community experienced persistent menstrual dysfunction following recovery from anorexia? For some background, I had anorexia from ages 11 - 18. I reached the menarche (had my first period) at 17, following weight restoration. My eating patterns and BMI have
Capybara571
in
Talk ED (eating disorders)
8 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
5 months ago
Awful day
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
MrsPaddingtonBear
in
Endometriosis UK
10 months ago
The Endotoxin Hypothesis of Parkinson's Disease
Abstract:
The endotoxin hypothesis of Parkinson's disease (PD) is the idea that lipopolysaccharide (LPS) endotoxins contribute to the pathogenesis of this disorder. LPS endotoxins are found in, and released from, the outer membrane of Gram-negative bacteria, for example in the gut. It is proposed
Abstract:
The endotoxin hypothesis of Parkinson's disease (PD) is the idea that lipopolysaccharide (LPS) endotoxins contribute to the pathogenesis of this disorder. LPS endotoxins are found in, and released from, the outer membrane of Gram-negative bacteria, for example in the gut. It is proposed
Bolt_Upright
in
Cure Parkinson's
8 months ago
Has anyone here gotten weight restored on their own without going to a nutritionist or eating disorder center?
I have anorexia nervosa and I have been to several treatment centers and seen several nutritionists in my life. They have never helped me as far as yes they help me gain the weight but then I don't end up getting my mind changed any even with all the psychotherapy so it ends up doing me no good. What
I have anorexia nervosa and I have been to several treatment centers and seen several nutritionists in my life. They have never helped me as far as yes they help me gain the weight but then I don't end up getting my mind changed any even with all the psychotherapy so it ends up doing me no good. What
Hidden
in
Talk ED (eating disorders)
8 months ago
Risedronate Update
Having had a long break after stopping Alendronic Acid, I started Risedronate on 2nd June 23. For the first few weeks I was fine. No noticeable side effects. (After the terrible time with AA you can appreciate I was overjoyed.) However about 3 weeks ago the same symptoms started creeping back.
Having had a long break after stopping Alendronic Acid, I started Risedronate on 2nd June 23. For the first few weeks I was fine. No noticeable side effects. (After the terrible time with AA you can appreciate I was overjoyed.) However about 3 weeks ago the same symptoms started creeping back.
Calamintha
in
Bone Health and Osteoporosis UK
10 months ago
Obeticholic Acid..weight gain
Has anyone noticed weight gain or not being able to lose weight since taking Ocaliva (Obeticholic Acid) please?
Has anyone noticed weight gain or not being able to lose weight since taking Ocaliva (Obeticholic Acid) please?
Oludeniz2017
in
British Liver Trust
10 months ago
Has anyone recovered from anorexia on their own meaning at home without going inpatient or without seeing a dietitian?
I was hoping somebody here has recovered from anorexia and done it on their own without having been in a treatment center or having a nutritionist tell them how to gain weight. I was severely underweight a few years ago and I gained the weight on my own without any nutritionist and I did wonderfully
I was hoping somebody here has recovered from anorexia and done it on their own without having been in a treatment center or having a nutritionist tell them how to gain weight. I was severely underweight a few years ago and I gained the weight on my own without any nutritionist and I did wonderfully
Hidden
in
Talk ED (eating disorders)
8 months ago
Is there anyone who would like to mentor a struggling anorexic - me?
I am looking for somebody who can help me be a inspiration and be a mentor to me for my anorexia. I have had this disease for now for over 20 years and I've had all the experts, drs, counselors, and inpatient treatment programs that you can get. They never helped do anything with my mind, they only got
I am looking for somebody who can help me be a inspiration and be a mentor to me for my anorexia. I have had this disease for now for over 20 years and I've had all the experts, drs, counselors, and inpatient treatment programs that you can get. They never helped do anything with my mind, they only got
Hidden
in
Talk ED (eating disorders)
8 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
5 months ago
Prepping for Round 2
Hello ladies! I’m planning to start a second IVF cycle in January (when I’ll turn age 40!) and feeling hopeful. First cycle was BFN with short protocol so we are trying long protocol this time with Nafarelin (Synarel) nasal spray and Menopur. Has anyone had luck with this combo? Also we had the option
Hello ladies! I’m planning to start a second IVF cycle in January (when I’ll turn age 40!) and feeling hopeful. First cycle was BFN with short protocol so we are trying long protocol this time with Nafarelin (Synarel) nasal spray and Menopur. Has anyone had luck with this combo? Also we had the option
Newbeginnings24
in
Fertility Network UK
6 months ago
New to group and a survivor with encouragement!
Hello all, I just wanted to introduce myself to the group. I'm a 20 year survivor of postpartum psychosis in the USA. I found this group through Postpartum Support International and I'm so glad I did. I have never actually spoken to another survivor of PP until I got here, just because I've never
Hello all, I just wanted to introduce myself to the group. I'm a 20 year survivor of postpartum psychosis in the USA. I found this group through Postpartum Support International and I'm so glad I did. I have never actually spoken to another survivor of PP until I got here, just because I've never
Survivedwithcolor
in
Action on Postpartum Psychosis
6 months ago
1
...
23
24
25
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Anxiety and Depression Support
3596 results
Anxiety Support
2542 results
Thyroid UK
779 results
View top 10 communities
Sort by
Most Relevant
Newest